Brain Impairment最新文献

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Consumer perspectives of vocational rehabilitation and return to work following acquired brain injury 获得性脑损伤后职业康复和重返工作岗位的消费者观点
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-19 DOI: 10.1017/BRIMP.2021.4
Kerrin Watter, Areti Kennedy, V. McLennan, Jessica Vogler, Sarah M. Jeffery, A. Murray, Shelley Ehlers, M. Nielsen
{"title":"Consumer perspectives of vocational rehabilitation and return to work following acquired brain injury","authors":"Kerrin Watter, Areti Kennedy, V. McLennan, Jessica Vogler, Sarah M. Jeffery, A. Murray, Shelley Ehlers, M. Nielsen","doi":"10.1017/BRIMP.2021.4","DOIUrl":"https://doi.org/10.1017/BRIMP.2021.4","url":null,"abstract":"Abstract Introduction: Following acquired brain injury, the goal of return to work is common. While return to work is supported through different rehabilitation models and services, access to vocational rehabilitation varies within and between countries, and global rates of employment post-injury remain low. The literature identifies outcomes from vocational programs and experiences with return to work, yet little is known about individuals’ perceptions and experiences regarding rehabilitation to support their vocational goals and experiences in attempting to return to work. Method: This qualitative study investigated the experiences of community-living adults with acquired brain injury (n = 8; mean age 45 years; mean time post-injury of 5.5 years) regarding their vocational rehabilitation and return to work. Focus groups and semi-structured interviews were conducted, with data analyzed via thematic analysis. Results: Participants identified negative and positive experiences with vocational rehabilitation and return to work. Five overarching themes were identified: addressing vocational rehabilitation in rehabilitation; facilitators of recovery and return to work; the importance and experience of working again; acquired brain injury and identity; and services, systems and policies. Participants also identified five key areas for early vocational rehabilitation services: education; service provision; employer liaison; workplace supports; and peer mentors. Study findings inform current and future practice and service delivery, at a clinical, service and system level.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"23 1","pages":"164 - 184"},"PeriodicalIF":0.8,"publicationDate":"2021-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86979650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Unravelling moral cognition in acquired brain injury: a scoping review 在获得性脑损伤中揭示道德认知:一个范围综述
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-17 DOI: 10.1017/BrImp.2021.7
B. Lloyd, E. Montoya, Lycia D. de Voogd, E. Oudman
{"title":"Unravelling moral cognition in acquired brain injury: a scoping review","authors":"B. Lloyd, E. Montoya, Lycia D. de Voogd, E. Oudman","doi":"10.1017/BrImp.2021.7","DOIUrl":"https://doi.org/10.1017/BrImp.2021.7","url":null,"abstract":"Abstract Background: Acquired brain injury (ABI) is accompanied by impairments in social, emotional, cognitive and behavioural skills and highly prevalent in the population. Social and emotional skills are crucial for moral cognition, but the extent to which moral cognition contributes to social competence deficits in people with ABI is largely unclear. Method: To provide more insight on this topic, we conducted a scoping review according to the PRISMA guidelines. After screening 1269 articles that we obtained via PubMed and Scopus, we found 27 articles on moral cognition in ABI. Results: We encountered four important topics across these studies which include traumatic brain injury (TBI) versus non-TBI, the influence of the different approaches used to measure moral cognition in ABI, the role of age of onset and the role of location of the injury. Overall, evidence suggests that the earlier the brain damage occurred, the more this leads to impairments in moral cognitive functioning. The location of the injury furthermore seems to differentially affect the way impairments are manifested. Finally, we found that the use of different measurement approaches can heavily influence the interpretation of the impairment. Conclusion: We conclude that impairments in moral cognition in people with ABI are derived from a complex interplay between the age of onset, the location and the approach used to index moral cognition.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"17 1","pages":"143 - 163"},"PeriodicalIF":0.8,"publicationDate":"2021-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78581643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using a wearable camera to support everyday memory following brain injury: a single case study 使用可穿戴相机支持脑损伤后的日常记忆:一个单一的案例研究
