Dementia-International Journal of Social Research and Practice最新文献

{"title":"People with dementia, contributing to learning and teaching in higher education: Innovative practice","authors":"Christopher Russell","doi":"10.1177/1471301216685460","DOIUrl":"https://doi.org/10.1177/1471301216685460","url":null,"abstract":"Patients and service users have a well-established role in teaching and learning on professional qualifying programmes such as such as social work and nursing. However, the role of people with dementia in contributing to educational initiatives at higher educational level remains under explored. Four people with dementia were recruited as Expert by Lived Experience Tutors for the Foundation Degree in Dementia Studies at a University in the United Kingdom. They met students regularly to support their learning. We were interested in researching whether and how this enhanced the ability of students to enable people to live well with dementia. However, we also discovered that the initiative gave insight into psychosocial aspects of dementia, and a new opportunity to explore personhood, co-production and social citizenship. That is the focus of this article.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"447 - 452"},"PeriodicalIF":2.4,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301216685460","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46200515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Knowledge gains and intent to change practice patterns after the Leveraging Existing Abilities in Dementia (LEAD)™ Training Program","authors":"Nicole T. Dawson, K. Judge, Ashleigh Trapuzzano","doi":"10.1177/1471301219891562","DOIUrl":"https://doi.org/10.1177/1471301219891562","url":null,"abstract":"Few investigations have examined dementia training programs for rehabilitation professionals. To address this, the Leveraging Existing Abilities in Dementia (LEAD) program was developed and examined with a pilot study. LEAD addressed dementia knowledge; the Strength-Based Approach; strategies for communication, recognizing behaviors, and learning techniques; and documentation. Participants completed pre-program, post-program, and three-month follow-up questionnaires assessing confidence, practice patterns, and dementia knowledge. Confidence and use of treatment strategies increased through the three-month follow-up and dementia knowledge significantly increased following training. LEAD positively impacted rehabilitation professionals’ knowledge, confidence, and use of evidence-based treatment strategies. Implications of LEAD and future research are discussed.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"814 - 825"},"PeriodicalIF":2.4,"publicationDate":"2019-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219891562","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48427747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The East Lancashire Clinic Model: Supporting care homes to understand reactive behaviours (Innovative Practice)","authors":"Michael Smith, Kelly Sayer","doi":"10.1177/1471301219891021","DOIUrl":"https://doi.org/10.1177/1471301219891021","url":null,"abstract":"The East Lancashire Clinic model is a consultancy-based approach to supporting care home staff to assess and respond to reactive behaviours of people with dementia and reduce the need to refer into secondary mental health services. The clinics are person centred and solution focused, aiming to promote recognition of unmet needs and early interventions implemented by staff. The pilot was able to resolve most cases and reduce referral rates into secondary care services. Through working collaboratively, it empowers staff to improve the care of all their residents, improves relationship with secondary care services and has potential to offer efficiency savings.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"807 - 813"},"PeriodicalIF":2.4,"publicationDate":"2019-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219891021","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47332383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of AID-COM, a communication-focused program for family carers of people with early-stage Alzheimer’s disease: A pilot study (innovative practice)","authors":"Sophie Chesneau, C. Faucher, Gabrielle Morin, G. Le Dorze","doi":"10.1177/1471301219887038","DOIUrl":"https://doi.org/10.1177/1471301219887038","url":null,"abstract":"Families providing care to relatives with Alzheimer’s disease are quickly destabilized by changes that disrupt communication. This pilot mixed-design study aimed to provide a quantitative and qualitative evaluation of a communication-based training program for carers of people with early-stage Alzheimer’s disease. Five participants received three training sessions. The use of communication strategies by participants and their effectiveness were evaluated before and after the training, and a focus group was conducted to gather participants’ impressions about the impacts of the training on communication with the person they cared for. The AID-COM (AID for COMmunication) program appears to have met expectations.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"779 - 790"},"PeriodicalIF":2.4,"publicationDate":"2019-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887038","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41838292","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice","authors":"Lilian Kennedy, H. Wilkinson, C. Henstridge","doi":"10.1177/1471301219885543","DOIUrl":"https://doi.org/10.1177/1471301219885543","url":null,"abstract":"The ‘Buddy Pairs’ pilot project, launched at the University of Edinburgh, created opportunities for people affected by dementia (people living with a diagnosis and care partners) and dementia lab researchers to participate in knowledge exchange conversations through experiential lab tours. The primary aims were to raise awareness and understanding of current dementia research and its practices, as well as allow biomedical researchers to learn about the lived experiences and research concerns of those affected by dementia. This scheme found success by flipping normative ‘speaker-audience’ communication set-ups and foregrounding the expertise held by, and communication needs of, people affected by dementia.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"381 - 390"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219885543","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44862928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of rural life among community-dwelling older men with dementia and their implications for social inclusion","authors":"B. Hicks, A. Innes, S. Nyman","doi":"10.1177/1471301219887586","DOIUrl":"https://doi.org/10.1177/1471301219887586","url":null,"abstract":"Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses an important gap in the literature by exploring the perceptions of daily life for older men (65+ years) living with dementia in three rural areas of England. Open interviews were conducted with 17 rural-dwelling older men with dementia and the data elicited were analysed thematically to construct two higher order themes. The first focussed on ‘Cracking on with life in a rural idyll’ and highlighted the benefits of rural living including the pleasant, natural environment, supportive informal networks and some accessible formal dementia support. The second presented ‘A challenge to the idyll’ and outlined difficulties the men faced including a lack of dementia awareness amongst their family and the wider rural community as well as the physical and internal motivational barriers associated with the rural landscape and their dementia. The findings were interpreted through a lens of social inclusion and demonstrated how the geo-socio-cultural rural environment both enabled and inhibited facets of the men’s experiences of life in their communities. Based on these findings, the paper offers recommendations for practitioners, researchers and policy makers wishing to promote social inclusion in rural-dwelling older men living with dementia.