Developmental Medicine and Child Neurology最新文献

A new resource for patients and families with craniosynostosis. 颅缝闭锁患者及其家庭的新资源。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-26 DOI: 10.1111/dmcn.16366

Ruth J Barta, Cheryl Tveit, Heather Comstock, Lily Collison, Elizabeth R Boyer, Martin Lacey, Tom F Novacheck

引用次数: 0

Navigating mobility equity: Insights and challenges in device utilization for children with cerebral palsy. 导航移动公平：脑瘫儿童设备使用的见解和挑战。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-21 DOI: 10.1111/dmcn.16367

Charmhun Jo

引用次数: 0

The Visual Impairment Developmental Autonomy scale: Challenges in the assessment of children with visual impairment. 视觉障碍发展自主量表：评估视觉障碍儿童的挑战。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-15 DOI: 10.1111/dmcn.16364

Carey Matsuba

引用次数: 0

Seizures in childhood cerebral adrenoleukodystrophy: New insights and remaining knowledge gaps. 儿童脑肾上腺白质营养不良的癫痫发作：新的见解和剩余的知识差距。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-15 DOI: 10.1111/dmcn.16352

Samuel Groeschel, Hendrik Rosewich

引用次数: 0

Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods design. 照顾者报告的发育性和癫痫性脑病患者功能域有意义的变化：一种融合混合方法设计。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-15 DOI: 10.1111/dmcn.16363

Jenny Downs, Sophie Haywood, Natasha N Ludwig, Mary Wojnaroski, Rebecca Hommer, Kelly Muzyczka, JayEtta Hecker, Gabrielle Conecker, Jessica Keeley, Anne T Berg

{"title":"Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods design.","authors":"Jenny Downs, Sophie Haywood, Natasha N Ludwig, Mary Wojnaroski, Rebecca Hommer, Kelly Muzyczka, JayEtta Hecker, Gabrielle Conecker, Jessica Keeley, Anne T Berg","doi":"10.1111/dmcn.16363","DOIUrl":"https://doi.org/10.1111/dmcn.16363","url":null,"abstract":"Aim: To investigate how caregivers of children with developmental and epileptic encephalopathy and severe developmental impairments describe meaningful change for functional domains and why it is important.Method: This was a convergent mixed-methods design study. A survey was completed by 267 parents of children aged 12 months or older. For prioritized functional domains (communication, gross motor, fine motor, eating), parents reported the smallest improvement that would be important and explained why. Data were analyzed using directed content analysis and meaningful change codes were mapped to impairment levels.Results: The median age of the children was 8 years 8 months (interquartile range 4 years 2 months-14 years 6 months) and 149 (55.8%) were female. Content analysis yielded 86 meaningful change codes. Common codes described capacity to communicate preferences and emotions, gain sitting and walking skills, grasp objects for play, eat foods without choking, or using utensils. Some codes were reported for each impairment level (e.g. communicating needs/wants/likes for expressive communication); others were specific to an impairment level (e.g. gaining head control if unable to walk). Meaningful change was anticipated to affect health, independence and safety, care regimens, and quality of life of affected individual and families.Interpretation: The meaningful change codes indicate critical components within domains for evaluations in clinical trials.","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Chronic lower back pain in adults with cerebral palsy: Stigma, anxiety, and physical decline. 脑瘫成人慢性腰痛：耻辱感、焦虑和身体衰退。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-13 DOI: 10.1111/dmcn.16357

Julie A Stutzbach, Cristina A Sarmiento, Tanya S Kenkre, Joyce L Oleszek, Stephen R Wisniewski, Mary Gannotti

{"title":"Chronic lower back pain in adults with cerebral palsy: Stigma, anxiety, and physical decline.","authors":"Julie A Stutzbach, Cristina A Sarmiento, Tanya S Kenkre, Joyce L Oleszek, Stephen R Wisniewski, Mary Gannotti","doi":"10.1111/dmcn.16357","DOIUrl":"https://doi.org/10.1111/dmcn.16357","url":null,"abstract":"Aim: To determine the biopsychosocial factors associated with pain interference and pain intensity in adults with cerebral palsy (CP) and chronic lower back pain (LBP).Method: This study was a cross-sectional data analysis of a community survey examining function and chronic pain in adults with CP. We examined bivariate relationships and built two regression models with pain interference with general activities and pain intensity as the dependent variables and biopsychosocial factors as explanatory factors.Results: We included 295 participants (75 males, 203 females, two transgender, 14 non-conforming) with CP and LBP in our analyses. The mean age was 43 years 2 months; 81% were ambulatory and pain was present for mean 17 years 11 months [SD 13 years 5 months]. Ordinary least squares regression models indicated greater pain interference with change in best motor function since childhood (95% confidence interval [CI] = 0.47-1.96; p = 0.002), stigma (95% CI = 0.02-0.15; p = 0.01), and higher anxiety (95% CI = 0.02-0.11; p = 0.01; n = 238; adjusted R2 = 0.17); and greater pain intensity with lower income (95% CI = -1.07 to -0.19; p = 0.01), Hispanic or Latino ethnic group (95% CI = 0.06-2.17; p = 0.04), higher anxiety (95% CI = 0.01-0.06; p = 0.01), and less satisfaction with social roles (95% CI = -0.10 to -0.04; p < 0.001; n = 290; adjusted R2 = 0.16).Interpretation: These findings emphasize the importance of interpreting chronic pain in the context of biopsychosocial factors, particularly anxiety, stigma, ethnic group, income, satisfaction with social roles, and physical functional decline.","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144057455","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transcranial direct current stimulation and motor function in children with cerebral palsy: A systematic review and meta-analysis. 经颅直流电刺激对脑瘫儿童运动功能的影响：一项系统综述和荟萃分析。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-13 DOI: 10.1111/dmcn.16365

