Women's health (London, England)最新文献

{"title":"Studying gender in the experiences of patients with heart failure: A scoping review of qualitative studies and methodological recommendations.","authors":"Elias Thomas, Petra Verdonk, Jeanine Roeters-van Lennep, Hanneke Rhodius-Meester, Louis Handoko, Linda Schoonmade, Majon Muller, Maaike Muntinga","doi":"10.1177/17455057241305078","DOIUrl":"10.1177/17455057241305078","url":null,"abstract":"<p><strong>Background: </strong>Considering how gendered experiences play a role in the lives of patients with heart failure (HF) is critical in order to understand their experiences, optimise clinical care and reduce health inequalities.</p><p><strong>Objectives: </strong>The aim of our study was to review how gender is being studied in qualitative research in HF, specifically to (1) analyse how gender is conceptualised and applied in qualitative HF research; and (2) identify methodological opportunities to better understand the gendered experiences of patients with HF.</p><p><strong>Eligibility criteria: </strong>We conducted a systematic search of literature, including qualitive or mixed-methods articles focussing on patients' perspectives in HF and using gender as a primary analytical factor, excluding articles published before 2000.</p><p><strong>Sources of evidence: </strong>Our search returned 3121 records, which were independently screened by two authors, resolving disagreements through a consensus procedure.</p><p><strong>Charting methods: </strong>Two reviewers extracted the characteristics of the included studies and methodological quality. We applied the <i>Integrating Sex and Gender Checklist</i> and gender theory as an analytical tool to synthesise results relating to the conceptualisation and application of gender in the included studies.</p><p><strong>Results: </strong>We included 11 qualitative articles that used interviews (<i>n</i> = 10) or focus groups (<i>n</i> = 1) to investigate the role of gender in experiences of patients with HF. None of the included studies defined their conceptual approach to gender, or used gender-related theoretical frameworks. This led to results and conclusions which were drawn along binary lines - representing gender as two separate, oppositional and mutually exclusive categories, and paying little attention to the dynamic, relational and context-dependent aspects of gender.</p><p><strong>Conclusions: </strong>Although researchers have investigated the role of gender in the experiences of patient with HF, methodological improvements are needed to prevent the current retelling of gender as a binary variable with two opposed and mutually exclusive categories. To better understand gendered experiences in HF, researchers need to avoid a reductionist and essentialist approach to gender. To this end, researchers should clearly state their conceptual approach to gender and analyse their findings using state-of-the-art gender theoretical frameworks and intersectional approaches. Ultimately, this will allow the development of tailored and effective clinical care.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057241305078"},"PeriodicalIF":2.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11783506/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Informed choices for some, but not for others: An exploration of Australian midlife women's participation in mammography screening by social class.","authors":"Samantha Batchelor, Belinda Lunnay, Sara Macdonald, Paul R Ward","doi":"10.1177/17455057241305730","DOIUrl":"10.1177/17455057241305730","url":null,"abstract":"<p><strong>Background: </strong>Population-level mammography screening for early detection of breast cancer is a secondary prevention measure well-embedded in developed countries, and the implications for women's health are widely researched. From a public health perspective, efforts have focused on why mammography screening rates remain below the 70% screening rate required for effective population-level screening. From a sociological perspective, debates centre on whether 'informed choice' regarding screening exists for all women and the overemphasis on screening benefits, at the cost of not highlighting the potential harms. We dovetail these disciplinary agendas to contextualise the factors that impact mammography screening choices, interpreting screening status through a social class lens.</p><p><strong>Objective: </strong>To understand how social class impacts informed choice-making among midlife women (45-64 years), regarding (non) participation in mammography screening.</p><p><strong>Design: </strong>A qualitative study using semi-structured interviews.