International Journal of Population Data Science最新文献

{"title":"Has HFSS legislation led to healthier food and beverage sales? The DIO-Food protocol – using supermarket sales data for policy evaluation","authors":"V. Jenneson, F.L. Pontin, Emily Ennis, Alison Fildes, Michelle A. Morris","doi":"10.23889/ijpds.v9i4.2426","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2426","url":null,"abstract":"Introduction & BackgroundOn 1 October 2022, new legislation came into force for England restricting the placement of some food and drink products high in fat, sugar and salt (HFSS). Products such as confectionery can no longer be placed at store entrances, ends of aisles, or at the checkout in large retail stores and their online equivalents. \u0000Objectives & ApproachOur protocol sets out how daily sales and product data from multiple retailers will be used to evaluate the legislation’s success in relation to HFSS sales, product portfolios and equitability. Food and drink sales data from 18 months pre- and 12 months post-introduction of the policy will be gained from multiple large UK retailers. Online sales are excluded. \u0000Eligible stores were defined as supermarkets from our partner retailer brands with store areas larger than 280 square metres. From the eligible store sample, we selected 160 intervention stores (England) and 50 control stores (Scotland and Wales) from each partner retailer. \u0000The sample provides equal store numbers across each decile of the Priority Places for Food Index (PPFI) from each retailer (n = 16), capturing food insecurity risk, and maximum coverage of store (store size) and store area characteristics (urban/rural status). \u0000Controlled interrupted time-series will be used to estimate effects of the policy, with stores from Scotland and Wales (where the legislation has not been implemented) acting as controls. \u0000Relevance to Digital FootprintsThis protocol sets out the first multiple-retailer independent analysis of the HFSS legislation, demonstrating how business digital footprints data can contribute to policy evaluation. \u0000ResultsOutcomes will include sales of HFSS products and changes to available product portfolios. We will explore whether legislation impacts were equitable across stores in areas with different demographic characteristics, according to the English Indices of Multiple Deprivation and the PPFI. \u0000Findings at the retailer and cross-retailer levels will inform sector-level insights regarding impact and potential next steps for policy and business practice. \u0000Conclusions & ImplicationsOur conclusions will contribute to policy-relevant discussions around the effectiveness of HFSS government policy, with potential to influence future decision-making across the UK Devolved Nations.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 1253","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141363820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Predicting Healthy Start Scheme Uptake using Deprivation and Food Insecurity Measures.","authors":"Kuzivakwashe Makokoro, Gavin Long, John Harvey, Andrew Smith, Simon Welham, Evgeniya Lukinova, James Goulding","doi":"10.23889/ijpds.v9i4.2435","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2435","url":null,"abstract":"Introduction & BackgroundThe level of food insecurity in England is widening, with low-income families requiring more support to reduce income inequalities. The government have introduced policies to address these issues with targeted subsidies on healthy food on programs such as the Healthy Start Scheme. Despite this, national uptake of the Healthy Start Scheme remains lower than the government target. \u0000Objectives & ApproachOur study aims to predict uptake and take up discrepancies at a local authority level and understand the measures contributing to the prediction using anonymised supermarket loyalty card data records for over 4 million customers, deprivation and food insecurity measures. We used a machine-learning approach utilising transactional data, ONS Index of Deprivation datasets, neighbourhood statistics, and NHS Healthy Start Scheme uptake data. Regression prediction models were used to evaluate and predict the outcomes, whilst feature importance tools were used to evaluate the variables weighing within the model. \u0000Relevance to Digital FootprintsThis study leverages transaction data from a UK retailer to understand lifestyle factors at a local authority level and assesses their usefulness in predicting the scheme’s uptake. Loyalty card transactional data can provide valuable insight into purchase behaviour linked to health and nutrition. \u0000ResultsThe Linear and Ridge Regression models performed better than other prediction models. Analysis of measures revealed that whilst deprivation and population-related measures had a high contribution to the prediction model, findings from transactional data measures provided valuable insight into shopping behavioural characteristics that contribute to the model performance. Results suggested that areas with higher spending on fruits and vegetables and high-calorie food were associated with higher uptake prediction in test data but the converse for high spend on fish. \u0000Conclusions & ImplicationsOur study indicates that shopping data measures such as spend on fruits and vegetables, high-calorie food, fish and products bought can be utilised for prediction models for uptake and take-up discrepancy of the Healthy Start Scheme. This study highlights the complexity of understanding factors influencing public policy effectiveness and the need for tailored approaches in diverse urban contexts.