Brain Impairment最新文献

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ASSBI Prize Winning Abstracts ASSBI获奖摘要
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-11-29 DOI: 10.1017/BrImp.2021.21
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引用次数: 0
‘Dazed and Confused!’ Context and Social Disconnect in the Time of Pandemic “晕头转向!”大流行时期的背景和社会脱节
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-11-29 DOI: 10.1017/BrImp.2021.23
O. Piguet
{"title":"‘Dazed and Confused!’ Context and Social Disconnect in the Time of Pandemic","authors":"O. Piguet","doi":"10.1017/BrImp.2021.23","DOIUrl":"https://doi.org/10.1017/BrImp.2021.23","url":null,"abstract":"Abstract Humans are social animals. Our sense of identity and ‘self’ is defined in part by the roles we perform in the social groups to which we belong. This article discusses some of the variables that contribute to our sense of self, including language, place of origin, education and shared social norms. It also outlines some of the general mechanisms that underpin our various social networks. In its final part, this article reviews the impact of social isolation, such as that happened during the COVID pandemic, on these social mechanisms and the resulted disruption of psychological wellbeing in individuals diagnosed with dementia.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"36 1","pages":"343 - 348"},"PeriodicalIF":0.8,"publicationDate":"2021-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85015089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Lived Experience of Interdependence: Support Worker Relationships and Implications for Wider Rehabilitation 相互依赖的生活经验:支持工作者关系及其对更广泛康复的影响
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-11-15 DOI: 10.1017/BrImp.2021.24
J. Bourke
{"title":"The Lived Experience of Interdependence: Support Worker Relationships and Implications for Wider Rehabilitation","authors":"J. Bourke","doi":"10.1017/BrImp.2021.24","DOIUrl":"https://doi.org/10.1017/BrImp.2021.24","url":null,"abstract":"Abstract Engaging in a meaningful life where one can exercise autonomy has been proposed as a key aim of rehabilitation. Influenced by a neoliberal worldview, this has traditionally been characterised by a pursuit towards individual functional independence in which one completes tasks and activities unassisted. However for many persons, individual functional independence may not be a realistic, prioritised or beneficial goal. Many individuals must learn to work with support workers to exercise choice and control. Such relationships extend beyond a transactional nature and involve many subtle characteristics. In this article, I draw on my lived experience of partnering with support workers to illustrate the complexity of such relationships and how they can enable interdependence to serve as a vehicle to self-determination. I finish with some ideas about what rehabilitation can do to recognise the important role human connections play in facilitating interdependence. Understanding the nature of these relationships is necessary to provide services which value interdependence, supporting people to pursue a meaningful life following impairment.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"27 1","pages":"118 - 124"},"PeriodicalIF":0.8,"publicationDate":"2021-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87475692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
You Only Get One Brain: Adult Reflections on the Long-Term Impacts of Traumatic Brain Injury in Adolescence 你只有一个大脑:成人对青少年创伤性脑损伤长期影响的思考
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-11-02 DOI: 10.1017/BrImp.2021.22
T. Mulligan, S. Barker-Collo, K. Gibson, Kelly M Jones
{"title":"You Only Get One Brain: Adult Reflections on the Long-Term Impacts of Traumatic Brain Injury in Adolescence","authors":"T. Mulligan, S. Barker-Collo, K. Gibson, Kelly M Jones","doi":"10.1017/BrImp.2021.22","DOIUrl":"https://doi.org/10.1017/BrImp.2021.22","url":null,"abstract":"Abstract Background: This research adds to scarce literature regarding adolescent experiences of traumatic brain injury (TBI). Retrospective accounts of young adults who had sustained a TBI in adolescence were analysed to explore the perceived impact this had on their lives and forming identities during this important developmental stage. Methods: Thirteen adults (aged 20–25 years; mean 23 years) who sustained a mild or moderate TBI during adolescence (i.e. aged 13–17 years at injury), approximately 7.7 years (range = 6.7–8.0 years) prior, participated in the research. Semi-structured individual interviews, analysed using thematic analysis, explored participants’ experiences following their TBIs. Results: Thematic analysis of interview data produced two categories of themes: (1) Impacts on Important Areas of Life, which included: schoolwork suffered, career opportunities became limited, struggling with work and missing out socially; and (2) Impacts on Identity: with themes including feeling ‘stupid’, feeling self-conscious, loss of social identity and being dependent. Conclusions: TBI sustained during adolescence can have broad impacts on important areas of life and on developing identity.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"213 1","pages":"278 - 295"},"PeriodicalIF":0.8,"publicationDate":"2021-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73115104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pictures and a thousand words: the experiences of significant others whose loved ones have a severe brain injury who are being discharged home 图片和千言万语:亲人遭受严重脑损伤,即将出院回家的重要的人的经历