</p><p><strong>Methods: </strong>We interviewed 36 Australian midlife women from differing social class groups who were 'screeners' or 'non-screeners'. We conducted a theory-informed thematic analysis and used Bourdieu's relational social class theory to consider how women's access to social, cultural and economic capital influenced their screening identities. We conducted matrix and crosstab queries across themes to identify patterns by social class. We extend the findings from Friedman's study of women's screening perspectives as 'attentional' types utilising the 'sociology of attention'.</p><p><strong>Results: </strong>Our results map to Friedman's four 'attentional' types (default or conscious interventionists, conflicted or conscious sceptics), and we show how social class impacts women's attention to screening and participation. We show for middle-class women screening is a 'given', they align closely with normative screening expectations. Working-class women who screen, do so out of a sense of compliance. Affluent non-screeners make informed choices, while working-class women are more passive in their non-screening choices, being a group that sits outside of Friedman's four attentional types.</p><p><strong>Conclusion: </strong>Current approaches to screening communication and programme delivery can be improved by tailoring approaches to reflect the impacts of social class in shaping women's 'choices'. Subsequently, equitable breast cancer prevention may be afforded, which impacts positively on population-level screening rates.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057241305730"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11742167/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143018007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Examining acquired brain injury-associated symptoms and fluid-based biomarkers in females surviving intimate partner violence: An observational pilot study protocol.","authors":"Michelle Patch, Allison Jacobi-Dorbeck, Tamar Rodney, Gabor Kelen, Jacquelyn C Campbell, Leah H Rubin, Chelsea Wagner, Nancy Perrin, Jessica Gill","doi":"10.1177/17455057251320717","DOIUrl":"10.1177/17455057251320717","url":null,"abstract":"<p><strong>Background: </strong>Acquired brain injury (ABI), including traumatic brain injury and hypoxic/anoxic injury, presents significant public health concerns; however, existing literature has focused primarily on male populations, such as military personnel and contact sports participants. Sex-related differences in ABI outcomes necessitate focused research due to potential heightened risk and distinct physiological responses among females.</p><p><strong>Objectives: </strong>This pilot study aims to explore fluid-based biomarkers for neurological injury and inflammation in females experiencing intimate partner violence (IPV)-related assaults to the head, neck, or face. It seeks to assess the feasibility and acceptability of non-invasive sweat patch collection for biomarker analysis and its association with post-injury symptoms.</p><p><strong>Design: </strong>This study will be a prospective longitudinal observational pilot study involving approximately 50 participants recruited from two mid-Atlantic-based hospital emergency departments.</p><p><strong>Methods and analysis: </strong>Participants will undergo clinical interviews, provide blood and sweat samples, and complete questionnaires assessing ABI history, IPV-related symptoms, cognitive function, psychological well-being, and sweat patch acceptability, across three study visits. Screening procedures will identify eligible participants, followed by consent procedures, biosample collection, brain injury and IPV history survey administration, symptom and cognitive function instrument administration, and acute medical record data collection. Analyses will include random effects regression, product moment correlations, and descriptive statistics.</p><p><strong>Ethics: </strong>Participants will be informed about the study's purpose, procedures, and potential risks before providing consent. Compensation will be provided for participation, with withdrawal options available. Ethical considerations include ensuring participant confidentiality and addressing psychological disorders beyond exclusion criteria.</p><p><strong>Discussion: </strong>Understanding fluid-based biomarkers in IPV-related ABI can inform interdisciplinary interventions and precision care models. Findings may facilitate early detection, treatment, and safety planning for affected females, emphasizing the importance of tailored, accessible care for this vulnerable population. Future research should focus on translating these findings into evidence-based practice to improve outcomes for women with ABI, particularly those resulting from IPV.