Journal of Empirical Research on Human Research Ethics最新文献_第3页

The Ethics of Using Artificial Intelligence in Qualitative Research. 在定性研究中使用人工智能的伦理。

IF 1.7 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-07-01 Epub Date: 2024-06-17 DOI: 10.1177/15562646241262659

David T Marshall, David B Naff

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Contraception Requirements in Clinical Research Consent Forms: Assessing and Supporting Gender Inclusive Practices. 临床研究同意书中的避孕要求：评估和支持性别包容实践。

IF 1.7 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-07-01 Epub Date: 2024-03-11 DOI: 10.1177/15562646241238301

Tara Coffin, Erin Brower, Sharad Adekar

{"title":"Contraception Requirements in Clinical Research Consent Forms: Assessing and Supporting Gender Inclusive Practices.","authors":"Tara Coffin, Erin Brower, Sharad Adekar","doi":"10.1177/15562646241238301","DOIUrl":"10.1177/15562646241238301","url":null,"abstract":"Gender-diverse individuals are underserved in clinical research settings. Reliance on gendered language throughout the consent process for clinical research contributes to the marginalization of these populations. The research objective was to assess use of gender-inclusive language used to describe the contraception requirement in consent forms. We categorized and analyzed contraception language in 289 clinical trial consent forms using a deductive and summative content analysis approach. We found that 79% (n = 227) of consent forms contained gender-inclusive language, 80% (n = 231) used terms that fell under the biological sex language, and 91% (n = 264) used gendered language. No consent forms used exclusively gender-inclusive language and the majority 63% (n = 182) featuring a combination of all three language types. There were many consent forms which would have been entirely gender-inclusive language if section headings with references to biological-sex-specific contraceptives were excluded, suggesting that gender-inclusive language may be attainable with minor revisions.","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"135-142"},"PeriodicalIF":1.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140095069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Valuing Academic Freedom and Advocacy 重视学术自由和宣传

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-04-08 DOI: 10.1177/15562646241246369

Tanya Doherty, Max Kroon, Catherine Pereira-Kotze

引用次数: 0

Evaluating the Decisional Capacity for Informed Consent of Transition age Children to Adolescents in Human Subject Research. 评估人类受试者研究中即将步入青春期的儿童的知情同意决策能力。

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2023-12-10 DOI: 10.1177/15562646231219384

Kamran Salayev, Ulviyya Aslanova, Kerim Munir

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Trust in Medical Research: A Comparative Study among Patients at a Regional Referral Hospital and Community Members in Lira District, Northern Uganda. 对医学研究的信任：乌干达北部利拉地区一家地区转诊医院的患者与社区成员的比较研究。

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2024-01-12 DOI: 10.1177/15562646231224374

Jafesi Pulle, Sana Loue, Gertrude N Kiwanuka, Bajunirwe Francis

引用次数: 0

Evaluation of Turkish Academic and Student Attitudes on Plagiarism: Validity and Reliability of the Plagiarism Attitudes Scale. 评估土耳其学术界和学生对剽窃行为的态度：剽窃态度量表的有效性和可靠性。

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2024-02-25 DOI: 10.1177/15562646241231597

Gamze Özbek Güven, Feyza Inceoğlu, Şerife Yilmaz, Fuat Ince

{"title":"Evaluation of Turkish Academic and Student Attitudes on Plagiarism: Validity and Reliability of the Plagiarism Attitudes Scale.","authors":"Gamze Özbek Güven, Feyza Inceoğlu, Şerife Yilmaz, Fuat Ince","doi":"10.1177/15562646241231597","DOIUrl":"10.1177/15562646241231597","url":null,"abstract":"The main purpose of this study was to translate the Plagiarism Attitude Scale into Turkish and validate it for use in Turkish settings, in order to better understand research integrity attitudes and awareness of the Turkish academic and student community, while also contributing an instrument for research in this area. The research was designed and conducted with 483 participants. In the process of adapting the scale to Turkish, language, content, and construct validity analyses were performed. Following the completion of the validity phase, the reliability of the scale was examined using Cronbach's alpha coefficient and the split-half method. The results indicate that the scale's language and content validity are deemed sufficient. According to the findings of the research, the Plagiarism Attitude Scale, in its adapted Turkish version, is considered a valid and reliable tool. The use of this Turkish scale will assist local researchers in sharing their unique perspectives and help the international community better understand research ethics concerns in Türkiye. Additionally, this scale will serve as a valuable resource for planning educational programs.","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"58-70"},"PeriodicalIF":1.3,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139974305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Abstracts from the PRIM&R 2023 Advancing Ethical Research Conference. PRIMR23 经验摘要。

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2024-02-26 DOI: 10.1177/15562646241231839

引用次数: 0

The "3 Ps" of EmPowerment, Partnership and Protection - Stakeholder Perceptions of Beneficial Outcomes of Engagement in HIV Prevention Trials. EmPowerment、Partnership 和 Protection 这 "3P"--利益相关者对参与艾滋病预防试验的有益结果的看法。

