Journal of Palliative Care最新文献_第8页

The experiences and needs of nurses providing home-based palliative care: A qualitative meta-synthesis. 护士提供家庭姑息治疗的经验和需求：定性荟萃综合。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-10-01 Epub Date: 2022-05-31 DOI: 10.1177/08258597221105167

Yu-Hsuan Wu, Hui-Ya Hsieh, Yu-Ling Kuo, Chien-Yi Wu

{"title":"The experiences and needs of nurses providing home-based palliative care: A qualitative meta-synthesis.","authors":"Yu-Hsuan Wu, Hui-Ya Hsieh, Yu-Ling Kuo, Chien-Yi Wu","doi":"10.1177/08258597221105167","DOIUrl":"10.1177/08258597221105167","url":null,"abstract":"Objective(s): We conducted a qualitative meta-synthesis of qualitative studies on nurses' experiences when caring for palliative patients to (1) identify the needs of nurses and (2) describe their experiences to provide more in-depth information. Methods: Qualitative articles published in English from 2000 to 2022 were identified from several databases through a searching strategy. Authors screened through the title, abstract, and full text of relevant studies. Articles were read repeatedly and discussed. The thematic analysis methodology was adopted to analyze the data. Results: Of 967 articles, 22 were included in our review. Notions reflecting community nurses providing palliative home care were clustered into four themes: (1) nature of community-based palliative nursing, (2) teamwork, (3) relationship with patient and family, and (4) resources. Findings also suggest establishing a sound support system, strengthening palliative education, and creating more decisive referral criteria and systems. Conclusions: The growing need for palliative home care has become challenging for community health care systems. Our study summarized various aspects of nurses providing home-based palliative care. The findings provide information for health care and education settings to improve home care systems and recruit more staff to meet the needs.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41184150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Is Low Volume Drainage of Ascites Associated With Improved Survival in Digestive System Cancer Patients With Malignant Ascites?-A Retrospective Cohort Study. 癌症恶性腹水患者低容量腹水引流与提高生存率有关吗-一项回顾性队列研究。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-10-01 Epub Date: 2023-04-24 DOI: 10.1177/08258597231170049

Shunya Hoshino, Yusuke Takagi, Takeo Fukagawa, Keiji Sano, Nobuhiko Seki, Yojiro Hashiguchi, Etsuko Aruga

{"title":"Is Low Volume Drainage of Ascites Associated With Improved Survival in Digestive System Cancer Patients With Malignant Ascites?-A Retrospective Cohort Study.","authors":"Shunya Hoshino, Yusuke Takagi, Takeo Fukagawa, Keiji Sano, Nobuhiko Seki, Yojiro Hashiguchi, Etsuko Aruga","doi":"10.1177/08258597231170049","DOIUrl":"10.1177/08258597231170049","url":null,"abstract":"Objectives: To determine whether the volume of paracentesis for malignant ascites in acute care hospital wards is associated with survival and symptom relief. Methods: Patients with malignant ascites caused by digestive system cancer who underwent paracentesis between January 2010 and April 2022 were retrospectively analyzed from medical records. Collected data included the drainage volume per paracentesis procedure, survival time from the first paracentesis procedure, symptoms, and adverse events. According to the volume per paracentesis procedure, we divided the patients into the \"small-drainage\" (≤1500 mL) and \"standard-drainage\" (>1500 mL) groups. Results: The median age of the 144 patients was 69 years, 33% were female, and 64% had gastrointestinal cancer. The median survival from the first paracentesis procedure was 36 days. Eighty-nine (61.8%) and 55 (38.2%) patients were allocated to the small-drainage and standard-drainage groups, respectively. The median number of paracentesis procedures in the small-drainage and standard-drainage groups was 12 and 7, respectively (P=.001). The median survival in the small-drainage and standard-drainage groups was 50 and 44 days, respectively (P=.76). The multivariate analysis showed that the amount of drainage per session was not significantly associated with survival. Symptoms improved similarly in the 2 groups. No serious adverse events were observed. Conclusions: Paracentesis was demonstrated to be effective and safe, irrespective of the amount of fluid drained, for patients with malignant ascites in an acute care hospital. Thus, a strategy of limiting the amount of drainage is not associated with longer survival.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/1d/fb/10.1177_08258597231170049.PMC10566212.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9686453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Determinants of Cancer-Related Fatigue among Cancer Patients: A Systematic Review. 癌症患者癌症相关疲劳的决定因素：系统综述。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-10-01 Epub Date: 2022-10-17 DOI: 10.1177/08258597221131133

