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Dementia-International Journal of Social Research and Practice最新文献

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The Senior Companion Program Plus: A culturally tailored psychoeducational training program (innovative practice) 老年伴侣计划+：一个文化定制的心理教育培训计划（创新实践）
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2020-02-01 DOI: 10.1177/1471301216685626
Noelle L. Fields, Ling Xu, V. Richardson, Rupal Parekh, D. Ivey, G. Feinhals, Melanie Calhoun
{"title":"The Senior Companion Program Plus: A culturally tailored psychoeducational training program (innovative practice)","authors":"Noelle L. Fields, Ling Xu, V. Richardson, Rupal Parekh, D. Ivey, G. Feinhals, Melanie Calhoun","doi":"10.1177/1471301216685626","DOIUrl":"https://doi.org/10.1177/1471301216685626","url":null,"abstract":"A purposive sample of African American Senior Companions (N = 23) participated in a 5-day, 20-hour psychoeducational training designed to address the unique cultural needs of African American dementia caregivers. Previous studies have not utilized lay caregiver volunteers such as Senior Companions in dementia research in the United States. Pre- and post-tests were administered to determine whether African American Senior Companions increased their knowledge of Alzheimer’s disease after participating in the Senior Companion Program Plus. Results from both the quantitative and qualitative data suggest that participants improved their understanding of Alzheimer’s disease. Findings from the Senior Companion Program Plus pilot warrant further study for its potential as cost effective, culturally tailored training for Senior Companions who serve persons with dementia and their family caregivers.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"453 - 460"},"PeriodicalIF":2.4,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301216685626","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48610513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
People with dementia, contributing to learning and teaching in higher education: Innovative practice 促进高等教育学习和教学的痴呆症患者:创新实践
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2020-02-01 DOI: 10.1177/1471301216685460
Christopher Russell
{"title":"People with dementia, contributing to learning and teaching in higher education: Innovative practice","authors":"Christopher Russell","doi":"10.1177/1471301216685460","DOIUrl":"https://doi.org/10.1177/1471301216685460","url":null,"abstract":"Patients and service users have a well-established role in teaching and learning on professional qualifying programmes such as such as social work and nursing. However, the role of people with dementia in contributing to educational initiatives at higher educational level remains under explored. Four people with dementia were recruited as Expert by Lived Experience Tutors for the Foundation Degree in Dementia Studies at a University in the United Kingdom. They met students regularly to support their learning. We were interested in researching whether and how this enhanced the ability of students to enable people to live well with dementia. However, we also discovered that the initiative gave insight into psychosocial aspects of dementia, and a new opportunity to explore personhood, co-production and social citizenship. That is the focus of this article.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"447 - 452"},"PeriodicalIF":2.4,"publicationDate":"2020-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301216685460","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46200515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 8
Knowledge gains and intent to change practice patterns after the Leveraging Existing Abilities in Dementia (LEAD)™ Training Program 在利用痴呆症的现有能力(LEAD)™培训计划后，知识的获得和改变实践模式的意图
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-12-04 DOI: 10.1177/1471301219891562
Nicole T. Dawson, K. Judge, Ashleigh Trapuzzano
{"title":"Knowledge gains and intent to change practice patterns after the Leveraging Existing Abilities in Dementia (LEAD)™ Training Program","authors":"Nicole T. Dawson, K. Judge, Ashleigh Trapuzzano","doi":"10.1177/1471301219891562","DOIUrl":"https://doi.org/10.1177/1471301219891562","url":null,"abstract":"Few investigations have examined dementia training programs for rehabilitation professionals. To address this, the Leveraging Existing Abilities in Dementia (LEAD) program was developed and examined with a pilot study. LEAD addressed dementia knowledge; the Strength-Based Approach; strategies for communication, recognizing behaviors, and learning techniques; and documentation. Participants completed pre-program, post-program, and three-month follow-up questionnaires assessing confidence, practice patterns, and dementia knowledge. Confidence and use of treatment strategies increased through the three-month follow-up and dementia knowledge significantly increased following training. LEAD positively impacted rehabilitation professionals’ knowledge, confidence, and use of evidence-based treatment strategies. Implications of LEAD and future research are discussed.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"814 - 825"},"PeriodicalIF":2.4,"publicationDate":"2019-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219891562","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48427747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The East Lancashire Clinic Model: Supporting care homes to understand reactive behaviours (Innovative Practice) 东兰开夏诊所模式:支持护理院了解反应性行为(创新实践)
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-26 DOI: 10.1177/1471301219891021