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"444 - 463"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887586","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47316426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice)","authors":"Kate Cunnah, David Howe, J. Thorpe, R. Dunn, Rebecca Platt, C. White, K. Paulson, E. Wolverson","doi":"10.1177/1471301219887592","DOIUrl":"https://doi.org/10.1177/1471301219887592","url":null,"abstract":"Little is known about the training and support people with dementia and their carers need to use digital solutions. This paper shares learning from a bespoke programme that successfully trained people with dementia or mild cognitive impairment and their informal carers to use a social networking website. This work was undertaken as part of the European Horizon 2020 Caregiverspro-mmd trial (ISRCTN15654731). The training methods described offer an improved understanding of how best to deliver digital skills training that meets the needs of a diverse client group. The effectiveness of the programme is evidenced with qualitative and quantitative data.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"796 - 806"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887592","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45184454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pilot study of a psychotherapeutic intervention for reducing guilt feelings in highly distressed dementia family caregivers (Innovative practice)","authors":"Laura Gallego-Alberto, M. Márquez-González, R. Romero-Moreno, Isabel Cabrera, A. Losada","doi":"10.1177/1471301219886761","DOIUrl":"https://doi.org/10.1177/1471301219886761","url":null,"abstract":"Many caregivers of people with dementia experience guilt but few interventions have been designed to help them with these feelings. This study aimed to describe a psychological intervention specifically developed for decreasing caregivers´ guilt. The sample was composed of four caregivers, individually interviewed before and after the intervention. The intervention consisted of eight group-based sessions and was based on cognitive-behavioral, acceptance and self-compassion techniques. Three participants reported clinically reliable change in guilt. Clinically significant changes were also observed in their levels of anxiety and depression. The results suggest that carers might benefit from interventions designed to reduce their feelings of guilt.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"759 - 769"},"PeriodicalIF":2.4,"publicationDate":"2019-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219886761","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43702286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Macao Dementia Policy: Challenges and prospects (innovative practice)","authors":"Lo Iek Long, Zeng Wen, Lei Chin Ion, Lam Chong, Lou Hong Lei","doi":"10.1177/1471301219887612","DOIUrl":"https://doi.org/10.1177/1471301219887612","url":null,"abstract":"This paper highlights the challenges and prospects of older people with dementia in Macao. Macao Dementia Policy was launched in 2016 as the 27th globally, aligned with World Health Organization Global Action Plan on the Public Health Response to Dementia 2017–2025, includes a 10-year strategic framework to establish dementia friendly communities across the region. Dementia Working Group, cognitive assessment network in Health Centers, Dementia Medical Center, and Dementia Support Center were established subsequently. These initiatives manifest that Macao Government has taken great strides to improve waiting times, diagnosis rates, integrated care, and dementia friendliness through a seamless dementia service network.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"791 - 795"},"PeriodicalIF":2.4,"publicationDate":"2019-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887612","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44024870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Australian long-term care personnel’s knowledge and attitudes regarding palliative care for people with advanced dementia","authors":"T. Luckett, G. Luscombe, J. Phillips, E. Beattie, L. Chenoweth, P. Davidson, S. Goodall, D. Pond, G. Mitchell, M. Agar","doi":"10.1177/1471301219886768","DOIUrl":"https://doi.org/10.1177/1471301219886768","url":null,"abstract":"This study aimed to describe Australian long-term care (LTC) personnel’s knowledge and attitudes concerning palliative care for residents with advanced dementia, and explore relationships with LTC facility/personnel characteristics. An analysis was undertaken of baseline data from a cluster randomised controlled trial of facilitated family case conferencing for improving palliative care of LTC residents with advanced dementia (the ‘IDEAL Study’). Participants included any LTC personnel directly involved in residents’ care. Knowledge and attitudes concerning palliative care for people with advanced dementia were measured using the questionnaire on Palliative Care for Advanced Dementia. Univariate and multivariate analyses explored relationships between personnel knowledge/attitudes and facility/personnel characteristics. Of 307 personnel in the IDEAL Study, 290 (94.5%) from 19/20 LTCFs provided sufficient data for inclusion. Participants included 9 (2.8%) nurse managers, 59 (20.5%) registered nurses, 25 (8.7%) enrolled nurses, 187 (64.9%) assistants in nursing/personal care assistants and 9 (3.1%) care service employees. In multivariate analyses, a facility policy not to rotate personnel through dementia units was the only variable associated with more favourable overall personnel knowledge and attitudes. Other variables associated with favourable knowledge were a designation of nursing manager or registered or enrolled nurse, and having a preferred language of English. Other variables associated with favourable attitudes were tertiary level of education and greater experience in dementia care. Like previous international research, this study found Australian LTC personnel knowledge and attitudes regarding palliative care for people with advanced dementia to be associated with both facility and personnel characteristics. Future longitudinal research is needed to better understand the relationships between knowledge and attitudes, as well as between these attributes and quality of care.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"427 - 443"},"PeriodicalIF":2.4,"publicationDate":"2019-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219886768","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43548319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}