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 13","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141366301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Earth Observations, Digital Footprints and Machine-Learning: Greenhouse Gas Stocktaking for Climate Change Mitigation","authors":"Keneuoe Maliehe, James Goulding, Salim Alam, Stuart Marsh","doi":"10.23889/ijpds.v9i4.2423","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2423","url":null,"abstract":"Introduction & BackgroundMethane (CH4) is a powerful greenhouse gas, leaving both a physical and digital footprint from natural (40%) and human (60%) sources. Its atmospheric concentration has increased from 722 ppb before the industrial age to ~1,922 ppb in recent times. Because of its global warming potential, measuring and monitoring CH4 is crucial to mitigating the impacts of climate change. However, large uncertainties exist in “bottom-up” inventories (a product of activity data based on counts of components, equipment or throughput, and estimates of gas-loss rates per unit of activity for different land uses) reported to the United Nations Framework Convention on Climate Change, making it difficult for policymakers to set emission reduction targets. \u0000To address this, we employ causality-constrained machine learning (ML) to combine different gas observations from satellite sensors onboard the TROPOspheric Monitoring Instrument (which measure a digital footprint of human methane-generating behaviour) with outputs from chemical modelling. These are linked with datasets from the national statistics office, meteorology office and a comprehensive survey on quality of life in the emission field, to improve bottom-up estimates of CH4 emissions at the Earth’s surface. \u0000Objectives & ApproachThe research uses mixed methods for collecting and analysing both qualitative and quantitative data for multidisciplinary processing strategies for monitoring CH4 emissions locally and regionally. It also assesses whether additional “digital footprint” variables besides the well-known chemical sources and sinks can be studied to improve our understanding of the CH4 budget. \u0000We have conducted an “analytical inversion” of satellite observations of CH4 to obtain emission fluxes. These represent the dependent variable for our ML model, in combination with 22 independent variables (co-occurring trace gases, meteorological fields, land use, land cover, population, livestock, and data from a survey of quality of life from the Gauteng City-Region Observatory, covering a broad range of socio-economic, personal and political issues) with near-real-time Earth observation data, to aid the development of a causality-constrained ML model for the prediction of CH4 fluxes. \u0000Relevance to Digital FootprintsWe make use of not only satellite imagery, but socio-economic, demographic, and environmental data, and repurpose it for environmental sustainability in the context of mitigating climate change. We are creating unique resources in documenting rapid changes in emissions. \u0000Conclusions & ImplicationsThis research will make important contributions to developing countries with limited resources, enabling them to contribute to the global stocktake towards net-zero by helping policymakers identify geographic regions that are major emitters, enabling them to put measures into place to mitigate emissions.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141363502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Alcohol Interventions on Online Grocery Shopping Platforms","authors":"Eszter Vigh, Angela Attwood, Anne Roudaut","doi":"10.23889/ijpds.v9i4.2430","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2430","url":null,"abstract":"Introduction & BackgroundThere is opportunity to engage light to moderate drinkers in alcohol reduction interventions as a preventative measure. In the space of online grocery shopping there is an added challenge in intervention development in the form of deceptive patterns, which influence consumer behaviour in unhealthy ways including automating behaviour and encouraging overconsumption.\u0000Objectives & ApproachThe objectives of this study are to: 1) identify deceptive patterns in the online grocery shopping context, 2) develop interventions which support healthier decision making in this context, 3) apply those interventions to appropriate product categories. The method utilised in the first objective is heuristic analysis which was conducted across eleven major online grocery shopping platforms. The interventions were then developed using the Rapid Iterative Testing and Evaluation (RITE) method, which involved interviewing participants and iterating upon the inventions after every interview. Each interview was analysed using content analysis. When incorporating the interventions into the online grocery shopping environment, interviews were conducted to gain insight into drinking and purchasing habits of consumers. These final interviews were then analysed with inductive thematic analysis.