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Imagining Ourselves into the Lives of People Living with Dementia: Toward New Narratives for Aging Societies 想象自己进入痴呆症患者的生活：迈向老龄化社会的新叙事。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4987
Nancy Berlinger, Janelle Taylor
{"title":"Imagining Ourselves into the Lives of People Living with Dementia: Toward New Narratives for Aging Societies","authors":"Nancy Berlinger,&nbsp;Janelle Taylor","doi":"10.1002/hast.4987","DOIUrl":"10.1002/hast.4987","url":null,"abstract":"<p>Aging societies frequently fail to imagine their own collective needs, including the care needs of people with dementia and who will be expected to meet these needs. This essay considers how to build a practice of moral imagination—a capacity to think about current and future challenges in ways that aim at better lives and greater justice—into rethinking familiar cultural narratives about dementia that fail to improve the lives of people with dementia or of dementia caregivers, who are usually family members. Focusing on real-world conditions in the United States and Canada, the essay outlines a public humanities project to improve public understanding and public deliberation about dementia care, through careful reflection on the stories that members of aging societies tell, share, and embed in civic dialogue.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S9-S18"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4987","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implicit Narratives in Participatory Arts Collaborations with People with Lived Experience of Dementia 参与艺术中的隐性叙事与痴呆症患者的合作。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4998
Julia Henderson
{"title":"Implicit Narratives in Participatory Arts Collaborations with People with Lived Experience of Dementia","authors":"Julia Henderson","doi":"10.1002/hast.4998","DOIUrl":"10.1002/hast.4998","url":null,"abstract":"<p>Over the past decade, participatory arts programs for people with lived experience of dementia have expanded in scale, number, and approach, both in North America and the United Kingdom. This narrative analysis considers how participatory arts programs and practices generate implicit narratives about what it means to live with dementia and about the value and meaning of arts and creativity to human experience. Using as examples several large-scale, multiyear, community-engaged, co-creative projects, I argue that these projects and others like them (a) shift cultural imaginaries of dementia through implicit narratives that construct lived experience as a legitimate form of knowledge, (b) uphold creativity as a universal quality, and (c) reimagine health and well-being discourses to include understandings of well-being that include ill-being. The projects construct implicit narratives about what living with dementia means—shifting away from notions of dementia as pathology and loss toward understandings of dementia that include creative potential, citizenship, and new conceptualizations of well-being.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S89-S96"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4998","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
History and the Challenges of Dementia 痴呆症的历史和挑战。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4991
Jesse F. Ballenger
{"title":"History and the Challenges of Dementia","authors":"Jesse F. Ballenger","doi":"10.1002/hast.4991","DOIUrl":"10.1002/hast.4991","url":null,"abstract":"<p>Much has been written about the biological, clinical, and epidemiological aspects of dementia. Dire, sometimes apocalyptic social and policy issues have been identified and discussed, and scores of books have been published explaining all of this to a popular audience and providing practical advice for patients and their families. But the vast professional and popular discourse on dementia has largely been ahistorical and uncritical. This essay argues that history can be the basis of a more critically informed discussion of dementia by showing that attitudes and ideas often taken to be natural and inevitable are, in fact, historically contingent, shaped by specific social and cultural circumstances. History can renew a sense of possibility by pointing out that things were not always as they are now, and that they might well be different in the future.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S41-S47"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4991","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dementia, Narrative, and Place: What Can Be Learned from the Age-Friendly Movement? 痴呆症、叙事和地点：从老年友好运动中学到什么？
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4988
Richard Ward, Andrew Clark
{"title":"Dementia, Narrative, and Place: What Can Be Learned from the Age-Friendly Movement?","authors":"Richard Ward,&nbsp;Andrew Clark","doi":"10.1002/hast.4988","DOIUrl":"10.1002/hast.4988","url":null,"abstract":"<p>This essay considers policy narratives of aging and dementia, what they do, and where they lead. It is argued that a renewed policy narrative of dementia is long overdue, and the authors reflect upon the value of drawing on the established age-friendly cities and communities movement to help guide the crafting of this new narrative. The essay develops three points: first, that efforts to promote an age- and latterly dementia-friendly agenda have elided a series of tensions within each program; second, that these tensions often materialize and are perhaps best understood at the point where policy is implemented and “lived out”; and third, that such points of friction provide a useful focus for future dialogue between the hitherto largely parallel and disconnected trajectories of age- and dementia-friendly agendas. Fostering such a dialogue can strengthen an evolving policy critique and ultimately help refine policy-making.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S19-S28"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4988","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editors and Authors 编辑与作者
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.70013
{"title":"Editors and Authors","authors":"","doi":"10.1002/hast.70013","DOIUrl":"https://doi.org/10.1002/hast.70013","url":null,"abstract":"","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":""},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145101752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Charting New Frontiers for Black Men's Brain Health: Implications for Dementia Research and Public Engagement 绘制黑人男性大脑健康的新领域：对痴呆症研究和公众参与的影响。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4996
Darlingtina K. Esiaka
