Maternal and Child Health Journal最新文献

{"title":"Evaluating Associations Among Maternal ACEs, Perinatal Depression, and Infant Experiences of Adversity.","authors":"Samantha Addante, Lucia Ciciolla, Amanda Baraldi, Karina M Shreffler","doi":"10.1007/s10995-025-04079-6","DOIUrl":"https://doi.org/10.1007/s10995-025-04079-6","url":null,"abstract":"<p><strong>Objective: </strong>The growing literature on the intergenerational transmission of childhood adversity highlights the need to identify potential mechanisms underlying the relationship between maternal and infant adversity. This study examines prenatal and postpartum depressive symptoms as mediators between maternal ACEs and postpartum infant experiences of adversity.</p><p><strong>Methods: </strong>A diverse sample of 168 low-income, pregnant women (39% white) were recruited from urban prenatal clinics and followed for one-year post childbirth. Maternal childhood adversity and prenatal depressive symptoms were assessed during pregnancy, postpartum depressive symptoms were assessed at 6 months postpartum, and infant experiences of adversity at 12 months postpartum.</p><p><strong>Results: </strong>The total indirect effect of maternal ACEs on infant experiences of adversity through prenatal and postpartum depressive symptoms was significant, indicating that these symptoms collectively mediate this relationship. Additionally, our results demonstrated a mediated pathway in which maternal ACEs contributed directly to prenatal depression, which in turn indirectly influenced postpartum depression and infant experiences of adversity.</p><p><strong>Conclusion: </strong>Findings provide evidence for perinatal depressive symptoms as a potential mechanism that influences infant exposure to adverse experiences. Future research should explore these pathways in larger, more robust samples to clarify the role of postpartum depressive symptoms.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Baby-Act Intervention to Prevent Excessive Infant Weight Gain: Development, Implementation, Lessons Learned, and Future Applications.","authors":"Maria G Kallis Colon, Adolfo Lopez, Maribel Campos Rivera, Jeremy Pomeroy, Cristina Palacios","doi":"10.1007/s10995-025-04082-x","DOIUrl":"https://doi.org/10.1007/s10995-025-04082-x","url":null,"abstract":"<p><strong>Objectives: </strong>There are limited interventions for preventing excessive infant weight gain among Hispanic and low-income populations. Here, we describe the development/implementation of the Baby-Act trial, a multi-component/multi-model intervention for preventing excessive infant weight gain in low-income Hispanics. We also report adherence/fidelity, lessons learned, and future applications.</p><p><strong>Methods: </strong>We conducted a cluster-randomized controlled trial among mother/infant participants of the WIC program in Puerto Rico. The intervention included responsive feeding, infant activation, healthy sleep, and limiting sedentary behaviors using behavioral change theories. It was implemented as a multi-modal approach from pregnancy to the first year of life through weekly online interactive lessons (n = 56) that focused on one of the topics, reinforced with weekly text messages and monthly calls with a dietitian. Adherence/fidelity was recorded as the number of lessons/calls completed and text messages sent/received in the order designed.</p><p><strong>Results: </strong>Adherence from 207 participants was 45.7% for pregnancy lessons and 31.4% for baby lessons (higher in months 0-3 and for lessons that suggested uploading images/videos). On average, 19 lessons were completed (with 3.6 lessons completed on the same day instead of once per week). Adherence to calls was 42.3% (higher in the first months, 49.0%). On average, each participant completed 5 calls. Lessons/calls/texts were completed/received as designed; 99.3% of text messages were sent.</p><p><strong>Conclusions: </strong>Adherence to all intervention components was low, but all participants received the main messages because the topics were repeated continuously. Future studies should reduce the frequency of lessons, include more text messages, and more sharing of videos/photos.</p><p><strong>Clinicaltrials: </strong>GOV: NCT03517891.