Brain Impairment最新文献_第7页

It takes two to tango: The therapeutic alliance in community brain injury rehabilitation 一个巴掌拍不响:社区脑损伤康复治疗联盟

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-12-10 DOI: 10.1017/BrImp.2021.26

Liz M. Williams, J. Douglas

{"title":"It takes two to tango: The therapeutic alliance in community brain injury rehabilitation","authors":"Liz M. Williams, J. Douglas","doi":"10.1017/BrImp.2021.26","DOIUrl":"https://doi.org/10.1017/BrImp.2021.26","url":null,"abstract":"Abstract Objective: A positive therapeutic (or working) alliance has been associated with better outcomes for clients in the psychotherapeutic and traumatic brain injury (TBI) rehabilitation literature. The aim of this pilot study was to gain an understanding of the therapeutic alliance in community rehabilitation from the perspectives of adults with TBI and their close others who have completed a community rehabilitation programme. Method: This study used a constructivist, qualitative methodology which applied grounded theory analysis techniques. Using purposeful sampling, three pairs of participants (adults with TBI and close others) who had finished a community rehabilitation programme completed separate in-depth interviews which were transcribed verbatim and progressively analysed using a process of constant comparison. Results: A preliminary framework illustrating participants’ experience of a therapeutic alliance was generated, comprising three interconnected themes: being recognised as an individual, working together and feeling personally connected. All participants viewed being able to work together as important in their experience of community rehabilitation and described features that helped and hindered the alliance. Conclusion: These pilot study results demonstrate the importance of the therapeutic alliance to the rehabilitation experience of individuals with TBI and those close to them.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"41 1","pages":"24 - 41"},"PeriodicalIF":0.8,"publicationDate":"2021-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83384645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Thinking Otherwise: Bringing Young People into Pediatric Concussion Clinical and Research Practice 思考其他:把年轻人带入儿科脑震荡临床和研究实践

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-11-29 DOI: 10.1017/BrImp.2021.28

K. Mah, B. Gladstone, Deb Cameron, N. Reed

{"title":"Thinking Otherwise: Bringing Young People into Pediatric Concussion Clinical and Research Practice","authors":"K. Mah, B. Gladstone, Deb Cameron, N. Reed","doi":"10.1017/BrImp.2021.28","DOIUrl":"https://doi.org/10.1017/BrImp.2021.28","url":null,"abstract":"Abstract Background: As rates of pediatric concussion have steadily risen, and concerns regarding its consequences have emerged, pediatric concussion has received increased attention in research and clinical spheres. Accordingly, there has been a commitment to determine how best to prevent and manage this injury that so commonly affects young people. Despite this increased attention, and proliferation of research, pediatric concussion as a concept has rarely, if ever, been taken up and questioned. That is, little attention has been directed toward understanding what concussion ‘is’, or how young people are regarded in relation to it. As a result, pediatric concussion is understood in decidedly narrow terms, constructed as such by a biomedical way of knowing. Aim: We aim to demonstrate how conceptualizing concussion, and young people, ‘otherwise’, enabled the co-production of a more nuanced and complex understanding of the experience of pediatric concussion from the perspective of young people. Approach: Drawing on an illustrative case example from a critical qualitative arts-based study, we demonstrate how bringing young people into research as ‘knowers’ enabled us to generate much-needed knowledge about concussion in young people. Implications: The critical thinking put forward in this paper suggests a different approach to pediatric concussion, which is shared in the form of implications for clinical and research practice.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"5 1","pages":"104 - 117"},"PeriodicalIF":0.8,"publicationDate":"2021-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75324001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

ASSBI Prize Winning Abstracts ASSBI获奖摘要

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-11-29 DOI: 10.1017/BrImp.2021.21

引用次数: 0

‘Dazed and Confused!’ Context and Social Disconnect in the Time of Pandemic “晕头转向!”大流行时期的背景和社会脱节

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-11-29 DOI: 10.1017/BrImp.2021.23

O. Piguet

引用次数: 0

The Lived Experience of Interdependence: Support Worker Relationships and Implications for Wider Rehabilitation 相互依赖的生活经验:支持工作者关系及其对更广泛康复的影响

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-11-15 DOI: 10.1017/BrImp.2021.24

J. Bourke

引用次数: 1

You Only Get One Brain: Adult Reflections on the Long-Term Impacts of Traumatic Brain Injury in Adolescence 你只有一个大脑:成人对青少年创伤性脑损伤长期影响的思考

