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The new stage of public engagement with science in the digital media environment: citizen science communicators in the discussion of GMOs on Zhihu 数字媒体环境下公众参与科学的新阶段:知乎上转基因生物讨论中的公民科学传播者
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-04-03 DOI: 10.1080/14636778.2022.2063826
Zheng Yang
{"title":"The new stage of public engagement with science in the digital media environment: citizen science communicators in the discussion of GMOs on Zhihu","authors":"Zheng Yang","doi":"10.1080/14636778.2022.2063826","DOIUrl":"https://doi.org/10.1080/14636778.2022.2063826","url":null,"abstract":"In the digital media environment, public engagement with science around controversial scientific topics such as genetically modified organisms (GMOs) has greatly expanded. But the public's role as science communicators in such engagement has been virtually ignored. Through an online ethnography of the discussion of GMOs on Zhihu, the biggest Chinese knowledge-sharing network, this study identifies a new group: citizen science communicators involved in online science communication. The emergence and popularity of this new group brings public engagement with science to a new stage – public engagement with science communication – and changes the role of the public in science communication from audiences to communicators. The development of digital platforms and the revolution of the understanding of science communication all contribute to the emergence and popularity of this group in the Chinese digital environment.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"11 1","pages":"116 - 135"},"PeriodicalIF":1.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87970494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Environmental sustainability and biobanking: a pilot study of the field 环境可持续性和生物银行:该领域的试点研究
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-04-03 DOI: 10.1080/14636778.2022.2093707
G. Samuel, F. Hardcastle, A. Lucassen
{"title":"Environmental sustainability and biobanking: a pilot study of the field","authors":"G. Samuel, F. Hardcastle, A. Lucassen","doi":"10.1080/14636778.2022.2093707","DOIUrl":"https://doi.org/10.1080/14636778.2022.2093707","url":null,"abstract":"Biobanks have expanded dramatically over the past few decades, as have their storage and computational requirements. These requirements have environmental impacts, including mineral extraction and manufacturing processes associated with digital infrastructures, carbon emissions related to sample storage and data storage and analysis, and associated waste. Here we analyse whether biobanks have any specific policies about these environmental impacts. We also explore the ethical assumptions associated with how people with a professional stake in these discussions - those researchers using biobank resources, digital sustainability experts – think about these issues, and the implications embedded within them. Biobanks we spoke to had no specific relevant policies and researchers reported little awareness of issues. When researchers did discuss the issues, they often drew on consequentialist narratives and/or appealing to worse problems. Some researchers and digital sustainability experts suggested approaches to improving existing and future biobanking practices, though not in a standardised way.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"8 1","pages":"157 - 175"},"PeriodicalIF":1.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81597156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Exploring “quality” in cord blood transfusion: uncertainties, bionetworks, and collaborations 探索脐带血输血的“质量”:不确定性、生物网络和合作
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-04-03 DOI: 10.1080/14636778.2022.2077183
B. Lonergan, R. Williams, T. Matsushige, L. Machin
{"title":"Exploring “quality” in cord blood transfusion: uncertainties, bionetworks, and collaborations","authors":"B. Lonergan, R. Williams, T. Matsushige, L. Machin","doi":"10.1080/14636778.2022.2077183","DOIUrl":"https://doi.org/10.1080/14636778.2022.2077183","url":null,"abstract":"Umbilical cord blood unit (CBU) “quantity” continues to grow internationally, while cord blood transplantation (CBT) “quality” remains poorly defined and subject to uncertainty. CBT “quality” is affected by both the product (i.e. CBUs) and CBT processes, with “best practice” varying across countries. To improve overall CBT “quality”, we need to better understand the uncertainty associated with CBUs and CBT processes and how staff manage it. In this qualitative study, we conducted in-depth semi-structured interviews with individuals working in CBT in UK and Japan. We found that understanding of CBT quality by the cord blood community is underpinned by the quality of the CBU, the expertise and collaboration of scientific and clinical stakeholders, trust in collection and testing processes and international accreditation. Importantly, we found that local and individual experience is used to manage uncertainty within CBT, and we propose that selection guidelines should acknowledge the extent of uncertainty in decision-making.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"49 1","pages":"136 - 156"},"PeriodicalIF":1.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82380908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Conviction: the making and unmaking of the violent brain 信念:暴力大脑的形成和瓦解
