Qualitative ReportPub Date : 2022-10-01Epub Date: 2022-10-28DOI: 10.46743/2160-3715/2022.5193
Heather J Williamson, Andria B Begay, Dorothy J Dunn, Rachel Bacon, Mark Remiker, Yolanda E Garcia, Michael J McCarthy, Julie A Baldwin
{"title":"\"We Live on an Island\": Perspectives on Rural Family Caregivers for Adults with Alzheimer's Disease and Related Dementias in the United States.","authors":"Heather J Williamson, Andria B Begay, Dorothy J Dunn, Rachel Bacon, Mark Remiker, Yolanda E Garcia, Michael J McCarthy, Julie A Baldwin","doi":"10.46743/2160-3715/2022.5193","DOIUrl":"https://doi.org/10.46743/2160-3715/2022.5193","url":null,"abstract":"<p><p>As the United States' aging population grows, there will be increased prevalence of individuals living with Alzheimer's Disease and related dementias (ADRD), who largely rely on the support of their family caregivers. Family caregivers residing in rural areas face additional challenges with managing caregiving responsibilities and navigating support services. The purpose of this multilevel phenomenological qualitative study was to explore the assets, unique needs, and resources of rural-residing ADRD caregivers from the caregiver, provider, and policy influencers' perspectives. The study took place between 2019 through 2021 in northern Arizona, a largely rural and geographically vast area home to caregivers from diverse backgrounds. Twenty-seven caregivers to a loved one with ADRD participated in focus groups. Twelve health and social services providers and twelve policy influencers, those involved in leadership positions for aging programs or advocacy groups, completed individual interviews. Caregivers demonstrate many assets which contribute to their ability to manage and cope with their caregiving role. However, caregivers face a series of issues related to their caregiving role and need early and ongoing education regarding ADRD. There is a lack of resources available in rural areas, in particular providers, making it challenging to obtain needed resources necessary to support their loved one with ADRD. Furthermore, there is a need for more providers trained in working with aging adults and those experiencing ADRD, and a need for more culturally relevant resources.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9682982/pdf/nihms-1851374.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40706420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qualitative ReportPub Date : 2020-09-01Epub Date: 2020-09-05DOI: 10.46743/2160-3715/2020.4388
Carla Chugani, Gabriel Kass, Elizabeth Miller
{"title":"Managing Student Suicidality on Campus: Perspectives from Diverse Student Affairs Staff.","authors":"Carla Chugani, Gabriel Kass, Elizabeth Miller","doi":"10.46743/2160-3715/2020.4388","DOIUrl":"https://doi.org/10.46743/2160-3715/2020.4388","url":null,"abstract":"<p><p>Suicidal behavior is a substantial public health issue faced by college campuses. College counseling professionals often interact with a variety of other student affairs professionals who may be involved in the management of suicidality on campus. However, research on their experiences and perspectives on this topic is scarce. In this study, we build on literature related to management of suicidality on campus, which is predominantly focused on campus counseling professionals. Fifteen semi-structured qualitative interviews were conducted with student affairs professionals to explore how professionals on campuses might better work together to prevent crises and support students at elevated risk for suicide. Recurrent and emerging themes included barriers impeding their ability to best serve suicidal students, their perceptions on what factors make students vulnerable to suicide, and suggestions for future research. We conclude with a discussion of options to increase quantity and quality of service provision on campus for suicidal students.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2020-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/b8/ff/nihms-1633805.PMC8299432.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39226446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tosha Zaback, Stephanie Lam, Joan Randall, Teresa Field, Mitchell V Brinks
{"title":"Access to Eye Care Before and After Vision Loss: A Qualitative Study Investigating Eye Care Among Persons Who Have Become Blind.","authors":"Tosha Zaback, Stephanie Lam, Joan Randall, Teresa Field, Mitchell V Brinks","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Navigating access to eye care requires that patients recognize the need for screening and care, employ limited financial and social resources, manage complex health insurance policies, and access specialty clinical care. We investigated the experience of patients through the progression of vision loss to blindness, utilizing qualitative methods. We conducted structured telephone interviews with 28 persons with blindness throughout Oregon. Utilizing closed and open-ended questions, we explored patient experience on the events preceding avoidable blindness. Coding for emergent themes was conducted independently by two researchers using a constant comparative method. Participants described important barriers to accessing eye care: at the systems level, lack of access to providers and treatment; at the community level, available social support and services; and at the individual level, readiness to act and trust in providers. These findings suggest that important barriers to accessing preventive eye care, early diagnosis and treatment, vocational rehabilitation, and social services often occur at multiple levels. Access to eye care should be prioritized in efforts to reduce preventable visual impairment.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2020-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7486025/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38474441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mitchell R Knisely, Janet S Carpenter, Marion E Broome, Ann M Holmes, Diane Von Ah, Todd Skaar, Claire Burke Draucker
