Dementia-International Journal of Social Research and Practice最新文献_第3页

Perceived and unmet needs for health and social services among families coping with dementia in China: A descriptive study 中国老年痴呆症家庭对健康和社会服务的感知需求和未满足需求:一项描述性研究

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-05-09 DOI: 10.1177/14713012221094979

Tongda Sun, Rangcheng Jia, Jodi Clarke, Ming M. Zhu, D. Dobbs, Yuntong Di, Xiaoxin Dong, H. Meng

{"title":"Perceived and unmet needs for health and social services among families coping with dementia in China: A descriptive study","authors":"Tongda Sun, Rangcheng Jia, Jodi Clarke, Ming M. Zhu, D. Dobbs, Yuntong Di, Xiaoxin Dong, H. Meng","doi":"10.1177/14713012221094979","DOIUrl":"https://doi.org/10.1177/14713012221094979","url":null,"abstract":"Objectives To describe the perceived and unmet needs for health and social services and their relative importance among families coping with dementia in urban China. Methods We used data from a cross-sectional survey conducted between 2018 and 2019 in two cities in eastern China. Trained staff conducted structured interviews of family caregivers of people living with dementia at home to obtain individual characteristics as well as types of service needs of families coping with dementia. Service needs and utilization in 24 types of services across five domains (daily living, medical/nursing, rehabilitation, mental health, and other) were examined. Descriptive statistics were used to describe characteristics of the dyads and the ranking of services based on the percentage of respondents with perceived/unmet needs. Results A total of 170 (87.6%) family caregivers completed the interviews. The mean age of the care recipient was 77.2 years (range: 60–102) and 65.3% were female. The mean age of family caregivers was 58.4 years (range: 28–90), and 57.1% were female. The top five services used by the care recipients were: primary care, medication management, housekeeping, activities of daily living assistance, and adult day service. The five services with the most unmet needs were: legal assistance (42.7%), hospice care (44.7%), respiratory secretion management (expectoration) (57.6%), life enrichment activities (65.4%), and companion care (67.0%). Except for transportation and dressing/grooming, working and nonworking caregivers reported similar relative importance of service needs. Conclusions The findings suggest that people living with dementia and their family require a wide range of services and supports to live in the community. Future research and policy efforts should target the unmet needs of families to improve dementia care in the community and promote aging-in-place.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1699 - 1713"},"PeriodicalIF":2.4,"publicationDate":"2022-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43663626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Book Review: And every morning the way home gets longer and longer: A book review 书评：每天早上回家的路越来越长：书评

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-05-08 DOI: 10.1177/14713012221098251

Janani Sreenivasan, Manali Karmakar

引用次数: 0

Intercultural care for people of migrant origin with dementia – A literature analysis 对移民痴呆症患者的跨文化护理-文献分析

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-05-04 DOI: 10.1177/14713012221086702

Jessica Monsees, Tim Schmachtenberg, Jochen René Thyrian

{"title":"Intercultural care for people of migrant origin with dementia – A literature analysis","authors":"Jessica Monsees, Tim Schmachtenberg, Jochen René Thyrian","doi":"10.1177/14713012221086702","DOIUrl":"https://doi.org/10.1177/14713012221086702","url":null,"abstract":"Background Close to 12 million people of migrant origin who are 65 years or older live in different European countries. In the European Union (EU) and the European Free Trade Association (EFTA) countries, approximately half a million are estimated to have dementia. This rate is expected to increase in the coming decades. People of migrant origin who develop dementia and their families face challenges people without migration backgrounds do, but due to cultural differences, additional challenges may arise. There is an increasing need for interculturally sensitive care. There is research on certain aspects of intercultural care and this study will be a comprehensive summary of current topics in intercultural care. Research question What factors of intercultural care for people of migrant origin with dementia can be identified? What requirements and aspects are necessary to ensure intercultural care? Method A systematic literature analysis in the databases PubMed, PsycInfo and Psychology and Behavioural Sciences Collection was conducted. Findings Thirty-nine articles were eligible for analysis. Enhancement in the areas diagnostics, education and information, healthcare services and healthcare professionals to ensure intercultural care is needed. Discussion Current evidence supports the need for (a) thorough education of people of migrant origin with dementia, their families and healthcare professionals, (b) collaborations among everyone involved, (c) embracing different cultures in healthcare services, (d) the implementation of a care navigator functioning as a contact person and connecting all relevant parties with one another and (e) dementia testing suitable to the target group to ensure culturally sensitive and appropriate care for people of migrant origin with dementia and their families.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1753 - 1770"},"PeriodicalIF":2.4,"publicationDate":"2022-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46810896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