Fatima DSilva, Pritanjali Singh, Athar Javeth

引用次数: 4

Food as Love: Ethical and Moral Dilemmas in Withdrawal of Artificial Nutrition and Hydration in the Minimally Conscious State. 食物如爱：在最低意识状态下退出人工营养和补水的伦理和道德困境。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-10-01 Epub Date: 2021-05-03 DOI: 10.1177/08258597211014359

Kelley Finch Newcomer, Robert L Fine, Antoinette Fidelia Newman

引用次数: 1

Patients' Experiences of Cancer Pain: A Descriptive Qualitative Study. 癌症疼痛患者体验的描述性定性研究。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-10-01 Epub Date: 2023-01-02 DOI: 10.1177/08258597221149545

Hadi Hassankhani, Mohammad Hajaghazadeh, Samira Orujlu

{"title":"Patients' Experiences of Cancer Pain: A Descriptive Qualitative Study.","authors":"Hadi Hassankhani, Mohammad Hajaghazadeh, Samira Orujlu","doi":"10.1177/08258597221149545","DOIUrl":"10.1177/08258597221149545","url":null,"abstract":"Objective: The aim of this study was to explore the cancer pain experiences of Iranian patients.Design: A qualitative descriptive design was used.Methods: This qualitative descriptive study was performed on 17 participants between December 2020 and September 2021. Data were collected using semistructured interviews and analyzed by Graneheim and Lundman's content analysis method.Results: Three main categories emerged in relation to patients' experiences of cancer pain. Categories included (1) characteristics of cancer pain, (2) pain self-management strategies, and (3) influence of pain on patient and her/his family.Conclusions: Most patients believe that pain is God's will, and family members, doctors, and nurses can assist patients cope with pain by respecting this belief and supporting spiritual healing. Strengthening pain management strategies, expanding social networks, and convincing the patients that they are not an interruption to their families can all help patients maintain their fighting spirit and pain tolerance. To provide holistic care, healthcare providers, particularly nurses, should consider the physical, sociocultural, and spiritual aspects of cancer pain.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10544749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effect of Auricular Acupressure in Management of Constipation in Palliative Care Patients. 耳穴按压治疗姑息治疗患者便秘的效果。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-09-06 DOI: 10.1177/08258597231181040

Derya Biçak Ayik, Gülbeyaz Can

{"title":"Effect of Auricular Acupressure in Management of Constipation in Palliative Care Patients.","authors":"Derya Biçak Ayik, Gülbeyaz Can","doi":"10.1177/08258597231181040","DOIUrl":"https://doi.org/10.1177/08258597231181040","url":null,"abstract":"Objectives: This experimental randomized-controlled study was performed to define the efficacy of auricular acupressure (AA) in the management of constipation developing in palliative care patients. Methods: According to the pre-prepared randomization list, 44 patients were included in the experimental group and 46 patients were included in the control group. Routine clinical treatment and care implementation were maintained in the patients in both groups. AA was performed for 4 weeks in patients in the experimental group. During the study, to determine the complaints of the patients regarding constipation, the information in the daily patient chart was examined at least 5 times by interviewing with the patient/patient's relative in the clinic and/or via phone call, and the results were recorded in the patient chart and data collection forms. The independent variable of the study is AA application, and the dependent variables are constipation and quality of life. Results: It was determined that there was no statistically significant difference between the daily defecation frequency of the 2 groups during the first 11 days. However, after the 12th day, the daily stool frequency of the experimental group was higher compared to the control group and this difference obtained between the 2 groups was statistically significantly different. AA was effective in decreasing laxative use. Conclusion: This intervention increased stool frequency, reduced physical and psychosocial symptoms, anxieties, and improved stool satisfaction and it was an effective approach to improving the quality of life. It is recommended that the daily use of AA should be evaluated. The healthcare providers including nurses, patients, and patient relatives should be trained regarding AA.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10534283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Chinese Diaspora Communities' Knowledge of and Engagement with Advance Care Planning: A Systematic Integrative Review. 华人社区对预先护理计划的了解和参与:一项系统的综合评价。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-07-01 DOI: 10.1177/08258597231158321

