{"title":"Consent support tool: Including people with communication disorders in health research studies","authors":"V. Shepherd","doi":"10.1177/1471301220985401","DOIUrl":"https://doi.org/10.1177/1471301220985401","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1855 - 1856"},"PeriodicalIF":2.4,"publicationDate":"2021-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220985401","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45481493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Facilitators for person-centred care of inpatients with dementia: A meta-synthesis of registered nurses' experiences.","authors":"Tessa Brossard Saxell, Malin Ingvert, Connie Lethin","doi":"10.1177/1471301219871408","DOIUrl":"10.1177/1471301219871408","url":null,"abstract":"<p><p>Person-centred care is widely advocated when caring for people with dementia. When a person with dementia is admitted for hospital care, hospital wards are obliged to not only address the cause for admission but also provide dementia-specific care during the hospital stay. Research has shown that the delivery of person-centred care to people with dementia is often inadequate or absent in the hospital setting. Moreover, whilst registered nurses often wish to improve the in-hospital care of patients with dementia, there is evidence of experienced barriers. This study aimed to describe registered nurses' experiences of facilitators for the delivery of person-centred care to inpatients with dementia. By way of systematic searches in the databases PubMed, CINAHL and PsycINFO, qualitative studies (n = 19) reporting registered nurses experience of caring for inpatients with dementia were identified. Relevant content was analysed using a method of thematic synthesis. Three main categories and nine subcategories were presented, <i>internal facilitators</i> (experience and knowledge; values and beliefs; professional identity; empathy), <i>external facilitators</i> (physical environment; organisational culture and structure) and <i>facilitating actions</i> (forming a holistic picture; establishing trust; adjusting routines and interventions). While facilitators did exist in the hospital setting, the findings indicate that care received by inpatients with dementia is dependent on individual registered nurses knowledge, personal aptitude and ability to compensate for structural flaws. In order to minimise arbitrary outcomes of care for patients with dementia, consistent organisational support in the form of educational interventions and allocation of resources is crucial.</p>","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"188-212"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42199479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A qualitative systematic review of experiences of persons with dementia regarding transition to long-term care","authors":"Jessica A Young, C. Lind, J. Orange","doi":"10.1177/1471301219862439","DOIUrl":"https://doi.org/10.1177/1471301219862439","url":null,"abstract":"Introduction The current qualitative systematic review identified and examined critically the literature on how persons with dementia experience transitions to long-term care. Results are intended to help develop guidelines for future care and research. Method A search was conducted of OvidSP, SCOPUS, Web of Science, ProQuest, PsycINFO, CINAHL, AgeLine and Informit databases. In total, 4705 articles were reviewed (published 1954–2018). A textual narrative approach was used to synthesise the findings of the included articles. Results Seven articles met inclusion criteria (five using data collected from interviews with persons with dementia and two using reports from a proxy). Overall, the findings showed that transition to long-term care possesses varied meanings for persons with dementia, is often not the decision of the persons with dementia, and is a process throughout which social connections remain important. Discussion Accounts of the experiences of persons with dementia regarding transitions from community to long-term care show that they and their families should be supported: with respect to their individual contexts, to share the positives and negatives of the transition experiences, to make decisions together, and to maintain old and establish new social connections.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"5 - 27"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219862439","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49605071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"David Truswell, Supporting people living with dementia in Black, Asian and minority ethnic communities","authors":"P. Roach","doi":"10.1177/1471301220975955","DOIUrl":"https://doi.org/10.1177/1471301220975955","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1496 - 1497"},"PeriodicalIF":2.4,"publicationDate":"2020-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220975955","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46617526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sandra Evans, Jane Garner and Rachel Darnley-Smith, Psychodynamic approaches to the experience of dementia","authors":"E. Wolverson","doi":"10.1177/1471301220976448","DOIUrl":"https://doi.org/10.1177/1471301220976448","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1187 - 1188"},"PeriodicalIF":2.4,"publicationDate":"2020-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220976448","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45169866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Corrigendum to “An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia”","authors":"","doi":"10.1177/1471301219872587","DOIUrl":"https://doi.org/10.1177/1471301219872587","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"NP1 - NP1"},"PeriodicalIF":2.4,"publicationDate":"2020-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219872587","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43411188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ann-Charlotte Nedlund, Ruth Bartlett and Charlotte L. Clarke, Everyday citizenship and people with dementia","authors":"J. Keady","doi":"10.1177/1471301220944815","DOIUrl":"https://doi.org/10.1177/1471301220944815","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"2128 - 2129"},"PeriodicalIF":2.4,"publicationDate":"2020-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220944815","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46385470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Post-Diagnostic Support needs of Family Members and Friends who Provide Care and Support","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-7","DOIUrl":"https://doi.org/10.4324/9781315709000-7","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49034653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Conclusion","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-12","DOIUrl":"https://doi.org/10.4324/9781315709000-12","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"1 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41830270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Diagnosis of Dementia","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-4","DOIUrl":"https://doi.org/10.4324/9781315709000-4","url":null,"abstract":"Stanley I. Rapoport, MD, is Chief of the Laboratory of Neurosciences, National Institute on Aging, Bethesda, Maryland. Synopsis Using standardized history, physical and neurological examinations, laboratory evaluation, and tests of cognitive performance, mood, and functional status, 155 patients admitted consecutively to an outpatient dementia clinic were diagnosed as \"demented\" or \"nondemented.\" Diagnostic groups were: primary degenerative dementia (60 percent); multi-infarct dementia (7.1 percent); mixed degenerativevascular dementia (12.3 percent); miscellaneous dementias (11.6 percent); referral group with normal test scores (9 percent). The Hachinski Ischemic Score distinguished (p < 0.05) the multi-infarct and mixed degenerative-vascular dementia groups from the nondemented subjects. The Mini-Mental State Examination Score, which indicated that the demented patients were, on an average, moderately demented (mean score 11 to 21), was highly correlated (r = 0.91) with the Blessed Memory, Information and Concentration Test. Both equally discriminated the demented groups from the nondemented group. Functional impairment, as measured by the Katz Index ofActivities ofDaily Living, was moderate in the demented patients. For the primary progressive dementia patients, severity ofdementia was correlated with duration, functional impairment, and depressive symptoms.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45408505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}