Dementia (London, England)最新文献

{"title":"Pilot of a multicomponent program for people with dementia and their care partners: Health services staff expectations, experiences and observations.","authors":"Nathan M D'Cunha, Georgina Chelberg, Helen Holloway, Lara Wiseman, Angie Fearon, Jane Kellett, Stephen Isbel, Kasia Bail, Ian Huang, Diane Gibson","doi":"10.1177/14713012251315527","DOIUrl":"https://doi.org/10.1177/14713012251315527","url":null,"abstract":"<p><p>There is increased recognition of the need to improve post-diagnostic pathways for people with dementia and their care partners living in the community to access rehabilitation services to support independence and wellbeing. However, there is minimal evidence on implementing rehabilitation services for this population. The study aimed to present the expectations and experiences of allied health staff involved in piloting the Sustainable Personalised Interventions for Cognition, Care and Engagement (SPICE) program based at an outpatient clinic of a public rehabilitation hospital. Over twelve weeks, the program combines small group and dyadic evidence-based interventions including cognitive stimulation therapy, occupational therapy, physical activity, care partner education, and dietetics. A qualitative exploratory methodology was used with pre- and post-program interviews conducted with ten allied health staff. Questions were designed to elicit the expected and actual benefits and challenges of the initial implementation of the multicomponent program. The multidisciplinary team were motivated by the potential for the SPICE program to meet an important service gap, and confident people with dementia and their care partners would benefit. Staff reported enjoyment, satisfaction, and confidence in delivering the program, and believed the multiple components had synergistic effects on participants, particularly regarding social connection and functional engagement. While staff had pre-program concerns regarding retention, participant fatigue, and managing challenging situations, these were not realised. At times, staff observed program intensity to cause unintended stress for some care partners. Resourcing and strategies to ensure sustainability were identified as important by staff, as well as the need for ongoing support to participants post-program. Overall, the SPICE program exceeded expectations and was rewarding for staff. Further work to refine and evaluate the program is necessary to support its potential to continue providing dementia rehabilitation to promote the independence and wellbeing of people with dementia and care partners living in the community.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251315527"},"PeriodicalIF":0.0,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143017364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Identity change metaphors in public blogs written by people living with dementia and their care partners.","authors":"Amber R M Graf, Cristina J Schwabe, Natalie L Freese, Anca M Miron","doi":"10.1177/14713012251315336","DOIUrl":"https://doi.org/10.1177/14713012251315336","url":null,"abstract":"<p><p>Dementia and the associated stigma pose unique threats to the identity of persons with dementia, triggering attempts to cope with resulting identity changes. We explore identity change narratives and metaphors written by people with dementia and care partners in public blog posts. These metaphors reflect bloggers' motivation to adapt, adjust, and cope with identity change and their motives to challenge common misunderstandings of dementia as a complete loss of selfhood. We used the Social Identity Model of Identity Change (SIMIC) as a guiding framework. We developed a dementia model of identity change and found that bloggers engage in three motivational processes to cope with identity threats. <i>Identity crisis</i> is characterized by becoming aware of the dementia symptoms and their implications for identity. <i>Identity stagnation</i> involves feelings of helplessness and lack of motivation for capitalizing on old or new identities. <i>Identity continuation and growth</i> involves active coping with identity changes by maintaining old identities and developing new identities. These processes are reflected in distinct metaphors (e.g., the \"going in circles\" metaphor is reflective of identity stagnation). We documented how persons living with dementia maintain past identities and develop new identities that are uniquely reflective of their interests, social connections, and family ties. For instance, old and new identities are anchored in meaningful places-a café, town, or nature spaces-and family members are integral to identity continuation and growth. Finally, we documented a <i>here-and-now identity,</i> which is valued and reinforced in the context of close relationships with others. The current work underscores the importance of considering the multitude of identities that make an individual with dementia a person and therefore advocates for more nuanced conceptualizations of the self-away from a tragedy discourse about a complete loss of identity in people living with dementia.