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251320717"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11905024/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143607502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ovarian carcinoma and peritoneal tuberculosis: A rare coexistence with challenging diagnosis, a case report and literature review.","authors":"Sabrine Boukhris, Eya Rahmouni, Racha Ben Romdhane, Houyem Mansouri, Samia Ben Hssine, Najet Mahjoub, Ines Zemni, Leila Achouri","doi":"10.1177/17455057251342358","DOIUrl":"10.1177/17455057251342358","url":null,"abstract":"<p><p>Peritoneal tuberculosis is one of the most challenging forms of extrapulmonary tuberculosis to diagnose, especially, in women as it often mimics an advanced ovarian carcinoma. Many authors had documented cases where peritoneal tuberculosis was initially misdiagnosed as advanced ovarian carcinoma, but only four cases had reported the coexistence of both conditions. We present the fifth case in the literature of concurrent peritoneal tuberculosis and serous cystadenocarcinoma of the ovary. A 61-year-old female patient presented with diffuse abdominal tenderness. Physical examination revealed an abdominal distension. Computed tomography scan showed a heterogeneous, poorly defined right latero-uterine mass associated with ascites and nodular peritoneal infiltration. The level of cancer antigen 125 was elevated. Therefore, a diagnosis of advanced ovarian carcinoma was highly suspected. A diagnostic laparoscopy was performed. Peritoneal biopsy confirmed the diagnosis of peritoneal tuberculosis without any histological evidence of malignancy. The patient subsequently underwent a right adnexectomy, which revealed serous cystadenocarcinoma of the ovary. She received 6 months of antituberculosis treatment complicated with renal dysfunction. Computed tomography scan control showed no abnormalities. Tumor markers levels decreased to the normal range. The patient refused further surgery and chemotherapy was recommended. Female patients presenting with ascites, adnexal masses, and elevated levels of cancer antigen 125 are usually presumed to have advanced ovarian carcinoma. There are a few discriminating features that suggest the diagnosis of peritoneal tuberculosis rather than peritoneal carcinomatosis of an advanced ovarian carcinoma. Eventually, their coexistence should be considered as a differential diagnosis, particularly in developing countries where tuberculosis is still endemic as it is the case of Tunisia.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251342358"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12144375/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144227917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring innovative models of doula services in maternity care: A qualitative study on advancing equity and addressing disparities.","authors":"Grace Mabiala-Maye, Kayode Olabanji, Keyonna M King, Shannon Maloney, Chad Abresch","doi":"10.1177/17455057251345574","DOIUrl":"10.1177/17455057251345574","url":null,"abstract":"<p><strong>Background: </strong>Maternal and infant health disparities remain a persistent public health issue in the United States, disproportionately affecting systematically marginalized communities. While doulas have been shown to improve birth outcomes and reduce inequities, their integration into maternity care systems remains limited.</p><p><strong>Objectives: </strong>This study aimed to explore the roles and challenges of different doula models, identify systemic barriers to their integration, and propose strategies for sustainable implementation.</p><p><strong>Design: </strong>A qualitative study using a phenomenological approach that adhered to the Consolidated Criteria for Reporting Qualitative Research guidelines.</p><p><strong>Methods: </strong>Using purposive and snowball sampling, 20 stakeholders, including doulas, healthcare providers, Medicaid specialists, and public health professionals, were recruited from Omaha, Nebraska, and Nashville, Tennessee. Semi-structured interviews were conducted in person and via Zoom, lasting between 30 and 90 min. Thematic analysis, supported by Dedoose software, was used to identify key themes related to doula integration, systemic barriers, and policy recommendations. Data credibility was reinforced through member-checking and an audit trail documenting coding decisions.