Comprehensive child and adolescent nursing最新文献

{"title":"<i>\"All in One: Fear, Happiness, Faith\"</i> A Qualitative Study on Experiences and Needs of Turkish Mothers of Infants with Congenital Heart Disease.","authors":"Ayşe Ay,&nbsp;Sevil Çınar Özbay,&nbsp;Handan Boztepe,&nbsp;Eda Gürlen","doi":"10.1080/24694193.2023.2190398","DOIUrl":"https://doi.org/10.1080/24694193.2023.2190398","url":null,"abstract":"<p><p>Having an infant with congenital heart disease (CHD) may cause difficulties and changes in mothers' life. This study was aim to explore the experiences and needs of Turkish mothers of infants with CHD. The study was carried out with the descriptive phenomenological method from qualitative research. The study sample included 18 mothers having infants in the age range of 0 to 2 years with CHD. The data were collected using a sociodemographic data form and a semi-structured interview form. The data obtained from the interviews were evaluated using the content and thematic analysis methods. Four main themes and sub-themes emerged from the qualitative data. \"Effect of getting a diagnosis\" with two sub-themes (emotional changes and a protective mother-infant relationship), \"All emotions in one\" with two sub-themes (fearing of death and torn between fear and hope), \"Influences on a mother's life\" with three sub-themes (forgetting herself, getting away from siblings' lives and relations with spouse), and stressors with three sub-themes (loss of control, physical care and unfulfilled needs). The results of the study provide insight into how Turkish mothers subjectively experience life after CHD. Mothers expected healthcare professionals to support and understand their experiences and needs. Healthcare professionals need to create an environment for mothers to cope with emotional difficulties, gain knowledge and care skills, and adapt to their lives.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 2","pages":"126-141"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9498723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evidencing Enquiry Based Learning: An Innovative Approach to Educating Children and Young People's Nursing Students.","authors":"Margaret Crowley,&nbsp;Wendy Mcinally,&nbsp;Nicola Goodall,&nbsp;Janet Webb","doi":"10.1080/24694193.2023.2171157","DOIUrl":"https://doi.org/10.1080/24694193.2023.2171157","url":null,"abstract":"<p><p>This discussion paper gives an overview of an innovative online distance learning pre-registration BSc (Hons) Children and Young People's nursing program underpinned by Enquiry-Based Learning pedagogy. Whilst the program is delivered to all four fields of practice (Adult, Children and Young People, Learning Disability, and Mental Health), in all four nations of the UK (England, Scotland, Wales, and Northern Ireland), the focus here is Children and Young People's nursing. Nurse education programs are delivered in accordance with the Standards for Nurse Education developed by the professional nursing body in the UK. This online distance learning curriculum uses a life-course perspective for all fields of nursing. Students develop the general knowledge and skills to care for all people across the life course but as the program progresses, they learn how to care for people within their own field of practice in greater depth. The educational context of the Children and Young People's nursing program highlights that the use of Enquiry-Based Learning can help address some of the challenges faced by Children and Young People's nursing students. A critical evaluation of Enquiry-Based Learning and its use within the curriculum concludes that Enquiry-Based Learning provides Children and Young People's nursing students with the graduate attributes of being able to communicate with infants, children, young people, and their families, adopt critical thinking to clinical settings and have an ability to find, generate, or synthesize their own knowledge in order to lead and manage evidence-based quality care for infants, children, young people, and their families in a variety of care settings and within interprofessional teams.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 2","pages":"142-157"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9849113","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Why Does Sepsis Kill So Many Children?","authors":"Edward Alan Glasper","doi":"10.1080/24694193.2023.2206361","DOIUrl":"https://doi.org/10.1080/24694193.2023.2206361","url":null,"abstract":"Emeritus Professor Alan Glasper from the University of Southampton discusses the difficulty in spotting signs of sepsis in sick children. Across the world, sepsis in childhood is the potential severe and life-threatening aftermath following infection. It is notoriously difficult to detect in the initial stages and if not spotted by the vigilant health-care professional can be deadly. A child can develop sepsis as the result of any type of infection. In neonates for example, untreated infections during pregnancy can be transmitted from the mother to a new-born leading to neonatal sepsis. This more so than in older babies, can present with nonspecific signs that quickly progress to full blown sepsis with accompanying elevated mortality and morbidity rates. Although difficult to detect especially during the early stages of the condition, it can be prevented and treated if identified in a timely manner by a health-care professional. Even if sepsis is established in the infected infant, the disease may still be contained successfully if treatment is commenced promptly. Although relatively rare during childhood, sepsis still claims the lives of 2 or 3 children each day in the UK. It is because the presenting signs and symptoms associated with childhood sepsis are so very nonspecific