Zhuangshuang Li, Esther Ruth Beck, Sonja McIlfatrick, Felicity Hasson

{"title":"Chinese Diaspora Communities' Knowledge of and Engagement with Advance Care Planning: A Systematic Integrative Review.","authors":"Zhuangshuang Li, Esther Ruth Beck, Sonja McIlfatrick, Felicity Hasson","doi":"10.1177/08258597231158321","DOIUrl":"https://doi.org/10.1177/08258597231158321","url":null,"abstract":"Objectives: To synthesize evidence regarding Chinese diasporas' understanding, experience, and factors influencing engagement with advance care planning. Methods: A systematic integrative review using content analysis. Seven electronic databases (Embase, CINAHL, SCOPUS, Web of Science, Medline (OVID), PsycINFo, and The Cochrane Library) and gray resources were searched for studies from January 1990 to March 2022. Study quality appraisal was undertaken. Results: 27 articles were identified and rated as moderate to good. Two overarching and interrelated themes were identified, \"Awareness and knowledge\" and \"Engagement with advance care planning.\" There are low levels of awareness, knowledge and engagement with advance care planning for Chinese diaspora. Findings highlight that this is influenced by two key factors. First, the geographic context and legal, cultural, and social systems within which the Chinese diasporas are living act as a potential catalyst to enhance awareness and engagement with advance care planning. Second, aspects of Chinese diasporas' original culture, such as filial piety and a taboo surrounding death, were reported to negatively affect the promotion and engagement of advance care planning. Significance of Results: Chinese diasporas are intermediaries between two divergent cultures that intertwine to strongly influence engagement with advance care planning. Hence, a bespoke culturally tailored approach should be accommodated in future research and practice for Chinese communities in multicultural countries to further advance palliative and end-of-life care awareness among this group.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/cc/d5/10.1177_08258597231158321.PMC10350701.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9829305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Challenges Experienced by Nurses in Providing Pediatric Palliative Care: An Interpretive Phenomenological Analysis. 护士在提供儿科姑息治疗时所遇到的挑战:一项解释性现象学分析。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-07-01 DOI: 10.1177/08258597231173313

Erna Judith Roach, Omar Al Omari, Sheeba Elizabeth John, Frincy Francis, Judie Arulappan, Lina Shakman, Aysha Al Hashmi, Sulaiman Al Sabei, Atika Khalaf

{"title":"Challenges Experienced by Nurses in Providing Pediatric Palliative Care: An Interpretive Phenomenological Analysis.","authors":"Erna Judith Roach, Omar Al Omari, Sheeba Elizabeth John, Frincy Francis, Judie Arulappan, Lina Shakman, Aysha Al Hashmi, Sulaiman Al Sabei, Atika Khalaf","doi":"10.1177/08258597231173313","DOIUrl":"https://doi.org/10.1177/08258597231173313","url":null,"abstract":"Objectives: Pediatric leukemia is the most common cancer among children younger than 14 years of age. Children with leukemia require palliative care as additional support from the health care team. Providing palliative care to children is challenging. Thus, this study explored the challenges experienced by nurses in providing pediatric palliative care to children with leukemia. Methods: Semi-structured face-to-face interviews were conducted on a purposive sample of 11 nurses in the hematology-oncology units of a tertiary care hospital in Oman. Results: Interviews were transcribed and analyzed using interpretive phenomenological analysis, which revealed three main themes and seven subthemes related to challenges in providing pediatric palliative care: Personal challenges: Nurses were unable to neutralize their emotions, which burdened them emotionally; due to multitasking, nurses were unable to manage their tasks within the expected time frame; nurses were stressful when they participated in explaining the diagnosis to the parents; and nurses felt powerless when the health condition of some children deteriorated. Educational challenges: Nurses felt unprepared to meet the physical/psychosocial aspects of caring for children with leukemia. Organizational challenges: Nurses stated that families and nurses required rooms to pray, rest, and read Quran, and they needed a private place to speak to families; and nurses mentioned that there are limited number of psychologists to meet the psychological and social needs of children and their families. Conclusion: Prioritizing and implementing strategies for a supportive workplace, guided clinical practice, and maximizing nurses' satisfaction are crucial.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10150669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"There is No Communication": A Qualitative Examination of Deaf Signers' Experiences With Advance Care Planning. “没有沟通”:聋人手语者预先照护计划经验的质性检验。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-07-01 DOI: 10.1177/08258597231179763

