Challenges, Benefits, and Future Directions of Pediatric Home-Based End-of-Life Care: A Qualitative Study.

IF 1.7 4区医学 Q4 HEALTH CARE SCIENCES & SERVICES

Journal of Palliative Care Pub Date : 2025-07-24 DOI:10.1177/08258597251341039

Tiina Jaaniste, Mia Helyar, Marisa Eamens, Therese Smeal, Sandra Coombs, Martha Mherekumombe

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引用次数: 0

Abstract

ObjectivesPediatric end-of-life (EOL) care at home is often provided by community palliative care (CPC) nurses who are not specialist pediatric service providers. This study explores the challenges, benefits, and future directions of home-based EOL care as perceived by CPC nurses in New South Wales (NSW), Australia.MethodsEleven CPC nurses participated in a semi-structured interview to elicit information about their attitudes and experiences regarding their work in providing community-based EOL care to children. Reflexive thematic analysis was used to explore themes regarding the benefits, challenges and their thoughts on future directions regarding home-based EOL care.ResultsChallenges identified by CPC nurses included resource access, complexity of pediatric, models of care, and family psychological factors. Benefits included patient and family autonomy, home comforts and the nurses' sense of satisfaction. CPC nurses suggested the need for increased education, support and collaboration.ConclusionAreas of possible clinical and organizational improvements are discussed, including more pediatric training and experience for CPC nurses.

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儿科居家临终关怀的挑战、益处与未来方向：一项质性研究。

目的儿科居家临终关怀（EOL）通常由社区姑息治疗（CPC）护士提供，而这些护士并非儿科专科服务提供者。本研究探讨了澳大利亚新南威尔士州CPC护士对居家EOL护理的挑战、益处和未来发展方向。方法6名CPC护士参加了一项半结构化访谈，以了解他们在为儿童提供社区EOL护理方面的态度和经验。运用反身性专题分析探讨家庭居家养老的好处、挑战及未来发展方向。结果CPC护士面临的挑战包括资源获取、儿科复杂性、护理模式和家庭心理因素。好处包括病人和家庭的自主权，家庭舒适和护士的满足感。CPC护士建议需要加强教育、支持和合作。结论探讨了临床和组织改进的可能领域，包括加强对CPC护士的儿科培训和经验。

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来源期刊

Journal of Palliative Care 医学-卫生保健

CiteScore

3.20

自引率

5.90%

发文量

审稿时长

>12 weeks

期刊介绍： The Journal of Palliative Care is a quarterly, peer-reviewed, international and interdisciplinary forum for practical, critical thought on palliative care and palliative medicine. JPC publishes high-quality original research, opinion papers/commentaries, narrative and humanities works, case reports/case series, and reports on international activities and comparative palliative care.