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2023-12-17 DOI: 10.1177/15562646231221259

Abigail Wilkinson, Siyabonga Thabethe, Jessica Salzwedel, Catherine Slack

{"title":"The \"3 Ps\" of EmPowerment, Partnership and Protection - Stakeholder Perceptions of Beneficial Outcomes of Engagement in HIV Prevention Trials.","authors":"Abigail Wilkinson, Siyabonga Thabethe, Jessica Salzwedel, Catherine Slack","doi":"10.1177/15562646231221259","DOIUrl":"10.1177/15562646231221259","url":null,"abstract":"Background: Stakeholder engagement is increasingly recognized as a key component of ethical research in leading ethics guidelines. Ethics commentators have also argued that engagement has several beneficial outcomes for the field. Aim: This paper reports on the beneficial outcomes of stakeholder engagement in HIV prevention trials as perceived by stakeholders in the field. Method: We conducted 28 interviews between 2019 and 2021 with interviewees from various stakeholder groups in 12 countries and used thematic analysis to analyze the transcripts. Findings: We found three major themes - namely emPowerment where engagement is perceived to empower stakeholders, Partnerships where engagement is perceived to build equitable relationships and Protections where engagement is perceived to strengthen protections for participants and community stakeholders and to improve science. Conclusions: These findings map closely onto beneficial outcomes envisaged by ethics guidelines, however, the relationship between outcomes seen as beneficial deserves further exploration.","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"37-47"},"PeriodicalIF":1.3,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10958749/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"My Blood, You Know, My Biology Being out There…": Consent and Participant Control of Biological Samples. "我的血液，我的生物体......"：生物样本的同意和参与者控制。

IF 1.7 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2024-01-08 DOI: 10.1177/15562646231222665

Susan Racine Passmore, Abigail Gerbitz, Gregory R Hancock, Laura Evans, Gina Green-Harris, Dorothy Farrar Edwards, Tyson Jackson, Stephen B Thomas

{"title":"\"My Blood, You Know, My Biology Being out There…\": Consent and Participant Control of Biological Samples.","authors":"Susan Racine Passmore, Abigail Gerbitz, Gregory R Hancock, Laura Evans, Gina Green-Harris, Dorothy Farrar Edwards, Tyson Jackson, Stephen B Thomas","doi":"10.1177/15562646231222665","DOIUrl":"10.1177/15562646231222665","url":null,"abstract":"The widespread and persistent underrepresentation of groups experiencing health disparities in research involving biospecimens is a barrier to scientific knowledge and advances in health equity. To ensure that all groups have the opportunity to participate in research and feel welcome and safe doing so, we must understand how research studies may be shaped to promote inclusion. In this study, we explored the decision to participate in hypothetical research scenarios among African American adults (n = 169) that varied on the basis of four attributes (form of consent, reason for research, institutional affiliation and race of the researcher). Findings indicate that participants were largely willing to contribute to biobanks but significantly preferred opportunities where they had control over the use of their biological samples through tiered or study-specific forms of consent. Broad consent procedures, although common and perhaps preferred by participants with high trust in researchers, may amount to an exclusionary practice.","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"3-15"},"PeriodicalIF":1.7,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10957312/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139405024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

When a Negative Experience Sticks With You: Does the Revised Outcome Debriefing Counteract the Consequences of Experimental Ostracism in Psychological Research? 当负面经历挥之不去时：修订后的结果汇报能否抵消心理学研究中实验性排斥的后果？

IF 1.3 4区哲学

Journal of Empirical Research on Human Research Ethics Pub Date : 2024-02-01 Epub Date: 2024-01-23 DOI: 10.1177/15562646241227065

Stefanie Miketta, Malte Friese

{"title":"When a Negative Experience Sticks With You: Does the Revised Outcome Debriefing Counteract the Consequences of Experimental Ostracism in Psychological Research?","authors":"Stefanie Miketta, Malte Friese","doi":"10.1177/15562646241227065","DOIUrl":"10.1177/15562646241227065","url":null,"abstract":"For research purposes, it is generally accepted that experimental ostracism manipulations can lead to a reduction of participants' well-being. To eventually restore participants' well-being, researchers rely on post-experimental debriefings that discredit prior deception. However, evidence suggests that discredited beliefs can persevere. The present research investigates whether a potent debriefing procedure restores participants' well-being after an experimentally induced ostracism experience. In two studies, participants were either excluded or included in a Cyberball game, indicated their well-being, and were debriefed. In two additional conditions, participants were debriefed before indicating their well-being. Ostracism compared to inclusion led to decreased positive and increased negative mood. The debriefing did not counteract this effect (Studies 1 & 2). Unwanted aftereffects of the manipulation persevered for more than one day after the experimental session (Study 2). These findings question the effectiveness of debriefings and raise issues about research ethics.","PeriodicalId":50211,"journal":{"name":"Journal of Empirical Research on Human Research Ethics","volume":" ","pages":"16-27"},"PeriodicalIF":1.3,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10958747/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139543559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0