Caroline Cerilli, Gabrielle Katz, Angelo E Volandes, Aretha Delight Davis, Michael K Paasche-Orlow, Tyler G James, Michael M McKee

{"title":"\"There is No Communication\": A Qualitative Examination of Deaf Signers' Experiences With Advance Care Planning.","authors":"Caroline Cerilli, Gabrielle Katz, Angelo E Volandes, Aretha Delight Davis, Michael K Paasche-Orlow, Tyler G James, Michael M McKee","doi":"10.1177/08258597231179763","DOIUrl":"https://doi.org/10.1177/08258597231179763","url":null,"abstract":"Objective(s): Deaf American Sign Language (ASL) users are subject to health care disparities resulting from communication and language barriers. Currently, few resources on advance care planning and end-of-life care exist in ASL. This study explores Deaf ASL users' perceptions and experiences with end-of-life care and advance care planning. Methods: Semi-structured 1:1 interviews with Deaf signers were translated, and transcribed into English by a bilingual researcher. Investigators inductively coded transcripts and identified themes of barriers, facilitators, knowledge, and sources of information regarding end-of-life care. Participants' knowledge of advance care planning and completion of advance care planning documents were evaluated using a brief assessment. Results: Eleven Deaf ASL users participated in the study with two deaf interviewers. Participants reported barriers to end-of-life care including poor provider communication, inaccessible sources, and inadequate provision of accommodations, leading to patient distrust. Participants' understanding of advance care planning was facilitated by accessible forms of communication and their social networks, such as family, friends, and Deaf peers. Participants primarily gained information on end-of-life care from first-hand familial experience, peers, and media. Participants' mean advance care planning knowledge was 4.6 out of 15 (SD = 2.6). Conclusions: Deaf ASL users face scarce accessible resources around end-of-life care, lowering their ability to understand and proceed with advance care planning. Implementation of ASL accessible advance care planning educational tools in health care settings is needed.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9796333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Symptom Management and Support in Dying Patients with Cancer and Coronavirus Disease-19-A Register-Based Study. 癌症和冠状病毒病-19死亡患者的症状管理和支持——基于注册的研究。

IF 1.7 4区医学

Journal of Palliative Care Pub Date : 2023-07-01 Epub Date: 2023-02-15 DOI: 10.1177/08258597231157622

Christel Hedman, Peter Strang, Staffan Lundström, Lisa Martinsson

{"title":"Symptom Management and Support in Dying Patients with Cancer and Coronavirus Disease-19-A Register-Based Study.","authors":"Christel Hedman, Peter Strang, Staffan Lundström, Lisa Martinsson","doi":"10.1177/08258597231157622","DOIUrl":"10.1177/08258597231157622","url":null,"abstract":"Objective: Little is known to what extent access to specialist palliative care (SPC) for cancer patients dying with coronavirus disease-2019 (COVID-19) affects the occurrence of breakthrough symptoms, symptom relief, and overall care, compared to hospital deaths. Our aim was to include patients with both COVID-19 and cancer and compare those dying in hospitals with those dying in SPC with reference to the quality of end-of-life care.Methods: Patients with both cancer and COVID-19 who died in hospitals (n = 430) and within SPC (n = 384) were identified from the Swedish Register of Palliative Care. The hospital and SPC groups were compared regarding the quality of end-of-life care, including the occurrence of 6 breakthrough symptoms during the last week in life, symptom relief, end-of-life care decisions, information, support, and human presence at death.Results: Breakthrough of breathlessness was more common in the hospital patients compared to the SPC patients (61% and 39%, respectively; p < .001), while pain was less common (65% and 78%, respectively; p < .001). Breakthrough of nausea, anxiety, respiratory secretions, or confusion did not differ. All 6 symptoms, except for confusion, were more often completely relieved in SPC (p = .014 to p < .001 in different comparisons). In SPC, a documented decision about the goal being end-of-life care and information about this were more common than in hospitals (p < .001). Also, to have family members present at the time of death and for family members to be offered a follow-up talk afterward was more common in SPC (p < .001).Conclusion: More systematic palliative care routines may be an important factor for better symptom control and higher quality of end-of-life care in hospitals.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10350711/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9829290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0