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-16 DOI: 10.31234/osf.io/hs7r8
A. Mair, Rochelle Shackleton
{"title":"Using a wearable camera to support everyday memory following brain injury: a single case study","authors":"A. Mair, Rochelle Shackleton","doi":"10.31234/osf.io/hs7r8","DOIUrl":"https://doi.org/10.31234/osf.io/hs7r8","url":null,"abstract":"This case study examined the effect of wearable camera use on memory and occupational performance in a patient with memory loss and complex mental health problems following a severe neurological incident. With the help of his occupational therapist, Mr A used a wearable camera to record a series of eight personally significant events over a six-week period. During visits from his occupational therapist, Mr A was asked to report what he could remember about the events, both before (baseline) and during review of time-lapsed photographs captured automatically by the camera. The results showed striking improvements in recall while reviewing the photographs, relative to baseline recall, but the additional details recalled during review did not appear to be maintained at later tests, after several days. Across the study period there were moderate increases in occupational performance, measured using the Canadian Occupational Performance Measure. However, after the study period ended, Mr A ceased to use the wearable camera due to technological difficulty. The results of the study are discussed alongside novel clinical insights and suggestions for developing wearable camera support systems that can be used independently by people with memory problems.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"AES-9 1","pages":"1-17"},"PeriodicalIF":0.8,"publicationDate":"2021-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84515500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Using a wearable camera to support everyday memory following brain injury: a single-case study 使用可穿戴相机支持脑损伤后的日常记忆:一个单一案例研究
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-16 DOI: 10.1017/BrImp.2021.6
A. Mair, Rochelle Shackleton
{"title":"Using a wearable camera to support everyday memory following brain injury: a single-case study","authors":"A. Mair, Rochelle Shackleton","doi":"10.1017/BrImp.2021.6","DOIUrl":"https://doi.org/10.1017/BrImp.2021.6","url":null,"abstract":"Abstract Background: Wearable cameras have been shown to improve memory in people with hippocampal amnesia and Alzheimer's disease. It is not known whether this benefit extends to people with amnesia of complex or uncertain origin. Method: This case study examined the effect of wearable camera use on memory and occupational performance in a patient with memory loss and complex mental health problems following a severe neurological incident. With the help of his occupational therapist (OT), Mr A used a wearable camera to record a series of eight personally significant events over a 6-week period. During visits from his OT, Mr A was asked to report what he could remember about the events, both before (baseline) and during the review of time-lapsed photographs captured automatically by the camera. Results: The results showed striking improvements in recall while reviewing the photographs, relative to baseline recall, but the additional details recalled during review did not appear to be maintained at later tests, after several days. Across the study period, there were moderate increases in occupational performance, measured using the Canadian Occupational Performance Measure. However, after the study period ended, Mr A ceased to use the wearable camera due to technological difficulty. Conclusion: There was a clear benefit of wearable camera use, but the real-world impact of the technology was limited by the complexity of the system. The results of the study are discussed alongside novel clinical insights and suggestions for developing wearable camera support systems that can be used independently by people with memory problems.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"13 1","pages":"312 - 328"},"PeriodicalIF":0.8,"publicationDate":"2021-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85036801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis 在线联系的护理人员会有更好的结果吗?对中风、痴呆、创伤性脑损伤、帕金森病和多发性硬化症患者护理人员在线同伴支持干预的系统回顾
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-15 DOI: 10.1017/BrImp.2021.5
S. Wallace, J. Kothari, Anushki Jayasekera, J. Tointon, Toluwalase Baiyewun, Kirstine Shrubsole