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251315336"},"PeriodicalIF":0.0,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142985298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Graduate nurses caring for people living with dementia: A scoping review.","authors":"Jerric Jose, Elisabeth Jacob, Louise Alexander","doi":"10.1177/14713012251313489","DOIUrl":"https://doi.org/10.1177/14713012251313489","url":null,"abstract":"<p><strong>Background: </strong>Adequate dementia care knowledge of graduate nurses is essential for the wellbeing of both people living with dementia as well as the graduate nurses caring for them. Little is known about the dementia care knowledge, experience or confidence of graduate nurses caring for people living with dementia. This paper aims to review the available literature on graduate nurses caring for people living with dementia.</p><p><strong>Design: </strong>A scoping review of literature based on the Joanna Briggs Institute methodology for scoping reviews.</p><p><strong>Methods: </strong>From April 2023 to August 2023, searches were conducted in databases which included CINAHL, Medline, Embase, Web of Science, Scopus, Trove and Google search. All articles related to the question \"what literature is available on graduate nurses caring for people living with dementia\" published in English were included in this scoping review.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251313489"},"PeriodicalIF":0.0,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Carers and professionals' views on using virtual reality in dementia care: A qualitative study.","authors":"Heema Ajeet Gokani, Andrew Sommerlad, Hiba Jawharieh, Chee Siang Ang, Jonathan Huntley","doi":"10.1177/14713012241272786","DOIUrl":"10.1177/14713012241272786","url":null,"abstract":"<p><strong>Background and objectives: </strong>Virtual reality (VR) interventions provide immersive, interactive computer-simulated virtual environments. There is interest in their use for people with dementia as they may provide stimulating experiences and improve dementia symptoms and quality of life. However, as more insight is needed about carers' and clinical professionals' perspectives to understand how VR may be implemented successfully, we elicited their views on the benefits of, and challenges to, using VR in dementia care.</p><p><strong>Methods: </strong>We conducted five qualitative focus groups involving 25 healthcare professionals and informal carers with experience of dementia care. Participants received a demonstration of a VR headset and content and were then questioned following a topic guide asking for views on benefits of, and challenges to, using VR for dementia care.</p><p><strong>Findings: </strong>The main findings addressed the benefits of, and concerns about, the impact and implications of VR on wellbeing, ethics, implementation, caregivers and services. Overall, participants had a positive attitude toward VR and made several suggestions for its future use to enable enjoyable and immersive experiences. Examples included suggestions to personalise VR content to accommodate heterogenous profiles and stages of dementia, co-developing protocols to address health risks and side effects and further investigating shared experiences of VR with caregivers.</p><p><strong>Conclusion: </strong>Healthcare professionals and informal carers thought that VR had potential to enhance a holistic and personalised approach to dementia care. They suggested changes which could guide future implementation of VR interventions for dementia patients and their caregivers.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"71-90"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141910192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia.","authors":"Emerald Jenkins, Sarah Szanton, Erika Hornstein, Jenni Seale Reiff, Quinn Seau, Grace Huynh, Ja'Lynn Gray, Rhonda Smith Wright, Qiwei Li, Valerie Cotter, Samantha Curriero, Janiece Taylor","doi":"10.1177/14713012241272754","DOIUrl":"10.1177/14713012241272754","url":null,"abstract":"<p><p>Although co-occurring cognitive impairment and physical disability in older adults is common, there is little understanding of how this group perceives their ability to do their daily activities. This study used photovoice to explore how older adults with MCI/early dementia and physical disability without and with care partners (dyads) perceive challenges with their daily activities. Photovoice is a visual research methodology to capture participants' insight on aspects of their daily lives. No known studies have taken this approach to explore the experiences of older adults with MCI/early dementia and co-occurring physical disability. We used a cross-sectional, exploratory research design to understand participants' (<i>n</i> = 12) experiences in their home environment. Photos and participant thoughts on the photos were categorized based on the Blackfoot Breath of Life Theory and the Hierarchy Model of Needs in Dementia, an adaptation of Maslow's Model. Notable findings included: awareness of physical/cognitive difficulties by older adults, solutions for ADL difficulty in persons with MCI/early dementia, care partners' difficulty recognizing pain without the presence of severe emotional or physical responses, reducing mood severity, and self-esteem needs met with structured, memory-issue adapted, meaningful activities. Older adults with co-occurring physical disability and MCI/early dementia identified both physiological and psychological needs despite challenges impacting their cognition. Photovoice evoked daily situations of these individuals and revealed the importance of developing individualized intervention elements for older adults with dementia and physical disability.