Nikolai Kiselev, Tanja Frey, Annika Naesbom, Reto Planzer, Andreas Meyer-Heim
{"title":"Perspectives of Swiss Paediatric Health Care Professionals on Factors Influencing Physical Activity Participation in Children with Disabilities.","authors":"Nikolai Kiselev, Tanja Frey, Annika Naesbom, Reto Planzer, Andreas Meyer-Heim","doi":"10.1080/17518423.2023.2242483","DOIUrl":"https://doi.org/10.1080/17518423.2023.2242483","url":null,"abstract":"<p><strong>Aim: </strong>Investigation of the perspectives of paediatric health care professionals (PHCPs) in Switzerland regarding factors that influence participation in physical activity programs for children and adolescents with disabilities or chronic conditions (CADCCs). Evaluation of self-reported exercise counselling behavior of those professionals.</p><p><strong>Method: </strong>A cross-sectional survey was used to collect the opinions of 171 PHCPs working with CADCCs using a structured questionnaire. The information obtained was evaluated by performing a combined quantitative and qualitative statistical analysis.</p><p><strong>Results: </strong>PHCPs in Switzerland think that CADCC do not get enough physical activity and see the underlying reasons in lacking information/knowledge and organizational factors. We found that the level of knowledge about disability sports opportunities among PHCPs has a positive influence on their exercise counselling behaviour.</p><p><strong>Conclusions: </strong>We propose three approaches to increase the level of physical activity in CADCC: Establishing personalized exercise counseling, intensifying information about disability sports programmes towards PHCPs, and improving inclusion and integration in PE lessons or regular sports clubs.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 5","pages":"328-337"},"PeriodicalIF":1.3,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10144681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Acceptability of a Multimodal Telerehabilitation Intervention for Children Ages 3-8 Years with Motor Difficulties: Results of a Qualitative Study.","authors":"Rosalie Dostie, Isabelle Gaboury, Nathalie Trottier, Karen Hurtubise, Chantal Camden","doi":"10.1080/17518423.2023.2233020","DOIUrl":"https://doi.org/10.1080/17518423.2023.2233020","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study is to explore the acceptability of a telerehabilitation intervention provided to parents of children with motor difficulties.</p><p><strong>Material and methods: </strong>Sixteen parents of children were purposefully recruited to participate in semi-structured interviews aimed at assessing the acceptability of the telerehabilitation intervention. Interviews were analyzed thematically.</p><p><strong>Results: </strong>All participants described evolving acceptability associated with their interactions with the web platform. The opportunities generated, suitability in relation to families' values and perceived effects positively impacted acceptability. The understanding and consistency of intervention delivery, the child's level of involvement, the associated parental burden of the intervention and the therapeutic alliances created also affected acceptability.</p><p><strong>Conclusion: </strong>Our study findings support the acceptability of a telerehabilitation intervention for families of children with motor difficulties. Telerehabilitation seems to be more acceptable to families with children without suspected or confirmed diagnoses.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 5","pages":"287-301"},"PeriodicalIF":1.3,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10145701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joy Noelle Yumul, Cathy Catroppa, Audrey McKinlay, Vicki Anderson
{"title":"Post-Concussive Symptoms in Preschool Children up to Three Months Post-Injury.","authors":"Joy Noelle Yumul, Cathy Catroppa, Audrey McKinlay, Vicki Anderson","doi":"10.1080/17518423.2023.2242945","DOIUrl":"https://doi.org/10.1080/17518423.2023.2242945","url":null,"abstract":"<p><strong>Background and aims: </strong>Post-concussive symptoms (PCS) are central to the assessment and management of mild traumatic brain injury (mTBI); however, this remains poorly understood in children aged ≤5 years. The study aimed to explore individual PCS, pattern of parents' PCS report over time, proportion of symptomatic children, and variables associated with parents' report of PCS in their preschool child after a mTBI.</p><p><strong>Methods: </strong>Children aged 2-5 years with either a mTBI (n=13) or limb injury (n=6) were recruited from the emergency department (ED). Parent ratings of child PCS were assessed at ED presentation, at one month, and at three months post-injury. Injury (e.g. injury group, pain), child (e.g. pre-existing behavior, symptoms), and parent (e.g. parental stress, education) characteristics were considered when investigating variables that may be relevant to parent report of PCS.</p><p><strong>Results: </strong>The number of total, physical, and sleep PCS were significantly higher after mTBI, with a significant decrease in physical and sleep PCS over time. The proportion of symptomatic children was comparable between injury groups at each time point. Acute pain and pre-injury symptoms were significantly associated with parents' acute PCS report in the mTBI group. Further research is needed on variables that may be relevant to parents' PCS report at follow-up.</p><p><strong>Conclusion: </strong>Preliminary findings suggest a general trauma response after a mTBI or limb injury, but acute physical and sleep PCS may help differentiate the injury groups. Injury and premorbid child variables may be relevant to parents' report of acute PCS in their child. Additional research is needed to investigate PCS in preschoolers and variables that may predict parents' PCS report.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 5","pages":"338-347"},"PeriodicalIF":1.3,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10497677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Benjamin R Thomas, Brian Nasca, Jared Cohen, Craig W Strohmeier