{"title":"Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis","authors":"S. Wallace, J. Kothari, Anushki Jayasekera, J. Tointon, Toluwalase Baiyewun, Kirstine Shrubsole","doi":"10.1017/BrImp.2021.5","DOIUrl":"https://doi.org/10.1017/BrImp.2021.5","url":null,"abstract":"Abstract Background and Objectives: This systematic review aimed to identify and appraise the evidence for online peer-support interventions for caregivers of stroke survivors (with and without aphasia), and people with dementia, traumatic brain injury (TBI), Parkinson’s disease and multiple sclerosis. Research Design and Methods: Systematic review conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Five databases were systematically searched up until September 2020: EMBASE, PubMed, CINAHL, Scopus and Web of Science. Two reviewers independently screened titles, abstracts and full-text articles. The methodological quality of included studies was assessed using Physiotherapy Evidence Database (PEDro) and Mixed-Methods Appraisal Tool (MMAT) scales. Interventions were described using the Template for Intervention Description and Replication (TIDieR) checklist. Results: A total of 3026 records were identified from database searches. Following screening, 18 studies reporting 17 interventions were included in this review. Most studies (n = 13) reported interventions for caregivers of people with dementia. All studies incorporated an element of peer support as part of the intervention, however, most interventions (n = 15) comprised both psychosocial and educational elements. Statistically significant changes were reported for 11 interventions in one or more of the following domains: caregiver knowledge, mental health, stress, depression, distress, burden, self-efficacy, mastery, helplessness and perceived support. Qualitative outcomes included perceived reductions in stress and increased emotional and informational support. Discussion and Implications: Positive changes in caregiver outcomes were identified in response to multi-component online interventions (i.e., peer support in addition to education). Peer support was often poorly described, limiting the conclusions that could be drawn about the intervention components which result in better outcomes. Online interventions may provide an accessible and effective means of supporting caregivers.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"25 5 1","pages":"233 - 259"},"PeriodicalIF":0.8,"publicationDate":"2021-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74648632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
The maintenance of friendships after severe traumatic brain injury 严重创伤性脑损伤后友谊的维持
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-03-01 DOI: 10.1017/brimp.2020.13
Tennille Bertram, L. Togher, E. Power, J. Douglas
{"title":"The maintenance of friendships after severe traumatic brain injury","authors":"Tennille Bertram, L. Togher, E. Power, J. Douglas","doi":"10.1017/brimp.2020.13","DOIUrl":"https://doi.org/10.1017/brimp.2020.13","url":null,"abstract":"The aim of this qualitative study was to understand processes involved in the maintenance and development of friendships after a person sustains a traumatic brain injury (TBI).Four people with severe TBI from rural settings in Australia identified one-to-two friends to be interviewed. A total of nine friends participated in a semi-structured interview. Interviews were transcribed verbatim and data was analyzed using principles of grounded theory.The overall conceptualisation that emerged from the data described the process of friends actively placing themselves within the friendship with the person with TBI. Two major processes were evident which enabled friends to actively place themselves within the friendship. They were (1) making sense of the TBI and its consequences and (2) maintaining normality in the friendship.Friendships can be maintained following a TBI when friends actively place themselves within the friendships. Friends are able to do this when they make sense of the TBI and its consequences and maintain normality. There are a variety of ways that friends achieve this.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"92 1","pages":"79-91"},"PeriodicalIF":0.8,"publicationDate":"2021-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85078110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
More than amnesia: prospective cohort study of an integrated novel assessment of the cognitive and behavioural features of PTA 不仅仅是健忘症:PTA认知和行为特征综合新评估的前瞻性队列研究
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-02-18 DOI: 10.1017/BrImp.2021.2
M. Hennessy, Lorryn Delle Baite, L. Marshman