\u0000Relevance to Digital FootprintsDigital Footprints underpin the entire intervention development space. The background of the project is built upon human shopping and interaction behaviour online when encountering deceptive patterns. These deceptive patterns have been established using mobile gaming micro-transaction data, online grocery shopping log-in and rewards data, among other data sources. Digital Footprints data can further support the findings from the thematic analysis by further showing cultural and social trends around drinking (e.g., increased purchasing of seasonal beers and ciders in the summer and during sporting tournaments). The purpose of the drinking identified through those social and cultural trends gauge the appropriateness of proposed alcohol interventions. Beyond this, digital footprints data around engagement with health and wellness promoting applications (e.g., active users and app downloads) provides greater insight into the types of health messaging that garner attention and can be used to further inform how to approach those currently outside the health-engaged group. Digital footprints serve to attach larger societal trends to the smaller-scaled interviews and thematic analysis conducted as part of the study.\u0000ResultsInitial findings have shown opportunities for nudging light to moderate drinkers who primarily consume beer, wine, or cider. Spirits have been identified as difficult to substitute due to a lack of substitution options in the low alcohol spirit category that are widely available on the consumer market via online grocery retailers.\u0000Conclusions & ImplicationsWithout significant change, costs to the National Health Service","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 1232","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141363742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Twitter Usage through Linked Data: An Analysis of Motivations and Online Behavior","authors":"Shujun Liu, Luke Sloan, C. Jessop, Tarek Al Baghal, Paulo Serôdio","doi":"10.23889/ijpds.v9i4.2418","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2418","url":null,"abstract":"Introduction & BackgroundUses and gratification (U&G) theory posits individuals’ engagement with social media is a deliberate effort to fulfill various needs, like information seeking, entertainment, and networking. However, prior studies predominantly addressed whether individuals use social media to satisfy their needs, leaving a gap in understanding how individuals behave online to satisfy needs. This study fills this gap by merging survey responses with actual Twitter activity, to investigate how individuals behave online to satisfy distinctive motivations, including (a) self-expression, (b) seeking entertainment, (c) business and working, (d) staying informed with news, and (e) networking. We also investigated how these online behaviors vary among individuals with different demographic features, including socio-economic classes, gender, and age. \u0000Objectives & ApproachOur research addressed questions by linking survey responses with actual Twitter activities within the U.K. Participants were asked to provide survey responses surrounding age, gender, socio-economic class, and motivations for using social media. They were also queried about the existence of Twitter account, willingness to disclose Twitter username, and, if agreeable, the username itself. The survey continued until a total of 2,195 individuals shared Twitter handles. Following the removal of accounts that were either suspended or nonexistent, the study proceeded with a final count of 1,915. \u0000We collected each user’s Twitter metadata with Twitter API, including tweet count, follower count, following count, and bio information, and linked each user’s metadata with survey responses. To ensure respondents’ anonymity, survey, Twitter and linked data are stored separately, and can only be accessed by designated researcher. \u0000Relevance to Digital FootprintsThe study's approach of linking survey responses with actual Twitter activity offers a detailed insight into the digital footprints left by users as they engage with social media to satisfy their diverse needs. By analyzing the behaviors associated with motivations, this research illuminates the specific ways individuals curate their digital presence. \u0000ResultsRegression analysis indicated that individuals motivated by self-expression tend to tweet (b = .28, SE = .06, p < .001), follow account (b = .38, SE = .06, p < .001), gain followers (b = .13, SE = .06, p = .035), and post bio details (b = .89, SE = .13, p < .001). Work and business motivation leads to post bio information (b = .38, SE = .15, p = .012), while networking leads to follow more accounts (b = .28, SE = .06, p < .001). \u0000Social-economic class moderated associations between networking motivation and tweet count (b = -.25, SE = .09, p = .004), and between self-expression and tweet count (b = .20, SE = .08, p = .009). For individuals with higher socio-economic, self-expression has a higher effect on tweet count, whereas networking motivation has a less effect on tweet count","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":"109 