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143694177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Longitudinal Associations Between Cannabis Use during Pregnancy and Child Cognitive, Motor, and Language Development at 2 Years Old.","authors":"Justine Pleau, Noémie Tanguay, Yohann Courtemanche, Jean R Séguin, Catherine M Herba, Marie-Noelle Simard, Andrea A N MacLeod, William D Fraser, Gina Muckle","doi":"10.1007/s10995-025-04077-8","DOIUrl":"https://doi.org/10.1007/s10995-025-04077-8","url":null,"abstract":"<p><strong>Objectives: </strong>The objectives of this study are to describe cannabis use during pregnancy, identify associated factors, examine the associations between prenatal cannabis use and the cognitive, motor and language development of 2-year-old children, and determine whether these associations differ according to child sex.</p><p><strong>Methods: </strong>Data from 1489 mother-infant dyads from the 3D prospective pregnancy and birth cohort Study (2010-2012) were used. Prenatal cannabis use was measured during interviews in each trimester of pregnancy. Cognitive and motor development were assessed by The Bayley Scales of Infant and Toddler Development (BSID-III) and language development by the MacArthur-Bates Communicative Development Inventories at 2 years of age. Multiple linear regressions and differential analyses by child sex were performed.</p><p><strong>Results: </strong>2.6% of women reported using cannabis during pregnancy, the majority of whom stopped after the first trimester. Prenatal cannabis use was associated with lower socioeconomic status, prenatal use of alcohol and tobacco, and more distress symptoms during the first trimester of pregnancy. Results showed no significant associations between prenatal cannabis use (yes/no) and developmental indicators (Cognitive: B = 0.016, 95% CI [-0.268, 0.299]; Fine motor: B = 0.029, 95% CI [-0.271, 0.328]; Gross motor: B = 0.060, 95% CI [-0.143, 0.544]; Language: B = 0.200, 95% CI [-0.229, 0,465]). Contrary to our hypothesis, a positive association between cannabis use and language development was found in girls only.</p><p><strong>Conclusion: </strong>The study, consisting of a large sample and developmental indicators independent of parental assessment, highlights the need for more studies on prenatal cannabis exposure documented by biomarkers.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143694178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association Between Infant-Mother Room-Sharing and Symptoms of Postpartum Depression: A Population-Based Study.","authors":"Sravya Patibandla, Zelalem T Haile","doi":"10.1007/s10995-025-04073-y","DOIUrl":"https://doi.org/10.1007/s10995-025-04073-y","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to (1) examine the relationship between infant-mother room-sharing and postpartum depression (PPD) symptoms and (2) determine whether the relationship between infant-mother room-sharing and PPD symptoms varies by other maternal or infant characteristics.</p><p><strong>Methods: </strong>This cross-sectional study utilized de-identified secondary data from the 2016-2019 Pregnancy Risk Assessment and Monitoring System (PRAMS) (N=105,144). Frequencies and percentages were used to describe the characteristics of the study sample. Rao-Scott chi-square tests were used to examine differences in PPD symptoms and infant-mother room-sharing by maternal and infant characteristics. Multivariable logistic regression was performed to examine the independent association between infant sleeping arrangements and PPD symptoms. Pairwise interaction between infant sleeping arrangement and each covariate were included in the regression model, and stratified analyses were performed for variables with significant pairwise interactions.</p><p><strong>Results: </strong>The prevalence of PPD symptoms was 11.7%, and 79.5% reported that their infant sleeps in the same room. Significant pairwise interactions were found between infant-mother room-sharing and marital status, education, insurance, and receipt of WIC food assistance on PPD symptoms. The odds of having PPD symptoms were higher in those whose infants shared the same room compared to those whose infants slept in a different room. However, the observed association was present only in the subgroups of participants who were married, had greater than a high school level of education, had private insurance, and did not receive WIC food assistance during pregnancy.</p><p><strong>Conclusions for practice: </strong>Findings suggest that infant-mother room-sharing is independently associated with increased odds of PPD symptoms.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143671522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preconception Physical Activity and Maternal Health Outcomes: An Integrative Review of Studies from 2016-2025.","authors":"Kadeeja S Murrell, Rodney P Joseph","doi":"10.1007/s10995-025-04086-7","DOIUrl":"https://doi.org/10.1007/s10995-025-04086-7","url":null,"abstract":"<p><strong>Introduction: </strong>Preconception physical activity may lower the risk of adverse maternal health outcomes. This integrative review examined the relationship between preconception physical activity and maternal health outcomes.