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"40-70"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141918231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia.","authors":"Elien Van Hout, Milena Contreras, Eneida Mioshi, Naoko Kishita","doi":"10.1177/14713012241286559","DOIUrl":"10.1177/14713012241286559","url":null,"abstract":"<p><p><b>Background:</b> Dementia does not merely affect individuals, the carer and the person living with dementia, but also has a profound impact on their spousal relationship. As such, this study aimed to gain a deeper understanding of how dementia affects spousal relationships with a focus on interpersonal (i.e. relationship adjustment, communication engagement and emotional connection between two individuals) and intrapersonal (i.e. loss of self within the context of relationships) dynamics using a qualitative approach. The study also explored how carers adapt to such relationship challenges in the context of dementia care.<b>Methods:</b> A phenomenological approach was used to capture the subjective experiences of female spousal carers, who regularly support their partner living with dementia. A total of nine semi-structured interviews were conducted.<b>Results:</b> <i>Relationship adjustment</i> theme highlighted how learning to acknowledge role shifts from a spouse to a carer is critical for carers to manage relationship difficulties. <i>Emotional connection</i> theme demonstrated the importance of reminiscing about the shared history between dyads to cope with feelings of loss of affective intimacy. <i>Communication engagement</i> theme revealed carers' need to learn a new way of communicating due to the decrease in meaningful communication and two-way interaction. <i>Sense of self</i> theme highlighted the importance of self-compassion to overcome feelings of self-loss and isolation.<b>Conclusion:</b> Findings suggest that improving the relationship between female spousal carers and their partner living with dementia may require targeted interventions addressing different factors. Such interventions can include a couple's life story approach to enable couples to reminisce about their shared experiences, interactive communication training to enhance meaningful engagements, and a psychological approach such as compassion-focused therapy to overcome emotional challenges and facilitate self-compassion.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"23-39"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11667960/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the perceptions of New Zealand Chinese dementia carers on the adapted world health organization iSupport manual: A qualitative study.","authors":"Fei Li, John Parsons, Lily Dongxia Xiao, Gary Cheung","doi":"10.1177/14713012241272893","DOIUrl":"10.1177/14713012241272893","url":null,"abstract":"<p><strong>Background: </strong>Across countries, most dementia carers report a lack of adequate information about dementia and local services. To address this issue, the World Health Organization developed the iSupport programme to provide information and support to dementia carers. The iSupport online programme was found to be feasible and acceptable by dementia carers. However, the potential of using the iSupport manual (iSupport) specifically for Chinese dementia carers in New Zealand remains unknown.</p><p><strong>Objective: </strong>This study aimed to (1) identify refinements to adapt iSupport by eliciting the perspectives of Chinese dementia carers; and (2) explore the educational needs of Chinese dementia carers, which can inform the development of support programmes tailored to their specific requirements.</p><p><strong>Design: </strong>This was a qualitative descriptive study using semistructured interviews. The data were analysed using thematic analysis.</p><p><strong>Results: </strong>Twelve Chinese dementia carers were interviewed (mean age 58.0 years, 100% female, and mean caring experience of 2.2 years). Emerging themes were identified within three domains: (1) usefulness, (2) complexities of using iSupport, and (3) suggestions for improvement.</p><p><strong>Conclusions: </strong>The findings suggest that Chinese dementia carers generally found iSupport to be valuable, providing valuable insights into how to tailor and enhance support for this population. However, further research is required to empirically validate the effectiveness of the adapted iSupport for Chinese dementia carers in New Zealand. These findings have implications for the development of future interventions that can more effectively address the specific needs of Chinese dementia carers.