26","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141362070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Augmenting Surveys with Social Media Data: A Probabilistic Framework for LinkedIn Data Linkage.","authors":"Paulo Matos Serodio, Tarek Al Baghal, Luke Sloan, Shujun Liu, C. Jessop","doi":"10.23889/ijpds.v9i4.2433","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2433","url":null,"abstract":"Introduction & BackgroundLinkedIn, with its extensive global network of over 900 million members across more than 200 countries, presents a unique repository for examining labour market dynamics, professional development, and the impact of social networking on employment opportunities. Despite its potential, LinkedIn's wealth of data on professional trajectories, skills, and labour market outcomes remains largely untapped in survey research due to challenges in data collection. \u0000Objectives & ApproachThis paper introduces a novel methodology for integrating LinkedIn data with survey responses using data from the fourteenth wave of the Innovation Panel (IP14) of Understanding Society: The UK Household Longitudinal Study (UKHLS), conducted in 2021. In IP14, we probed the extent of LinkedIn usage among the UK population and assessed users' willingness to link their LinkedIn profiles with their survey responses. Those consenting to link their accounts were asked for specific details — namely their first and last names, employer, and job title — to enable profile identification on LinkedIn. Faced with the unavailability of a unique platform identifier and the cessation of LinkedIn’s API, this information was crucial for matching profiles accurately. \u0000We crafted a framework using PhantomBuster for ethical data extraction and a probabilistic string-matching technique to ensure precise linkage between survey responses and LinkedIn profiles. PhantomBuster, a cloud-based tool, efficiently scrapes dynamic content using JavaScript in a headless browser environment, sidestepping IP-related restrictions while adhering to website terms of service. It streamlines the data collection process. Identified profiles were subjected to an iterative probabilistic string matching, using respondent-provided metadata alongside supplementary data, to maximize the accuracy of matching the profiles to our survey participants. \u0000Relevance to Digital FootprintsThe described method advances digital footprint research in data collection and linkage. It automates the retrieval of vast online data sets; compiles information efficiently in an organized format; saves time and labour by mechanizing monotonous tasks; circumvents platform-imposed IP restrictions; and imposes fewer barriers to entry as it requires less technical skill than other scraping tools like Selenium. \u0000Conclusions & ImplicationsThis approach not only facilitates the precise identification and collection of LinkedIn profile data but also sets a precedent for ethical considerations in web scraping practices. By documenting this methodology, we aim to equip researchers with a scalable and replicable tool for future studies, enriching the analysis of labour market outcomes and the interplay between formal education, informal training, and professional success through the integration of LinkedIn and survey data.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":"107 51","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141362074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Continuous glucose monitoring (CGM) for 308 older-age participants in an English birth cohort: variability and correlates","authors":"Sophie V. Eastwood, Michele Orini, Andrew Wong, Scott T Chiesa, Joshua King-Robson, Jonathan Scott, Nishi Chaturvedi","doi":"10.23889/ijpds.v9i4.2417","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2417","url":null,"abstract":"Introduction & BackgroundEpochs of hyperglycaemia and hypoglycaemia may each increase risk of common chronic diseases and impair both cognitive and physical function even in people without diabetes. Older people may have greater frequency of adverse glycaemic excursions, partly due to disordered autonomic function and sleep quality. Data for older, non-diabetic people are however scant. \u0000Objectives & Approach1) To describe blood glucose variability (completed) and 2) its socio-demographic and lifestyle correlates in a predominantly non-diabetic cohort of older adults (planned). Participants were recruited during 2021-2023 from an English birth cohort (the 1946 National Survey for Health and Development Study). They wore a continuous glucose monitor (Freestyle libre Abbott), which measured circulating glucose four times/hour, for seven days. Summary statistics and time outside range (4.4-7.8mmol/L) were calculated. Further information on glycaemic excursions and day-to-day variability will be gleaned using the R “iglu” package. For all CGM summary and excursion measures, future analyses will investigate: associations with HbA1c, socio-demographics, body composition, physical activity, diet and alcohol use. Results will be stratified by sleep/ wake time periods estimated from simultaneous actigraphy (Philips Actiwatch Spectrum Plus). Sensitivity analyses will exclude people taking hypo/ hyperglycaemic medications and those with diabetes. \u0000Relevance