Michael Smith, Kelly Sayer
{"title":"The East Lancashire Clinic Model: Supporting care homes to understand reactive behaviours (Innovative Practice)","authors":"Michael Smith, Kelly Sayer","doi":"10.1177/1471301219891021","DOIUrl":"https://doi.org/10.1177/1471301219891021","url":null,"abstract":"The East Lancashire Clinic model is a consultancy-based approach to supporting care home staff to assess and respond to reactive behaviours of people with dementia and reduce the need to refer into secondary mental health services. The clinics are person centred and solution focused, aiming to promote recognition of unmet needs and early interventions implemented by staff. The pilot was able to resolve most cases and reduce referral rates into secondary care services. Through working collaboratively, it empowers staff to improve the care of all their residents, improves relationship with secondary care services and has potential to offer efficiency savings.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"807 - 813"},"PeriodicalIF":2.4,"publicationDate":"2019-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219891021","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47332383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Evaluation of AID-COM, a communication-focused program for family carers of people with early-stage Alzheimer’s disease: A pilot study (innovative practice) 针对早期阿尔茨海默病患者的家庭照护者的以沟通为重点的项目AID-COM的评估:一项试点研究(创新实践)
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-19 DOI: 10.1177/1471301219887038
Sophie Chesneau, C. Faucher, Gabrielle Morin, G. Le Dorze
{"title":"Evaluation of AID-COM, a communication-focused program for family carers of people with early-stage Alzheimer’s disease: A pilot study (innovative practice)","authors":"Sophie Chesneau, C. Faucher, Gabrielle Morin, G. Le Dorze","doi":"10.1177/1471301219887038","DOIUrl":"https://doi.org/10.1177/1471301219887038","url":null,"abstract":"Families providing care to relatives with Alzheimer’s disease are quickly destabilized by changes that disrupt communication. This pilot mixed-design study aimed to provide a quantitative and qualitative evaluation of a communication-based training program for carers of people with early-stage Alzheimer’s disease. Five participants received three training sessions. The use of communication strategies by participants and their effectiveness were evaluated before and after the training, and a focus group was conducted to gather participants’ impressions about the impacts of the training on communication with the person they cared for. The AID-COM (AID for COMmunication) program appears to have met expectations.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"779 - 790"},"PeriodicalIF":2.4,"publicationDate":"2019-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887038","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41838292","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice “Buddy Pairs”：一项新的试点计划，在生物医学痴呆症研究人员和痴呆症患者之间进行知识交流——创新实践
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-12 DOI: 10.1177/1471301219885543
Lilian Kennedy, H. Wilkinson, C. Henstridge
{"title":"‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice","authors":"Lilian Kennedy, H. Wilkinson, C. Henstridge","doi":"10.1177/1471301219885543","DOIUrl":"https://doi.org/10.1177/1471301219885543","url":null,"abstract":"The ‘Buddy Pairs’ pilot project, launched at the University of Edinburgh, created opportunities for people affected by dementia (people living with a diagnosis and care partners) and dementia lab researchers to participate in knowledge exchange conversations through experiential lab tours. The primary aims were to raise awareness and understanding of current dementia research and its practices, as well as allow biomedical researchers to learn about the lived experiences and research concerns of those affected by dementia. This scheme found success by flipping normative ‘speaker-audience’ communication set-ups and foregrounding the expertise held by, and communication needs of, people affected by dementia.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"381 - 390"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219885543","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44862928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Experiences of rural life among community-dwelling older men with dementia and their implications for social inclusion 社区老年痴呆患者的农村生活经历及其对社会包容的影响
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-12 DOI: 10.1177/1471301219887586
B. Hicks, A. Innes, S. Nyman
{"title":"Experiences of rural life among community-dwelling older men with dementia and their implications for social inclusion","authors":"B. Hicks, A. Innes, S. Nyman","doi":"10.1177/1471301219887586","DOIUrl":"https://doi.org/10.1177/1471301219887586","url":null,"abstract":"Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses an important gap in the literature by exploring the perceptions of daily life for older men (65+ years) living with dementia in three rural areas of England. Open interviews were conducted with 17 rural-dwelling older men with dementia and the data elicited were analysed thematically to construct two higher order themes. The first focussed on ‘Cracking on with life in a rural idyll’ and highlighted the benefits of rural living including the pleasant, natural environment, supportive informal networks and some accessible formal dementia support. The second presented ‘A challenge to the idyll’ and outlined difficulties the men faced including a lack of dementia awareness amongst their family and the wider rural community as well as the physical and internal motivational barriers associated with the rural landscape and their dementia. The findings were interpreted through a lens of social inclusion and demonstrated how the geo-socio-cultural rural environment both enabled and inhibited facets of the men’s experiences of life in their communities. Based on these findings, the paper offers recommendations for practitioners, researchers and policy makers wishing to promote social inclusion in rural-dwelling older men living with dementia.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"444 - 463"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887586","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47316426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 14
Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice) 培训痴呆症/认知障碍患者及其护理人员使用基于网络的支持技术（创新实践）
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-12 DOI: 10.1177/1471301219887592
Kate Cunnah, David Howe, J. Thorpe, R. Dunn, Rebecca Platt, C. White, K. Paulson, E. Wolverson
{"title":"Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice)","authors":"Kate Cunnah, David Howe, J. Thorpe, R. Dunn, Rebecca Platt, C. White, K. Paulson, E. Wolverson","doi":"10.1177/1471301219887592","DOIUrl":"https://doi.org/10.1177/1471301219887592","url":null,"abstract":"Little is known about the training and support people with dementia and their carers need to use digital solutions. This paper shares learning from a bespoke programme that successfully trained people with dementia or mild cognitive impairment and their informal carers to use a social networking website. This work was undertaken as part of the European Horizon 2020 Caregiverspro-mmd trial (ISRCTN15654731). The training methods described offer an improved understanding of how best to deliver digital skills training that meets the needs of a diverse client group. The effectiveness of the programme is evidenced with qualitative and quantitative data.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"796 - 806"},"PeriodicalIF":2.4,"publicationDate":"2019-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887592","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45184454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
Pilot study of a psychotherapeutic intervention for reducing guilt feelings in highly distressed dementia family caregivers (Innovative practice) 减少高度痛苦痴呆症家庭照顾者内疚感的心理治疗干预的初步研究（创新实践）
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-10 DOI: 10.1177/1471301219886761
Laura Gallego-Alberto, M. Márquez-González, R. Romero-Moreno, Isabel Cabrera, A. Losada
{"title":"Pilot study of a psychotherapeutic intervention for reducing guilt feelings in highly distressed dementia family caregivers (Innovative practice)","authors":"Laura Gallego-Alberto, M. Márquez-González, R. Romero-Moreno, Isabel Cabrera, A. Losada","doi":"10.1177/1471301219886761","DOIUrl":"https://doi.org/10.1177/1471301219886761","url":null,"abstract":"Many caregivers of people with dementia experience guilt but few interventions have been designed to help them with these feelings. This study aimed to describe a psychological intervention specifically developed for decreasing caregivers´ guilt. The sample was composed of four caregivers, individually interviewed before and after the intervention. The intervention consisted of eight group-based sessions and was based on cognitive-behavioral, acceptance and self-compassion techniques. Three participants reported clinically reliable change in guilt. Clinically significant changes were also observed in their levels of anxiety and depression. The results suggest that carers might benefit from interventions designed to reduce their feelings of guilt.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"759 - 769"},"PeriodicalIF":2.4,"publicationDate":"2019-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219886761","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43702286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 15
Macao Dementia Policy: Challenges and prospects (innovative practice) 澳门痴呆症政策：挑战与展望（创新实践）
IF 2.4 3区 社会学
Dementia-International Journal of Social Research and Practice Pub Date : 2019-11-10 DOI: 10.1177/1471301219887612
Lo Iek Long, Zeng Wen, Lei Chin Ion, Lam Chong, Lou Hong Lei
{"title":"Macao Dementia Policy: Challenges and prospects (innovative practice)","authors":"Lo Iek Long, Zeng Wen, Lei Chin Ion, Lam Chong, Lou Hong Lei","doi":"10.1177/1471301219887612","DOIUrl":"https://doi.org/10.1177/1471301219887612","url":null,"abstract":"This paper highlights the challenges and prospects of older people with dementia in Macao. Macao Dementia Policy was launched in 2016 as the 27th globally, aligned with World Health Organization Global Action Plan on the Public Health Response to Dementia 2017–2025, includes a 10-year strategic framework to establish dementia friendly communities across the region. Dementia Working Group, cognitive assessment network in Health Centers, Dementia Medical Center, and Dementia Support Center were established subsequently. These initiatives manifest that Macao Government has taken great strides to improve waiting times, diagnosis rates, integrated care, and dementia friendliness through a seamless dementia service network.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"791 - 795"},"PeriodicalIF":2.4,"publicationDate":"2019-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219887612","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44024870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
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