{"title":"More than amnesia: prospective cohort study of an integrated novel assessment of the cognitive and behavioural features of PTA","authors":"M. Hennessy, Lorryn Delle Baite, L. Marshman","doi":"10.1017/BrImp.2021.2","DOIUrl":"https://doi.org/10.1017/BrImp.2021.2","url":null,"abstract":"Abstract Background and Objective: Post-traumatic amnesia (PTA) is an early significant stage of recovery from traumatic brain injury (TBI). Current prospective PTA scales do not assess the full range of PTA symptomatology. This study conducted a novel integrated assessment of cognition and behaviour during PTA. Method: Twenty-four moderate-to-severe TBI participants in PTA and 23 TBI controls emerged from PTA were matched for age, gender, and years of education. All completed PTA measures (Galveston Orientation and Amnesia Test: GOAT, Westmead Post-traumatic Amnesia Scale: WPTAS), a cognitive battery; and behaviour ratings scored by 2 independent raters (informant and staff). Results: Significantly poorer performance was found during PTA for attention, processing speed, delayed verbal free recall and recognition, and visual learning. A large effect size was found for category fluency only. Behaviour ratings were significantly higher during PTA. Five behaviours were rated as high frequency (>50%) by both raters: Inattention, Impulsivity, Sleep Disturbance, Daytime Arousal, and Self-Monitoring. Prospective PTA measures produced significantly different duration estimates from 2 days (GOAT vs. WPTAS 1st day) to 9 days (WPTAS 1st day vs. 3-day). The WPTAS correlated most highly with processing speed and language tasks; whilst the GOAT correlated most highly with language and executive control of verbal memory. Conclusion: New prospective measures are needed that integrate core cognitive and behavioural features are brief, easy to administer, and capable of measuring emergence. The term PTA is a misnomer that requires revision to better accommodate the clinical syndrome.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"10 1","pages":"294 - 311"},"PeriodicalIF":0.8,"publicationDate":"2021-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87773130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cognition in the first week after stroke: how does it relate to personal and instrumental activities of daily living at follow-up? 中风后第一周的认知:它与随访中日常生活的个人和工具活动有何关系?
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-02-01 DOI: 10.1017/BrImp.2021.3
Sarah Buys, L. Gustafsson, Hannah L Gullo, R. Grimley, M. Summers, A. Campbell
{"title":"Cognition in the first week after stroke: how does it relate to personal and instrumental activities of daily living at follow-up?","authors":"Sarah Buys, L. Gustafsson, Hannah L Gullo, R. Grimley, M. Summers, A. Campbell","doi":"10.1017/BrImp.2021.3","DOIUrl":"https://doi.org/10.1017/BrImp.2021.3","url":null,"abstract":"Abstract Background: The Montreal Cognitive Assessment (MoCA) is routinely used during the early assessment of people after stroke to indicate cognitive effects and inform clinical decision-making. Aim: The purpose of this study was to examine the relationship between cognition in the first week post-stroke and personal and instrumental activities of daily skills at 1 month and 3 months post-stroke. Method: A prospective cohort study consecutively recruited people admitted to the acute stroke ward. Acute cognitive status was measured using the MoCA within 1 week post-stroke onset. Functional outcomes were measured using the Functional Independence Measure (FIM) and the Australian Modified Lawton’s Instrumental Activities of Daily Living Scale (Lawton’s) at 1 month and 3 months post-stroke. Results: Fifty participants with predominantly mild stroke (n = 47) and mean age of 69.8 achieved a mean MoCA score of 23.1. Controlling for age, the MoCA was associated with the overall FIM score at 1 month (P = 0.02). It was nearing significance for the Lawton’s at 1 month (P = 0.06) but was not associated with either outcome at 3 months. A score of less than 23 on the MoCA was indicative of lower scores on both outcomes. Conclusions: A low MoCA score within 1 week of stroke may indicate need for support or rehabilitation due to early impacts on personal activities of daily living, but is not associated with poor functional outcomes at 3 months.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"14 15 1","pages":"185 - 195"},"PeriodicalIF":0.8,"publicationDate":"2021-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80668574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Clinical profile of Aboriginal and Torres Strait Islander adults with stroke and traumatic brain injury at a regional Australian hospital: a retrospective chart audit 澳大利亚一家地区医院的土著和托雷斯海峡岛民成人中风和创伤性脑损伤的临床概况:回顾性图表审计
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-01-25 DOI: 10.1017/BrImp.2021.1
Frances Cochrane, S. Siyambalapitiya, P. Cornwell
