European heart journal. Quality of care & clinical outcomes最新文献

{"title":"Current Management of Transition and Multidisciplinary Care of Patients with Inherited and Rare Cardiomyopathies in Europe: Results of the European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart (ERN GUARD-HEART).","authors":"Emanuele Monda, Elena Biagini, Nico Blom, Fabrizio Drago, Ingrid Krapels, Alice Krebsová, Karel Koubsky, Diala Khraiche, Elisabete Martins, Marco Merlo, Michelle Michels, Katarzyna Mizia-Stec, Stellan Mörner, Maria Luisa Peña Peña, Ivo Planinc, Tomas Robyns, Annika Rydberg, Johan Saenen, Jose Fernando Rodríguez Palomares, Hassink Rutger, Georgia Sarquella Brugada, Esther Scheirlynck, Eric Schulze-Bahr, Jacob Tfelt-Hansen, Cordula M Wolf, Nynke Hofman, Ahmad S Amin, Arthur Wilde, Philippe Charron, Giuseppe Limongelli","doi":"10.1093/ehjqcco/qcaf055","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf055","url":null,"abstract":"<p><strong>Background and aims: </strong>Cardiomyopathies are a heterogeneous group of genetic disorders requiring specialised, multidisciplinary management to optimize patient outcomes. A critical aspect of care is the transition of paediatric patients to adult services, which varies significantly across healthcare systems.This study assessed current practices in care transition and multidisciplinary management of inherited and rare cardiomyopathies across specialised European centres within the European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart (ERN GUARD-Heart) network.</p><p><strong>Methods: </strong>A 21-question survey was distributed to healthcare providers within the network. A single participant (i.e., cardiologist with expertise in the diagnosis and management of inherited and rare cardiomyopathies) from each centre was approached. Responses from 26 centres across 12 European countries were analysed using descriptive statistics to evaluate institutional characteristics, transition protocols, and multidisciplinary team involvement.</p><p><strong>Results: </strong>While 81% of centres reported having a transition plan, only 42% implemented it for all patients, and 19% had no formal protocol. Multidisciplinary care was well-integrated, with regular team discussions, though key professionals such as psychologists and nurses were often absent. The lack of structured transition programs, inconsistent use of standardised protocols, and a shortage of specialists in cardiogenetics emerged as major unmet needs.</p><p><strong>Conclusions: </strong>Significant variability exists in the transition and multidisciplinary care of patients with inherited and rare cardiomyopathies. Standardised transition protocols, greater involvement of multiple healthcare professionals, and enhanced training in cardiogenetics are needed to ensure continuity of care and improve patient care across Europe.</p>","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144610944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Changing patterns of heart failure in China from 1990 to 2021: a secondary analysis of the Global Burden of Disease study 2021.","authors":"Qiwen Yang, Rui Zhuang, Diyang Lyu, Donghua Xue, Chaofeng Niu, Yujie Shi, Meng Li, Lijing Zhang","doi":"10.1093/ehjqcco/qcaf064","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf064","url":null,"abstract":"<p><strong>Aims: </strong>To assess the changing patterns of heart failure in China from 1990 to 2021, providing evidence for informed healthcare strategies.</p><p><strong>Methods and results: </strong>Data on prevalence, years lived with disability (YLDs), and their corresponding 95% uncertainty intervals (UI) were obtained from the Global Burden of Disease (GBD) Study 2021. The joinpoint regression model, the age-period-cohort model, and the autoregressive integrated moving average (ARIMA) model were utilized for more in-depth analysis. In 2021, 13099727 (95% UI, 11320895 to 15376467) individuals lived with heart failure and this illness accounted for 1290810 (95% UI, 865894 to 1775731) YLDs in China. The burden of heart failure is more pronounced in males and the elderly, with ischemic heart disease having become the leading cause since 2002. The age-standardized rates of prevalence and YLDs increased at average annual percentage changes of 0.23% (95% CI, 0.20 to 0.26) and 0.25% (95% CI, 0.23 to 0.27) respectively. The curve of local drift showed a downward trend with age. Both the period and cohort rate ratios have increased significantly over the last 30 years. By 2031, the age-standardized rates of prevalence will decrease to 678.69 (95% CI, 640.75 to 716.63), while the age-standardized rates of YLDs will increase to 69.19 (95% CI, 66.95 to 71.43).