that it makes the identification of sepsis in young children challenging to identify for parents, guardians, and doctors and nurses (Karas, 2020). Sepsis can be so sudden in onset that it can result in a child being virtually moribund within hours. Across the world, thousands of children are affected by the disease with more than 75,000 children developing sepsis each year in the USA. The Sepsis Alliance, which is a sepsis awareness charity in the USA, strives to increase awareness of sepsis among members of the public and health-care professionals. This charity claims that 200 children per day in the USA develop sepsis with the number of child victims increasing year on year leading to the death of 7000 children annually in the country. Furthermore, up to a third of COMPREHENSIVE CHILD AND ADOLESCENT NURSING 2023, VOL. 46, NO. 2, 79–82 https://doi.org/10.1080/24694193.2023.2206361","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 2","pages":"79-82"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9636454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Influence of Busyness on the Therapeutic Relationship, Nursing Activities and Teamwork: An Ethnography.","authors":"Melinda Simpson-Collins,&nbsp;Margaret Fry,&nbsp;Suzanne Sheppard-Law","doi":"10.1080/24694193.2022.2160517","DOIUrl":"https://doi.org/10.1080/24694193.2022.2160517","url":null,"abstract":"<p><p>To explore a notion of busyness within the context of pediatric acute care and how this influences the therapeutic relationship, nursing activities and teamwork between pediatric nurses and families. Ethnography was the research design. Semi-structured interviews and non-participant observation were used for data collection, which was undertaken in a level four pediatric inpatient unit in Sydney, New South Wales Australia. Brewer's (2000) ethnographic framework for analysis and interpretation was utilized and findings are presented as a realist tale. Interviews with 10 pediatric nurses and 10 parents, and 40 h of non-participant observations were conducted. Three themes are presented, which detail the cultural dimensions of busyness: i) the meaning of busyness; ii) relationships within the pediatric nursing team; and iii) shaping the therapeutic relationship. This ethnography identified how pediatric nurse and parental expectations and collaborative partnerships were re-shaped by busyness. Importantly, the ethnography has presented how busyness is perceived by pediatric nurses and parents, which require new negotiations and a rebalance of workload. Findings have implications for the healthcare workforce and organizational structure. Future research is required to explore how different ways of working better support the pediatric nurse and families during busyness.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"65-77"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9245249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Can Respiratory Syncytial Virus (RSV) Infection in Children Be Eliminated Through Immunization?","authors":"Edward Alan Glasper","doi":"10.1080/24694193.2023.2182593","DOIUrl":"https://doi.org/10.1080/24694193.2023.2182593","url":null,"abstract":"Emeritus Professor Alan Glasper from the University of Southampton discusses the quest to immunize children against the Respiratory Syncytial Virus (RSV) which is a major cause of hospital admission in children with bronchiolitis under five years of age. In January 1975, I was working on the respiratory ward at the East London branch of London’s Great Ormond Steet Hospitals (The National Archives, 2023). The disease the staff feared most in babies and young children under two years of age after whooping cough was bronchiolitis. Caused by RSV, bronchiolitis has been the scourge of families for generations especially during the winter period, leading to bed capacity pressures in many children’s hospitals around the world. Although RSV infection can be a minor illness, it can also be life threatening, especially in infants. In the USA, for example, RSV is the commonest cause of both bronchiolitis and pneumonia. Every year in the UK, approximately 20,000 children who have no underlying health issues require treatment in hospital for RSV infection which is about 3% of the birth cohort. Importantly, most children will become infected by RSV by their second birthday (Handforth et al., 2000). Elsewhere across the globe, the numbers of children infected by RSV are immense, and in 2015, for example, some 33 million children developed lower respiratory illness caused by this virus, with 3.2 million requiring hospital care and this led to about 59,000 deaths, with the majority of them from lowand middle-income countries (García et al., 2010). The world is still reeling from the Covid pandemic which stubbornly refuses to loosen its hold on mankind and now forms part of a perfect storm with the emergence of new highly infectious strains of influenza viruses. News reports suggest that China is currently experiencing 60,000 deaths per month from Covid, and as new strains of the virus mutate, countries around the world continue to fear further manifestations of the pandemic. Despite a decrease in the number of RSV infections during the pandemic when societal lockdowns were imposed in many countries around the world, a resurgence in RSV COMPREHENSIVE CHILD AND ADOLESCENT NURSING 2023, VOL. 46, NO. 1, 5–7 https://doi.org/10.1080/24694193.2023.2182593","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"5-7"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9192109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is Social Media Fuelling Deaths Among Children?","authors":"Edward Alan Glasper","doi":"10.1080/24694193.2023.2172291","DOIUrl":"https://doi.org/10.1080/24694193.2023.2172291","url":null,"abstract":"On