Journal of Palliative Care最新文献

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Wound Healing and Mortality in Palliative Patients with Pressure Ulcers: The Influence of Caregiver Burden and Burnout. 姑息性压疮患者的伤口愈合和死亡率:照顾者负担和倦怠的影响。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-05-05 DOI: 10.1177/08258597261448617
Eyup Sami Akbas, Ercument Ozturk, Zeynel Abidin Ozturk
{"title":"Wound Healing and Mortality in Palliative Patients with Pressure Ulcers: The Influence of Caregiver Burden and Burnout.","authors":"Eyup Sami Akbas, Ercument Ozturk, Zeynel Abidin Ozturk","doi":"10.1177/08258597261448617","DOIUrl":"https://doi.org/10.1177/08258597261448617","url":null,"abstract":"<p><p>ObjectivesThis study aimed to examine the clinical progression of Stage 2, 3, and 4 pressure ulcers (PUs) in patients receiving palliative care, and to assess the psychosocial burden and burnout levels among their primary caregivers. Additionally, it sought to identify patient- and caregiver-related factors that may influence short-term mortality.MethodsA total of 96 patients with advanced-stage PUs and their 96 primary caregivers were included in a study. The Pressure Ulcer Scale for Healing (PUSH) was used to evaluate wound severity at baseline and at a 3-month follow-up. Caregiver burden and burnout were assessed using the Zarit Burden Interview and Maslach Burnout Inventory. Sociodemographic data were also collected. Logistic regression analysis was performed to determine predictors of mortality.ResultsAt the end of the 3-month follow-up, 35 patients (36.5%) survived, showing statistically significant improvement in PUSH scores (<i>p < .</i>05). Patient age was positively correlated with mortality. Additionally, a significant inverse relationship was found between caregiver \"personal accomplishment\" scores and patient mortality (<i>p < .</i>05), suggesting that caregivers with lower perceived competence were associated with higher patient death rates.ConclusionPUs in palliative care are associated with high mortality and complex care demands. The results emphasize the importance of caregiver psychological well-being in influencing patient outcomes. Multidisciplinary strategies that include both clinical wound management and structured psychosocial support for caregivers are essential to improve the quality of care and survival among this vulnerable population.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"8258597261448617"},"PeriodicalIF":1.7,"publicationDate":"2026-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147845794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychological Well-Being as a Mediator Between Meaning in Life and Emotional Eating: Implications for Family Caregivers in Palliative Care. 心理健康作为生活意义和情绪饮食之间的中介:对姑息治疗家庭照顾者的影响。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-28 DOI: 10.1177/08258597261445284
Esra Çavuşoğlu, Eda Kilinç, Sibel Koçer, Özgül Turgut
{"title":"Psychological Well-Being as a Mediator Between Meaning in Life and Emotional Eating: Implications for Family Caregivers in Palliative Care.","authors":"Esra Çavuşoğlu, Eda Kilinç, Sibel Koçer, Özgül Turgut","doi":"10.1177/08258597261445284","DOIUrl":"https://doi.org/10.1177/08258597261445284","url":null,"abstract":"<p><p>ObjectiveFamily members caring for palliative care patients often experience intense emotional and psychological stress, which may lead to maladaptive coping behaviours such as emotional eating. This study aimed to examine the mediating role of psychological well-being in the relationship between meaning in life, search for meaning, and emotional eating among family caregivers.MethodData were collected from 234 participants between September and December 2023. Descriptive statistics, Pearson correlation, hierarchical regression, and Hayes' PROCESS Macro (Model 4) were used for analysis. Variables included age, gender, duration of caregiving, cohabitation status, meaning in life, search for meaning, and psychological well-being.ResultsThe mean emotional eating score of participants was 90.33 ± 34.79. Age, female gender, duration of caregiving, cohabitation status, meaning in life, search for meaning, and psychological well-being explained 77.6% of the variance in emotional eating behaviour. Psychological well-being significantly mediated the relationship between meaning in life and emotional eating. Both presence of meaning and search for meaning reduced emotional eating indirectly through enhanced psychological well-being.ConclusionRegular assessment of caregivers' emotional state and the implementation of meaning-oriented interventions that enhance psychological well-being are recommended to support healthier coping strategies. Strengthening psychological resilience and fostering meaning in life may serve as protective pathways against emotional eating in family caregivers during the palliative care process.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"8258597261445284"},"PeriodicalIF":1.7,"publicationDate":"2026-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147788367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inpatient Hospice Access in the United Kingdom: A Spatial Provision Analysis. 英国住院病人安宁疗护可及性:空间供应分析。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-03 DOI: 10.1177/08258597261438857