</p><p><strong>Conclusion: </strong>The burden and risk of heart failure in China remains a major concern. The implementation of comprehensive strategies should be taken into consideration, including strengthening the primary healthcare system, enhancing public health education, and promoting cardiac rehabilitation.</p>","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144610943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Global, regional, and national burden of heart failure and its risk factors between 1990-2021 and projections to 2050: an analysis of the global burden of disease study.","authors":"Shaohua Yan, Peizhi Deng, Ke Chai, Shengfeng Wang, Kai Hu, Jiefu Yang, Hua Wang","doi":"10.1093/ehjqcco/qcaf054","DOIUrl":"10.1093/ehjqcco/qcaf054","url":null,"abstract":"<p><strong>Objectives: </strong>At present, there is a lack of recent heart failure (HF) epidemiological data up to 2021. This study aims to assess the HF burden and its risk factors from 1990 to 2021 and project trends to 2050.</p><p><strong>Methods: </strong>We derived HF prevalence and years lived with disability (YLDs) from Global Burden of Disease Study 2021, performing subgroup analyses by sex, age, sociodemographic index (SDI), and regions. Health inequalities were measured using the Inequality Slope Index and Concentration Index. Additionally, we made a decomposition analysis of the HF burden and forecasted its impact by 2050.</p><p><strong>Results: </strong>The global age-standardized prevalence rate (ASPR) and age-standardized YLD rate (ASYR) of HF were 676.68 (95% UI: 598.68 to 776.84) and 64.7 (95% UI: 44.2 to 89.47) per 100,000 people and increased by 5.5% and 5.9 % from 1990 to 2021, respectively. The ASPR and ASYR were higher in regions in the relatively higher SDI quintile, while the HF burden in regions in the lower SDI quintile is increasing. Ischemic heart disease accounted for the highest ASPR of HF globally [244.02 (95% UI: 179.09 to 322.13)], followed by hypertensive heart disease [148.32 (95% UI: 117.32 to 186.28)]. The ASPR and ASYR of HF are projected to rise from 2022 to 2050, with males dominating.</p><p><strong>Conclusion: </strong>The escalating HF burden represents a critical public health challenge, necessitating immediate intervention. Policymakers must devise precise strategies aimed at curbing and preventing the HF burden.</p>","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144593772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Periprocedural myocardial infarction after coronary artery bypass grafting: defining what matters.","authors":"Matteo Armillotta, Luca Bergamaschi, Francesco Angeli, Carmine Pizzi","doi":"10.1093/ehjqcco/qcaf059","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf059","url":null,"abstract":"","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144586171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Beyond traditional risk factors: the need for comprehensive phenotyping in young acute myocardial infarction patients.","authors":"Artur Dziewierz, Beata Bobrowska, Barbara Zdzierak, Wojciech Zasada","doi":"10.1093/ehjqcco/qcaf058","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf058","url":null,"abstract":"","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144593771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"In response to Fumagalli et al.","authors":"Stefano Tozza, Grazia Canciello","doi":"10.1093/ehjqcco/qcaf057","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf057","url":null,"abstract":"","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144593773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient reported outcome measures to guide patient selection for atrial fibrillation ablation.","authors":"Khalid Kazi, Ramesh Nadarajah","doi":"10.1093/ehjqcco/qcaf056","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf056","url":null,"abstract":"","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144562630","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Atrial fibrillation-lost lifetimes and the urgent need for outcome-driven management.","authors":"Henrike A K Hillmann, Johanna Müller-Leisse, David Duncker","doi":"10.1093/ehjqcco/qcaf042","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf042","url":null,"abstract":"","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144556494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Key elements of follow-up care after acute pulmonary embolism focusing on long term sequelae: a Delphi study among European experts.","authors":"R M A Mali, M K Ninaber, T E van Mens, S V Konstantinides, F A Klok","doi":"10.1093/ehjqcco/qcaf053","DOIUrl":"10.1093/ehjqcco/qcaf053","url":null,"abstract":"<p><strong>Background: </strong>A considerable proportion of patients develop long-term sequelae after an acute pulmonary embolism (PE). Beyond chronic thrombo-embolic pulmonary hypertension (CTEPH), current guidelines provide limited guidance regarding a structured approach for assessment and management of these patients.