“Am I entitled to take a break in caregiving?”: Perceptions of leisure activities of family caregivers of loved ones with dementia in China “我是否有权暂停照顾孩子?”:中国痴呆症患者的家庭照顾者对休闲活动的看法

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-28 DOI: 10.1177/14713012221093879

X. Xu, D. Leung, A. Leung, R. Kwan, Tingna Liang, Ai Jun Chai

{"title":"“Am I entitled to take a break in caregiving?”: Perceptions of leisure activities of family caregivers of loved ones with dementia in China","authors":"X. Xu, D. Leung, A. Leung, R. Kwan, Tingna Liang, Ai Jun Chai","doi":"10.1177/14713012221093879","DOIUrl":"https://doi.org/10.1177/14713012221093879","url":null,"abstract":"Leisure activities are essential for family caregivers of loved ones with dementia living in the community, yet these caregivers tend not to engage in them, especially in China, wherein it may have a negative impact on their physical and psychological health. To date, limited knowledge exists regarding underlying reasons that deter these family caregivers from doing leisure activities. This study aims to explore perceptions of family caregivers of people living with dementia and their engagement in leisure activities. A qualitative descriptive research design was used with semi-structured, face-to-face, individual in-depth interviews. The data were collected in Shijiazhuang, China between October and November 2019. Content analysis was used to develop categories. Results of 20 family caregivers (5 men and 15 women, mean age = 55.6±12.7) reported their perceptions under four main categories: (i) “the condition of leisure life,” (ii) “needs for leisure activities,” (iii) “reasons for the reluctance to do leisure activities,” and (iv) “motivations supporting the implementation of leisure activities.” In addition to the heavy caregiving workload and lack of support, traditional Chinese beliefs including filial commitment and “fatalistic voluntarism” were the reasons that prevented Chinese family caregivers of people living with dementia from doing leisure activities. However, engaging their loved ones in leisure activities, like doing exercise together, could motivate family caregivers themselves to participate in leisure activities. These findings encourage healthcare professionals to consider the influence of culture on family caregivers’ engagement in leisure activities which is one of the ways to reduce stress. Family caregivers may benefit from the leisure activities by learning how to better cope with and balance caregiving tasks with their leisure pursuits in the community.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1682 - 1698"},"PeriodicalIF":2.4,"publicationDate":"2022-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48392296","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Reflections of Buddhist priests who started a dementia carers’ café in Japan 在日本开办痴呆症护理者咖啡馆的佛教僧侣的感想

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-22 DOI: 10.1177/14713012221092212