Akshithanand Kuzhikkat Jayaprakasan, Kristiam Doughty Herrera-Carrasco, Nicola White, Libby Sallnow, Sofía Pinzón-Calderón, Laura Vélez-Restrepo, Isabelle Santana, Parth Sharma, Juan Esteban Correa-Morales
{"title":"Inpatient Hospice Access in the United Kingdom: A Spatial Provision Analysis.","authors":"Akshithanand Kuzhikkat Jayaprakasan, Kristiam Doughty Herrera-Carrasco, Nicola White, Libby Sallnow, Sofía Pinzón-Calderón, Laura Vélez-Restrepo, Isabelle Santana, Parth Sharma, Juan Esteban Correa-Morales","doi":"10.1177/08258597261438857","DOIUrl":"https://doi.org/10.1177/08258597261438857","url":null,"abstract":"<p><p>ObjectiveTo evaluate spatial access to inpatient hospice units across the UK by analysing travel times and population coverage at national and subnational levels.MethodsA population-based spatial analysis using UK-wide data. Hospice locations were mapped, and motorised travel times to the nearest unit were estimated. Access population coverage was calculated for the following time thresholds: 30, 60, and 120 min. All 199 adult inpatient hospice units operating within the UK were included. High-resolution population data (1 km<sup>2</sup>) from the WorldPop dataset and administrative boundaries from the UK Office for National Statistics were used to estimate access for the total population.ResultsMedian travel times varied widely: 16.4 min in England, 25.5 in Wales, 40.3 in Northern Ireland, and 70.4 in Scotland. Within a 30-min threshold, 97.6% of England's population had access compared with 78.5% in Wales, 70.3% in Scotland, and 68.5% in Northern Ireland. Even with a 60-min threshold, 15.4% of Scotland's population and 6.4% of Northern Ireland's remained without access.ConclusionsThis study provides the first national spatial analysis of hospice inpatient access in the UK, highlighting persistent regional inequities. Geographic accessibility analysis offers valuable insights to guide equitable service planning and should inform future policy and research.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"8258597261438857"},"PeriodicalIF":1.7,"publicationDate":"2026-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147610634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Place of Death in Patients with Motor Neuron Disease and the Association with Comorbidities During the Coronavirus Disease 2019 Pandemic: A Population-Based Analysis. 2019冠状病毒病大流行期间运动神经元疾病患者的死亡地点及其与合并症的关系:一项基于人群的分析
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-06-18 DOI: 10.1177/08258597251349627
Jaime Raymond, Björn Oskarsson, Theodore Larson, Suraya Mohidul, David Kevin Horton, Paul Mehta
{"title":"Place of Death in Patients with Motor Neuron Disease and the Association with Comorbidities During the Coronavirus Disease 2019 Pandemic: A Population-Based Analysis.","authors":"Jaime Raymond, Björn Oskarsson, Theodore Larson, Suraya Mohidul, David Kevin Horton, Paul Mehta","doi":"10.1177/08258597251349627","DOIUrl":"10.1177/08258597251349627","url":null,"abstract":"<p><p>ObjectiveMotor neuron disease (MND) is a progressive neurological disorder with no known cure that damages motor neurons. The purpose of this analysis is to examine the place of death for MND patients in the United States during the coronavirus disease 2019 (COVID-19) pandemic and to investigate the extent of specific comorbidities.MethodsWe obtained death certificate and associated comorbidities data for all U.S. MND deaths from 2018 to 2021 and conducted a population-based cross-sectional analysis of the deaths pre-COVID-19 (2018-2019) and during COVID-19 (2020-2021). We hypothesized that place of death and comorbidities associated with place of death for MND patients in the United States were altered during the COVID-19 pandemic in comparison to the 2 years period before the pandemic.ResultsWe analyzed 30 066 MND deaths (14 562 pre-COVID-19 and 15 504 during COVID-19) aged 20 years and older. During COVID-19, MND deaths at home increased (54.4% vs 45.5% pre-COVID). Hispanic individuals had an increased likelihood of dying at home compared to a nursing home or hospice (OR = 1.57, 95%CI: 1.22-2.02), but a decreased likelihood compared to a hospital (OR = 0.61, 95% CI: 0.51-0.72). Among the top comorbidities listed, there was a 27.8% increase in diabetes mellitus and a 20.2% increase in essential hypertension during COVID-19. During COVID-19, diabetes mellitus was more commonly reported as a comorbidity for deaths occurring in hospitals (OR = 1.40, 95%CI: 1.03-1.89) or at home (OR = 1.26, 95%CI: 1.03-1.55), while essential hypertension was more commonly reported with deaths at home (OR = 1.17, 95%CI: 1.01-1.36).ConclusionOur analysis showed an increase in at-home MND deaths as well as certain comorbidities during the COVID-19 pandemic, suggesting MND patients had a higher likelihood of death from non-COVID-19 comorbidities.