</p><p><strong>Methods: </strong>Six electronic databases (i.e., Cochrane Library, PubMed, Science Direct, PsycInfo, SAGE Journals, and Sports Discus) were searched for relevant articles. Articles were eligible for inclusion if they were (1) published between January 1, 2016, and January 9, 2025, in an English-language peer-reviewed journal; (2) included a measure of preconception physical activity; and (3) reported maternal health outcomes during or after birth.</p><p><strong>Results: </strong>Search procedures retrieved a total of 3608 articles. After a thorough screening process, seven articles met the inclusion criteria of this review. Five articles reported data from prospective cohort studies, and two articles employed cross-sectional designs. Outcomes examined included gestational hypertension (n = 3), gestational diabetes/glucose metabolism (n = 4), preeclampsia (n = 2), infant birth weight (n = 2), pregnancy weight gain (n = 1), duration of pregnancy (n = 1), and mode of delivery (n = 1). Higher preconception physical activity engagement was linked to reduced risks of gestational hypertension (n = 1), gestational diabetes/glucose metabolism (n = 2), preeclampsia (n = 2), low birth weight (n = 1), excessive pregnancy weight gain (n = 1), and post-term delivery (n = 1). Three studies found greater risk reduction with increased moderate-to-vigorous physical activity.</p><p><strong>Discussion: </strong>Engaging in regular moderate-to-vigorous physical activity during preconception is associated with a reduced risk of numerous adverse maternal health outcomes.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143659051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perception of Quality of Life by Primary Caregivers of Children with Congenital Zika Syndrome: a Cross-Sectional Study.","authors":"Pedro Henrique Moreira Lima, Lorena Araújo Silva Jorge, Francisco César Monteiro Chaves Filho, Renata Torreão Viana de Melo Costa, André Jalles Monteiro, Thyciana Rodrigues Ribeiro, Anya Pimentel Gomes Fernandes Vieira-Meyer, Sara Maria Silva, André Luiz Santos Pessoa, Erlane Marques Ribeiro, Cristiane Sá Roriz Fonteles","doi":"10.1007/s10995-025-04057-y","DOIUrl":"10.1007/s10995-025-04057-y","url":null,"abstract":"<p><strong>Objective: </strong>The study aimed to evaluate the quality of life (QoL) of caregivers of children diagnosed with CZS and to assess the association of findings with socioeconomic and CZS-associated variables.</p><p><strong>Methods: </strong>This was a cross-sectional, quantitative study, carried out over three days of multidisciplinary care for patients with CZS. Sixty-four participants underwent a quality of life assessment using the World Health Organization Quality of Life questionnaire (WHOQOL-BREF) in Portuguese.</p><p><strong>Results: </strong>Both groups of caregivers attributed regular scores for Global QoL, and all WHOQOL-BREF domains. Among caregivers of children with CZS, QoL correlated with three of the four WHOQOL-BREF domains (psychological health: rho = 0.49, p < 0.001; social relationships: rho = 0.28, p < 0.023; and environment: rho = 0.11, p < 0.006), while general health perception correlated with three other domains (physical health: rho = 0.49, p < 0.001; psychological health: rho = 0.31, p < 0.012; and social relationships: rho = 0.30, p < 0.016). The environment domain was associated with the level of education in this population (p < 0.001). Macular scarring and focal pigmentary retinal mottling were significantly associated with the physical environment (p = 0.039), negative feelings (p = 0.035), support and social aid (p = 0.020).</p><p><strong>Conclusion: </strong>The present study demonstrates that the WHOQOL-BREF is an effective method to evaluate the general perception of QoL among caregivers of children with CZS. Our results also suggest that caregivers of children with CZS do not experience a reduced quality of life compared to caregivers of typically developing children.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":"363-375"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Digital Motherhood in the Postpartum Period: A Descriptive Study.","authors":"İlgün Özen Çınar, Edanur Özkaya Bozkurt","doi":"10.1007/s10995-025-04058-x","DOIUrl":"10.1007/s10995-025-04058-x","url":null,"abstract":"<p><strong>Background: </strong>During the first 6 weeks after birth, women often encounter problems and seek answers to their questions. This period is also crucial in terms of technology use.