Physical & Occupational Therapy in Pediatrics最新文献

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Determinants of Quality of Life of Children and Adolescents with Cerebral Palsy: A Systematic Review. 儿童和青少年脑瘫患者生活质量的决定因素:一项系统综述。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2162358
Nihad A Almasri, Fatima Alzahra Alquaqzeh
{"title":"Determinants of Quality of Life of Children and Adolescents with Cerebral Palsy: A Systematic Review.","authors":"Nihad A Almasri,&nbsp;Fatima Alzahra Alquaqzeh","doi":"10.1080/01942638.2022.2162358","DOIUrl":"https://doi.org/10.1080/01942638.2022.2162358","url":null,"abstract":"<p><strong>Objective: </strong>To summarize research findings on the determinants of Quality of Life (QoL) in children with cerebral palsy based on the International Classification of Functioning, Disability, and Health (ICF).</p><p><strong>Methods: </strong>The protocol of the review was registered in the International Prospective Register of The Systematic Reviews PROSPERO (CRD42021261966). A PubMed, Web of Science, MEDLINE complete, and CINAHL Plus search was conducted between January 2020 and October 2021 to identify studies that examined determinants of QoL. Inclusion criteria for the studies were children between the ages of birth and 20 years with cerebral palsy. The data extraction and quality evaluation of studies were carried out independently by two reviewers.</p><p><strong>Results: </strong>A total of 664 studies were identified in the search, of which 23 studies were included in the review. The majority of the studies were conducted in high-income countries. According to the ICF, 48% of the studies examined body function determinants, 52% examined activities determinants, and 26% examined environmental determinants. In contrast, 13% of the studies examined determinants related to participation and 13% examined determinants related to personal factors.</p><p><strong>Conclusions: </strong>Based on our findings, most of the determinants identified in the literature are related sequentially to functional activities, body functions and structures, and environmental factors. Researchers should focus on assessing the determinants of QoL related to participation and personal characteristics for children with cerebral palsy in order to improve their QoL.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 4","pages":"367-388"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9693370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Correction. 校正
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 Epub Date: 2023-06-20 DOI: 10.1080/01942638.2023.2223004
{"title":"Correction.","authors":"","doi":"10.1080/01942638.2023.2223004","DOIUrl":"10.1080/01942638.2023.2223004","url":null,"abstract":"Article title: Psychometric Properties of the Arabic Version of the EPInfant Scale among Typically Developing Children Aged 6–16 Years Authors: Maha F. Algabbani, Afaf A. M. Shaheena, Muneera Almurdi, Asma S. AlRushud, Amjad Almore, Linah Alobaidallah, Ohud Almutairi, Shurug Alharthi, Waad Alkaldi, Hala AlMaymoni, and Ivan Rodrıguez Nunez Journal: Physical and Occupational Therapy in Pediatrics DOI: https://doi.org/10.1080/01942638.2023.2197050","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":" ","pages":"806"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9662058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Vibration Therapy as an Early Intervention for Children Aged 2-4 Years with Cerebral Palsy: A Feasibility Study. 振动疗法作为早期干预2-4岁脑瘫儿童的可行性研究。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2181723
Alena Adaikina, José G B Derraik, Janice Taylor, Gina L O'Grady, Paul L Hofman, Silmara Gusso
{"title":"Vibration Therapy as an Early Intervention for Children Aged 2-4 Years with Cerebral Palsy: A Feasibility Study.","authors":"Alena Adaikina,&nbsp;José G B Derraik,&nbsp;Janice Taylor,&nbsp;Gina L O'Grady,&nbsp;Paul L Hofman,&nbsp;Silmara Gusso","doi":"10.1080/01942638.2023.2181723","DOIUrl":"https://doi.org/10.1080/01942638.2023.2181723","url":null,"abstract":"<p><p><b>Aims</b><i>:</i> To evaluate the feasibility and acceptability of vibration therapy (VT) in preschool children with cerebral palsy (CP) and obtain preliminary data on its potential effectiveness.