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"159-165"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144318634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing a National Recommendation for Clinical Recording of the Support of Informal Caregivers in Specialized Palliative Care: A Delphi Study. 在专科姑息治疗中发展非正式照护者支持临床记录的国家推荐:德尔菲研究。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-12-11 DOI: 10.1177/08258597251399025
Mai-Britt Guldin, Anna Jedzini Ogstrup, Brita Jørgensen, Vibeke Graven, Henrik Larsen
{"title":"Developing a National Recommendation for Clinical Recording of the Support of Informal Caregivers in Specialized Palliative Care: A Delphi Study.","authors":"Mai-Britt Guldin, Anna Jedzini Ogstrup, Brita Jørgensen, Vibeke Graven, Henrik Larsen","doi":"10.1177/08258597251399025","DOIUrl":"10.1177/08258597251399025","url":null,"abstract":"<p><p>Objective(s)Numerous studies have tested support for informal caregivers to palliative care patients to prevent the risk of poor psychosocial and physical outcomes during caregiving and in bereavement. However, a literature search revealed that no systematic official clinical records are set up for informal caregiver care. This study aimed to develop a national recommendation for utilizing official clinical records for informal caregiver care by carrying out a Delphi study.MethodsThis study was undertaken as a national study in Denmark in specialized palliative care in accordance with Guidance on Conducting and Reporting Delphi Studies in palliative care, a consensus-building 3-round Delphi technique. A systematic literature review was performed to inform the drafting of 41 explorative statements, and clinical professionals in specialized palliative care evaluated statements using a 5-point Likert scale. Statements with >75% agreement were considered endorsed.ResultsConsensus was reached regarding the need for palliative care teams to document care provided to family caregivers in official medical records under the caregiver's own name rather than in the patient's medical records. In total, <i>n</i> = 240 responded to the Delphi Round I (48%) and <i>N</i> = 174 (34%) in Delphi Round II and <i>n</i> = 9 (100%) in Delphi Round III of clinical experts. Of the initial 41 statements, <i>n</i> = 16 statements reached 78-100% endorsement and comprised the final recommendations agreeing for instance that documentation of informal caregiver interventions must be carried out in accordance with the general guidelines for record keeping applicable for all healthcare professionals.ConclusionsInitiating official clinical records for informal caregivers has the possibility of bringing clarity, focus and emphasis on identifying caregiver's needs, providing better caregiver care, and more cohesive follow up on interventions in the healthcare system.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"205-213"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145745585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationship Between Palliative Care and Location of Death Among People With Opioid Use Disorder: A Retrospective Cohort Study. 阿片类药物使用障碍患者姑息治疗与死亡地点的关系:一项回顾性队列研究
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-11-12 DOI: 10.1177/08258597251392965
Lisa M Boucher, Jenny Lau, Mary M Scott, Karl Everett, Tara Gomes, Peter Tanuseputro, Sheila Jennings, Rebecca Bagnarol, Camilla Zimmermann, Andrew McLeod, Sarina R Isenberg
{"title":"Relationship Between Palliative Care and Location of Death Among People With Opioid Use Disorder: A Retrospective Cohort Study.","authors":"Lisa M Boucher, Jenny Lau, Mary M Scott, Karl Everett, Tara Gomes, Peter Tanuseputro, Sheila Jennings, Rebecca Bagnarol, Camilla Zimmermann, Andrew McLeod, Sarina R Isenberg","doi":"10.1177/08258597251392965","DOIUrl":"10.1177/08258597251392965","url":null,"abstract":"<p><p>ObjectivePeople with opioid use disorder are at high risk of serious comorbidities, more likely to die from all major diseases, and their end-of-life needs remain poorly understood. We aimed to examine the relationship between receipt of palliative care across settings and the location of death among individuals with opioid use disorder.MethodsWe employed a population-level cohort study using health administrative databases. Our