</p><p><strong>Aim: </strong>The aim of this study was to examine the digital motherhood approach to self-care and infant care in the 6-week postpartum period, and its association with different variables.</p><p><strong>Methods: </strong>This descriptive study recruited 278 women in the postpartum period. Data were collected from the Digital Motherhood Survey. Descriptive statistics and chi-squared analysis were performed.</p><p><strong>Results: </strong>The mean age of the women was 28.9 ± 5.14 years; 50.4% had a high school education or less, and 49.6% had a university education or higher. The types of digital media consulted included institutional sites, blogs, and commercial sites. The three topics most frequently researched by women in the postpartum period using digital media were breastfeeding, infant nutrition, and general infant care. The top three reasons given by participants for preferring digital media were faster access to information, access to information from their own setting, and benefiting from the experiences of others. The following factors were significantly associated with digital media being a participant's first-choice information source: the woman and her partner having a university education or above, having a male infant, having received information about infant care, and having a postpartum hospital stay duration of 0-2 days.</p><p><strong>Conclusion: </strong>This study defined postpartum digital motherhood. The preference of women for digital media is influenced by their educational status and that of their partners, the sex of the infant, their prior knowledge of infant care, and the early discharge of their infants after birth. Healthcare professionals, especially nurses, must be aware of the digital media used by postpartum women to supervise them and provide guidance.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":"376-385"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prevalence and Clinical Features of Pulmonary Embolism in Pregnancy and Puerperium in the Post-COVID-19 Era.","authors":"Thai Lun Tan, Noor Emillia Binti Illa, Siew Ying Ting, Shoen Chuen Chiew, De Yee Gan, Zhong Wei Ong, Vijayan","doi":"10.1007/s10995-025-04067-w","DOIUrl":"10.1007/s10995-025-04067-w","url":null,"abstract":"<p><strong>Objective: </strong>Interest in pulmonary embolism (PE) has undergone a renaissance since the emergence of COVID-19 pandemic, but PE researches among pregnant mothers in this post-COVID-19 era remains scarce. This study was conducted to (a) determine PE prevalence rate among pregnant and post-partum women with suspected PE after the COVID 19 pandemic, (b) compare the clinical characteristics, laboratory findings and CT features between the PE and non-PE cohorts, and (c) validate the Pregnancy-Adapted Geneva (PAG) score in our population.</p><p><strong>Methods: </strong>This retrospective cross-sectional study involved the review of all maternal cases with suspected PE who underwent diagnostic CTPA in year 2022.</p><p><strong>Results: </strong>A total of 120 patients represented by 90 pregnant patients and 30 post-partum patients were included in the analysis. The prevalence rate of PE was 22.5% (27/120) and gestational diabetes mellitus prevalence rate was significantly higher (48.1% vs. 26.9%; p = 0.037) in PE cohort. Besides, the proportion of patients with moderately and extremely raised peak D-dimer levels were significantly higher among the PE cohort. In patients with PE, the position of the most proximal clot was identified as subsegmental (n = 6, 22.2%) and segmental (n = 21; 77.8%). The predicted PE risk based on PAG score demonstrated poor calibration with the observed PE risk across all three groups, namely low-risk group (2.3% vs. 15.4%), intermediate-risk group (11.6% vs. 26.3%) and high-risk groups (61.5% vs. 0.0%).</p><p><strong>Conclusion: </strong>Overall, PE among pregnant and post-partum populations remain a convoluted disease without distinctive clinical features. There is a need for a prospectively validated PE risk scores to guide its clinical diagnostic pathway.