Dementia-International Journal of Social Research and Practice最新文献_第5页

Consent support tool: Including people with communication disorders in health research studies 同意支持工具:将沟通障碍患者纳入健康研究

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2021-01-26 DOI: 10.1177/1471301220985401

V. Shepherd

引用次数: 4

Facilitators for person-centred care of inpatients with dementia: A meta-synthesis of registered nurses' experiences. 痴呆症住院患者以人为中心护理的促进者：注册护士经验的荟萃综合

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2021-01-01 Epub Date: 2019-09-02 DOI: 10.1177/1471301219871408

Tessa Brossard Saxell, Malin Ingvert, Connie Lethin

{"title":"Facilitators for person-centred care of inpatients with dementia: A meta-synthesis of registered nurses' experiences.","authors":"Tessa Brossard Saxell, Malin Ingvert, Connie Lethin","doi":"10.1177/1471301219871408","DOIUrl":"10.1177/1471301219871408","url":null,"abstract":"Person-centred care is widely advocated when caring for people with dementia. When a person with dementia is admitted for hospital care, hospital wards are obliged to not only address the cause for admission but also provide dementia-specific care during the hospital stay. Research has shown that the delivery of person-centred care to people with dementia is often inadequate or absent in the hospital setting. Moreover, whilst registered nurses often wish to improve the in-hospital care of patients with dementia, there is evidence of experienced barriers. This study aimed to describe registered nurses' experiences of facilitators for the delivery of person-centred care to inpatients with dementia. By way of systematic searches in the databases PubMed, CINAHL and PsycINFO, qualitative studies (n = 19) reporting registered nurses experience of caring for inpatients with dementia were identified. Relevant content was analysed using a method of thematic synthesis. Three main categories and nine subcategories were presented, internal facilitators (experience and knowledge; values and beliefs; professional identity; empathy), external facilitators (physical environment; organisational culture and structure) and facilitating actions (forming a holistic picture; establishing trust; adjusting routines and interventions). While facilitators did exist in the hospital setting, the findings indicate that care received by inpatients with dementia is dependent on individual registered nurses knowledge, personal aptitude and ability to compensate for structural flaws. In order to minimise arbitrary outcomes of care for patients with dementia, consistent organisational support in the form of educational interventions and allocation of resources is crucial.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"188-212"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42199479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia. “除了金钱和健康，生活还有更重要的东西”:家庭照顾者对痴呆患者参与研究的代理决策中委托书的作用的看法

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2021-01-01 Epub Date: 2019-10-25 DOI: 10.1177/1471301219884426

Victoria Shepherd, Richard Griffith, Kerenza Hood, Mark Sheehan, Fiona Wood

{"title":"'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia.","authors":"Victoria Shepherd, Richard Griffith, Kerenza Hood, Mark Sheehan, Fiona Wood","doi":"10.1177/1471301219884426","DOIUrl":"10.1177/1471301219884426","url":null,"abstract":"People living with dementia may experience difficulties when making decisions for themselves in the later stages of the condition. While there are mechanisms in England and Wales for appointing an attorney to make decisions about welfare and finances on their behalf, there are no provisions for appointing an attorney to make future decisions about research participation. This is despite a growing focus on Advanced Care Planning and other processes that provide opportunities to discuss future preferences and ensure that decisions are made in line with those preferences. This qualitative study with 15 family caregivers who had acted as research proxies explored the role of Power of Attorney in their decisions about research, and their views about extending current legal arrangements to include research. Five themes were identified: the holistic nature of decision-making; the 'power' of attorney; making decisions by putting yourself in their shoes; support for bringing research under the umbrella of attorney arrangements and a unifying theme of trusting relationships. Legal provisions for prospectively appointing a research proxy may encourage discussion about future wishes and so enable decisions about research to be made that are in accordance with the person's preferences and wishes. However, further consultation with the public including people living with dementia and their families, and a range of stakeholders is needed. Providing guidance to families, people living with dementia and the wider research community may provide greater clarity and improve decision-making in the meantime.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"308-325"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45305585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A qualitative systematic review of experiences of persons with dementia regarding transition to long-term care 痴呆症患者向长期护理过渡经验的定性系统综述

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2021-01-01 DOI: 10.1177/1471301219862439

Jessica A Young, C. Lind, J. Orange

{"title":"A qualitative systematic review of experiences of persons with dementia regarding transition to long-term care","authors":"Jessica A Young, C. Lind, J. Orange","doi":"10.1177/1471301219862439","DOIUrl":"https://doi.org/10.1177/1471301219862439","url":null,"abstract":"Introduction The current qualitative systematic review identified and examined critically the literature on how persons with dementia experience transitions to long-term care. Results are intended to help develop guidelines for future care and research. Method A search was conducted of OvidSP, SCOPUS, Web of Science, ProQuest, PsycINFO, CINAHL, AgeLine and Informit databases. In total, 4705 articles were reviewed (published 1954–2018). A textual narrative approach was used to synthesise the findings of the included articles. Results Seven articles met inclusion criteria (five using data collected from interviews with persons with dementia and two using reports from a proxy). Overall, the findings showed that transition to long-term care possesses varied meanings for persons with dementia, is often not the decision of the persons with dementia, and is a process throughout which social connections remain important. Discussion Accounts of the experiences of persons with dementia regarding transitions from community to long-term care show that they and their families should be supported: with respect to their individual contexts, to share the positives and negatives of the transition experiences, to make decisions together, and to maintain old and establish new social connections.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"5 - 27"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219862439","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49605071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 9

David Truswell, Supporting people living with dementia in Black, Asian and minority ethnic communities David Truswell，支持黑人、亚裔和少数民族社区的痴呆症患者

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-12-08 DOI: 10.1177/1471301220975955

P. Roach

引用次数: 0

Sandra Evans, Jane Garner and Rachel Darnley-Smith, Psychodynamic approaches to the experience of dementia 桑德拉·埃文斯，简·加纳和蕾切尔·达恩利-史密斯，痴呆症经历的心理动力学方法

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-11-23 DOI: 10.1177/1471301220976448

E. Wolverson

引用次数: 0

Corrigendum to “An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia” “对照顾者的接受、角色转换和基于夫妻动态的计划:对年轻痴呆患者配偶经验的定性研究”的勘误表

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-11-01 DOI: 10.1177/1471301219872587

引用次数: 0

Ann-Charlotte Nedlund, Ruth Bartlett and Charlotte L. Clarke, Everyday citizenship and people with dementia 安-夏洛特·内德伦德，露丝·巴特利特和夏洛特·l·克拉克，日常公民和痴呆症患者

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-07-15 DOI: 10.1177/1471301220944815

J. Keady

引用次数: 0

The Post-Diagnostic Support needs of Family Members and Friends who Provide Care and Support 提供护理和支持的家人和朋友的诊断后支持需求

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-06-15 DOI: 10.4324/9781315709000-7

A. Innes, L. Calvert, Gail Bowker

引用次数: 0

Conclusion 结论

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2020-06-15 DOI: 10.4324/9781315709000-12

A. Innes, L. Calvert, Gail Bowker

引用次数: 0