cohort was adults with opioid use disorder in Ontario, Canada, who died between July 2015 and December 2021 (<i>N</i> = 11,200). Our exposure was receipt of palliative care within three years prior to the last 90 days of life (inpatient-only, outpatient, or none (reference)). Our primary outcome was the location of death in the community versus institution (reference).ResultsAmong our decedent cohort, 5636 (50.3%) received no palliative care before their last 90 days of life, and among those who received it, only 1846 (33.2%) received any outpatient palliative care and 3718 (66.8%) received inpatient-only palliative care. After covariate adjustment, receiving inpatient-only palliative care (vs no palliative care) was associated with a 6% (RR 0.94; 95% CI 0.91, 0.98) decrease in the likelihood of community death, whereas there was no relationship between outpatient palliative care and location of death.ConclusionsThe association of palliative care with the location of death for people with opioid use disorder varies by setting of care. Further research is required to understand if community deaths are aligned with preferences and whether additional factors contribute to their likelihood.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"166-177"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13013659/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145507808","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychological Resilience and Care Burden Among Caregivers in Palliative Care Settings: A Cross-Sectional Study. 姑息治疗环境中照顾者的心理弹性与照顾负担:一项横断面研究。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-12-15 DOI: 10.1177/08258597251406805
Aleyna Şahintürk, Cemile Savci
{"title":"Psychological Resilience and Care Burden Among Caregivers in Palliative Care Settings: A Cross-Sectional Study.","authors":"Aleyna Şahintürk, Cemile Savci","doi":"10.1177/08258597251406805","DOIUrl":"10.1177/08258597251406805","url":null,"abstract":"<p><p>ObjectiveCaregivers have a key role in the palliative care process. However, they need to cope with the challenges brought about by caregiving. Psychological resilience is an important concept for caregivers in coping with challenges. This study examined the relationship between psychological resilience and care burden among caregivers in palliative care settings.MethodsThis cross-sectional study was conducted with 120 caregivers in the palliative care clinic between December 2023 and May 2024 in Turkey. Data were collected using a personal information form, the Resilience Scale for Adults (RSA), and the Zarit Caregiver Burden Scale (ZCBS). Data were analyzed using descriptive statistics, Pearson's correlation coefficient, and simple and multiple linear regression analyses.ResultsThe mean total RSA score was 123.93 ± 14.00, which was above average. The mean total ZCBS score was 40.08 ± 11.79, and 47.5% of the caregivers had moderate levels of care burden. A negative statistically significant correlation was found between mean RSA and ZCBS scores (<i>P</i> < .01). Psychological resilience alone was a significant predictor of care burden (<i>R</i><sup>2</sup> = 0.096, <i>P</i> < .001). Psychological resilience, income status, and family/work/social roles and responsibilities were all statistically significant predictors of care burden (<i>R</i><sup>2</sup> = 0.285, <i>P</i> = .000).ConclusionsThe results of this study revealed that psychological resilience is important in the care burden perceived by caregivers in palliative care settings. Therefore, it is important for health professionals to incorporate interventions aimed at enhancing caregivers' psychological resilience into their programs.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"214-222"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145758299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"As Caregivers, We Also Need Someone Who Listens": Family Perspectives on Providing Palliative Care for Stroke Patients. “作为照顾者,我们也需要有人倾听”:为中风患者提供姑息治疗的家庭观点。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-12-15 DOI: 10.1177/08258597251407761
Raditya Bagus Septian, Heny Suseani Pangastuti, Wenny Artanty Nisman
