Journal of Palliative Care最新文献

Attitudes and Experiences of Community Palliative Care Nurses Regarding Pediatric Home-Based End-of-Life Care: A Statewide Survey. 社区姑息关怀护士对儿科家庭临终关怀的态度和经验：全州调查。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-09-26 DOI: 10.1177/08258597241284286

Mia Helyar, Marisa Eamens, Sandra Coombs, Therese Smeal, Martha Mherekumombe, Tiina Jaaniste

{"title":"Attitudes and Experiences of Community Palliative Care Nurses Regarding Pediatric Home-Based End-of-Life Care: A Statewide Survey.","authors":"Mia Helyar, Marisa Eamens, Sandra Coombs, Therese Smeal, Martha Mherekumombe, Tiina Jaaniste","doi":"10.1177/08258597241284286","DOIUrl":"10.1177/08258597241284286","url":null,"abstract":"Objectives: Pediatric end-of-life (EOL) care at home is often provided by community palliative care (CPC) nurses who do not specialize in pediatrics. This study aimed to better understand the challenges CPC nurses face when providing EOL care to children at home. Methods: A total of 52 CPC nurses across New South Wales (NSW), Australia, participated in an online survey about their training, attitudes, and experiences regarding the provision of home-based pediatric EOL care. Participants were asked to reflect back over a \"negative\" experience of caring for a child at EOL, where things did not go as well as hoped, and a \"positive\" EOL care experience, where nurses perceived that care of the child and family went well, and respond to questions about these experiences. Results: Confidence of CPC nurses when providing EOL care to pediatric patients was significantly lower than when caring for adults (p's < .05). Most respondents expressed the desire for more training in pediatric EOL care. Cases identified as negative by CPC nurses did not significantly differ from positive cases in terms of the timing of the referral to CPC, clinical symptoms at EOL, or how well informed the nurses felt. Siblings were present at EOL in 74% of the negative experiences and 86% of the positive experiences, reportedly receiving significantly poorer support in the negative experiences (p = .002). Conclusion: This research contributes to an improved understanding of the challenges associated with home-based pediatric EOL care and highlights potential areas for improvement in CPC service delivery and training.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"215-224"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12142375/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142331941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Relationship Between Palliative Care Nurses' Frequency of Providing Spiritual Care and Their Job Satisfaction: A Cross-Sectional Study. 姑息护理护士提供精神护理频率与工作满意度的关系：横断面研究。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-12-18 DOI: 10.1177/08258597241301988

Hakime Aslan, Hanife Çelik, Feride Kaplan

{"title":"The Relationship Between Palliative Care Nurses' Frequency of Providing Spiritual Care and Their Job Satisfaction: A Cross-Sectional Study.","authors":"Hakime Aslan, Hanife Çelik, Feride Kaplan","doi":"10.1177/08258597241301988","DOIUrl":"10.1177/08258597241301988","url":null,"abstract":"ObjectiveThis study was conducted to evaluate the relationship between the frequency of spiritual care and job satisfaction of palliative care nurses.MethodsThis study was a cross-sectional type. The study population consisted of nurses working in palliative care units of three hospitals in eastern Turkey. The study was conducted with 110 nurses who agreed to participate in the study. The researchers' \"Information Form\", \"Nurse Spiritual Care Therapeutics Scale\" and \"Nurse Job Satisfaction Scale\" were used to collect data. Data was collected by face-to-face interview method between August and September 2022.ResultsIt was determined that the nurses scored 45.2 ± 15.8 points from the Nurse Spiritual Care Therapeutics Scale and 4.1 ± 0.7 points from the nurse job satisfaction scale. There was a positive and moderately significant relationship between the frequency of spiritual care giving and job satisfaction of nurses. The frequency of giving spiritual care positively affected job satisfaction (β = .409) and predicted it by 19% (Adjusted R2 = .195). It was determined that satisfaction with the unit (palliative care) mediated the relationship between the frequency of spiritual care and job satisfaction.Conclusion\"Palliative care nurses' frequency of providing spiritual care was moderate and their job satisfaction was high, with frequency of providing spiritual care having a positive effect on job satisfaction. This suggests that increasing opportunities for nurses to provide spiritual care may further enhance their job satisfaction, leading to improved overall well-being.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"195-204"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142848026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Regional Priorities in Palliative Care Research: Adapting the Delphi Technique for the Philippines. 姑息治疗研究的区域优先事项：菲律宾采用德尔菲技术。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2025-02-20 DOI: 10.1177/08258597241301134

