{"title":"\"You've only got one chance to get it right\": children's cancer nurses' experiences of providing palliative care in the acute hospital setting.","authors":"Helen Nina Pearson","doi":"10.3109/01460862.2013.797520","DOIUrl":"https://doi.org/10.3109/01460862.2013.797520","url":null,"abstract":"<p><p>The aim of this study was to understand children's cancer nurses experiences of providing palliative care in the acute hospital setting. Palliative care for children with cancer is rarely hospital- centred and predominately care is provided in the community or hospice setting. Vast research has looked at the experiences of children's nurses providing palliative care within the child's home environment or the hospice. This research has suggested that nurses need adequate support to avoid stress and burnout. Parental views focus on the nurses attributes as opposed to the clinical skills which are required. This research study wanted to ascertain whether specific educational preparation or support is needed to prepare children's cancer nurses in providing palliative care in the acute hospital setting. The research study used a qualitative approach with semi-structured in-depth interviews across three primary treatment centers within the United Kingdom that provide cancer care to children. Data were collected and analyzed using a phenomenological approach. Data were collected between October 2011 and February 2012. Interviews took place in the participants preferred location and lasted between 45 and 60 min. Data were analyzed using the Strauss and Corbin method. Five themes emerged which were \"lack of a plan\", \"managing the symptoms\", 'family\", and \"experience\". Categories within these themes were devised from participant narratives. The findings of this research study suggest nurses need specific palliative care education not only at pre-registration level but also continuing professional development.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 3","pages":"188-211"},"PeriodicalIF":0.0,"publicationDate":"2013-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.797520","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31591571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Book Review: How to Write your Dissertation","authors":"G. Mountain","doi":"10.3109/01460862.2013.778729","DOIUrl":"https://doi.org/10.3109/01460862.2013.778729","url":null,"abstract":"","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1","pages":"170 - 171"},"PeriodicalIF":0.0,"publicationDate":"2013-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.778729","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69565547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The South Asian culture and palliative care for children, young people, and families--a discussion paper.","authors":"Erica Brown, Reena Patel, Jasveer Kaur, Jane Coad","doi":"10.3109/01460862.2013.787131","DOIUrl":"https://doi.org/10.3109/01460862.2013.787131","url":null,"abstract":"<p><p>A fundamental element of quality healthcare is that provision is accessible to all users and culturally sensitive to them. However, there is evidence to suggest that there is inequity of provision across all cultures. Furthermore, there is a paucity of published research in the United Kingdom concerning palliative care for minority ethnic families with a life-threatened or life-limited child or young person. The article sets out to discuss the findings of a literature review and, drawing on current work by the Centre for Children and Families Applied Research at Coventry University under the leadership of Professor Jane Coad, to explore the interface between South Asian cultures and the experience of palliative care services of children, young peoples, and families. All families require a broad range of services which are appropriately delivered and accessible throughout the trajectory of their child's illness. The literature review findings reveal that how families understand concepts such as health and disease arise from the complex interaction between personal experience and cultural lifestyle including language, family values, and faith. There is an urgent need to involve South Asian families in research in order to provide a robust evidence-base on which to develop service provision so that care is matched to the unique needs of individuals concerned.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"120-43"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.787131","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31489001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christopher J Gale, Elizabeth R Cluett, Cathy Laver-Bradbury
{"title":"A review of the father-child relationship in the development and maintenance of adolescent anorexia and bulimia nervosa.","authors":"Christopher J Gale, Elizabeth R Cluett, Cathy Laver-Bradbury","doi":"10.3109/01460862.2013.779764","DOIUrl":"https://doi.org/10.3109/01460862.2013.779764","url":null,"abstract":"<p><p>There are disproportionately fewer studies examining the role of the father in the development of child and adolescent psychopathology. This is pertinent in the field of eating disorders, where there is a wealth of research related to family influences and the value of family-based interventions. This article reviews the key themes within the literature around the potential impact of the father-child relationship on the development and maintenance of Anorexia and Bulimia Nervosa in young people. The critical review searched relevant health and social care databases, as well as manually searching key journals in the eating disorder field. In these results, 13 studies met the inclusion/exclusion criteria and were critiqued, with 8 being taken forward for discussion. The 8 studies identified key themes within the relationship of the father and child (particularly daughters) around conflict and communication, parental protection and psychological control, emotional regulation and self-esteem, and self-perfectionism. All of these factors appear to influence the child's level of self-determining autonomy, which in turn can impact maladaptive eating attitudes and psychopathology. Tentative recommendations are made around working with fathers to encourage free expression of ideas and foster a sense of autonomy through compromise and collaboration with their adolescent child. Further research around these themes in relation to other family members is also suggested.