<b>Methods</b><i>:</i> Nine children aged 2.5-4.8 years (4 boys) with CP GMFCS levels I-III participated in a single-group feasibility study, undergoing a 12-week control period without intervention, followed by 12 weeks of home-based VT (four times/week, 9 min/day, frequency 20 Hz). We assessed adherence to VT protocol, adverse events, and family acceptability of VT. Clinical assessments included motor function (GMFM-66), body composition (DXA), mobility (10-meter walk/run test), and health-related quality of life (PedsQL).<b>Results</b><i>:</i> VT was well tolerated and acceptable to families, with high adherence levels reported (mea<i>n =</i> 93%). There were no observed between-period differences (ΔControl vs ΔVT) except for an improvement in the PedsQL \"Movement & Balance\" dimension with VT (p = 0.044). Nonetheless, changes after the VT but not the Control period were suggestive of potential treatment benefits for mobility, gross motor function, and body composition (lean mass and legs bone mineral density).<b>Conclusion</b><i>:</i> Home-based VT is feasible and acceptable for preschool children with CP. Our preliminary data suggest potential health benefits from VT for these children, supporting larger randomized trials to assess its effectiveness properly. <b>Clinical trial registration number:</b> Australian New Zealand Clinical Trials Registry (ACTRN12618002027291).</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 5","pages":"564-581"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10220777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing Dyskinesia in Children with Cerebral Palsy: Moving Forward: A Commentary on Development of a Clinical Framework for the Assessment of Dyskinesia and Function in the Upper Limb in Children with Cerebral Palsy. 评估脑瘫儿童运动障碍:向前发展:评估脑瘫儿童上肢运动障碍和功能的临床框架的发展评论。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2151295
Kirsty Stewart
{"title":"Assessing Dyskinesia in Children with Cerebral Palsy: Moving Forward: A Commentary on Development of a Clinical Framework for the Assessment of Dyskinesia and Function in the Upper Limb in Children with Cerebral Palsy.","authors":"Kirsty Stewart","doi":"10.1080/01942638.2023.2151295","DOIUrl":"https://doi.org/10.1080/01942638.2023.2151295","url":null,"abstract":"The article in this issue by Ralph et al. (2022) on the “ Development of a clinical framework for the assessment of dyskinesia and function in the upper limb in children with cerebral palsy ” is another positive step forward in ensuring more consistent and accurate assessment of children with dyskinetic CP. This article highlights the complexity of dyskinetic movement disorders seen in children with CP, the predominance of upper limb dyskinesia in this population and the correlation the presence of dyskinesia has with poorer functional outcomes.","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 1","pages":"14-16"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10405080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
School-Based Physical Therapists' Perceptions about Becoming Effective Practitioners through Professional Development. 校本物理治疗师通过专业发展成为有效从业者的看法。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2169092
Stacy Zousmer, Christine Stiller, Kristine Thompson, Christopher Wilson, Melodie Kondratek
{"title":"School-Based Physical Therapists' Perceptions about Becoming Effective Practitioners through Professional Development.","authors":"Stacy Zousmer,&nbsp;Christine Stiller,&nbsp;Kristine Thompson,&nbsp;Christopher Wilson,&nbsp;Melodie Kondratek","doi":"10.1080/01942638.2023.2169092","DOIUrl":"https://doi.org/10.1080/01942638.2023.2169092","url":null,"abstract":"<p><strong>Aims: </strong>The aims of this study were to explore perceptions of school-based physical therapists (SBPTs) about professional development and effective practice and to create a conceptual framework to help understand how SBPTs become effective practitioners who continue to learn and grow professionally as clinicians in an educational setting.</p><p><strong>Methods: </strong>Twenty school-based physical therapists completed a demographic questionnaire and a semi-structured interview. Guiding interview questions focused on SBPTs' perceptions of roles and responsibilities, professional development, barriers, and recommendations.</p><p><strong>Results: </strong>Participants identified roles and personal qualities of effective SBPTs. Three concepts for the process of professional development were developed: educational context and culture, barriers to effective practice, and strategies for professional development.