Hyunjoon Kim, Marie M Kelly, Xiwen Su, Claudio L Ferre

{"title":"Transcranial direct current stimulation and motor function in children with cerebral palsy: A systematic review and meta-analysis.","authors":"Hyunjoon Kim, Marie M Kelly, Xiwen Su, Claudio L Ferre","doi":"10.1111/dmcn.16365","DOIUrl":"https://doi.org/10.1111/dmcn.16365","url":null,"abstract":"Aim: To provide meta-analytical evidence regarding the effects of transcranial direct current stimulation (tDCS) on motor function in children with cerebral palsy (CP) across different stimulation protocols.Method: Using JBI methodology, we applied a random effects model to quantify motor function changes after tDCS. Moderator analyses examined the impact of electrode polarity and stimulation site. Subgroup analyses evaluated the impact of therapy inclusion and the number of sessions.Results: tDCS improved motor function in children with CP (Hedges' g = 0.53; 95% confidence interval [CI] = 0.24-0.81). Moderator analyses revealed statistically significant efficacy of anodal tDCS (Hedges' g = 0.73; 95% CI = 0.45-1.02), especially applied to the primary motor cortex (M1) (Hedges' g = 0.81; 95% CI = 0.52-1.11). Subgroup analyses showed tDCS efficacy with (Hedges' g = 0.86; 95% CI = 0.52-1.20) and without therapy (Hedges' g = 0.70; 95% CI = 0.21-1.19), and in single (Hedges' g = 0.85; 95% CI = 0.39-1.31) and multiple sessions (Hedges' g = 0.78; 95% CI = 0.42-1.14). Limb-specific analysis showed positive effects for lower-limb function (Hedges' g = 0.88; 95% CI = 0.50-1.25). When anodal tDCS was applied to the M1, both lower (Hedges' g = 1.02; 95% CI = 0.70-1.35) and upper (Hedges' g = 0.50; 95% CI = 0.16-0.83) limbs showed improvements.Interpretation: Anodal tDCS, particularly when applied to the M1, may effectively improve motor function in children with CP.","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8,"publicationDate":"2025-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025658","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Developmental and epileptic or epileptic encephalopathy with spike-wave activation in sleep: From the 'functional ablation' model to a neurodevelopmental network perspective. 发展性、癫痫性或癫痫性脑病伴睡眠中的尖波激活：从“功能消融”模型到神经发育网络的视角

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-12 DOI: 10.1111/dmcn.16361

Luca Andreoli, Stefania Maria Bova, Pierangelo Veggiotti

{"title":"Developmental and epileptic or epileptic encephalopathy with spike-wave activation in sleep: From the 'functional ablation' model to a neurodevelopmental network perspective.","authors":"Luca Andreoli, Stefania Maria Bova, Pierangelo Veggiotti","doi":"10.1111/dmcn.16361","DOIUrl":"https://doi.org/10.1111/dmcn.16361","url":null,"abstract":"The interplay between epilepsy and cognition is intricate and multifaceted, particularly in the context of childhood-onset epileptic disorders where epileptic activity can significantly interfere with and disrupt the delicate, highly plastic, and environment-related trajectories of neurodevelopment. Developmental and epileptic or epileptic encephalopathy with spike-wave activation during slow sleep (D/EE-SWAS), a spectrum of conditions including Landau-Kleffner syndrome, could serve as a valuable model to explore these complexities. Research to date has primarily examined its distinctive features, including genetic and structural etiological factors, electroencephalographic patterns, and cognitive phenotypes, often interpreted through simplified cause-effect paradigms. The adoption of a network perspective that aligns with neurodevelopmental trajectories is essential to grasp the full complexity of this evolving condition. Advancing research requires the integration of multimodal data, while leveraging tools such as artificial intelligence to develop sophisticated models in order to achieve a holistic understanding of D/EE-SWAS.","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":" ","pages":""},"PeriodicalIF":3.8,"publicationDate":"2025-05-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144038755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Childbirth for females with cerebral palsy. 脑瘫女性的分娩。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-09 DOI: 10.1111/dmcn.16362

Bernard Dan

引用次数: 0

Still being left behind: Global action for children with disabilities. 仍然落后：为残疾儿童采取全球行动。

IF 3.8 2区医学

Developmental Medicine and Child Neurology Pub Date : 2025-05-08 DOI: 10.1111/dmcn.16344

Donald Wertlieb

引用次数: 0