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-11-02 DOI: 10.1017/BrImp.2021.22

T. Mulligan, S. Barker-Collo, K. Gibson, Kelly M Jones

{"title":"You Only Get One Brain: Adult Reflections on the Long-Term Impacts of Traumatic Brain Injury in Adolescence","authors":"T. Mulligan, S. Barker-Collo, K. Gibson, Kelly M Jones","doi":"10.1017/BrImp.2021.22","DOIUrl":"https://doi.org/10.1017/BrImp.2021.22","url":null,"abstract":"Abstract Background: This research adds to scarce literature regarding adolescent experiences of traumatic brain injury (TBI). Retrospective accounts of young adults who had sustained a TBI in adolescence were analysed to explore the perceived impact this had on their lives and forming identities during this important developmental stage. Methods: Thirteen adults (aged 20–25 years; mean 23 years) who sustained a mild or moderate TBI during adolescence (i.e. aged 13–17 years at injury), approximately 7.7 years (range = 6.7–8.0 years) prior, participated in the research. Semi-structured individual interviews, analysed using thematic analysis, explored participants’ experiences following their TBIs. Results: Thematic analysis of interview data produced two categories of themes: (1) Impacts on Important Areas of Life, which included: schoolwork suffered, career opportunities became limited, struggling with work and missing out socially; and (2) Impacts on Identity: with themes including feeling ‘stupid’, feeling self-conscious, loss of social identity and being dependent. Conclusions: TBI sustained during adolescence can have broad impacts on important areas of life and on developing identity.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"213 1","pages":"278 - 295"},"PeriodicalIF":0.8,"publicationDate":"2021-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73115104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pictures and a thousand words: the experiences of significant others whose loved ones have a severe brain injury who are being discharged home 图片和千言万语:亲人遭受严重脑损伤，即将出院回家的重要的人的经历

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-10-11 DOI: 10.1017/BrImp.2021.19

Martin Checklin, Delwyne Stephens

{"title":"Pictures and a thousand words: the experiences of significant others whose loved ones have a severe brain injury who are being discharged home","authors":"Martin Checklin, Delwyne Stephens","doi":"10.1017/BrImp.2021.19","DOIUrl":"https://doi.org/10.1017/BrImp.2021.19","url":null,"abstract":"Abstract Purpose: To investigate the experiences of significant others when their loved one with a severe acquired brain injury (ABI) is being discharged from an ABI-specific rehabilitation unit. Participants: Significant others of loved ones with an ABI participated in interviews close to their loved ones being discharged from inpatient ABI rehabilitation. Methods: Semi-structured interviews were conducted, and thematic analysis applied. Additionally, the drawing method was also used which involved participants drawing what it was like for them as their loved one was going home. Image analysis was then combined with the interview data. Results: Eight significant others participated in interviews on discharge and completed a drawing describing their experience. Five themes were identified (Change, Mixed feelings, Support of family and friends, Journey and Staff interactions). Conclusion: The experience of having a loved one with a severe ABI in rehabilitation is an emotional event. Compassionate communication, consistency of information and thorough discharge planning practices were cornerstones to enhancing the experience of significant others, empowering them to undertake their new role.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"14 1","pages":"311 - 324"},"PeriodicalIF":0.8,"publicationDate":"2021-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79840372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme 人性化脑损伤康复:一项定性研究，在讲故事宣传方案的背景下检查人性化参与方法

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-10-08 DOI: 10.1017/BrImp.2021.16