{"title":"Charting New Frontiers for Black Men's Brain Health: Implications for Dementia Research and Public Engagement","authors":"Darlingtina K. Esiaka","doi":"10.1002/hast.4996","DOIUrl":"10.1002/hast.4996","url":null,"abstract":"<p>This essay critically explores the intersection of brain health and dementia research within the context of Black men's lived experiences. It interrogates dominant narratives of brain health that prioritize individual responsibility while neglecting systemic and structural determinants of health. Drawing on a life-course perspective, the essay advocates for inclusive research practices that center Black men's voices, challenge deficit-based assumptions, and address systemic barriers to brain health. Finally, it outlines a roadmap for transformative research, advocacy, and care that advances brain health equity.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S76-S83"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4996","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gifts of Time: Disrupting Dominant Temporalities in the Dementia Unit 时间的礼物：扰乱痴呆单元的主导时间。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.5000
Hailee Yoshizaki-Gibbons
{"title":"Gifts of Time: Disrupting Dominant Temporalities in the Dementia Unit","authors":"Hailee Yoshizaki-Gibbons","doi":"10.1002/hast.5000","DOIUrl":"10.1002/hast.5000","url":null,"abstract":"<p>Within the dominant U.S. cultural imagination, dementia care is often constructed as a significant physical, mental, emotional, and financial burden, with a huge cost to individuals, families, and society. This cultural anxiety positions dementia as a signifier of dependence, helplessness, frailty, and loss. However, feminist disability studies offers a way to approach dementia and care as relational, collective, and political. Drawing on nine months of ethnographic research in the dementia unit of a nursing home, I illustrate how dementia care is a site of collectivity, resistance, and activism in a context of exploitation, control, and oppression. I uncover how institutionalized old women with dementia and immigrant and nonimmigrant women of color care workers navigate strict institutional routines, pressures of time management, and tightly controlled, predetermined care tasks and how they withstand these forces by making time for and giving time to one another, continuously (re)building relationships and investing in collective care that emphasizes interdependence.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S105-S110"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.5000","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088337","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dignity, Personhood, or Sacred Selves? Complicating Medical Literature and Caregiver Narratives in Dementia Care 尊严，人格，还是神圣的自我？痴呆护理中复杂的医学文献和护理者叙述。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4994
Cindy L. Cain
{"title":"Dignity, Personhood, or Sacred Selves? Complicating Medical Literature and Caregiver Narratives in Dementia Care","authors":"Cindy L. Cain","doi":"10.1002/hast.4994","DOIUrl":"10.1002/hast.4994","url":null,"abstract":"<p>Perceptions of people living with dementia are shaped by a variety of “narratives” produced by medical authorities, family members of people living with dementia, and paid care workers. Narratives often define how a person living with dementia should be treated, with a focus on dignity and personhood. Using data from published medical literature, a discussion board for family caregivers, and participant observation of a memory-care unit of a long-term care facility, this paper compares varying narratives about dementia. The medical literature centers dignity and personhood. However, family members problematize dignity in their constructions of personhood. Meanwhile, paid care workers’ practices complicate both dignity and personhood. This paper argues that we can use sociologist Erving Goffman's concept of <i>sacred selves</i> to overcome the limitations of extant narratives and improve care for people living with dementia.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S64-S70"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4994","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How Do Cultural Narratives Shape the Lives of People Living with Dementia? Insights from Humanities Research 文化叙事如何塑造痴呆症患者的生活？从人文研究的见解。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.4986
Nancy Berlinger, Erin Gentry Lamb, Kate de Medeiros, Liz Bowen
{"title":"How Do Cultural Narratives Shape the Lives of People Living with Dementia? Insights from Humanities Research","authors":"Nancy Berlinger,&nbsp;Erin Gentry Lamb,&nbsp;Kate de Medeiros,&nbsp;Liz Bowen","doi":"10.1002/hast.4986","DOIUrl":"10.1002/hast.4986","url":null,"abstract":"<p>“Dementia” is a collective term for a group of common, aging-associated, progressively debilitating, ultimately terminal conditions that affect a person's thought, memory, speech, and behavior. Dementia challenges ideas about the self, about social relationships, and about how aging societies should respond to the needs of people living with dementia and to the needs of dementia caregivers. This introduction to a collection of original essays and a roundtable explains how cultural narratives shape the experience of living with dementia, for better or worse. Cultural narratives are stories that a society or cultural group shares to make meaning, and these stories may reveal common values and fears. This introduction offers examples of how cultural narratives work and highlights insights from research by bioethics and humanities scholars and by humanities researchers in the social sciences. This introduction also provides an overview of the collection, which includes pieces that highlight innovative community projects that demonstrate how stories affect public understanding about what it means to live with dementia.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S2-S8"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.4986","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Innovation with People Living with Dementia: Toward New Narratives about Meaning, Belonging, Community, and Place 痴呆症患者的创新：走向关于意义、归属、社区和场所的新叙事。
IF 2.3 3区 哲学
Hastings Center Report Pub Date : 2025-09-18 DOI: 10.1002/hast.5003
Nancy Berlinger
{"title":"Innovation with People Living with Dementia: Toward New Narratives about Meaning, Belonging, Community, and Place","authors":"Nancy Berlinger","doi":"10.1002/hast.5003","DOIUrl":"10.1002/hast.5003","url":null,"abstract":"<p>Across aging societies, there's a hunger for real-world examples of what could be better for people living with dementia and for dementia caregivers. This roundtable brought together four innovators in dementia-friendly community initiatives in North America to discuss how researchers and community organizations can collaborate to create opportunities for people living with dementia and to illuminate the crucial role of people living with dementia in identifying what helps them to flourish.</p>","PeriodicalId":55073,"journal":{"name":"Hastings Center Report","volume":"55 S1","pages":"S121-S128"},"PeriodicalIF":2.3,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hast.5003","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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