Advances in kidney disease and health最新文献

{"title":"An Engaged and Empowered Patient: A Critically Important Concept in Nephrology","authors":"Sagar U. Nigwekar MD, MMSc, Charuhas V. Thakar MD","doi":"10.1053/j.akdh.2024.01.004","DOIUrl":"10.1053/j.akdh.2024.01.004","url":null,"abstract":"","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Page 1"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813924000156/pdfft?md5=ee2abd74495559d5ea44be9089d5e879&pid=1-s2.0-S2949813924000156-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139522312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Novel Nephropsychology Clinic: Partnering With Patients in the Era of Value-Based Care in Nephrology","authors":"Christina Pierpaoli Parker ,&nbsp;Kristina McMahan ,&nbsp;Brody Rhodes ,&nbsp;Kristine Lokken ,&nbsp;Gaurav Jain","doi":"10.1053/j.akdh.2023.12.006","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.12.006","url":null,"abstract":"<div><p>CKD and end-stage kidney disease are highly prevalent and complex chronic conditions with a high disease burden that corresponds to a high cost of care. Mental health conditions have a high prevalence in this population and add to the burden of disease, increase the cost of care, and are co-related with worse clinical outcomes. Despite these clear co-relations, mental health disorders remain underdiagnosed and undertreated in this population, secondary to multiple reasons, including patient-specific factors as well as systematic issues, including difficulty in accessing mental health experts. Here we describe a novel collaborative care model for patients with advanced CKD within the nephrology clinic space, in the form of a nephropsychology clinic. We present the details of our clinic, our preliminary findings, and propose that an integrated behavioral health model offers convenience for the patient and improves workflow for the physician, allowing a pathway to timely mental health interventions.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 46-51"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923001301/pdfft?md5=52b8ae849f0ed095b1df18f929c5989c&pid=1-s2.0-S2949813923001301-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Technological Innovations to Improve Patient Engagement in Nephrology","authors":"Haresh Selvaskandan ,&nbsp;Patrick O. Gee ,&nbsp;Harish Seethapathy","doi":"10.1053/j.akdh.2023.11.001","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.11.001","url":null,"abstract":"<div><p>Technological innovation has accelerated exponentially over the last 2 decades. From the rise of smartphones and social media in the early 2000s to the mainstream accessibility of artificial intelligence (AI) in 2023, digital advancements have transformed the way we live and work. These innovations have permeated health care, covering a spectrum of applications from virtual reality training platforms to AI-powered clinical decision support tools. In this review, we explore fascinating recent innovations that have and can facilitate patient engagement in nephrology. These include integrated care mobile applications, wearable health monitoring tools, virtual/augmented reality consultation and education platforms, AI-powered appointment booking systems, and patient information tools. We also discuss potential pitfalls in implementation and paradigms to adopt that may protect patients from unintended consequences of being cared for in a digitalized health care system.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 28-36"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923001192/pdfft?md5=54fd1e6dfc7c6aed6b4ac02c0392c046&pid=1-s2.0-S2949813923001192-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Shared Decision-Making and Patient Communication in Nephrology Practice","authors":"Ernest I. Mandel ,&nbsp;Monica Fox ,&nbsp;Jane O. Schell ,&nbsp;Robert A. Cohen","doi":"10.1053/j.akdh.2023.12.003","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.12.003","url":null,"abstract":"<div><p>Shared decision-making (SDM) is the standard of care for patient or surrogates and their clinicians to arrive at a medical decision. Evidence suggests that SDM increases patients' understanding of their illness and satisfaction with their decision-making process. Dialysis patients often report the perception that they were passive participants in the decision to start dialysis, suggesting further opportunities for enhancing the application of SDM in decision-making with patients with kidney disease. The hallmark feature of SDM is sensitive, culturally- and equity-informed communication and effective partnership between patient or surrogate and clinician. In the process, the patient's personal expertise in the realm of their values and priorities is elicited, and the clinician's medical expertise is shared. The integration of this shared expertise then leads to an informed treatment decision. Frameworks such as the Serious Illness Conversation Guide and REMAP are guides for the SDM process, and communication tools and mnemonics can help facilitate SDM conversations. This paper will address SDM in nephrology practice, reviewing underlying supportive evidence, context, and timing for employing SDM in the trajectory of chronic kidney disease and acute kidney injury, special considerations in vulnerable populations to promote health equity, and communication tools and frameworks to facilitate the SDM process. By learning and applying these frameworks and tools, nephrology providers will be able to employ SDM in the management of kidney disease.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 5-12"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923001258/pdfft?md5=c09ac761f16348a58e63a197474dac1c&pid=1-s2.0-S2949813923001258-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient-Centered Research and Innovation in Nephrology","authors":"Anastasia Hughes ,&nbsp;Chandana Guha ,&nbsp;Amanda Sluiter ,&nbsp;Jonathan Himmelfarb ,&nbsp;Allison Jauré","doi":"10.1053/j.akdh.2023.12.004","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.12.004","url":null,"abstract":"<div><p>Patient involvement in research can improve the relevance of research, consequently enhancing the recruitment, retention, and uptake of interventions and policies impacting patient outcomes. Despite this, patients are not often involved in the design and conduct of research. The research agenda and innovations are frequently determined by the interest of health and industry professionals rather than proactively aligning with the priorities of patients. It is now being encouraged and recommended to engage patients in research priority setting to ensure interventions and trials report outcomes valuable to patients, moving away from a history of overlooking the outcomes that reflect the feel and function of patients. Involving patients ensures constant innovative research in nephrology, as this broader depth of evidence fortifies reliability and validity through knowledge gained from lived experience. Findings from such research can enhance clinical practice and strengthen decision-making and policy to support better outcomes. We aim to outline principles and strategies for patient involvement in research, including setting research priorities, identifying and designing interventions, selecting outcomes, and disseminating and translating research. Principles and strategies including engagement, education and training, empowerment, and connection and community provide guidance in patient involvement. There are increasing efforts to involve patients across all stages of research including setting research priorities. Efforts are rising to involve patients across all stages of research including priority setting, identifying and designing interventions, selecting outcomes, and dissemination and translation. Patient involvement throughout the research cycle drives innovative investigations ensuring funding, efforts, and resources are directed toward priorities of patients, contributing to catalyst advancements in care and outcomes.