</p><p><strong>Conclusion: </strong>The development of effective practice for SBPTs is a multifaceted, iterative process involving a unique set of knowledge, skills, and behaviors that allow them to fulfill their roles. The process takes time and effort to understand the self within the educational context and culture, recognize barriers to effective practice, and develop strategies for success. A conceptual framework was developed to assist SBPTs in implementing a plan for professional development that leads to effectively providing services to students and functioning as essential members of the educational team.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 5","pages":"611-629"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10155634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Abnormal Activity of Masticatory Muscles in Patients with Diagnosis of Cerebral Palsy. A Systematic Review and Meta-Analysis of Observational Studies. 咀嚼肌异常活动与脑瘫诊断的关系。观察性研究的系统回顾和荟萃分析。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2023.2173038
Rafael Zaratin Beltramin, Ana Luiza Cabrera Martimbianco, Marcela Leticia Leal Gonçalves, Monise Mendes Rocha, Soraia Micaela Silva, Anna Carolina Ratto Tempestini Horliana, Elaine Marcílio Santos, Karina Helga Turcio, Raquel Agnelli Mesquita-Ferrari, Kristianne Porta Santos Fernandes, Lara Jansiski Motta, Sandra Kalil Bussadori
{"title":"Abnormal Activity of Masticatory Muscles in Patients with Diagnosis of Cerebral Palsy. A Systematic Review and Meta-Analysis of Observational Studies.","authors":"Rafael Zaratin Beltramin,&nbsp;Ana Luiza Cabrera Martimbianco,&nbsp;Marcela Leticia Leal Gonçalves,&nbsp;Monise Mendes Rocha,&nbsp;Soraia Micaela Silva,&nbsp;Anna Carolina Ratto Tempestini Horliana,&nbsp;Elaine Marcílio Santos,&nbsp;Karina Helga Turcio,&nbsp;Raquel Agnelli Mesquita-Ferrari,&nbsp;Kristianne Porta Santos Fernandes,&nbsp;Lara Jansiski Motta,&nbsp;Sandra Kalil Bussadori","doi":"10.1080/01942638.2023.2173038","DOIUrl":"https://doi.org/10.1080/01942638.2023.2173038","url":null,"abstract":"<p><strong>Aims: </strong>to map and synthesize the results from studies that assessed whether individuals diagnosed with cerebral palsy (CP) have abnormal masseter and temporal muscles activation during the masticatory cycle.</p><p><strong>Methods: </strong>Six databases were searched for comparative observational studies assessing masticatory muscles activation in individuals with CP through electromyography analysis. Methodological quality was evaluated using the Joanna Briggs Critical Appraisal Checklist. Outcome data were combined in meta-analysis using the Review Manager software.</p><p><strong>Results: </strong>We included five cross-sectional studies with an overall low risk of bias. Meta-analyses showed no difference between CP and healthy individuals regarding maximum voluntary isometric contraction: right masseter (Standard mean difference [SMD] - 0.95; 95% CI -2.03 to 0.13); left masseter (SMD -0.92; 95% CI -1.93 to 0.09); right temporal (SMD -0.72; 95% CI -1.63 to 0.18); and left temporal (SMD -0.68; 95% CI -1.76 to 0.40). Electrical activity amplitude in the inactive period was superior in the CP group, and maximum bite pressure presented higher values in the control group (Mean difference [MD] - 17.38; CI 95% -26.62 to -10.15).</p><p><strong>Conclusions: </strong>Based on observational studies with a lower level of evidence, individuals with CP seem to present difficulties activating masticatory muscles. Future prospective cohort studies with rigorous methodology are still necessary to support these findings. PROSPERO register CRD42020208444.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 5","pages":"548-563"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10165535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review. 发育障碍儿童和青少年及其家庭的远程康复:系统综述。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2106468
Tatiana Ogourtsova, Zachary Boychuck, Maureen O'Donnell, Sara Ahmed, Galil Osman, Annette Majnemer