the 7th of April 2022, a 3-year-old boy, Archie Battersbee, was found unresponsive in his bedroom by his mother with a ligature around his neck. It is believed that Archie had been participating in a TikTok online challenge trend which has permeated among children and young people around the world. On admission to hospital, it was revealed that Archie had suffered irreparable brain damage and he never regained consciousness. Archie died on the 6th of August after a long running court battle when he was disconnected from his life support system (BBC News, 2022a). The so-called “blackout challenge” is global online trend among young people that is believed responsible for a significant number of tragic deaths. The US Centres for Disease Control and Prevention (CDC) shows that of 2008 at least 82 youths had died as a result of playing what has been called “the choking game.” However, it is likely that this trend started some years earlier with the CDC claiming that three or fewer choking game-related deaths per year were reported in the news media from 1995 to 2004 but rising to 22 deaths in 2005 with 35 in 2006 although this is probably an underestimate. The launch of the video platform and social network TikTok in 2016 and other similar online social media companies has allegedly exacerbated the spread of this dangerous so-called challenge (Big 3 Media, 2020). Why are young people attracted to this dangerous game? The choking game involves intentionally trying to asphyxiate oneself to achieve a brief euphoric state or “high.” However, if the asphyxiation caused by self-strangulation is prolonged, it can cause death or serious brain injury as in the case of Archie Battersby who sustained serious brain injury from his attempt, now just one of many children for whom the challenge has had devastating consequences on them and their families. Most deaths have occurred among children and young people between the ages of 11 and 6 years. The CDC found that most of the COMPREHENSIVE CHILD AND ADOLESCENT NURSING 2023, VOL. 46, NO. 1, 1–4 https://doi.org/10.1080/24694193.2023.2172291","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"1-4"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9204151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"They Make Heavy Stuff Lighter.\" Youth Workers in the Hospital Setting: A Service Evaluation.","authors":"Marie Marshall,&nbsp;Gillian Waring","doi":"10.1080/24694193.2021.1951892","DOIUrl":"https://doi.org/10.1080/24694193.2021.1951892","url":null,"abstract":"<p><p>This article presents the findings of a service evaluation on the role of the youth worker offered to young people in the hospital setting across the United Kingdom and what differentiates the role of the youth worker from other health-care professionals, as described by young people, parents, and members of the existing multidisciplinary team. Young people, parents, and members of multidisciplinary teams were approached by a youth worker in the hospital regarding the purpose of the evaluation and the online survey relating to their views and experiences of working with a youth worker in the hospital setting. Data were analyzed descriptively. The <i>n</i> value represents the total number of responses: Young people 11-25 years (<i>n</i> = 47), mothers/fathers (<i>n</i> = 16), and members of the multidisciplinary team (<i>n</i> = 76). The findings suggested that the youth worker was highly valued by all, with a consensus that they had a positive impact on the experiences of young people, their parents, and members of the multidisciplinary teams. Youth workers were reported as offering a more relatable style of engagement that connected with young people on a different and more informal level than other members of the multidisciplinary team. Their approach to the support provided was also different as their focus was guided by what young people valued. Youth workers acted as the bridge between young people, their parents, and the multidisciplinary team and were considered by the multidisciplinary teams to be a fundamental ingredient when working with young people in the hospital setting. The findings from this evaluation provide unique insights into the role the youth worker offers to young people in hospital settings that is different from what other health-care professionals provide, as reported by young people, parents, and the multidisciplinary team. However, further evaluation of the service should include objective outcome measures of the role and in-depth qualitative research to gain a greater and more detailed understanding of young peoples', parents', and members of the multidisciplinary team's views and experiences of what makes this role different.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"8-19"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9246145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Shaken Baby Syndrome Education for Mothers Awaiting Appointments in Rural OB/GYN Office.","authors":"Ann W Lambert,&nbsp;Chih-Hsuan Wang,&nbsp;Claire Thompson,&nbsp;Adelia Grabowsky","doi":"10.1080/24694193.2022.2151665","DOIUrl":"https://doi.org/10.1080/24694193.2022.2151665","url":null,"abstract":"<p><p>A partnership between a nursing program and a rural obstetric office provided education to pregnant and postpartum women about coping with infant crying and the dangers of shaking a baby. Undergraduate nursing students delivered the Period of PURPLE Crying (<i>PURPLE</i>) educational program to 148 mothers. Change in knowledge about infant crying and the community clinical experience was evaluated. Pre and post intervention data were collected. Descriptive statistics indicated higher scores on mothers' posttest for knowledge about normal newborn crying behaviors and coping strategies. Students further developed the role of educator and researcher. These findings suggest the intervention contributed to mothers' improved knowledge about infant crying. Results of the pilot study are encouraging because the intervention had a significant effect on mothers' knowledge about infant crying and Shaken Baby Syndrome (SBS).