to Digital FootprintsDerived summary measures can be used by future studies to give insights into glycaemic variability as a population-level risk factor. This work will bring together multiple data sources, i.e. from CGM, actigraphy and baseline cohort data. \u0000ResultsParticipants were aged 75-76 years, 45% female and 10% had diagnosed diabetes; median (IQR) BMI was 26.8 (24.6-29.2) kg/m2. CGM data from 308 participants was collected, for a median (IQR) of 6.9 (6.7-7.6) days. Average glucose over the recording period was 5.7mmol/L (5.3-6.2mmol/L), standard deviation was 1.0mmol/L (0.8-1.3mmol/L), time outside range was 12.8% (6.2-24.7%) and 16% of participants spent ≥1 hour/day above and ≥1 hour/day below range. \u0000Conclusions & ImplicationsCGM was feasible for this cohort of older adults, and demonstrated high levels of time outside range for a predominantly non-diabetic group. Future analysis will determine whether enhanced characterisation of glycaemic variability is a potentially more accurate tool for predicting future disease risk than isolated glucose measurements.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" October","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141364401","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The dynamics of emotion expression on Twitter and mental health in a UK longitudinal study","authors":"Daniel Joinson, Oliver Davis, Edwin Simpson","doi":"10.23889/ijpds.v9i4.2437","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2437","url":null,"abstract":"Introduction & BackgroundAn estimated 4.95 billion people used social media in 2023, with the average user active on around seven platforms for over two hours per day. This widespread use leads to abundant digital footprint data around interactions with social media. These data can be collected continuously and reflect real behaviour of users in naturalistic settings. These strengths have led researchers to propose the use of social media data in digital phenotyping, where digital footprints can be used to quantify and predict health conditions. Mental health assessment in particular could benefit, as existing approaches, such as self-report questionnaires and inpatient assessment, are unable to perform the real-time monitoring that digital phenotyping could potentially achieve. \u0000Digital phenotyping models for mental health require careful consideration of what aspects of social media data to include. Including all data users generate could result in models that are overfitted and difficult to explain. Studies are required that explore the relationship between specific aspects of social media data, such as the time course of expressed emotion, and gold-standard measures of mental health. \u0000Objectives & ApproachWith participants’ consent, we linked Twitter data to self-reported measures of mental health from the Avon Longitudinal Study of Parents and Children. We performed sentiment analysis using three different approaches—LIWC, VADER and RoBERTa—to estimate the amount, variability and instability of positive and negative emotional content in each participant’s Tweets over a one-year period. We explored the association between these measures of emotion expression and self-reported scores of depressive symptoms, anxiety symptoms and wellbeing. These mental health measures are the Short Mood and Feelings Questionnaire, the Generalized Anxiety 7 and the Warwick Edinburgh Mental Wellbeing Scale. \u0000Relevance to Digital FootprintsOur research is highly relevant to digital footprint research, as it involves the use of digital footprint data (i.e. Twitter data) to predict mental health outcomes. \u0000Conclusions & ImplicationsThe results of our analysis will inform the development of digital footprint based phenotyping for mental health that could one day provide information to supplement clinical assessments.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141365487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Studying Health and Illness Experience using Linked Data (SHIELD): Empowering customers to donate shopping data for chronic pain research","authors":"Neo Poon, Claire Haworth, Elizabeth Dolan, A. Skatova","doi":"10.23889/ijpds.v9i4.2420","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2420","url":null,"abstract":"Introduction & BackgroundChronic pain is considered a priority in healthcare and a threat to well-being across the globe, it is thus crucial to accurately measure the national levels of pain conditions and their impacts on workplace productivity and well-being.\u0000Chronic pain has traditionally been studied in isolation with either self-reported survey data or standalone shopping records. The former are limited in scale and can be marred by response biases, while the latter lack ‘ground truths’: what research teams can measure are usually the purchase patterns of pain relief products, but neither the severity nor types of pain conditions.