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-10-11 DOI: 10.1017/BrImp.2021.19
Martin Checklin, Delwyne Stephens
{"title":"Pictures and a thousand words: the experiences of significant others whose loved ones have a severe brain injury who are being discharged home","authors":"Martin Checklin, Delwyne Stephens","doi":"10.1017/BrImp.2021.19","DOIUrl":"https://doi.org/10.1017/BrImp.2021.19","url":null,"abstract":"Abstract Purpose: To investigate the experiences of significant others when their loved one with a severe acquired brain injury (ABI) is being discharged from an ABI-specific rehabilitation unit. Participants: Significant others of loved ones with an ABI participated in interviews close to their loved ones being discharged from inpatient ABI rehabilitation. Methods: Semi-structured interviews were conducted, and thematic analysis applied. Additionally, the drawing method was also used which involved participants drawing what it was like for them as their loved one was going home. Image analysis was then combined with the interview data. Results: Eight significant others participated in interviews on discharge and completed a drawing describing their experience. Five themes were identified (Change, Mixed feelings, Support of family and friends, Journey and Staff interactions). Conclusion: The experience of having a loved one with a severe ABI in rehabilitation is an emotional event. Compassionate communication, consistency of information and thorough discharge planning practices were cornerstones to enhancing the experience of significant others, empowering them to undertake their new role.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"14 1","pages":"311 - 324"},"PeriodicalIF":0.8,"publicationDate":"2021-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79840372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme 人性化脑损伤康复:一项定性研究,在讲故事宣传方案的背景下检查人性化参与方法
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-10-08 DOI: 10.1017/BrImp.2021.16
Kate D’Cruz, J. Douglas, T. Serry
{"title":"Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme","authors":"Kate D’Cruz, J. Douglas, T. Serry","doi":"10.1017/BrImp.2021.16","DOIUrl":"https://doi.org/10.1017/BrImp.2021.16","url":null,"abstract":"Abstract Objectives: Building upon the findings of an earlier study that explored the experience and impact of narrative storytelling following acquired brain injury (ABI), this study sought to examine the engagement of storytelling facilitators with storytellers. Methods: Transcripts of in-depth interviews conducted with six storytelling facilitators were analysed drawing upon content analysis. The analysis included a process of mapping previously analysed data (D’Cruz et al., 2020b) to a humanising values framework (Galvin & Todres, 2013; Todres et al., 2009). Results: The findings of this study provide insights into how facilitators engaged in humanising practice within the context of a storytelling advocacy programme. The facilitator participants ranged in years of facilitation experience from 1 to 11 years, with a mix of professional backgrounds, including health care (3), journalism (1) and community development (2). Analysed facilitator data mapped to each of the eight dimensions of the framework (insiderness, agency, uniqueness, togetherness, sense-making, personal journey, sense of place and embodiment), with a breadth of codes represented in each dimension, revealing the depth of humanisation. Conclusions: This study extends our understanding of approaches to engagement with adults living with ABI, demonstrating the humanising potential of storytelling. Furthermore, the findings help us to think about what it means to be human, guiding us to find ways to better partner with and support adults living with brain injury.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"119 1","pages":"91 - 103"},"PeriodicalIF":0.8,"publicationDate":"2021-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77465911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
How does a narrative understanding of change in families post brain injury help us to humanise our professional practice? 对脑损伤后家庭变化的叙事理解如何帮助我们将专业实践人性化?