John Patrick C Toledo

引用次数: 0

Conceptual Confusion: A Barrier to Multi-Professional Involvement in Advance Care Planning in Nursing Homes - An Ethnographic Study. 概念混淆：养老院多专业人员参与预先护理计划的障碍--一项人种学研究。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-12-18 DOI: 10.1177/08258597241305846

Nicola Andrews, Michelle Myall

{"title":"Conceptual Confusion: A Barrier to Multi-Professional Involvement in Advance Care Planning in Nursing Homes - An Ethnographic Study.","authors":"Nicola Andrews, Michelle Myall","doi":"10.1177/08258597241305846","DOIUrl":"10.1177/08258597241305846","url":null,"abstract":"ObjectivesHow health and social care professionals need to work together to deliver advance care planning (ACP) in nursing homes is not fully understood, with a reliance on professionals external to the nursing home to support ACP in the United Kingdom. The objectives of this study were to (a) examine the factors that influence multi-professional involvement in the ACP process within nursing homes and (b) explore how multi-professional working impacts the ACP process in nursing homes.MethodsUsing ethnography, data was collected through observation, interviews and document review from 36 participants including residents (n = 6), relatives (n = 4), nursing home staff (n = 19) and visiting professionals (n = 7). Data analysis combined thematic analysis, mapping of ACP trajectories for participant residents, and documentary analysis of nursing home policies.ResultsThere was conceptual confusion around ACP. How ACP was understood and what was prioritised for inclusion varied between residents and professionals, and between different professionals. That ACP was frequently integrated with routine care planning was not recognised in how professionals accounted for their ACP practice. Professionals prioritised biomedical concerns, despite this not reflecting resident priorities and policy suggesting a broader definition. This created difficulties in enacting ACP, with a holistic understanding of resident wishes not always captured.ConclusionsA shared understanding of ACP was not consistently evident from those tasked with its enactment. This, combined with professional construction of ACP in biomedical terms, limits multi-professional working and can prevent a person-centred process being achieved for nursing home residents.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"225-232"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12130609/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142847855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"How Do I Practise Palliative Care When I Don't Know How?" Exploring the Impact of EPAN, An Online Educational Intervention on General Nurses in Singapore: An Evaluation Study. "当我不知道如何开展姑息关怀时，我该如何实践？探索 EPAN（一种在线教育干预措施）对新加坡普通护士的影响：一项评估研究。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-07-26 DOI: 10.1177/08258597241264454

Yi Ling Neo, Norasyikin Hassan, Jemima Koh, Rasidah Alias, Liyun Wang, Yazid Hussein, Yoke Ping Wong

{"title":"\"How Do I Practise Palliative Care When I Don't Know How?\" Exploring the Impact of EPAN, An Online Educational Intervention on General Nurses in Singapore: An Evaluation Study.","authors":"Yi Ling Neo, Norasyikin Hassan, Jemima Koh, Rasidah Alias, Liyun Wang, Yazid Hussein, Yoke Ping Wong","doi":"10.1177/08258597241264454","DOIUrl":"10.1177/08258597241264454","url":null,"abstract":"Objective(s): The majority of deaths in Singapore (62.1%) occur in the hospital, but most nurses do not have palliative care (PC) education. An online e-learning course, \"Essential Palliative Care Approach for Nurses\" (EPAN), was developed to close the learning gap. The study aimed to evaluate the impact of EPAN on general nurses' knowledge, confidence, and attitude in delivering end-of-life care. Methods: Convergent parallel mixed methods design. Results: 1708 nurses (67%), mostly from inpatient and ambulatory settings, completed EPAN. Statistically significant increases in mean scores across knowledge, confidence, and attitude (p < 0.05) remained consistent immediately post-course and 3 months post-course. Respondents shared their intentions to change practice in the immediate post-course survey (n = 1155) and how they have practiced end-of-life care in the 3-month post-course survey (n = 777). Major categories from the content analysis included: (i) actualise confidence to deliver effective communication, (ii) making time and showing empathy in end-of-life care, (iii) advocating for end-of-life care, (iv) proactive collaboration with other healthcare professionals, (v) navigated and accepted end-of-life boundaries, and (vi) able to self-manage emotions. Conclusions: EPAN, developed within an Asian context, has demonstrated a significant impact on nurses' knowledge, confidence, and attitude in delivering end-of-life care. This has broader implications for general palliative care education in countries of similar cultural concerns.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"205-214"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141762411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors Influencing Knowledge, Attitudes and Behaviour Towards Engaging with Advance Care Planning: A Cross-Sectional Survey of Chinese Diaspora. 对参与预先护理计划的知识、态度和行为的影响因素：一项华侨华人的横断面调查。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-12-04 DOI: 10.1177/08258597241301206