{"title":"\"As Caregivers, We Also Need Someone Who Listens\": Family Perspectives on Providing Palliative Care for Stroke Patients.","authors":"Raditya Bagus Septian, Heny Suseani Pangastuti, Wenny Artanty Nisman","doi":"10.1177/08258597251407761","DOIUrl":"10.1177/08258597251407761","url":null,"abstract":"<p><p><b>Objectives:</b> Palliative care aims to improve the quality of life of both patients and their families who are facing serious illness. Family members, as the primary caregivers, often encounter multiple challenges when providing intensive care. The aim of this study was to explore the perspectives of family members as primary caregivers of palliative care for stroke patients in Indonesia. <b>Methods:</b> We conducted a qualitative phenomenological study, involving ten family caregivers of stroke patients receiving home-based care. Data were collected through semi-structured interviews and unstructured observations until data saturation were reached. Data analysis was conducted using Colaizzi's method, and the study was reported in accordance with the Consolidated Criteria for Reporting Qualitative Research checklist. <b>Results:</b> We identified two main themes from the analysis. The first theme, <i>The multifaceted impact of families as caregivers</i>, reflects the physical, emotional, spiritual, financial, and social consequences experienced by caregivers. The second theme, <i>Family as the primary source of support in Javanese culture</i>, highlights the role of extended family support and child support within caregiving practices. <b>Conclusion:</b> Our study identifies the complex impacts faced by family caregivers in providing palliative care at home. The findings suggest that interprofessional healthcare teams should focus not only on the needs of patients but also on those of family caregivers. Furthermore, policies are needed to address these challenges to enhance the quality of life of both patients and their families.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"223-230"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145758327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Study on the Correlation Between Caregiver Burden, Psychological Resilience, and Quality of Life in Patients With Advanced Cancer Receiving Inpatient Palliative Care. 晚期癌症住院姑息治疗患者照顾者负担、心理弹性与生活质量的相关性研究
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2026-03-09 DOI: 10.1177/08258597261427542
Weidi Shi, Xihong Liu
{"title":"A Study on the Correlation Between Caregiver Burden, Psychological Resilience, and Quality of Life in Patients With Advanced Cancer Receiving Inpatient Palliative Care.","authors":"Weidi Shi, Xihong Liu","doi":"10.1177/08258597261427542","DOIUrl":"10.1177/08258597261427542","url":null,"abstract":"<p><p>ObjectiveThis study aimed to examine the correlations among caregiver burden, psychological resilience, and quality of life (QOL) in primary caregivers of hospitalized advanced cancer patients receiving palliative care, and to identify factors influencing these outcomes to inform interventions for caregiver well-being.MethodsIn this cross-sectional study, 203 primary caregivers were recruited via cluster sampling between January 2022 and June 2024. Caregiver burden, psychological resilience, and QOL were assessed using the Zarit Burden Inventory, Connor-Davidson Resilience Scale, and SF-12 Health Survey, respectively. Pearson correlation analysis, one-way ANOVA, and multivariable linear regression were performed to explore relationships among variables and identify independent predictors. Mediation analysis was conducted to examine the role of resilience in the burden-QOL relationship.ResultsThe mean caregiver burden score was 45.63, with 29.56% experiencing severe burden. Mean resilience and total QOL scores were 26.74 and 40.53, respectively. Caregiver burden negatively correlated with resilience (<i>r</i> = -.47, <i>P</i> < .001) and QOL (<i>r</i> = -.53, <i>P</i> < .001), while resilience positively correlated with QOL (<i>r</i> = .62, <i>P</i> < .001). Female caregivers, longer care duration, and caring for wheelchair-bound or lung cancer patients were associated with higher burden and lower resilience/QOL. Mediation analysis indicated that psychological resilience partially mediated the relationship between caregiver burden and QOL, accounting for 42.3% of the total effect.ConclusionCaregiving for hospitalized advanced cancer patients is associated with high burden, reduced psychological resilience, and lower QOL. Psychological resilience is positively related to QOL and may partially explain the association between caregiver burden and QOL. These findings highlight the potential value of supporting resilience and addressing caregiver burden, particularly among high-risk caregivers such as females, those providing long-term care, and those caring for functionally dependent patients, within palliative care settings.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"231-243"},"PeriodicalIF":1.7,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147379587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Effect of Life Activity Levels of Palliative Care Patients on the Caregivers' Perception of Caregivers Burden. 姑息治疗患者生活活动水平对照顾者负担感知的影响。
IF 1.7 4区 医学
Journal of Palliative Care Pub Date : 2026-04-01 Epub Date: 2025-01-15 DOI: 10.1177/08258597241309728
Elif Tuğba Uygun, Aylin Özakgül
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