T. Okamura, C. Ura, M. Shimmei, Akinori Takase, Ryosho Shoji, Yukan Ogawa

{"title":"Reflections of Buddhist priests who started a dementia carers’ café in Japan","authors":"T. Okamura, C. Ura, M. Shimmei, Akinori Takase, Ryosho Shoji, Yukan Ogawa","doi":"10.1177/14713012221092212","DOIUrl":"https://doi.org/10.1177/14713012221092212","url":null,"abstract":"Aim Faith-based organizations are a potential global resource; however, details of their activities have not been fully explored in the academic literature. In Japan, little is known about delivering support for dementia caregivers in a faith-based setting. In this study, we spoke with priests who started carers’ cafés to support people who have dementia and people who care for them. These “carers’ cafés” are set up in temples and this movement is slowly expanding. The aim of this study was to (1) provide a detailed description of a carers’ café and (2) report the reflections of the Buddhist priests who have been involved in the project from the beginning. Methods We conducted in-depth interviews with five Buddhist priests who pioneered the carers’ café movement, and conducted a thematic analysis of the transcripts using a qualitative descriptive approach. Results Six prominent themes were identified: “A carers’ café aligns with Buddhist doctrine,” “...reveals the strengths of Buddhism and its temples,” “...facilitates priests’ personal growth,” and “...introduces viewpoints from outside of Buddhism.” Conclusions Carers’ cafés set up in temples have a positive impact on the Buddhist priests who are involved and on the visitors. One possible reason for this is that the relationship between the temple and the local residents has a long history and thus provides a sense of security for those who are suffering from the realities related to dementia. To create a more inclusive society, it is necessary for secular entities to support this new movement.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1856 - 1868"},"PeriodicalIF":2.4,"publicationDate":"2022-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48543422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers 英国-拉丁美洲人照顾痴呆症患者亲属的经验：对家庭护理人员的定性研究

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-18 DOI: 10.1177/14713012221076954

Stefan Guerra, T. James, P. Rapaport, G. Livingston

{"title":"Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers","authors":"Stefan Guerra, T. James, P. Rapaport, G. Livingston","doi":"10.1177/14713012221076954","DOIUrl":"https://doi.org/10.1177/14713012221076954","url":null,"abstract":"Introduction Most studies of the Latin American immigrant experience and care for relatives living with dementia have been in the United States (US). In the United Kingdom (UK), unlike the US, most Latin Americans are first generation immigrants and are a rapidly increasing population. Therefore, we aimed to explore the UK experiences of Latin Americans caring for a relative with dementia. Methods We purposively recruited UK-based Latin American family carers of people with dementia ensuring maximum diversity. We conducted semi-structured qualitative interviews (in English or Spanish) with 11 family carers, stopping recruiting when we reached thematic saturation. We took an inductive thematic analytic approach. Findings Four main themes were identified: (1) Family comes first, particularly older people, leading to an obligation to care; (2) dementia as an illness that is accepted and talked about, which is regarded as positive with close networks but not wider society; (3) difficult behaviours are not the responsibility of the person with dementia, who is often conceptualised as a child; and (4) caring expectations lead to incompatibility with formal services, and a reluctance to leave people with dementia alone. Conclusions Familial obligation is the driver for family carers and acceptance of the illness helped despite adversities. Openness to talk about dementia with close networks was distinctive and helpful, contrasting with wider society, where greater awareness of dementia is needed. Considering the person with dementia as a child did not seem to undermine personhood and enabled maintenance of compassion. The relative with dementia was a priority. There was a lack of culturally and linguistically appropriate services, thus restricting family carers’ ability to fulfil other roles, such as parental.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1574 - 1595"},"PeriodicalIF":2.4,"publicationDate":"2022-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49508131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The experience of lived body as expressed by people with dementia: A systematic meta-synthesis 痴呆症患者所表达的活的身体体验:一个系统的综合

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-18 DOI: 10.1177/14713012221082369