{"title":"Functional Analysis and Chained Schedule Treatment of Elopement in Teens with Autism Spectrum Disorder.","authors":"Benjamin R Thomas, Brian Nasca, Jared Cohen, Craig W Strohmeier","doi":"10.1080/17518423.2023.2193260","DOIUrl":"https://doi.org/10.1080/17518423.2023.2193260","url":null,"abstract":"<p><p>Elopement is one of the most common forms of problem behavior for individuals with autism spectrum disorder (ASD) and is associated with the greatest probability of a lethal outcome. This study evaluated the effects of a function-based treatment package on elopement for two teenage boys with ASD who eloped frequently from caregivers. Functional analyses (FA) identified the variables that evoked and maintained each teen's elopement. Treatment involved a chained schedule comprised primarily of empirically derived differential reinforcement of other behavior (DRO), functional communication training (FCT), and extinction procedures. The treatment produced clinically significant decreases in elopement for both teens. Decreases in elopement maintained when the treatment evaluation was extended to additional contexts. The current study extends the literature on assessment and treatment of elopement and chained schedule treatments that involve both DRO and FCT.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 4","pages":"223-233"},"PeriodicalIF":1.3,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9883691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Miriam von Gunten, Angela Botros, Bernadette Tobler-Ammann, Tobias Nef, Sebastian Grunt
{"title":"Action Observation Training to Improve Upper Limb Function in Infants with Unilateral Brain Lesion - a Feasibility Study.","authors":"Miriam von Gunten, Angela Botros, Bernadette Tobler-Ammann, Tobias Nef, Sebastian Grunt","doi":"10.1080/17518423.2023.2193630","DOIUrl":"https://doi.org/10.1080/17518423.2023.2193630","url":null,"abstract":"<p><p>In this study, the feasibility of Action Observation Training (AOT) in combination with sensor-based measurements in infants at high risk of Unilateral Spastic Cerebral Palsy (UCP) were evaluated. Over a four-week period, eight infants at high risk of UCP performed AOT at home while wearing sensors with assistance of caregivers. Sensor data were compared to clinical assessments of upper limb function, the Hand Assessment for Infants (HAI) and the Mini-Assisting Hand Assessment (Mini-AHA). AOT training time and acceptance by the caregivers were considered as indicators for feasibility. The excellent training adherence and positive feedback of the caregivers showed that the AOT was feasible in this patient group and setting. Sensor measurements were accepted and displayed significant correlations with hand function. These preliminary results indicate the potential of wearable sensors to record upper limb function over the course of AOT for infants at high risk of UCP. Thus, AOT in combination with sensor measurements are proposed as a feasible training tool to complement usual care.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 4","pages":"234-243"},"PeriodicalIF":1.3,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9883689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Impact of Functional Strength Training on Muscle Strength and Mobility in Children with Spastic Cerebral Palsy - A Systematic Review and Meta-Analysis.","authors":"Kirthana Shilesh, Suruliraj Karthikbabu, Pratiksha Tilak Rao","doi":"10.1080/17518423.2023.2218905","DOIUrl":"https://doi.org/10.1080/17518423.2023.2218905","url":null,"abstract":"<p><strong>Objective: </strong>To review the effects of functional strength training (FST) on muscle strength and mobility in children with spastic cerebral palsy (CP).</p><p><strong>Methods: </strong>Eight databases were screened through March 2022 for studies assessing the impact of FST on strength, mobility, balance, and endurance in children with spastic CP. Study quality was assessed using the Downs and Black checklist and Cochrane Risk of Bias tools, followed by a meta-analysis.</p><p><strong>Results: </strong>Twelve intervention studies of moderate-to-high-level evidence were selected. The interventions included open and closed chain exercises using free weights or body weight, administered approximately thrice a week for 12 weeks. The FST was found to have a moderate-to-large, statistically significant, positive effect on muscle strength (quadriceps, hamstrings, and plantar flexors) and mobility (GMFM D and E), with only four studies showing maintenance of gains during follow-up assessment.</p><p><strong>Conclusion: </strong>FST has a positive effect on muscle strength and mobility in children with spastic CP, but evidence of sustained effects following FST is limited.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 4","pages":"262-277"},"PeriodicalIF":1.3,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9648400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Developmental Profiles in Children and Young Adults with Alexander Disease.","authors":"Laura Zampini, Lara Draghi, Paola Zanchi","doi":"10.1080/17518423.2023.2209834","DOIUrl":"https://doi.org/10.1080/17518423.2023.2209834","url":null,"abstract":"<p><strong>Purpose: </strong>The study aims to describe the developmental profile of children and young adults with Alexander disease [AxD] infantile form, analyzing their clinical features, adaptive behavior and neuropsychological skills.