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-09-17 DOI: 10.1017/BrImp.2021.14
C. Whiffin, C. Ellis-Hill
{"title":"How does a narrative understanding of change in families post brain injury help us to humanise our professional practice?","authors":"C. Whiffin, C. Ellis-Hill","doi":"10.1017/BrImp.2021.14","DOIUrl":"https://doi.org/10.1017/BrImp.2021.14","url":null,"abstract":"Abstract In this paper, we critically explore the discourse of change post brain injury and challenge the dominant discourse of negative change, which alone leaves little room for other perspectives to exist. These negative changes pose a considerable risk to the well-being of families who may benefit from engaging in richer accounts making room for a more coherent and connected sense of self and family post-injury. We explore how narrative approaches provide opportunities for all practitioners to expand their professional scripts and support families to move towards a future which is not dominated by a discourse of loss. While loss and negative change is an important and very real consequence, of brain injury, focusing purely on stories of loss is life limiting for family members and can cause psychological distress. The life thread model is offered as a visible tool for all practitioners to engage with and use while working with families, providing a concrete focus for reflection and discussion of narratives relating to change which otherwise can feel quite abstract in everyday practice. We argue that one way we can humanise our professional practice is to support all practitioners to engage in a narrative understanding of family change following ABI.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"1 1","pages":"125 - 133"},"PeriodicalIF":0.8,"publicationDate":"2021-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73098599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
The experience of close personal relationships after stroke: scoping review and thematic analysis of qualitative literature 中风后亲密人际关系的经验:定性文献的范围审查和专题分析
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-08-02 DOI: 10.1017/BrImp.2021.12
Amy L Ford, J. Douglas, R. O'halloran
{"title":"The experience of close personal relationships after stroke: scoping review and thematic analysis of qualitative literature","authors":"Amy L Ford, J. Douglas, R. O'halloran","doi":"10.1017/BrImp.2021.12","DOIUrl":"https://doi.org/10.1017/BrImp.2021.12","url":null,"abstract":"Psychosocial difficulties, including changed relationships are among the most pervasive and concerning issues following stroke. This study aimed to collate and thematically analyse qualitative literature describing the experience of close personal relationships from the perspective of stroke survivors. Using a scoping review methodology, four databases (CINAHL/EBSCO, MEDLINE/Pubmed, Embase, Psychinfo) were systematically searched, yielding 3100 citations. Following exclusion of duplicates and screening against inclusion criteria at title/abstract and full text levels, 53 articles were included in the review. Data were charted and thematically analysed. While research has increased since 2000, longitudinal designs are few. Four overarching themes and 12 subthemes were identified. ‘Social disruption’ described changing social worlds, lost social opportunities and shrinking networks. ‘Changed relationships’ included changed family and spousal relationships and changed parenting relationships. The third theme ‘relationships help’ highlighted positive aspects including belonging, support and a life worth living. The final theme was ‘coping with an altered social world’ and described adjustment and emotional responses. Relationships are an important aspect of life post stroke but are subject to changes and challenges. This article brings together a breadth of qualitative data to describe lived experiences. Further research, in particular, longitudinal research is required.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"40 1","pages":"231 - 261"},"PeriodicalIF":0.8,"publicationDate":"2021-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80928358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Evaluating the feasibility and efficacy of the Amsterdam memory and attention training for children (Amat-c) following acquired brain injury (ABI): protocol for a pilot study with online clinician support 评估获得性脑损伤(ABI)后儿童阿姆斯特丹记忆和注意力训练(Amat-c)的可行性和有效性:一项有在线临床医生支持的试点研究方案
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-07-29 DOI: 10.1017/BrImp.2021.13
C. Catroppa, Edith N Botchway, N. Ryan, V. Anderson, Elle Morrison, Bernadette Lam, Chandelle Piazza, Daina Krasts, Emma McIntosh, Noor Khan, N. Sood