Siren Eriksen, E. Grov, T. L. Ibsen, A. M. Mork Rokstad, E. Telenius

{"title":"The experience of lived body as expressed by people with dementia: A systematic meta-synthesis","authors":"Siren Eriksen, E. Grov, T. L. Ibsen, A. M. Mork Rokstad, E. Telenius","doi":"10.1177/14713012221082369","DOIUrl":"https://doi.org/10.1177/14713012221082369","url":null,"abstract":"Introduction People with dementia undergo extensive bodily changes during the course of dementia. Even though this is largely unrecognised in the literature, these changes greatly impact on the persons’ experiences of living with dementia. Consequently, health care professionals and family caregivers need to be aware of the implications this has for delivering care to people with dementia. Hence, a systematic review that synthesises the knowledge on this topic is called for. Method This article presents a qualitative systematic meta-synthesis of interview studies with people with dementia. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Program criteria for qualitative studies were used to appraise the studies. Thirty-nine qualitative research studies were included in the review. The analysis followed the principles of interpretive synthesis. Findings When exploring people’s experiences of their body when living with dementia, four categories emerge: (1) My body works; (2) My body betrays me; (3) Understanding and adapting to my body’s changes; and (4) My body in relation to others. Discussion/Conclusion Every individual has their own personal experience of living with dementia; however, if health professionals fail to regard the body as more than an object, this may lead to the person’s alienation both from the relation and from the body. The lived body experience has relational aspects as people with dementia are aware that others observe them, and they also observe others. Others’ behaviour may affect the person’s experience of body; one can perceive oneself as approved or denounced. People with dementia describe that a body that is capable and strong gives access to the world and to participation.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"21 1","pages":"1771 - 1799"},"PeriodicalIF":2.4,"publicationDate":"2022-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43033762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Book Review: Psychodynamic approaches to the experience of dementia 书评：痴呆症经历的心理动力学方法

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-17 DOI: 10.1177/14713012221088724

H. Menne

引用次数: 0

Personal and complex: The needs and experiences related to technology use for people living with dementia 个人和复杂:痴呆症患者与技术使用相关的需求和经历

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-14 DOI: 10.1177/14713012221084521

J. Liddle, Peter Worthy, D. Frost, E. Taylor, Dubhglas Taylor, R. Beleno, Daniel Angus, Janet Wiles, A. Angwin

{"title":"Personal and complex: The needs and experiences related to technology use for people living with dementia","authors":"J. Liddle, Peter Worthy, D. Frost, E. Taylor, Dubhglas Taylor, R. Beleno, Daniel Angus, Janet Wiles, A. Angwin","doi":"10.1177/14713012221084521","DOIUrl":"https://doi.org/10.1177/14713012221084521","url":null,"abstract":"Background With increasing focus on living well with dementia, technology has been identified as having potential benefits for safety, independence and wellbeing. Despite a large growth in specialised technology development, there has been limited uptake. There is a need to understand the current use and needs related to technology for people living with dementia and their care partners (informal carers). Methods As part of a participatory design study, a qualitative inquiry into technology experiences and needs was undertaken within an interpretive description approach. A cross-disciplinary team including living experience experts (people living with dementia, unpaid care partners) was involved. Semi-structured interviews, including sharing technology locations and supports, were conducted, audio-recorded and transcribed. Key aspects of the technology use experience were constructed. Findings Thirteen people living with dementia and 21 care partners participated in the study. Two core aspects of technology use were identified: Lots of moving parts: the complex context, and A technology cycle: the use and non-use. The findings indicated that the context involved an individual configuration of multiple factors including the user, their technology identity, their supporters, the technology and the environment. The experience is underpinned by shifting foundations created by constantly changing technologies and user characteristics. The cycle of use and non-use identified the processes required to maintain technology engagement. Conclusion The use of technology for people living with dementia is complex and personal. Future technology development, policies and practices need to consider this complexity and the effort required to keep using technology to realise the benefits.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"12 10","pages":"1511 - 1531"},"PeriodicalIF":2.4,"publicationDate":"2022-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41300023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

Book Review: Wendy Mitchell, Somebody I used to know 书评:温蒂·米切尔，我以前认识的人

IF 2.4 3区社会学

Dementia-International Journal of Social Research and Practice Pub Date : 2022-04-01 DOI: 10.1177/14713012211062014

G. Niranjana, G. Bhuvaneswari

引用次数: 0