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":"428-437"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143630877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Interventions to Prevent Relapse or Recurrence of Preconception Anxiety and/or Depression in Perinatal Women: A Systematic Review.","authors":"Celia Rae, Rebecca McRae, Elizabeth Holliday, Catherine Chojenta","doi":"10.1007/s10995-025-04054-1","DOIUrl":"10.1007/s10995-025-04054-1","url":null,"abstract":"<p><strong>Objectives: </strong>Women with preconception anxiety and/or depression experience high rates of relapse or recurrence of the disorders in the perinatal period. This review aimed to identify perinatal interventions that were designed to prevent relapse or recurrence in women with a history of anxiety and/or depression.</p><p><strong>Methods: </strong>The review was conducted based on the PRISMA guidelines. Six medical databases were searched with specific search strategies for each. The reference lists of literature reviews retrieved in this search were also screened, as well as the reference lists of reviews identified within these reviews. Additionally, the publications of the first authors of included studies were reviewed for relevant articles.</p><p><strong>Results: </strong>There were 10 articles eligible for inclusion. These articles described pharmacological or dietary supplement interventions, as well as psychological and/or behavioural interventions. All identified studies focused on the prevention of recurrent depression, comprising four antenatal interventions and six postnatal interventions. No studies reporting interventions for the prevention of recurrent anxiety were identified.</p><p><strong>Conclusions for practice: </strong>Several published studies provided evidence supporting the use of prophylactic antidepressants and progesterone to prevent relapse or recurrence of depression, although studies were limited by small sample sizes and the potential for study bias. More recent and higher quality evidence exists for the role of mindfulness and cognitive behavioural therapy in the prevention of depressive relapse. Further exploration of relapse prevention strategies for women with preconception anxiety and/or depression is required, particularly for recurrent anxiety.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":"294-303"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11926042/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of Systems of Care on Emotional Well-Being of Primary Family Caregivers of Children with Medical Complexity.","authors":"Jessica L Schnell, Julia B Tager, Ansley E Kenney, Paulina S Lim, Samantha A Everhart, Sarah Johaningsmeir, Kathryn A Balistreri, Amy Morgan-Tautges, Kevin E Berridge, Maura Brophey, Charles B Rothschild, Matthew C Scanlon, W Hobart Davies, K Jane Lee","doi":"10.1007/s10995-025-04066-x","DOIUrl":"10.1007/s10995-025-04066-x","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to explore the experiences of caregivers of children with medical complexity (CMC) enrolled in a complex care program, focusing on their interactions with the healthcare system and the impact on caregiver well-being.</p><p><strong>Methods: </strong>Qualitative interviews were conducted with 20 caregivers, and data were analyzed using interpretative phenomenological analysis. The interviews covered topics such as navigating the medical system, accessing resources, and interactions with healthcare providers.</p><p><strong>Results: </strong>Caregivers faced challenges in navigating the healthcare system, including scheduling appointments, finding suitable treatment plans, and managing hospitalizations. They expressed the need for more practical, financial, and informational resources to support their caregiving responsibilities. Access to respite care was identified as a significant challenge, with limited availability and affordability. Caregivers highlighted the importance of connecting with other caregivers and accessing accurate information specific to their child's condition.</p><p><strong>Conclusions for practice: </strong>The findings emphasize the unmet needs of caregivers of CMC and the barriers they face within the healthcare system. To support caregiver well-being, interventions should address these barriers by improving infrastructural support, enhancing training for in-home caregivers, and advocating for comprehensive support services for the entire family. Involving caregivers in the development and implementation of interventions is crucial to ensure their feasibility, applicability, and desirability. By addressing these challenges and tailoring interventions to the unique needs of caregivers of CMC, healthcare providers can promote better outcomes for both caregivers and their CMC.</p>","PeriodicalId":48367,"journal":{"name":"Maternal and Child Health Journal","volume":" ","pages":"405-414"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143371309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}