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"133-149"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11667949/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142482306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"People with dementia and family carers are welcoming of a model of dementia palliative care, but sceptical of its implementation.","authors":"Siobhan Fox, Mary Faherty, Jonathan Drennan, Suzanne Guerin, W George Kernohan, Aileen Murphy, Suzanne Timmons","doi":"10.1177/14713012241270777","DOIUrl":"10.1177/14713012241270777","url":null,"abstract":"<p><strong>Introduction: </strong>A palliative care approach can improve quality-of-life for people with dementia. It is the preference of many people with dementia to remain living at home until death, with the appropriate care. To develop a successful model for dementia palliative care in the community, it is essential to assimilate the perspectives and experiences of those affected. The guiding research question for this study was: What are people with dementia and family carers' views on a model for dementia palliative care?.</p><p><strong>Methods: </strong>Focus groups (<i>n</i> = 3) were conducted with bereaved or current family carers (<i>n</i> = 11), and people with dementia (<i>n</i> = 2). Discussions centred around a proposed model of dementia palliative care. These were transcribed and analysed using thematic analysis.</p><p><strong>Results: </strong>Three main themes were identified: living and dying well with dementia; reducing carer burden to fulfil the wish for home care; and lack of faith in the healthcare system. One statement which summarised the analysis was: \"Dementia palliative care is a dream, but not a reality.\" This reflected participants' repeated \"wish\" for this \"ideal\" model of care, but simultaneous scepticism regarding its implementation, based on their prior experiences of healthcare services.</p><p><strong>Conclusion: </strong>All participants were welcoming of the proposed model for dementia palliative care and were generally positive about palliative care as a concept relating to dementia. There was consensus that the model would allow people to live and die well with dementia, and reducing the carer burden would fulfil the wish to remain at home. However systemic changes in the healthcare system will be needed to facilitate a truly person-centred, holistic, individualised and flexible model of care.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"91-110"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11667952/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141910193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dementia awareness raising forum: Improving attitudes towards people living with dementia.","authors":"Sheridan T Read, Rosemary Saunders, Matthew A Albrecht, Ravani Duggan","doi":"10.1177/14713012241272852","DOIUrl":"10.1177/14713012241272852","url":null,"abstract":"<p><p>Stigma surrounding dementia is a significant issue affecting individuals and communities leading to discrimination towards those living with the condition. However, the changing paradigm in dementia support to living well with dementia can reduce this stigma and improve community attitudes. A community initiative aimed to address this evaluated the impact of a two-hour education forum involving 92 community members. Presentations from experts, including a person with dementia, addressed dementia-related human rights issues and initiatives to live well with dementia. Attendees completed the new Dementia Community Attitudes Questionnaire (DCAQ) aligned with the evolving paradigm of living well with dementia before and after the forum. Participants with prior dementia education had higher initial scores while those without education showed more significant improvements. Almost all DCAQ items showed post-forum score improvements. This community Dementia Awareness Raising Forum provided an opportunity for people to come together and initiate conversations around dementia resulting in more positive community attitudes.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"3-13"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11667951/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142057483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effect of cognitive stimulation therapy on daily life activities, depression and life satisfaction of older adults living with dementia in nursing home: Randomized controlled trial.","authors":"Ejdane Coşkun, Döndü Çuhadar","doi":"10.1177/14713012241270852","DOIUrl":"10.1177/14713012241270852","url":null,"abstract":"<p><strong>Objectives: </strong>In this research, it was aimed to evaluate the effects of Cognitive Stimulation Therapy on activities of daily living, depression, and life satisfaction in older adults with dementia in nursing homes.</p><p><strong>Methods: </strong>It is a randomized controlled experimental study. The study consisted of a total of 60 older adults, 30 in the intervention group and 30 in the control group, in two different nursing homes.</p><p><strong>Results: </strong>In the post-CST comparison, BADLI posttest measurements, IADLS posttest, follow-up test measurements (<i>p</i> < .001, Fr = 45.982, Fr = 42.54) and SWLS posttest (<i>p</i> < .001, Fr = 38.47) of the individuals in the intervention group measurements were significantly higher. The mean depression level of the CSDD posttest and follow-up test intervention group was significantly lower (<i>p</i> < .001, F = 0.402).</p><p><strong>Conclusion: </strong>It was found that Cognitive Stimulation Therapy is effective in increasing the levels of daily life activity and life satisfaction and reducing the level of depression in older adults with dementia. It is recommended to be used by psychiatric nurses.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"111-132"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}