S. Parsons, H. Kovshoff, N. Yuill, Devyn Glass, S. Holt, Asha Ward, Cleo Barron, Rebecca J. Ward
{"title":"‘Our Stories...’: Co-Constructing Digital Storytelling Methodologies for Supporting the Transitions of Autistic Children - Study Protocol","authors":"S. Parsons, H. Kovshoff, N. Yuill, Devyn Glass, S. Holt, Asha Ward, Cleo Barron, Rebecca J. Ward","doi":"10.1177/16094069221145286","DOIUrl":"https://doi.org/10.1177/16094069221145286","url":null,"abstract":"The voices of autistic children and their families are routinely underestimated and overlooked in research and practice. Research is challenged methodologically in accessing the views of autistic people who, by definition, are characterised by social and communication difficulties. Consequently, many voices remain unheard and experiences undocumented. This has important implications for the validity of research that is interested in improving the life experiences of marginalised groups since the representation of those experiences is partial and dominated by research perspectives that prioritise particular kinds of evidence. This situation matters because there remains a substantial gap between research and practice such that the longer-term outcomes for autistic people across social, educational and economic indices remain poor. We argue that research can only make an impact on practice if there is a genuine commitment to gathering and understanding these different sources of evidence in ways that connect research and practice from the start. This protocol describes a methodological project funded by the Economic and Social Research Council in the UK. The ‘Our Stories’ project applies and extends a participatory Digital Stories methodology to explore the research challenge of gathering a range of views from autistic children, families, and practice in authentic ways and at points of transition. Digital Stories is an accessible and inclusive methodology that supports the sharing of views and experiences in visual, video form. We describe the rationale for, and design, of the project across four pilot studies in different contexts as well as our approach to analysis and ethics. While our project focuses on autism, the knowledge we gain is applicable to research and practice much more widely and to any voices or groups who are marginalised from the traditional ways of doing research and to any contexts of practice.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49289686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
L. Suwedi-Kapesa, M. Kinshella, Hana Mitchell, M. Vidler, Q. Dube, D. Goldfarb, K. Kawaza, A. L. Nyondo-Mipando
{"title":"Methodological Insights, Advantages and Innovations Manuscript Title: Lessons Learned in Conducting Qualitative Healthcare Research Interviews in Malawi: A Qualitative Evaluation","authors":"L. Suwedi-Kapesa, M. Kinshella, Hana Mitchell, M. Vidler, Q. Dube, D. Goldfarb, K. Kawaza, A. L. Nyondo-Mipando","doi":"10.1177/16094069231153610","DOIUrl":"https://doi.org/10.1177/16094069231153610","url":null,"abstract":"With the growth of qualitative health research in low- and middle-income countries, local health professionals are increasingly involved in facilitating interviews with their fellow health workers. Understanding the methodological implications of such situations is required to ensure high-quality study findings and to build capacity and skills for interviewers with clinical backgrounds working with limited resources. This article reports a qualitative process evaluation of a study that assessed barriers and enablers of implementing bubble continuous positive airway pressure in Malawi. Findings were summarized through an iterative process of reflection on what worked, what did not work, areas for improvement, structural challenges, negotiating dual roles as nurses and researchers and the professional hierarchy within the health care system. Comprehensive practical training was critical to conducting qualitative research in a health setting. Interviewers were health workers themselves and required skills in reflexivity to effectively probe and navigate interviewing other health professionals, including senior staff. The main challenge in conducting interviews in a resource-limited healthcare setting was time constraints, which were compounded by staffing shortages. Lessons from this qualitative evaluation highlight the importance of training in reflexivity, engaging interviewers as collaborators and reserving adequate time to accommodate healthcare workers’ multiple roles and responsibilities.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47831898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Developing a Systematic-Dynamic Approach to Critical Discourse Analysis: A Study Protocol in the Context of the Doctor–Patient Relationship in Western China","authors":"Longtao He, Yanqun Qin","doi":"10.1177/16094069221149510","DOIUrl":"https://doi.org/10.1177/16094069221149510","url":null,"abstract":"Chinese scholarship conducting/attempting critical discourse analysis (CDA) on the doctor–patient relationship in China has, to date, predominantly relied on the use of analytical tools from systemic functional linguistics and pragmatics. This methodological orientation, by prioritizing the linguistic structure and functions of the textual data, does not tend to take into consideration the sociocultural contexts, complex power relations, genealogy of discourse, and practice-orientedness of discourse that CDA approaches usually touch on. This protocol article proposes a research design that constructs a systematic-dynamic CDA approach in the context of the doctor–patient relationship in western China in order to incorporate the aforementioned factors that previous Chinese scholarship has ignored. Physicians, cancer patients and their family members, and CDA methodologists are to be recruited to participate in focus groups and interviews to discuss the doctor–patient relationship from their own experience and to inform the construction of an integrated CDA approach. Qualitative context analysis will be adopted to analyze texts transcribed from interviews and focus groups, in order to generate themes and new concepts for the design of a novel systematic-dynamic CDA framework. By establishing an integrated CDA approach tailored to the doctor–patient relationship in western China, we will be able to provide empirical evidence and valuable insights to practitioners and policymakers to ease doctor–patient conflicts, which have intensified in recent years, and facilitate more harmonious relationships.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42380360","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