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 52-67"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923001283/pdfft?md5=af418094932d72e19f5495dd0b15be9f&pid=1-s2.0-S2949813923001283-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Symptom Science in Kidney Disease","authors":"Kendra E. Wulczyn ,&nbsp;Derek Forfang ,&nbsp;Sahir Kalim","doi":"10.1053/j.akdh.2023.09.002","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.09.002","url":null,"abstract":"<div><p>Physical and emotional symptoms are highly prevalent among patients with kidney disease and are directly linked to impaired health-related quality of life. Symptom science is a field of research aimed at advancing knowledge of the holistic mechanisms driving symptoms, how best to assess symptoms accurately, and developing novel and patient-centered approaches to symptom management. Patients with kidney disease have identified symptom science as a top research priority, and opportunities abound for ongoing patient engagement in symptom-related research efforts and clinical care. This review describes the burden of symptoms experienced by patients with kidney disease, explores the spectrum of patient engagement in symptom care and research, and discusses approaches for symptom assessment and management, taking into consideration the multitude of factors that may contribute to symptoms.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 13-20"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923000952/pdfft?md5=a638890de6ce15e4bac6bd79d2db4fa7&pid=1-s2.0-S2949813923000952-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Untapped Power of Patient Engagement in Kidney Diseases","authors":"Kevin J. Fowler","doi":"10.1053/j.akdh.2024.01.005","DOIUrl":"https://doi.org/10.1053/j.akdh.2024.01.005","url":null,"abstract":"","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 2-4"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813924000168/pdfft?md5=eeeb9732511561b789323f462a2f2ec2&pid=1-s2.0-S2949813924000168-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139941946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social and Behavioral Barriers to Effective Care During the Transition to End-Stage Kidney Care","authors":"Lilia Cervantes ,&nbsp;Matthew Sinclair ,&nbsp;Claudia Camacho ,&nbsp;Cecilia Santana ,&nbsp;Tessa Novick ,&nbsp;Daniel Cukor","doi":"10.1053/j.akdh.2023.09.005","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.09.005","url":null,"abstract":"<div><p>Individuals living with CKD are disproportionately burdened by a multitude of adverse clinical and person-centered outcomes. When patients transition from advanced kidney disease to kidney failure, the psychosocial effects as well as social determinants of health challenges are magnified, making this a particularly difficult time for patients beginning kidney replacement therapy. The key social determinants of health challenges often include food and housing insecurity, poverty, unreliable transportation, low level education and/or health literacy, lack of language interpreters and culturally concordant educational materials, lack of health care insurance coverage, and mistrust of the health care system. Psychosocial and physical stressors, such as depression, anxiety, sexual dysfunction, sleep difficulty, fatigue, and pain, are often part of the illness burden among individuals living with CKD and can interact synergistically with the social challenges making the transition to kidney replacement therapy particularly challenging. To better support patients during this time, it is critical that social and structural determinants of health as well as mental health be assessed and if needs are identified, that services be provided.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 21-27"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923000988/pdfft?md5=4d1893d5733d7698b1217ac56c967dcf&pid=1-s2.0-S2949813923000988-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Building Partnerships to Improve Health Outcomes: Pediatric Patient and Family Engagement in Nephrology Practice","authors":"Taylor R. House ,&nbsp;Kelly Helm ,&nbsp;Aaron Wightman","doi":"10.1053/j.akdh.2023.10.003","DOIUrl":"https://doi.org/10.1053/j.akdh.2023.10.003","url":null,"abstract":"<div><p>As health care practices have evolved from a disease-oriented to patient-focused paradigm, patient and family engagement (PFE) has been recognized as an important aspect of health care delivery and outcomes. While pediatricians have long approached care delivery with a family-centered lens, PFE may be a less familiar concept to situate among related concepts such as shared decision-making, self-efficacy, patient activation, and family-centered care. Children with CKD and their families indicate a need and desire for enhanced PFE efforts in pediatric nephrology. Improving PFE offers the opportunity to provide our patients and families with skills that will positively impact their health and wellness throughout their lives. In this review, we define PFE, describe the components of and levels at which PFE occurs across the health care system, examine PFE interventions of promise, and finally suggest future directions to support PFE in pediatric nephrology.</p></div>","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"31 1","pages":"Pages 37-45"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949813923001015/pdfft?md5=a6c083977748451d7a3cef347c5fd771&pid=1-s2.0-S2949813923001015-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139942131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Renal Diet Metamorphosis Guest Editorial for Advances in Kidney Disease and Health","authors":"Holly Kramer MD, MPH,&nbsp;Shivam Joshi MD","doi":"10.1053/j.akdh.2023.10.005","DOIUrl":"10.1053/j.akdh.2023.10.005","url":null,"abstract":"","PeriodicalId":72096,"journal":{"name":"Advances in kidney disease and health","volume":"30 6","pages":"Pages 477-479"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138178162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}