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-03-08 DOI: 10.1080/14636778.2022.2045482
Owen Whooley
{"title":"Conviction: the making and unmaking of the violent brain","authors":"Owen Whooley","doi":"10.1080/14636778.2022.2045482","DOIUrl":"https://doi.org/10.1080/14636778.2022.2045482","url":null,"abstract":"the cost of reproducing debilitating falsehoods about the true source of most disease threats. The material and rhetorical risks in this strategy became evident as COVID-19 spread across from a prosperous China into Europe and North America. PPE was stockpiled and vaccines pre-emptively bought up for their own populations by the wealthy states. The iron lock of global patent law remained in place. Moreover, since the threat was internal to the northern hemisphere, the south was initially ignored, then favoured with sporadic charitable donations all made with an eye to geopolitical advantage. In the face of the indifference of the global north and the failure of global health, attention has been directed to south-south solutions, including negotiating coalitions in international organisations, the creation of local vaccine manufacturing capacity, and the development of continental multilateralism in health, for example through the African Union. Of course, it is important not to romanticise the nation state or to overlook its historical failings, and indeed D’Arcangelis is careful not to do so. Nonetheless, as she suggests, within the current situation it offers a space of ‘ethical exception’ from which to resist the injustices of health imperialism.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"12 1","pages":"178 - 180"},"PeriodicalIF":1.8,"publicationDate":"2022-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82355329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
Gene drive communication: exploring experts' lived experience of metaphor use. 基因驱动沟通:探索专家隐喻使用的生活经验。
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-12 eCollection Date: 2022-01-01 DOI: 10.1080/14636778.2021.2020633
Brigitte Nerlich, Aleksandra Stelmach
{"title":"Gene drive communication: exploring experts' lived experience of metaphor use.","authors":"Brigitte Nerlich,&nbsp;Aleksandra Stelmach","doi":"10.1080/14636778.2021.2020633","DOIUrl":"https://doi.org/10.1080/14636778.2021.2020633","url":null,"abstract":"<p><p>Metaphors have been crucial in making genetics and genomics public, from the code and the book of life to genetic scissors and gene surgery. A new field is emerging called \"gene drive\" - a range of controversial technologies that can potentially be used for the eradication or conservation of animal species. At the same time, metaphors are emerging to talk about the promises and dangers of \"gene drive\". In this article we use thematic analysis to examine thirty interviews with gene drive science and communication experts, and stakeholders, focusing on how they talk about their lived experience of metaphor use in the context of gene drive communication, including their struggle to remember salient metaphors and their reflections on which metaphors to use and which to avoid. We discuss the significance of our findings for research and practice of responsible science communication.</p>","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":" ","pages":"3-22"},"PeriodicalIF":1.8,"publicationDate":"2022-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9197202/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40041703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
In Memoriam of Andrew Webster 纪念安德鲁·韦伯斯特
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-02 DOI: 10.1080/14636778.2022.2050033
R. Tutton, A. Hedgecoe, G. Thomas, Rosalynd Williams, Clancy Pegg
{"title":"In Memoriam of Andrew Webster","authors":"R. Tutton, A. Hedgecoe, G. Thomas, Rosalynd Williams, Clancy Pegg","doi":"10.1080/14636778.2022.2050033","DOIUrl":"https://doi.org/10.1080/14636778.2022.2050033","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"133 1","pages":"1 - 2"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79811121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Laboring bodies and the quantified self 劳动的身体和量化的自我
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-02 DOI: 10.1080/14636778.2022.2029694
M. Crawley
{"title":"Laboring bodies and the quantified self","authors":"M. Crawley","doi":"10.1080/14636778.2022.2029694","DOIUrl":"https://doi.org/10.1080/14636778.2022.2029694","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"389 1","pages":"66 - 68"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84998887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens. “如果亲属遗传了基因，他们就应该继承数据。”把家人带进发生生物伦理的房间。
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-01 DOI: 10.1080/14636778.2021.2007065
Deborah R Gordon, Barbara A Koenig