Zhuangshuang Li, Sonja McIlfatrick, Felicity Hasson, Esther-Ruth Beck

{"title":"Factors Influencing Knowledge, Attitudes and Behaviour Towards Engaging with Advance Care Planning: A Cross-Sectional Survey of Chinese Diaspora.","authors":"Zhuangshuang Li, Sonja McIlfatrick, Felicity Hasson, Esther-Ruth Beck","doi":"10.1177/08258597241301206","DOIUrl":"10.1177/08258597241301206","url":null,"abstract":"ObjectiveAdvance care planning (ACP) is increasingly recognized as a public health priority globally, with cultural aspects influencing people's knowledge, attitudes, and behaviours toward ACP. Despite being one of the largest diaspora groups, the Chinese community remains under-researched in this area. This study aims to examine the knowledge, attitudes, and health behaviours related to ACP among Chinese diaspora within a region in the United Kingdom.MethodA cross-sectional online survey based on the Theory of Planned Behaviour was conducted with 284 Chinese adults recruited from four social and voluntary organisations in the United Kingdom.ResultsThe study found low awareness (15%) and knowledge (mean score: 2.26 ± 1.78) of ACP, with less than 5% of the participants engaging with ACP. This contrasted with participants' attitudes (17.24 ± 2.57) and behavioural intention (14.93 ± 3.26) toward ACP, which were generally positive. Behavioural intention was the strongest predictor of engaging with ACP (OR 3.29, 95% CI: 1.35-8.02, p = 0.01). Participants with previous end-of-life care experience had a better understanding of ACP; older age and higher knowledge of ACP were associated with more positive attitudes. Cultural beliefs associated with the level of family involvement, legal aspects, and the availability of information in one's first language was significant influences on engagement with ACP.ConclusionsDespite low awareness and engagement with ACP among the Chinese diaspora, positive attitudes and behavioural intention suggest potential for increased engagement. This could be achieved through culturally tailored interventions that address cultural influences and complexity surrounding legal requirements. Further research is needed to develop and test such interventions.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"233-243"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12130593/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Enhancing Person-Centered Care in Advance Care Planning: A Community Health Nurse's Perspective. 在预先护理计划中加强以人为本的护理：社区卫生护士的观点。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2025-02-24 DOI: 10.1177/08258597251319104

Kamran Munawar

引用次数: 0

Development of Patient-Centered End-of-Life Care Quality Measures in China: A Modified Delphi Process. 中国以患者为中心的临终关怀质量评估：一个改进的德尔菲过程。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-12-08 DOI: 10.1177/08258597241302297

Lumeng Li, Xiuquan Gong

引用次数: 0

Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach. 使用德尔菲技术方法确定姑息治疗和临终关怀研究的地区优先事项。

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-07-01 Epub Date: 2024-07-26 DOI: 10.1177/08258597241264455