{"title":"Clinical profile of Aboriginal and Torres Strait Islander adults with stroke and traumatic brain injury at a regional Australian hospital: a retrospective chart audit","authors":"Frances Cochrane, S. Siyambalapitiya, P. Cornwell","doi":"10.1017/BrImp.2021.1","DOIUrl":"https://doi.org/10.1017/BrImp.2021.1","url":null,"abstract":"\u0000 \u0000 \u0000 The clinical profile of Aboriginal and Torres Strait Islander adults admitted to hospital with neurological injury is not well documented. Understanding these profiles may enable health professionals to provide more culturally responsive health care for this patient group. This study aimed to report the clinical profile of Aboriginal and Torres Strait Islander adults admitted to a regional Queensland hospital due to stroke or traumatic brain injury (TBI).\u0000 \u0000 \u0000 \u0000 A 2-year retrospective medical record review of Aboriginal and Torres Strait Islander adults (≥18 years) admitted to a regional Queensland hospital with principal diagnoses of stroke or TBI.\u0000 \u0000 \u0000 \u0000 There were 132 Aboriginal and Torres Strait Islander adult stroke (51.5%) or TBI (48.5%) admissions. The mean ages were 56.7 years for stroke and 42.7 years for TBI. The majority of patients (83.3%) were of Aboriginal descent with others identifying as Torres Strait Islander only, or both Aboriginal and Torres Strait Islander. Patients were from 26 diverse home locations across northern Australia, primarily Outer Regional or Remote/Very Remote geographical locations. All patients’ language backgrounds were documented as English only. Over 90% of stroke and 50% of TBI patients presented with medical co-morbidities.\u0000 \u0000 \u0000 \u0000 Patients had diverse geographical locations and cultural backgrounds, with many likely impacted by dislocation from home and country, as well as potential delays in receiving treatment. Despite this diversity, English was documented in patients’ medical records as their only language. The majority of patients also presented with multiple medical co-morbidities. Health professionals should consider these factors to ensure patients receive optimum and culturally responsive health care.\u0000","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"40 1","pages":"281 - 293"},"PeriodicalIF":0.8,"publicationDate":"2021-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72681603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Training persons with early-stage Alzheimer’s disease how to use an electronic medication management device: development of an intervention protocol 培训早期阿尔茨海默病患者如何使用电子药物管理设备:制定干预方案
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-01-22 DOI: 10.1017/BRIMP.2020.25
M. Tellier, Claudine Auger, L. Demers
{"title":"Training persons with early-stage Alzheimer’s disease how to use an electronic medication management device: development of an intervention protocol","authors":"M. Tellier, Claudine Auger, L. Demers","doi":"10.1017/BRIMP.2020.25","DOIUrl":"https://doi.org/10.1017/BRIMP.2020.25","url":null,"abstract":"Abstract Background/Objectives: Medication management is challenging for persons with Alzheimer’s disease (AD) and their caregivers. Electronic medication management devices (eMMDs) are specifically designed to support this task. However, theory-driven interventions for eMMD training with this population are rarely described. This study aimed to develop and assess the appropriateness of an intervention protocol to train persons with early-stage AD how to use an eMMD. Methods: Interviews with three categories of participants [persons with early-stage AD (n = 3), caregivers (n = 3), and clinicians (n = 3)] were conducted to understand medication management needs, perceived usefulness of an eMMD, and to explore training strategies. Subsequently, this knowledge was integrated in an intervention protocol which was validated with the three clinicians. A content analysis led to iterative modifications to maximize the acceptability and coherence of the intervention protocol in a homecare context. Results: The final intervention protocol specifies the expertise required to provide the training intervention and the target population, followed by an extensive presentation of eMMD features. Specific learning strategies tailored to the cognitive profile of persons with AD with step-by-step instructions for clinicians are included. Finally, it presents theoretical information on cognitive impairment in AD and how eMMDs can support them. Conclusions: This intervention protocol with its theoretical and pragmatic foundation is an important starting point to enable persons with early-stage AD to become active users of eMMDs. Next steps should evaluate the immediate and long-term impacts of its implementation on medication management in the daily lives of persons with AD and their caregivers.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"13 1","pages":"329 - 342"},"PeriodicalIF":0.8,"publicationDate":"2021-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84912066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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