{"title":"Evaluating the feasibility and efficacy of the Amsterdam memory and attention training for children (Amat-c) following acquired brain injury (ABI): protocol for a pilot study with online clinician support","authors":"C. Catroppa, Edith N Botchway, N. Ryan, V. Anderson, Elle Morrison, Bernadette Lam, Chandelle Piazza, Daina Krasts, Emma McIntosh, Noor Khan, N. Sood","doi":"10.1017/BrImp.2021.13","DOIUrl":"https://doi.org/10.1017/BrImp.2021.13","url":null,"abstract":"Abstract Background: Attention and memory deficits are common following paediatric acquired brain injury (ABI). However, there are few evidence-based interventions to improve these domains and benefit the everyday life of children post-injury. The Amsterdam Memory and Attention Training for children (Amat-c) has been translated from Dutch to English and shown to improve attention and memory skills in children following ABI. This protocol describes a study to expand accessibility of the program by using online, clinician-supported delivery with children post-ABI. Method/design: The study is a randomized controlled trial. Participants will be 40 children aged 8–16 a minimum of one-year post-ABI. Participants in the treatment group will complete 18 weekly sessions of the Amat-c program with weekly online clinician support. Participants in the active-control group will be administered ABI psychoeducation via a booklet for parents, with weekly online clinician contact. Attention and memory will be assessed at three time points up to six months post-intervention. Results: Analysis will be repeated measures multivariate planned comparisons; using the Statistical Package for the Social Sciences (IBM SPSS Statistics) General Linear Model procedure will compare pre- and post-intervention and six-month follow-up outcomes. Discussion: If shown efficacious in improving attention and memory, our team will then take a key role in implementing Amat-c into clinical care.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"118 1","pages":"325 - 336"},"PeriodicalIF":0.8,"publicationDate":"2021-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77405473","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The perspectives of stroke survivors and health professionals on the use of augmented reality for inpatient stroke rehabilitation: an anticipatory exploration 脑卒中幸存者和卫生专业人员对使用增强现实住院脑卒中康复的看法:一种预期的探索
IF 0.8 4区 医学
Brain Impairment Pub Date : 2021-06-21 DOI: 10.1017/BrImp.2021.11
Cassandra Gorman, L. Gustafsson, Carly Gomura
{"title":"The perspectives of stroke survivors and health professionals on the use of augmented reality for inpatient stroke rehabilitation: an anticipatory exploration","authors":"Cassandra Gorman, L. Gustafsson, Carly Gomura","doi":"10.1017/BrImp.2021.11","DOIUrl":"https://doi.org/10.1017/BrImp.2021.11","url":null,"abstract":"Abstract Background: Augmented reality is a novel technology with potential to overlay aspects or objects from the home environment into hospital-based training, which may increase relevance and motivation for hospital-based rehabilitation. Consultation with people with lived experience and clinician stakeholders is an important step when exploring possibilities for use of new technology in the hospital environment. Aims: This study sought to understand the need and acceptability of augmented reality from the perspectives of health professionals and stroke survivors during inpatient stroke rehabilitation. Methods: This qualitative descriptive study included stroke survivors (n = 4) and health professionals (n = 10) from a large metropolitan hospital. Data collection was undertaken via focus groups which were transcribed verbatim and analysed using qualitative content analysis. Results: Inductive content analysis revealed three themes: everything is computerised these days; the possibilities are endless…but what about?; and bringing the outside into the hospital. Participants were open to the use of augmented reality for stroke rehabilitation; however there was uncertainty with pragmatic concerns and stroke survivors describing possible applications in building confidence and self-efficacy, and sharing experiences to enhance caregivers understanding. Conclusion: This research identified that there is potential acceptability for augmented reality in stroke rehabilitation. The needs identified by the participants may inform development of current and future technology.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"229 1","pages":"206 - 215"},"PeriodicalIF":0.8,"publicationDate":"2021-06-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75686390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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