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"48-69"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.779764","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31367434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A consensus for change: parent and professional perspectives on care for children at the end-of-life.","authors":"Jayne Price, Joanne Jordan, Lindsay Prior","doi":"10.3109/01460862.2013.779765","DOIUrl":"https://doi.org/10.3109/01460862.2013.779765","url":null,"abstract":"<p><p>The objective of this study was to investigate health and social care professionals' perspectives on developing services for children with life limiting conditions at the end-of-life using issues identified by bereaved parents as priorities. The study adopted qualitative methodology using nominal group technique in focus groups (n = 5) to collect data from 35 health and social care professionals. Six issues were identified across professional groupings as particularly challenging within the context of caring for children at the end-of-life: truth telling; symptom management; communication with, and relationships between families and professionals; emotional impact, the withdrawal of feeding or treatment and sibling support. Strong resonance was noted between professionals and parents in the emphasis placed on issues related to talking about death (to child and siblings) and decision-making about the withdrawal of treatment. Conversely, late referral to hospice care and lack of services in the community dominated accounts of parents whose children had non malignant conditions, but were not prioritized by professionals. Although the latter focused on the need for and challenges associated with optimizing symptom management, most parents viewed symptom control as highly effective. Caring for a dying child is a multidimensional experience for both parents and professionals. Convergence of thinking carries three main implications for service development. Firstly, the need for \"joined up\" palliative care services, particularly concerning timely referral to the range of support services. Secondly, more structured bereavement services. Third, within an ethos of family centered care, needs of siblings should be addressed effectively.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"70-87"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.779765","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31369780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring adolescent views of body image: the influence of media.","authors":"Shelley Spurr, Lois Berry, Keith Walker","doi":"10.3109/01460862.2013.776145","DOIUrl":"https://doi.org/10.3109/01460862.2013.776145","url":null,"abstract":"<p><p>The purpose of this article is to present findings from two parallel qualitative studies that used focus groups to explore adolescent views of psychological wellness and healthy bodies. Nine focus groups were held with 46 adolescents aged 16-19 years from two Mid-Western Canadian high schools. Both studies were designed with an interpretive humanist perspective and then a 6-step thematic approach was used to analyze the data. Common themes emerging in the focus group discussions in both studies included the negative impact of media on adolescent body image and pressure to conform to the Western views of physical appearance. These findings illustrate the need for nurses to understand the influence of the media on adolescents' views of their body image and to incorporate protocols for assessment, education, and counseling of adolescents on the healthy usage of media into their pediatric clinical practice. Through consistent participation in the development and implementation of health policies, nurses play a critical role in supporting adolescents to develop healthy views of body image.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"17-36"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.776145","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31369781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The management of type 1 diabetes in primary school: review of the literature.","authors":"Anne Marks, Valerie Wilson, Jackie Crisp","doi":"10.3109/01460862.2013.782079","DOIUrl":"https://doi.org/10.3109/01460862.2013.782079","url":null,"abstract":"<p><p>Type 1 diabetes is one of the most common chronic health conditions in childhood. The introduction of intensive insulin therapy and the rising prevalence of diabetes in younger children has increased the need for involvement of diabetes educators and school personnel in school diabetes care. School encompasses a significant proportion of a child's day, therefore diabetes treatment at school needs to be optimal or the child will have poor metabolic control. The aim of this literature review is to examine diabetes management in the early primary school setting. The main areas of diabetes management explored are: type, provision, and location of treatment, the impact on the child, and the role of the credentialed diabetes educator. The review identifies that the majority of children are not receiving intensive diabetes treatment at school. Younger children require more assistance with care and may be disadvantaged due to lack of appropriate school staff support. Most schools do not have nurses to assist with diabetes care, therefore teaching and administration staff are utilized. The use of insulin pump therapy may increase access to insulin at school, as children and teaching staff appear more confident with this method of delivery than injections. Treatment is frequently performed away from the classroom and can impact on class attendance, metabolic control, and emergencies. Diabetes educators need to work in collaboration with children, parents, and school personnel to ensure diabetes care is fully integrated into the school day.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"98-119"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.782079","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31367436","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pediatric nursing in Italy: struggling to survive.","authors":"Filippo Festini","doi":"10.3109/01460862.2013.779766","DOIUrl":"https://doi.org/10.3109/01460862.2013.779766","url":null,"abstract":"<p><p>In Italy the regulatory framework of the nursing professions presents critical aspects. While a Children Nurse cannot provide care to an adult, a newly graduated General Nurse can legally be assigned to a Neonatal Intensive Care Unit without having ever touched a newborn before. Italian general hospitals with pediatric departments almost always prefer to hire General Nurses rather than Children Nurses, because the former, albeit insufficiently prepared, make staff management easier for nursing directors. Italian Children Nurses are not only penalized by this situation, but also by the public's lack of interest in the specific wellbeing and health needs of children. In addition, they must defend themselves from a part of the Italian nursing leadership, which periodically tries to eliminate the pediatric nursing profession. In an environment that is essentially hostile to Children Nurses, the young who decide nonetheless to take up this profession have very strong and enduring motivations.</p>","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"36 1-2","pages":"88-97"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2013.779766","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31369779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}