{"title":"Telerehabilitation for Children and Youth with Developmental Disabilities and Their Families: A Systematic Review.","authors":"Tatiana Ogourtsova,&nbsp;Zachary Boychuck,&nbsp;Maureen O'Donnell,&nbsp;Sara Ahmed,&nbsp;Galil Osman,&nbsp;Annette Majnemer","doi":"10.1080/01942638.2022.2106468","DOIUrl":"https://doi.org/10.1080/01942638.2022.2106468","url":null,"abstract":"<p><strong>Aim: </strong>To determine the level of evidence for the effectiveness of telerehabilitation against comparison interventions in improving child- and parent-related outcomes in children and youth with developmental disabilities.</p><p><strong>Method: </strong>A systematic approach, comprised of a comprehensive search; transparent study selection, data extraction, quality assessment by independent reviewers; and synthesis of sufficiently similar data (per diagnostic group, health profession, and overall level of evidence for each outcome) was undertaken.</p><p><strong>Results: </strong>Fifty-five studies (29 randomized trials) were included across six diagnostic groups and ten health professions. Common telerehabilitation targets varied across diagnostic groups and included motor function, behavior, language, and parental self-efficacy. Telerehabilitation was found to be either more effective or as effective versus comparison intervention in improving 46.9% or 53.1% of outcomes, respectively. It was never found to be detrimental or less effective. Strong to moderate, limited, and insufficient levels of evidence were found for 36.5%, 24.5%, and 38.6% of the outcomes, respectively.</p><p><strong>Conclusion: </strong>There is sufficient evidence suggesting that telerehabilitation is a promising alternative when face-to-face care is limited. It is comparable to usual care and is more effective than no treatment. Blending in-person and telerehabilitation approaches could be beneficial for the post-pandemic future of rehabilitation in pediatric care.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"129-175"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9116284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
Interdisciplinary Occupational and Physical Therapy Approach to Treating Constipation and Fecal Incontinence in Children. 跨学科的职业和物理治疗方法治疗儿童便秘和大便失禁。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2131499
Holly Osborn, Stacey Reek, Brittany Anderson
{"title":"Interdisciplinary Occupational and Physical Therapy Approach to Treating Constipation and Fecal Incontinence in Children.","authors":"Holly Osborn,&nbsp;Stacey Reek,&nbsp;Brittany Anderson","doi":"10.1080/01942638.2022.2131499","DOIUrl":"https://doi.org/10.1080/01942638.2022.2131499","url":null,"abstract":"<p><strong>Aims: </strong>This case series was completed to determine the effectiveness of an interdisciplinary (occupational and physical therapy) approach to treating constipation and fecal incontinence in children. Non-pharmacological therapies for treating constipation and incontinence are showing potential benefits, especially for children not responding to standard medical treatment, which involves oral laxatives for fecal dis-impaction (cleanout) and maintenance dosing to prevent further impaction.</p><p><strong>Methods: </strong>A retrospective chart review, surface electromyography (sEMG) biofeedback, and parent and child reports of progress was completed for two children ages 4 and 10 years old. Progress toward goals was measured using a therapy plan of care and progress updates every 60 days. Focus of goals included, pelvic floor muscle coordination and activation, education of anatomy and physiology of digestive system, emotional regulation, functional training in the bathroom, and hygiene.</p><p><strong>Results: </strong>Notable improvements in pelvic floor function, emotional regulation, and defecation dynamics contributed to decreased constipation and fecal incontinence as well as improved emotional regulation and confidence in both participants over a 6-month period.</p><p><strong>Conclusion: </strong>A coordinated physical therapy and occupational therapy approach to treating children with constipation and fecal incontinence can be successful in reaching full continence and support children have not responded to standard medical treatment.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"243-256"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9117718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing a Rehabilitation Pathway for Pediatric Heart Transplant Recipients: An Improvement Project to Increase Adherence, Satisfaction, and Outcomes. 加强儿童心脏移植受者的康复途径:提高依从性、满意度和结果的改进项目。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 DOI: 10.1080/01942638.2022.2124900
Kristin Clarkson, Brittany Amori, Megan Smutney, Maddie Chrisman, Amit Sinha, Brenda Cassidy, Jackie Calhoun