</p><p><strong>Results: </strong>Three primary themes emerged: (1) Doula Types and Their Impact, private practice doulas offer individualized care but face financial barriers; hospital-based doulas improve communication but encounter institutional constraints; community-based doulas provide culturally competent care but struggle with sustainability. (2) Strategies for Sustainable Integration, hybrid models enhance continuity of care, public health partnerships support funding and advocacy, and advisory boards foster interdisciplinary collaboration. (3) Policy Recommendations, expanding Medicaid coverage, increasing equitable reimbursement rates, and establishing standardized doula training and certification to improve accessibility and professional recognition.</p><p><strong>Conclusion: </strong>Implementing policy reforms and fostering collaborative models can help optimize doula services and improve perinatal outcomes, particularly for systematically marginalized populations. Sustainable funding, standardized certification, and public health partnerships are essential for improving accessibility to doula care.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251345574"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12144344/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"At the crossroads: Intersectional approaches to women's health equity.","authors":"Zohra S Lassi, Jeannette M Wade, Edward Kwabena Ameyaw","doi":"10.1177/17455057251356890","DOIUrl":"10.1177/17455057251356890","url":null,"abstract":"<p><p>Global shifts in health policies have significantly affected access to reproductive healthcare services, with impacts varying greatly across different populations. Recent policy changes in various regions have included defunding reproductive health programs, promoting abstinence-only education, and restricting international non-government organizations from providing comprehensive reproductive healthcare services. These policies have led to clinic closures, reduced access to maternal and reproductive healthcare in low- and middle-income countries, and increased health inequities. While all low-income individuals may experience varying impacts, the consequences vary dramatically. In the case of undocumented immigrants, insurance options are already severely limited, while specialized care may be inaccessible for people with disabilities. These intersectional realities demonstrate how seemingly uniform policies produce radically different outcomes based on one's social position. Using the intersectional framework, this article examines how these impacts are magnified for women who experience multiple forms of marginalization and proposes actions for advocates, policymakers, and scholars to safeguard inclusive healthcare access for all women and birthing people.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251356890"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12254633/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144602519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Contraceptive access and use of long-acting reversible contraceptives during the COVID-19 pandemic and beyond.","authors":"Simone Crespi, M Janelle Cambron-Mellott, Candice Yong, Bridget L Balkaran","doi":"10.1177/17455057251351740","DOIUrl":"10.1177/17455057251351740","url":null,"abstract":"<p><strong>Background: </strong>Changes in access to healthcare services during the COVID-19 pandemic may have impacted individuals' access to contraceptive care, including long-acting reversible contraceptives (LARCs), which require ⩾1 visit for insertion and/or removal.</p><p><strong>Objectives: </strong>This study aimed to describe the utilization and accessibility of contraceptive services and contraceptive methods, including LARCs, during the COVID-19 pandemic and understand individuals' preferred approaches for accessing contraceptive care and prescriptions in the future.</p><p><strong>Design: </strong>Cross-sectional study.</p><p><strong>Methods: </strong>Quantitative data were collected from US individuals assigned females at birth at risk for pregnancy and seeking contraceptive methods for pregnancy prevention (aged 18-49 years) via an online survey fielded in 2022. Measures included: contraceptive methods used pre-pandemic, during the pandemic, current, and planned for the future; the impact of the pandemic on LARC insertions/removals; site of care for contraceptive counseling, prescribing, and filling across time periods.