</p><p><strong>Methods: </strong>Participants were eight children or young adults (Mean age = 11 years; SD = 6.86; range = 5-23) and their parents. A multi-method approach was adopted to assess participant competencies: (1) an online parent survey, (2) a semi-structured interview with parents, and (3) a direct assessment of the participant's neuropsychological skills.</p><p><strong>Results: </strong>Only four parents and their children completed all measures, and a common developmental profile could not be identified. The participants experienced substantial impairment in gross-motor skills, memory and narrative macrostructure. Most parents reported a regressive trend in at least one area.</p><p><strong>Conclusions: </strong>The high individual variability and the regressive trend highlight the need for an accurate and periodic assessment of each individual's developmental profile.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 4","pages":"253-261"},"PeriodicalIF":1.3,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9582816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Investigating the Effect of Leap Motion on Upper Extremity Rehabilitation in Children with Cerebral Palsy: A Randomized Controlled Trial.","authors":"Mahla Daliri, Ali Moradi, Saeid Fatorehchy, Enayatollah Bakhshi, Ehsan Moradi, Sajad Sabbaghi","doi":"10.1080/17518423.2023.2203210","DOIUrl":"10.1080/17518423.2023.2203210","url":null,"abstract":"<p><p>In this randomized clinical trial, we look for the following questions' answer: How does the integration of LMC affect (1) upper extremity (UE) function, (2) grip strength, and (3) lateral and palmar pinch strength in children with cerebral palsy (CP), in comparison with conventional rehabilitation methods? Twenty patients were randomly assigned to LMC (case) or conventional (control) groups. The grip, lateral and palmar pinch forces increased in case group patients more than control group both at the end of intervention (<i>P</i> < .001 for all three), and at 20 weeks' follow-up (P values 0.035, 0.002, and 0.002). The Quality of Upper Extremity Skills Test (QUEST) score changes were similar between two groups, except for grasp score at the end of step 2 and 3 (<i>P</i> = .04 and 0.01, respectively). The addition of LMC to the rehabilitation program of patients with CP may improve the UE motor function outcomes.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 4","pages":"244-252"},"PeriodicalIF":1.3,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9531362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Moriah Baram, Luba Zuk, Tohar Stattler, Michal Katz-Leurer
{"title":"The Prevalence of Bladder and Bowel Dysfunction in Children with Cerebral Palsy and its Association with Motor, Cognitive, and Autonomic Function.","authors":"Moriah Baram, Luba Zuk, Tohar Stattler, Michal Katz-Leurer","doi":"10.1080/17518423.2023.2193268","DOIUrl":"https://doi.org/10.1080/17518423.2023.2193268","url":null,"abstract":"<p><strong>Purpose: </strong>To describe the prevalence of bladder and bowel dysfunction (BBD) in 8-10-year-old children with cerebral palsy and its association with motor, cognitive, and autonomic dysfunction.</p><p><strong>Methods: </strong>A cross-sectional, random sample study of parents of 8-10-year-old children with cerebral palsy. Tools: The Enuresis/Urinary Incontinence Parental Questionnaire, the Functional Independence Measure children's version, the autonomic signs questionnaire, and the Gross Motor Function Classification System.</p><p><strong>Results: </strong>39 out of 59 parents consented to participate, whereas 25.64% reported complete continence. Of the 29 children with BBD, 21 (72.4%) had lower urinary tract symptoms and bowel problems. Only two of the children received conservative and noninvasive treatments. Lastly, motor, cognitive and autonomic impairments were associated with incontinence.</p><p><strong>Conclusions: </strong>BBD is common in 8-10-year-old children with cerebral palsy at all levels of functioning. Most having both lower urinary tract symptoms and bowel problems.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 3","pages":"155-162"},"PeriodicalIF":1.3,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9275023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aishwarya J Talgeri, Akshatha Nayak, Shreekanth D Karnad, Preyal Jain, Jaya Shanker Tedla, Ravi Shankar Reddy, Devika Rani Sangadala
{"title":"Effect of Trunk Targeted Interventions on Functional Outcomes in Children with Cerebral Palsy- A Systematic Review.","authors":"Aishwarya J Talgeri, Akshatha Nayak, Shreekanth D Karnad, Preyal Jain, Jaya Shanker Tedla, Ravi Shankar Reddy, Devika Rani Sangadala","doi":"10.1080/17518423.2023.2193265","DOIUrl":"https://doi.org/10.1080/17518423.2023.2193265","url":null,"abstract":"<p><p>Objective of this review was to collate information on the effectiveness of trunk targeted intervention on children with cerebral palsy (CP) on three functional outcomes that are gross motor function, trunk control and balance. A comprehensive search was conducted on online databases from inception to August 2021, using relevant keywords. A total of 15 randomized controlled trials which enrolled children with cerebral palsy under 18 years met the inclusion criteria. A significant improvement was seen in the trunk targeted training groups on applying trunk targeted interventions. Trunk targeted interventions improve gross motor function, trunk control as well as balance, hence should be incorporated in the conventional physical therapy program delivered to children with CP and would help in greater functional recovery.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 3","pages":"193-205"},"PeriodicalIF":1.3,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9264081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}