\u0000Objectives & ApproachData donation tools offer a novel approach to study chronic pain by linking the two aspects and establish statistical relationships between medicine consumptions and the multiple facets of pain experience. In a survey, we asked participants (N = 953) to share their loyalty card data with us, which is made possible with the data portability tool provided by Tesco (i.e., the largest supermarket chain in the United Kingdom) as part of the General Data Protection Regulation (GDPR). Based on questions adopted from popular inventories used in health research (e.g., EQ5D Health States, ONS4 Well-being, WEMWBS scales), we also asked participants to report the details of their pain conditions, hours of employment, and both general and mental health states. This allowed us to associate chronic pain - both subjective and objective (i.e., reflected by medicine consumption) - with its economic and personal consequences. Data collection was conducted via research panel providers, thus should approximate national representativeness.\u0000Relevance to Digital FootprintsThis work links digital footprints data donated by individuals to self-reported survey data, also develops an infrastructure for these data to be collected and safely stored.\u0000Conclusions & ImplicationsOne key value of this project is to pioneer a measure of chronic pain that can be applied to transactional records that are much bigger in scale in future analytic works. Our research team has access to an array of different digital footprints data, including longitudinal transactional data provided by a major pharmacy chain (~20 million customers and ~429 million baskets). In order to utilise these data to associate them with regional workplace productivity measures and well-being data released by the Office for National Statistics, a metric must be defined to extract the prevalence of chronic pain from shopping data, which is informed by the patterns found by the data donation project.","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":" 42","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141366174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"RADAR-Pipeline: Scalable Feature Generation for Mobile Health Data","authors":"H. Sankesara, Y. Ranjan, P. Conde, Z. Rashid, Akash Roy Choudhury, A. Folarin","doi":"10.23889/ijpds.v9i4.2421","DOIUrl":"https://doi.org/10.23889/ijpds.v9i4.2421","url":null,"abstract":"Introduction & BackgroundRADAR-Pipeline is an open-source Python framework designed to simplify and enhance mobile health data analysis. It has been designed to efficiently read and process the large amount of data generated through the RADAR-Base platform. RADAR-base is a scalable, real-time streaming and analytics open-source platform to facilitate research access and customisation requirements. Studies using the Radar-base platform have collected fine-grained longitudinal data from wearables and phones. The data can potentially create multitudes of digital biomarkers, which can be used to inform us greatly about the disease condition. Due to the sheer size of the data, it can be difficult for researchers to read and process those data -- a common task is identifying useful features and common data processing/analysis steps previously used by the community. Up to now, these have been hand-crafted by individual data scientists, often lacking the capability to be easily reused by the community without author-specific knowledge. \u0000Furthermore, generating variables based on already established research on a larger scale can be challenging and could hinder replication. Hence, we have designed RADAR-Pipeline to help researchers overcome these challenges. It empowers them to create and share their data analysis and visualisation pipelines, fostering collaboration and knowledge sharing within the research community. \u0000Objectives & ApproachThe primary objective of RADAR-Pipeline is to offer researchers a user-friendly and powerful platform to develop and share their research.  Researchers can build reusable analysis and visualisation pipelines to ensure consistent and reliable results. It simplifies big data analysis by leveraging Apache Spark to handle large and complex mobile health datasets efficiently.  Researchers can also save time and effort by reusing and extending existing pipelines built by others. Finally, the RADAR-Pipeline promotes collaboration and recognition by allowing researchers to share their work through the RADAR-base Analytics Catalogue, making their pipelines citable and accessible to the wider research community. \u0000Whilst Radar-pipeline has been designed to read data from Radar-base, it can also be used to read data from any dataset which uses Hadoop Distributed File System (HDFS) file system namespace. \u0000Relevance to Digital FootprintsMobile health data is rich and valuable for understanding human behaviour and health. RADAR-Pipeline addresses the challenges associated with analysing large and complex mobile health datasets, enabling researchers to extract valuable insights that can be used to (1) Improve public health: By enabling efficient analysis of large-scale mobile health data, RADAR-Pipeline can contribute to research efforts aimed at improving population health outcomes and developing effective interventions; (2) Personalised healthcare: By facilitating the extraction of individual-level features from mobile health data, R","PeriodicalId":507952,"journal":{"name":"International Journal of Population Data Science","volume":"111 46","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141361123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}