{"title":"\"If relatives inherited the gene, they should inherit the data.\" Bringing the family into the room where bioethics happens.","authors":"Deborah R Gordon,&nbsp;Barbara A Koenig","doi":"10.1080/14636778.2021.2007065","DOIUrl":"https://doi.org/10.1080/14636778.2021.2007065","url":null,"abstract":"<p><p>Biological kin share up to half of their genetic material, including predisposition to disease. Thus, variants of clinical significance identified in each individual's genome can implicate an exponential number of relatives at potential risk. This has renewed the dilemma over family access to research participant's genetic results, since prevailing U.S. practices treat these as private, controlled by the individual. These individual-based ethics contrast with the family-based ethics- in which genetic information, privacy, and autonomy are considered to be familial- endorsed in UK genomic medicine and by participants in a multi-method study of U.S. research participants presented here. The dilemma reflects a conflict between U.S. legal and ethical frameworks that privilege \"the individual\" and exclude \"the family\" versus actual human genetics that are simultaneously individual <i>and</i> familial. Can human genetics succeed in challenging bioethics' hegemonic individualism to recognize and place the family at the center of the room where bioethics happens?</p>","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"41 1","pages":"23-46"},"PeriodicalIF":1.8,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9454889/pdf/nihms-1758310.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10464425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology. 美国癌症基因组学“做得好”?评估实践跨越边界的研究和护理在农村社区肿瘤。
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-01 DOI: 10.1080/14636778.2022.2091532
Katherine Weatherford Darling, Michael Kohut, Susan Leeds, Eric C Anderson, Paul K J Han
{"title":"\"Doing Good\" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.","authors":"Katherine Weatherford Darling,&nbsp;Michael Kohut,&nbsp;Susan Leeds,&nbsp;Eric C Anderson,&nbsp;Paul K J Han","doi":"10.1080/14636778.2022.2091532","DOIUrl":"https://doi.org/10.1080/14636778.2022.2091532","url":null,"abstract":"<p><p>Genomic Tumour Testing (GTT) is an emerging site of \"experimental care\" in oncology [Cambrosio, Alberto, Peter Keating, Etienne Vignola-Gagné, Sylvain Besle, and Pascale Bourret. 2018a. \"Extending Experimentation: Oncology's Fading Boundary Bbetween Research and Care.\" <i>New Genetics and Society</i> 37 (3): 207-226. doi: 10.1080/14636778.2018.1487281]. Few efforts to implement GTT have reached community oncology practices or patients living in rural communities within the US. Drawing on interdisciplinary research on a state-wide cancer genomics initiative in the rural US state of Maine, this paper explores the valuation practices within community oncologist and cancer stakeholders accounts of \"doing good\" within genomic science and care. We contribute to STS literatures on the bio-economy by highlighting the affective dimensions of strategies for managing economic and non-economic values. Clinician and stakeholders negotiated de-economizing and capitalizing modes of doing good as they built local genomic platforms \"for Maine.\" These situated modes of doing good and feeling good via cancer genomics shaped how they navigated the ethical ambiguities of US biomedical markets across the boundaries of research and care.</p>","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"41 3","pages":"254-283"},"PeriodicalIF":1.8,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9799983/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10131449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Idealists and capitalists": ownership attitudes and preferences in genomic citizen science. “理想主义者和资本家”:基因组公民科学中的所有权态度和偏好。
IF 1.8 4区 医学
New Genetics and Society Pub Date : 2022-01-01 DOI: 10.1080/14636778.2022.2063827
Christi J Guerrini, Jorge L Contreras, Whitney Bash Brooks, Isabel Canfield, Meredith Trejo, Amy L McGuire
{"title":"\"Idealists and capitalists\": ownership attitudes and preferences in genomic citizen science.","authors":"Christi J Guerrini,&nbsp;Jorge L Contreras,&nbsp;Whitney Bash Brooks,&nbsp;Isabel Canfield,&nbsp;Meredith Trejo,&nbsp;Amy L McGuire","doi":"10.1080/14636778.2022.2063827","DOIUrl":"https://doi.org/10.1080/14636778.2022.2063827","url":null,"abstract":"<p><p>The perspectives of genomic citizen scientists on ownership of research outputs are not well understood, yet they are useful for identifying alignment of participant expectations and project practices and can help guide efforts to develop innovative tools and strategies for managing ownership claims. Here, we report findings from 52 interviews conducted in 2018 and 2019 to understand genomic citizen science stakeholders' conceptualizations of, experiences with, and preferences for ownership of research outputs. Interviewees identified four approaches for recognizing genomic citizen scientists' ownership and related credit interests in research outputs: shared governance via commons models; fractional ownership of benefits; full and creative attribution; and offensive and defensive patenting. Interviewees also agreed that the model selected by any project should at least maximize access to research outputs and, as appropriate and to the extent possible, broadly distribute rights of control and entitlements to research benefits.</p>","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"41 2","pages":"74-95"},"PeriodicalIF":1.8,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/95/e1/CNGS_41_2063827.PMC9802607.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10494160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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