</p><p><strong>Objectives: </strong>To establish a framework of multidisciplinary follow-up care of PE-survivors.</p><p><strong>Methods: </strong>A Delphi study was conducted among a multidisciplinary panel of PE specialists from across Europe to gather expert opinions, and where possible reach consensus, on key aspects of PE follow-up care.</p><p><strong>Results: </strong>Two rounds of surveys were distributed among 45 venous thromboembolism (VTE) experts, with 39 completing both rounds. Consensus was reached that follow-up of PE survivors should address the entire spectrum of post-PE sequelae, i.e., CTEPH, chronic thromboembolic pulmonary disease, but also all other presentations of the post-PE syndrome. Routine assessment at three months should involve patient-reported outcome measures, including quality of life. A single, uniform protocol was preferred over locally adapted approaches. Earlier follow-up, prior to the three-month mark, to detect post-PE sequelae was not considered necessary for most patient subgroups. Right heart catheterization to confirm CTEPH should be reserved for specialized pulmonary hypertension centers, while other diagnostic modalities such as computed tomography, V/Q scan, cardiopulmonary exercise testing and transthoracic echocardiography can be performed in non-referral centers.</p><p><strong>Conclusion: </strong>This Delphi study among a panel of VTE experts across Europe describes a consensus-based framework for structured follow-up care for PE-survivors, emphasizing the need for a standardized, multidisciplinary approach to detecting long-term sequelae of PE.</p>","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144546844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The use of healthcare contacts following a first diagnosis of chest pain among women with no obstructive coronary artery disease: Results from the WOMANOCA nationwide cohort study.","authors":"Jane Lange Dalsgaard, Michael Skov Hansen, Sofie Ronja Petersen, Lisette Okkels Jensen, Christian Backer Mogensen, Britt Borregaard","doi":"10.1093/ehjqcco/qcaf051","DOIUrl":"https://doi.org/10.1093/ehjqcco/qcaf051","url":null,"abstract":"<p><strong>Background and aims: </strong>Women with suspected angina but no obstructive coronary artery disease (CAD) may be at risk of frequent healthcare contacts due to persistent symptoms, but evidence is scarce.The study aimed to investigate healthcare use following a first diagnosis of angina or nonspecific chest pain among a nationwide population of women with no obstructive CAD, compared to a reference population.</p><p><strong>Methods: </strong>The WOMANOCA cohort (Women with symptoms of angina or nonspecific chest pain but no obstructive CAD) included all Danish women with a first diagnosis of angina or nonspecific chest pain from 2009-2019 (following in registries for three years) and matched to asymptomatic reference women by age. Cox regression models assessed healthcare contacts between groups, reported as hazard ratios (HR) with 95% confidence intervals (CI).</p><p><strong>Results: </strong>In total, 17,836 women were diagnosed with angina and 42,832 with nonspecific chest pain, matched to 303,247 references. Women with angina and women with nonspecific chest pain had a higher risk of all cardiac readmissions compared to the references (HR 3.24 95% CI 3.10-3.38 and HR 2.87 95% CI 2.78-2.97, respectively), with an increased association for angina compared to nonspecific chest pain (HR 1.16 95% CI 1.10-1.22). Being a woman with nonspecific chest pain was significantly associated with GP direct consultations, out-of-hours consultations, and ECGs compared to angina and the reference women.</p><p><strong>Conclusion: </strong>Despite no obstructive CAD, the WOMANOCA cohort had an increased use of new healthcare contacts, indicating a sustained healthcare burden among women with any type of chest pain.</p>","PeriodicalId":520616,"journal":{"name":"European heart journal. Quality of care & clinical outcomes","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144510311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}