{"title":"Medication Exposure Patterns in Primary Care Patients Prescribed Pharmacogenetically Actionable Opioids.","authors":"Mitchell R Knisely, Janet S Carpenter, Marion E Broome, Ann M Holmes, Diane Von Ah, Todd Skaar, Claire Burke Draucker","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Current approaches to assessing medication exposure fail to capture the complexity of the phenomenon and the context in which it occurs. This study's purpose was to develop a typology of subgroups of patients who share common patterns of medication exposure. To create the typology, we used an exemplar sample of 30 patients in a large public healthcare system who had been prescribed the pharmacogenetically actionable opioids codeine or tramadol. Data related to medication exposure were drawn from large data repositories. Using a person-oriented qualitative approach, eight subgroups of patients who shared common patterns of medication exposure were identified. The subgroups had one of five opioid prescription patterns (i.e., singular, episodic, switching, sustained, multiplex), and one of three types of primary foci of medical care (i.e., pain, comorbidities, both). The findings reveal medication exposure patterns that are dynamic, multidimensional, and complex, and the typology offers an innovative approach to assessing medication exposure.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2018-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6660172/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140861236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qualitative ReportPub Date : 2018-08-01DOI: 10.46743/2160-3715/2018.3364
Mitchell R. Knisely, J. Carpenter, M. Broome, A. Holmes, Diane Von Ah, T. Skaar, C. Draucker
{"title":"Medication Exposure Patterns in Primary Care Patients Prescribed Pharmacogenetically Actionable Opioids.","authors":"Mitchell R. Knisely, J. Carpenter, M. Broome, A. Holmes, Diane Von Ah, T. Skaar, C. Draucker","doi":"10.46743/2160-3715/2018.3364","DOIUrl":"https://doi.org/10.46743/2160-3715/2018.3364","url":null,"abstract":"Current approaches to assessing medication exposure fail to capture the complexity of the phenomenon and the context in which it occurs. This study's purpose was to develop a typology of subgroups of patients who share common patterns of medication exposure. To create the typology, we used an exemplar sample of 30 patients in a large public healthcare system who had been prescribed the pharmacogenetically actionable opioids codeine or tramadol. Data related to medication exposure were drawn from large data repositories. Using a person-oriented qualitative approach, eight subgroups of patients who shared common patterns of medication exposure were identified. The subgroups had one of five opioid prescription patterns (i.e., singular, episodic, switching, sustained, multiplex), and one of three types of primary foci of medical care (i.e., pain, comorbidities, both). The findings reveal medication exposure patterns that are dynamic, multidimensional, and complex, and the typology offers an innovative approach to assessing medication exposure.","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2018-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86634424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Linda S Behar-Horenstein, JoNell Efantis Potter, Alena Prikhidko, Stephanie Swords, Stephen Sonstein, H Robert Kolb
{"title":"Training Impact on Novice and Experienced Research Coordinators.","authors":"Linda S Behar-Horenstein, JoNell Efantis Potter, Alena Prikhidko, Stephanie Swords, Stephen Sonstein, H Robert Kolb","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Competency-based training and professional development is critical to the clinical research enterprise. Understanding research coordinators' perspectives is important for establishing a common core curriculum. The purpose of this study was to describe participants' perspectives regarding the impact of online and classroom training sessions. 27 participants among three institutions, completed a two-day classroom training session. 10 novice and seven experienced research coordinators participated in focus group interviews. Grounded theory revealed similarities in novice and experienced coordinator themes including Identifying Preferences for Instruction and Changing Self Perceptions. Differences, seen in experienced participants, focused on personal change, in the theme of Re-Assessing Skills. Infrastructure and cultural issues were evident in their theme, Promoting Leadership and Advocacy. Novice participants recommended ways to improve training via their theme of Making Programmatic Improvements. Participants reported a clear preference for classroom learning. Training played an influential role in changing participants' self-perceptions by validating their experiences. The findings provided guidance for developing a standardized curriculum. Training must be carefully tailored to the needs of participants while considering audience needs based on work experience, how technology can be used and offering content that is most urgently needed.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/6b/e3/nihms930239.PMC5752151.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35715572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qualitative ReportPub Date : 2017-11-01Epub Date: 2017-11-26DOI: 10.46743/2160-3715/2017.3008
Carla D Chugani, Ashley R Seiler, Tina R Goldstein
{"title":"Recovery from Borderline Personality Disorder through Dialectical Behavior Therapy.","authors":"Carla D Chugani, Ashley R Seiler, Tina R Goldstein","doi":"10.46743/2160-3715/2017.3008","DOIUrl":"https://doi.org/10.46743/2160-3715/2017.3008","url":null,"abstract":"<p><p>This article presents a qualitative investigation of the perspectives and experiences of recovery from borderline personality disorder from six individuals who were treated with comprehensive dialectical behavior therapy. Data were collected via semi-structured interviews, transcribed, and coded using a six-step analysis process. Six primary themes emerged: (1) belief about recovery, (2) current experience of self, (3) facets of recovery, (4) motivating factors, (5) external supports to recovery, and (6) characteristics required for recovery. Overall, the findings took a dialectical form in which participants often described conflicting experiences (e.g., feeling recovered while also continuing to experience heightened emotional sensitivity). We conclude that the themes presented in this article represent broad domains related to the meaning of recovery from BPD, and recognize that the relative importance of each domain is best determined by the individual.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2017-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8297586/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39226445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qualitative ReportPub Date : 2016-07-01Epub Date: 2016-07-11DOI: 10.46743/2160-3715/2016.2205