</p><p><strong>Results: </strong>Analyses included 1878 respondents; mean age = 30.8 years, 86.2% cisgender female; 64.5% non-Hispanic White. The most common forms of contraception used by respondents pre-pandemic, during, and currently were the pill (31.0% (95% confidence interval (CI): 29.0%-33.2%), 31.3% (29.2%-33.4%), 28.3% (26.3%-30.4%)), male condom (10.9% (9.5%-12.3%), 12.8% (11.4%-14.4%), 13.7% (12.2%-15.3%)), intrauterine device (IUD) (8.5% (7.3%-9.8%), 9.6% (8.3%-11.0%), 10.2% (8.9%-11.6%)), implant (4.9% (4.0%-5.9%), 4.2% (3.4%-5.2%), 4.6% (3.8%-5.7%)), shot (4.8% (3.9%-5.9%), 4.3% (3.5%-5.3%), 4.0% (3.2%-5.0%)), and withdrawal (3.9% (3.1%-4.9%), 4.2% (3.4%-5.2%), 6.0% (5.0%-7.1%)), respectively. The use of these methods was consistent across time periods. Of respondents who wanted a LARC inserted (<i>n</i> = 446) or removed (<i>n</i> = 104) during the pandemic, 38.3% and 37.5%, respectively, reported their insertion/removal was impacted by the pandemic (e.g., delayed, went to a different office, used a different healthcare provider). The proportion of respondents who planned to use in-person-only services for contraceptive care and remote-only services for filling prescriptions in the future was higher than before and during the pandemic.</p><p><strong>Conclusion: </strong>Despite the consistency in the contraceptive methods used across time periods, the COVID-19 pandemic affected the way in which individuals received contraceptive services, particularly those seeking LARC services, which require in-person visits for insertion and removal. As we move out of the pandemic, special care should be paid to ensuring prompt access to individuals' preferred choice of contraceptive services.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251351740"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12254639/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144602520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Risk factors for puerperal sepsis among postpartum women attending public hospitals in the Dawro Zone, Southwest Ethiopia: Unmatched case‒control study.","authors":"Temesgen Sebro Balilo, Tsegaye Alemu, Tamirat Gezahegn Guyo, Tarekegn Solomon","doi":"10.1177/17455057251355366","DOIUrl":"10.1177/17455057251355366","url":null,"abstract":"<p><strong>Background: </strong>Puerperal sepsis is a severe bacterial infection that occurs in women between the beginning of labor or rupture of the membrane and the 42^nd day following birth. In Ethiopia, it is the fourth leading cause of maternal death, accounting for 14.7% of pregnancy-related deaths. The risk factors for puerperal sepsis are not well understood in Ethiopia, particularly in southwestern Ethiopia.</p><p><strong>Objectives: </strong>This study aimed to identify risk factors for puerperal sepsis among postpartum women at public hospitals in the Dawro Zone, Southwest Ethiopia.</p><p><strong>Design: </strong>A facility-based unmatched case-control study.</p><p><strong>Methods: </strong>From February 1 to April 30, 2023, 260 participants (65 cases and 195 controls) were included in the study. The cases were postpartum women who were diagnosed with puerperal sepsis, whereas the controls were postpartum women confirmed to be free from puerperal sepsis. Cases selected consecutively, and controls enrolled via systematic random sampling. Data were collected via an interviewer-administered questionnaire and medical records review. STATA version 17 was used for analysis. The associations between variables were analyzed via a binary logistic regression model. A <i>p</i> value <0.05 was considered statistically significant.</p><p><strong>Results: </strong>Rural residence (adjusted odds ratio (AOR): 3.62; 95% confidence interval (CI): 1.40, 9.33), no formal education (AOR: 4.40; 95% CI: 1.25, 15.49) compared with college or above, no antenatal care (ANC; AOR: 14.04; 95% CI: 4.56, 43.20) compared with three or more ANC visits, prolonged rupture of the membrane above 24 h (AOR: 9.51; 95% CI: 2.49, 36.35), home delivery (AOR: 3.06; 95% CI: 1.26, 7.49), ⩾5 vaginal examinations (AOR: 7.44; 95% CI: 2.77, 19.94), and cesarean section (AOR: 2.89; 95% CI: 1.13, 7.42) were significantly associated with the puerperal sepsis.</p><p><strong>Conclusions: </strong>Rural residence, lack of formal education, lack of ANC follow-up, prolonged rupture of membrane, home deliveries, frequent vaginal examinations, and cesarean section deliveries increase puerperal sepsis. Targeted intervention requires on modifiable risk factors such as ensuring at least on ANC, promoting institutional delivery, ensuring timely administration of appropriate antibiotics for prolonged rupture of membrane, avoiding unnecessary vaginal examinations and cesarean section.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251355366"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12254667/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144602522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Women with endometriosis: Experiences with pain management and views on optimal healthcare through the concept of health literacy.","authors":"Charlotte Kvåle, Miroslava Tokovska, Merete Kolberg Tennfjord","doi":"10.1177/17455057251347085","DOIUrl":"10.1177/17455057251347085","url":null,"abstract":"<p><strong>Background: </strong>Endometriosis is a chronic inflammatory disease, characterised by pain and potential fertility reduction, affecting 6%-10% of women. Pain management courses may promote self-care and enhance patient satisfaction. However, research into the experiences of participation in such courses are lacking.