{"title":"Enhancing a Rehabilitation Pathway for Pediatric Heart Transplant Recipients: An Improvement Project to Increase Adherence, Satisfaction, and Outcomes.","authors":"Kristin Clarkson,&nbsp;Brittany Amori,&nbsp;Megan Smutney,&nbsp;Maddie Chrisman,&nbsp;Amit Sinha,&nbsp;Brenda Cassidy,&nbsp;Jackie Calhoun","doi":"10.1080/01942638.2022.2124900","DOIUrl":"https://doi.org/10.1080/01942638.2022.2124900","url":null,"abstract":"<p><strong>Aims: </strong>To refine a cardiac rehabilitation pathway for pediatric heart transplant recipients; assess clinician knowledge and adherence to the program; and evaluate patient outcomes.</p><p><strong>Methods: </strong>The center has utilized a rehabilitation pathway for pediatric heart transplant recipients. Challenges in practice include access to centers, lack of data tracing, and adherence to the pathway. The quality initiative focused on program refinements: implementation of text templates to improve data collection, collection of the Pediatric Cardiac Quality of Life Inventory (PCQLI), Functional Independence Measure (WeeFIM) and Child Occupational Self-Assessment (COSA), development of an outreach program, and creation of an educational program for therapists to increase content knowledge and improve clinician satisfaction.</p><p><strong>Results: </strong>In the evaluation of rehabilitation follow-up post-transplant, there was no statistical significance between the pre- and post-implementation groups. After the implementation of the refined pathway, there was an increase in the completion of the six-minute walk test post-transplant (<i>p</i> = 0.048). Clinicians' responses post educational session noted familiarity with the pathway (88%), documentation (78.8%), and outcome measures (97%). Results of outcomes noted improvement in six-minute walk distances and a decrease in the rate of perceived exertion post-transplant. To ensure future pathway adherence, clinical support should be implemented, and key players identified to maintain sustainability.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 2","pages":"196-211"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9469954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey. COVID-19给疑似遗传病患儿护理人员带来的负担:治疗奥德赛。
IF 2.1 4区 医学
Physical & Occupational Therapy in Pediatrics Pub Date : 2023-01-01 Epub Date: 2022-10-30 DOI: 10.1080/01942638.2022.2138734
Margaret Waltz, Courtney Canter, Jeannette T Bensen, Jonathan S Berg, Ann Katherine M Foreman, Tracey L Grant, Kristen Hassmiller Lich, Angelo Navas, Julianne M O'Daniel, Bradford C Powell, Christine M Rini, Brooke S Staley, R Jean Cadigan
{"title":"The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey.","authors":"Margaret Waltz, Courtney Canter, Jeannette T Bensen, Jonathan S Berg, Ann Katherine M Foreman, Tracey L Grant, Kristen Hassmiller Lich, Angelo Navas, Julianne M O'Daniel, Bradford C Powell, Christine M Rini, Brooke S Staley, R Jean Cadigan","doi":"10.1080/01942638.2022.2138734","DOIUrl":"10.1080/01942638.2022.2138734","url":null,"abstract":"<p><strong>Aims: </strong>Children with disabilities and rare or undiagnosed conditions and their families have faced numerous hardships of living during the COVID-19 pandemic. For those with undiagnosed conditions, the diagnostic odyssey can be long, expensive, and marked by uncertainty. We, therefore, sought to understand whether and how COVID-19 impacted the trajectory of children's care.</p><p><strong>Methods: </strong>We conducted semi-structured qualitative interviews with 25 caregivers who, prior to the pandemic, were on a diagnostic odyssey for their children.</p><p><strong>Results: </strong>Most caregivers did not report any interruptions to their child's diagnostic odyssey. The greatest impact was access to therapy services, including the suspension or loss of their child's in-person therapeutic care and difficulties with virtual therapies. This therapy gap caused caregivers to fear that their children were not making progress.</p><p><strong>Conclusion: </strong>Although much has been written about the challenges of diagnostic odysseys for children and their families, this study illustrates the importance of expanding the focus of these studies to include <i>therapeutic</i> odysseys. Because therapeutic odysseys continue regardless of whether diagnoses are made, future research should investigate how to support caregivers through children's therapies within and outside of the COVID-19 context.</p>","PeriodicalId":49138,"journal":{"name":"Physical & Occupational Therapy in Pediatrics","volume":"43 3","pages":"257-271"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10079636/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9291287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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