Carol Isaac, Linda Baier Manwell, Patricia G Devine, Cecilia Ford, Jennifer T Sheridan, Angela Byars-Winston, Evelyn Fine, Molly Carnes
{"title":"Difficult Dialogues: Negotiating Faculty Responses to a Gender Bias Literacy Training Program.","authors":"Carol Isaac, Linda Baier Manwell, Patricia G Devine, Cecilia Ford, Jennifer T Sheridan, Angela Byars-Winston, Evelyn Fine, Molly Carnes","doi":"10.46743/2160-3715/2016.2205","DOIUrl":"10.46743/2160-3715/2016.2205","url":null,"abstract":"<p><p>Diversity training is challenging and can evoke strong emotional responses from participants including resistance, shame, confusion, powerlessness, defensiveness, and anger. These responses create complex situations for both presenters and other learners. We observed 3 experienced presenters as they implemented 41 gender bias literacy workshops for 376 faculty from 42 STEMM (science, technology, engineering, mathematics, medicine) departments at one Midwestern university. We recorded questions and answers as well as participants' non-verbal activity during each 2.5-hour workshop. Employing content analysis and critical incident technique, we identified content that elicited heightened activity and challenging dialogues among presenters and faculty. Results from analysis of this observational data found three important findings: (1) presenters continually reinforced the idea that implicit bias is ordinary and pervasive, thus avoiding participant alienation by allowing participants to protect their self-worth and integrity; (2) difficult dialogues were managed calmly without verbal sparring or relinquishing control; (3) the presenters created an environment where individuals were more likely to accept threatening information.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2016-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/52/23/nihms-1583476.PMC8188829.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39100994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Qualitative ReportPub Date : 2015-12-01DOI: 10.46743/2160-3715/2015.2427
M. Marzán-Rodríguez, N. Varas-Díaz, T. Neilands
{"title":"Qualitative Contributions to a Randomized Controlled Trial Addressing HIV/AIDS-Stigma in Medical Students.","authors":"M. Marzán-Rodríguez, N. Varas-Díaz, T. Neilands","doi":"10.46743/2160-3715/2015.2427","DOIUrl":"https://doi.org/10.46743/2160-3715/2015.2427","url":null,"abstract":"Specialized training for healthcare professionals (HCP) in order to reduce HIV/AIDS related stigma must be part of a public health model for HIV/AIDS. Tested interventions to reduce HIV/AIDS related stigma among HCP have been mostly absent from these efforts. A qualitative approach was used to assess stigma reduction within a traditional randomized controlled design in order to better understand how our current stigma intervention worked and was understood by 2nd year medical students. After conducting a quantitative follow up survey one-year post intervention we conducted 20 in-depth qualitative interviews with a subsample of our intervention group participants as part of the overall evaluation process. Once the interviews were finished, we transcribed them and used NVivo (v.8) to organized the qualitative data. In the process of analyzing the qualitative data we identified core intervention areas participants described as useful for their training and development: (1) acquiring more HIV/AIDS-related knowledge, (2) increased skills for management of high stigma situations, and (3) the ability to identify socio-structural factors that foster HIV infection among clients. The gathered information is important in order to have a deep understanding of how attitudinal change happens as part of our intervention strategies.","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77963350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa Marzán-Rodríguez, Nelson Varas-Díaz, Torsten Neilands
{"title":"Qualitative Contributions to a Randomized Controlled Trial Addressing HIV/AIDS-Stigma in Medical Students.","authors":"Melissa Marzán-Rodríguez, Nelson Varas-Díaz, Torsten Neilands","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Specialized training for healthcare professionals (HCP) in order to reduce HIV/AIDS related stigma must be part of a public health model for HIV/AIDS. Tested interventions to reduce HIV/AIDS related stigma among HCP have been mostly absent from these efforts. A qualitative approach was used to assess stigma reduction within a traditional randomized controlled design in order to better understand how our current stigma intervention worked and was understood by 2nd year medical students. After conducting a quantitative follow up survey one-year post intervention we conducted 20 in-depth qualitative interviews with a subsample of our intervention group participants as part of the overall evaluation process. Once the interviews were finished, we transcribed them and used NVivo (v.8) to organized the qualitative data. In the process of analyzing the qualitative data we identified core intervention areas participants described as useful for their training and development: (1) acquiring more HIV/AIDS-related knowledge, (2) increased skills for management of high stigma situations, and (3) the ability to identify socio-structural factors that foster HIV infection among clients. The gathered information is important in order to have a deep understanding of how attitudinal change happens as part of our intervention strategies.</p>","PeriodicalId":51387,"journal":{"name":"Qualitative Report","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4739842/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140195047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}