</p><p><strong>Objectives: </strong>The study aims to describe the experiences of Norwegian women with endometriosis after pain management course and their view on optimal healthcare through organisational and individual health literacy.</p><p><strong>Design: </strong>Qualitative study as part of a randomised controlled trial (NCT05091268).</p><p><strong>Methods: </strong>Semi-structured individual in-depth interviews were conducted between August and November 2023 with 19 women diagnosed with endometriosis, recruited from two University hospitals specialising in endometriosis care, through a patient organisation and social media, after participation in a multidisciplinary pain management course.</p><p><strong>Results: </strong>Reflexive thematic analysis yielded two main themes: (1) Insightful experiences with individual health literacy and (2) frustrating experiences with organisational health literacy. Participants reported a positive shift in their ability to self-manage endometriosis following the pain management course, demonstrating a progression from passive to active participation in their own care. The participants also expressed a strong and recurring need for enhanced dissemination of information, including a need for post-diagnosis educational courses, highlighting a demand for ongoing, interactive support tailored to their condition.</p><p><strong>Conclusion: </strong>A need emerges for improved dissemination of information, enhanced monitoring, and health expertise at an organisational level within the healthcare system. Thus, future health care services should aim to provide seamless, multidisciplinary treatment to improve patient satisfaction.</p><p><strong>Registration: </strong>Trial registry name: Effect of Physical Activity and Pain Education on Endometriosis-Associated Pain.</p><p><strong>Registration number: </strong>NCT05091268. URL: https://clinicaltrials.gov/study/NCT05091268.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251347085"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12280539/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144676739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empowering women at the heart of autosomal dominant polycystic kidney disease: Addressing unique challenges gender-sensitive approach.","authors":"Micaela Petrone, Francesca Tunesi, Martina Catania, Camilla Gerosa, Sara Farinone, Liliana Italia De Rosa, Kristiana Kola, Matteo Brambilla Pisoni, Paola Maiucchi, Paolo Manunta, Giuseppe Vezzoli, Maria Teresa Sciarrone Alibrandi","doi":"10.1177/17455057251345944","DOIUrl":"10.1177/17455057251345944","url":null,"abstract":"<p><p>Autosomal dominant polycystic kidney disease is a genetic disorder characterized by the progressive development of renal cysts, leading to end-stage renal disease in a significant proportion of affected individuals. While the disease affects both men and women, emerging evidence suggests that sex differences may influence the clinical presentation, progression, and response to treatment in autosomal dominant polycystic kidney disease patients. Based on our experience, women are diagnosed earlier and often experience more symptoms like chronic pain and microhematuria. However, disease progression tends to be slower. Hormonal therapy, controversial due to its impact on cyst growth, is important for contraception and conditions like polycystic ovary syndrome, endometriosis, and menopause. Copper intrauterine devices are the safest contraceptive option, while progestin-only methods are recommended for those who cannot take estrogen. This review aims to explore the implications of gender differences in autosomal dominant polycystic kidney disease, highlighting the need for personalized approaches to diagnosis, monitoring, and management. Emphasizing the integration of gender-based insights into clinical practice could ultimately lead to more tailored therapeutic strategies, improving patient outcomes in autosomal dominant polycystic kidney disease.</p>","PeriodicalId":75327,"journal":{"name":"Women's health (London, England)","volume":"21 ","pages":"17455057251345944"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12276517/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144669125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}