</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"33-40"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9250526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Cry to Be Involved: Experiences of Caregivers on Participation in Decision Making and Care Provision at Mercy James PICU in Blantyre, Malawi.","authors":"Grace Chasweka,&nbsp;Maureen Daisy Majamanda,&nbsp;Annie Namathanga","doi":"10.1080/24694193.2022.2085821","DOIUrl":"https://doi.org/10.1080/24694193.2022.2085821","url":null,"abstract":"<p><p>A child's illness and admission in a hospital are stressful and can negatively affect the child and his/her caregivers. The stress is further exacerbated when a child is critically ill and has been admitted to an intensive care unit (ICU). The effects can be reduced when caregivers of the sick children are present and involved in decision making and actual care of their hospitalized children, a care model called family-centered care. Malawi has adopted family-centered care model in the newly instituted Mercy James Pediatric ICU. Little is known about experiences of caregivers with FCC in Malawi. This qualitative study was therefore conducted to explore experiences of caregivers on their involvement in decision making and care at Mercy James Pediatric ICU in Blantyre, Malawi. This was a descriptive qualitative study with a sample size of fifteen participants, however, data saturation was reached with ten participants. One on one in-depth interviews were conducted among a purposively selected sample of ten caregivers whose children had been discharged from the PICU. Content analysis was deductively and manually undertaken to analyze data with the aid of delve software to organize the data. Findings show that not every caregiver was involved in the decision making of their children's care, and if they did, it was not adequate. Barriers to effective involvement such as using a foreign language had a negative impact on comprehensive involvement of caregivers in decision making for their children's care. All participants were, however, involved in the physical care of their children. It is important that health care workers should continuously encourage caregivers to get involved in the decision making and care of their children.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"20-32"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9246146","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Methods to Improve and Develop Pediatric Nursing Practice: A Scoping Review.","authors":"Nina M Power,&nbsp;Elijeshca C Crous,&nbsp;Natasha North","doi":"10.1080/24694193.2022.2153945","DOIUrl":"https://doi.org/10.1080/24694193.2022.2153945","url":null,"abstract":"<p><p>Children's nurses in African pediatric settings are often responsible for leading practice improvements. There is a shortage of contextually relevant guidance to inform the design of practice improvement projects in African care settings. Distinctive features of children's nursing practice in Africa include high levels of family caregiver involvement, and organizational and professional cultures which value participation. While established practice improvement methods offer many strengths, methods developed in other geographies should not be adopted uncritically. Our purpose in undertaking this review was to inform selection of methods for a multi-center practice improvement project in Africa. Our aim was to identify types of participatory methods used to improve and develop pediatric nursing practice. We used the PRISMA-ScR method to conduct a scoping review to identify published reports of participatory methods used to improve and develop pediatric nursing practice. We undertook structured searches of five bibliographic databases to identify articles. Only articles written in the English language were included and no limitation was applied to publication date. We identified 7,406 titles and abstracts. After screening, 76 articles met the inclusion criteria. A wide range of participatory methodologies were identified; just under half (n = 34) reported on methods that were not recognized or named methodologies but can be described as collaborative in nature. Plan-do-study-act cycles were reported in 22 articles. There was considerable heterogeneity in frameworks, practical tools and/or nursing models on which the participatory methods were based and there was no apparent relationship between these and the choice of participatory methods. The outcomes identified were also heterogenous in nature and were grouped according to whether they improved structure and/or processes and patient outcomes. Most of the included articles stem from high-income countries with little evidence from low-middle-income countries and none in African settings. Less than half of the included articles involved family caregivers in their practice improvement methodologies. This review highlights the need for greater application of formalized methods for practice improvement and improved rigor and consistency in reporting outcomes. There is also a need to formalize participatory practice improvement methodologies specifically suited to Africa's context of children's nursing.</p>","PeriodicalId":72655,"journal":{"name":"Comprehensive child and adolescent nursing","volume":"46 1","pages":"41-64"},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9564718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}