Nikolaos Efstathiou, Ping Guo, Wendy Walker, John I MacArtney, Cara Bailey

{"title":"Setting Regional Priorities for Palliative and End-of-Life Care Research Using a Delphi Technique Approach.","authors":"Nikolaos Efstathiou, Ping Guo, Wendy Walker, John I MacArtney, Cara Bailey","doi":"10.1177/08258597241264455","DOIUrl":"10.1177/08258597241264455","url":null,"abstract":"ObjectiveIdentifying research priorities is very important for palliative and end-of-life care to ensure research is focused on evidence gaps. This project aimed to identify and prioritise palliative and end-of-life care research areas within the West Midlands region in United Kingdom (UK).MethodsA modified Delphi technique approach was used with palliative care stakeholders. The first round was item generation via rapid interviews. Data were analysed using content analysis and all the items were grouped into main categories. For round two, an online survey was conducted to present all the items from round one, and stakeholders were asked to rate the priority of items on a Likert-type scale (1 = not a priority to 7 = essential priority). Items that achieved consensus in round two were presented to the third round, where stakeholders ranked them in descending order.ResultsWe completed and analysed 56 rapid interviews which resulted in 158 research items under 15 categories. The research items were rated by 30 stakeholders and seven items which reached consensus were subsequently ranked in order by 45 stakeholders. The highest ranked item was 'Integrated care systems to prevent crisis', followed by three research items related to 'equity' in palliative care.ConclusionsOur research priorities, although unique for our region, mirror previously research priorities from other regions and countries. This suggests issues of integration and equity in palliative and end-of-life care remain unresolved, despite ongoing initiatives and research to address these issues.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"258-265"},"PeriodicalIF":1.3,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12130606/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141762412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Place of Death in Patients with Motor Neuron Disease and the Association with Comorbidities During the Coronavirus Disease 2019 Pandemic: A Population-Based Analysis. 2019冠状病毒病大流行期间运动神经元疾病患者的死亡地点及其与合并症的关系：一项基于人群的分析

IF 1.3 4区医学

Journal of Palliative Care Pub Date : 2025-06-18 DOI: 10.1177/08258597251349627

Jaime Raymond, Björn Oskarsson, Theodore Larson, Suraya Mohidul, David Kevin Horton, Paul Mehta

{"title":"Place of Death in Patients with Motor Neuron Disease and the Association with Comorbidities During the Coronavirus Disease 2019 Pandemic: A Population-Based Analysis.","authors":"Jaime Raymond, Björn Oskarsson, Theodore Larson, Suraya Mohidul, David Kevin Horton, Paul Mehta","doi":"10.1177/08258597251349627","DOIUrl":"https://doi.org/10.1177/08258597251349627","url":null,"abstract":"ObjectiveMotor neuron disease (MND) is a progressive neurological disorder with no known cure that damages motor neurons. The purpose of this analysis is to examine the place of death for MND patients in the United States during the coronavirus disease 2019 (COVID-19) pandemic and to investigate the extent of specific comorbidities.MethodsWe obtained death certificate and associated comorbidities data for all U.S. MND deaths from 2018 to 2021 and conducted a population-based cross-sectional analysis of the deaths pre-COVID-19 (2018-2019) and during COVID-19 (2020-2021). We hypothesized that place of death and comorbidities associated with place of death for MND patients in the United States were altered during the COVID-19 pandemic in comparison to the 2 years period before the pandemic.ResultsWe analyzed 30 066 MND deaths (14 562 pre-COVID-19 and 15 504 during COVID-19) aged 20 years and older. During COVID-19, MND deaths at home increased (54.4% vs 45.5% pre-COVID). Hispanic individuals had an increased likelihood of dying at home compared to a nursing home or hospice (OR = 1.57, 95%CI: 1.22-2.02), but a decreased likelihood compared to a hospital (OR = 0.61, 95% CI: 0.51-0.72). Among the top comorbidities listed, there was a 27.8% increase in diabetes mellitus and a 20.2% increase in essential hypertension during COVID-19. During COVID-19, diabetes mellitus was more commonly reported as a comorbidity for deaths occurring in hospitals (OR = 1.40, 95%CI: 1.03-1.89) or at home (OR = 1.26, 95%CI: 1.03-1.55), while essential hypertension was more commonly reported with deaths at home (OR = 1.17, 95%CI: 1.01-1.36).ConclusionOur analysis showed an increase in at-home MND deaths as well as certain comorbidities during the COVID-19 pandemic, suggesting MND patients had a higher likelihood of death from non-COVID-19 comorbidities.","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"8258597251349627"},"PeriodicalIF":1.3,"publicationDate":"2025-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144318634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0