Kate D’Cruz, J. Douglas, T. Serry

{"title":"Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme","authors":"Kate D’Cruz, J. Douglas, T. Serry","doi":"10.1017/BrImp.2021.16","DOIUrl":"https://doi.org/10.1017/BrImp.2021.16","url":null,"abstract":"Abstract Objectives: Building upon the findings of an earlier study that explored the experience and impact of narrative storytelling following acquired brain injury (ABI), this study sought to examine the engagement of storytelling facilitators with storytellers. Methods: Transcripts of in-depth interviews conducted with six storytelling facilitators were analysed drawing upon content analysis. The analysis included a process of mapping previously analysed data (D’Cruz et al., 2020b) to a humanising values framework (Galvin & Todres, 2013; Todres et al., 2009). Results: The findings of this study provide insights into how facilitators engaged in humanising practice within the context of a storytelling advocacy programme. The facilitator participants ranged in years of facilitation experience from 1 to 11 years, with a mix of professional backgrounds, including health care (3), journalism (1) and community development (2). Analysed facilitator data mapped to each of the eight dimensions of the framework (insiderness, agency, uniqueness, togetherness, sense-making, personal journey, sense of place and embodiment), with a breadth of codes represented in each dimension, revealing the depth of humanisation. Conclusions: This study extends our understanding of approaches to engagement with adults living with ABI, demonstrating the humanising potential of storytelling. Furthermore, the findings help us to think about what it means to be human, guiding us to find ways to better partner with and support adults living with brain injury.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"119 1","pages":"91 - 103"},"PeriodicalIF":0.8,"publicationDate":"2021-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77465911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

How does a narrative understanding of change in families post brain injury help us to humanise our professional practice? 对脑损伤后家庭变化的叙事理解如何帮助我们将专业实践人性化?

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-09-17 DOI: 10.1017/BrImp.2021.14

C. Whiffin, C. Ellis-Hill

{"title":"How does a narrative understanding of change in families post brain injury help us to humanise our professional practice?","authors":"C. Whiffin, C. Ellis-Hill","doi":"10.1017/BrImp.2021.14","DOIUrl":"https://doi.org/10.1017/BrImp.2021.14","url":null,"abstract":"Abstract In this paper, we critically explore the discourse of change post brain injury and challenge the dominant discourse of negative change, which alone leaves little room for other perspectives to exist. These negative changes pose a considerable risk to the well-being of families who may benefit from engaging in richer accounts making room for a more coherent and connected sense of self and family post-injury. We explore how narrative approaches provide opportunities for all practitioners to expand their professional scripts and support families to move towards a future which is not dominated by a discourse of loss. While loss and negative change is an important and very real consequence, of brain injury, focusing purely on stories of loss is life limiting for family members and can cause psychological distress. The life thread model is offered as a visible tool for all practitioners to engage with and use while working with families, providing a concrete focus for reflection and discussion of narratives relating to change which otherwise can feel quite abstract in everyday practice. We argue that one way we can humanise our professional practice is to support all practitioners to engage in a narrative understanding of family change following ABI.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"1 1","pages":"125 - 133"},"PeriodicalIF":0.8,"publicationDate":"2021-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73098599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The experience of close personal relationships after stroke: scoping review and thematic analysis of qualitative literature 中风后亲密人际关系的经验:定性文献的范围审查和专题分析

IF 0.8 4区医学

Brain Impairment Pub Date : 2021-08-02 DOI: 10.1017/BrImp.2021.12

Amy L Ford, J. Douglas, R. O'halloran

{"title":"The experience of close personal relationships after stroke: scoping review and thematic analysis of qualitative literature","authors":"Amy L Ford, J. Douglas, R. O'halloran","doi":"10.1017/BrImp.2021.12","DOIUrl":"https://doi.org/10.1017/BrImp.2021.12","url":null,"abstract":"Psychosocial difficulties, including changed relationships are among the most pervasive and concerning issues following stroke. This study aimed to collate and thematically analyse qualitative literature describing the experience of close personal relationships from the perspective of stroke survivors. Using a scoping review methodology, four databases (CINAHL/EBSCO, MEDLINE/Pubmed, Embase, Psychinfo) were systematically searched, yielding 3100 citations. Following exclusion of duplicates and screening against inclusion criteria at title/abstract and full text levels, 53 articles were included in the review. Data were charted and thematically analysed. While research has increased since 2000, longitudinal designs are few. Four overarching themes and 12 subthemes were identified. ‘Social disruption’ described changing social worlds, lost social opportunities and shrinking networks. ‘Changed relationships’ included changed family and spousal relationships and changed parenting relationships. The third theme ‘relationships help’ highlighted positive aspects including belonging, support and a life worth living. The final theme was ‘coping with an altered social world’ and described adjustment and emotional responses. Relationships are an important aspect of life post stroke but are subject to changes and challenges. This article brings together a breadth of qualitative data to describe lived experiences. Further research, in particular, longitudinal research is required.","PeriodicalId":56329,"journal":{"name":"Brain Impairment","volume":"40 1","pages":"231 - 261"},"PeriodicalIF":0.8,"publicationDate":"2021-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80928358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5