María Isabel Gaete, Mariana Castillo-Hermosilla, Claudio Martínez, Felipe Concha, Isidora Paiva-Mack, Alemka Tomicic
{"title":"Protocol of Application and Phenomenological Exploration of Body Mapping in Transgender Population: An Art-Based Research Method","authors":"María Isabel Gaete, Mariana Castillo-Hermosilla, Claudio Martínez, Felipe Concha, Isidora Paiva-Mack, Alemka Tomicic","doi":"10.1177/16094069221150108","DOIUrl":"https://doi.org/10.1177/16094069221150108","url":null,"abstract":"This article is a methodological proposal for Body Mapping application in transgender population framed by a phenomenological approach and aimed at exploring the implicit and pre-reflective embodied cues of the experience of discordance between the felt body (the body I am) and the objective body (‘the body I have’) that opens a space in which words do not have easy access to. In order to describe our protocol of phenomenological exploration and application of Body Mapping, we detail the complete process in a single case. It corresponds to a female-to-male participant of 18 years old undergoing hormonal treatment with testosterone for 12 months before engaging in our study. Reflections about the potential of using art-based research methods for accounting of pre-reflective bodily experience of discordance in transgender population are detailed. The combination of the Body Mapping art-based research tool with a phenomenological approach for the study of experience seems promising for studies aimed at exploring experience from an embodied approach. It represents a radical first-person research method in which the images talk by themselves. Furthermore, including the researchers as beholders of the resulting artwork, assuming the role of inter-corporality of the aesthetic bodily resonance as part of the data collection procedure seems innovative but loyal and honest with what an Art-based research paradigm is.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48048308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
F. Moola, Tim Ross, Aliya Amarshi, A. Sium, Alyssa R. Neville, Nivatha Moothathamby, B. Dangerfield, Tamara Tynes-Powell, Tharanni Pathmalingam
{"title":"Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race","authors":"F. Moola, Tim Ross, Aliya Amarshi, A. Sium, Alyssa R. Neville, Nivatha Moothathamby, B. Dangerfield, Tamara Tynes-Powell, Tharanni Pathmalingam","doi":"10.1177/16094069231151306","DOIUrl":"https://doi.org/10.1177/16094069231151306","url":null,"abstract":"The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on understanding the intersectional experiences of childhood disability and race with a view to better supporting racialized disabled children, youth, and their families. This conference was needed because intersectional experiences of childhood disability and race have been silenced in childhood disability studies, critical race studies, and various other resistance-oriented systems of thought. Racialized children with disabilities and their families are often unsupported as they navigate Euro-centric healthcare systems. Reflecting on lessons learned from our conference, we suggest several strategies for advancing meaningful research programs with racialized disabled children. Strategies include centering the art of listening, amplifying the margin, engaging the arts to promote empathy, embracing psychosocial support in work on ableism and racism, developing clinical tools and practices that are grounded in lived patient experiences, and advancing decolonizing research that recognizes the role research has historically played in perpetuating colonial violence. In totality, this article unpacks how sitting on the margins, as bell hooks suggested, has allowed us to occupy a place of discomfort and creativity necessary to disrupt dominant discourses. In so doing, we have made space for the hidden narratives of racialized disabled children and their families.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42994887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“Will You be Our Qualitative Methodologist?” Reflections on Grant Work Responsibilities","authors":"Jennifer R. Wolgemuth, Lorien S. Jordan","doi":"10.1177/16094069231152452","DOIUrl":"https://doi.org/10.1177/16094069231152452","url":null,"abstract":"Government funders increasingly encourage interdisciplinary mixed methods research projects that include qualitative methods. For qualitative methodologists, the opportunity to collaborate on interdisciplinary research teams may come at a cost when their expertise is marginalized relative to quantitative designs. Drawing on concepts from critical pragmatism and an ethics of care, we reflect on ethical tensions in our experiences as qualitative methodologists on government funded interdisciplinary research teams. Driven by an intersubjective and justice-oriented view of knowledge development and care as interdependence, we offer our thoughts, experiences, and guidance under four orienting concepts: collaboration, education, critique, and critical reflexivity. We culminate our reflection by offering a practical and responsible way forward for qualitative methodologists who accept grant work invitations, a way that holds promise for advancing interdisciplinary, critical, and care-based action in funded research.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48986795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Miguel Loureiro, A. Joshi, K. Barnes, Egídio Chaimite
{"title":"Governance Diaries: An Approach to Researching Marginalized People’s Lived Experiences in Difficult Settings","authors":"Miguel Loureiro, A. Joshi, K. Barnes, Egídio Chaimite","doi":"10.1177/16094069221150106","DOIUrl":"https://doi.org/10.1177/16094069221150106","url":null,"abstract":"How do chronically poor and marginalized citizens interact with and make claims to the different public authorities that exist in fragile, conflict and violence-affected contexts? In other words, how does governance from below look like in difficult settings? Given the centrality of the ‘leave no one behind’ agenda, an understanding of how such populations meet their governance needs can help identify the constraints to achieving development for all in these challenging settings. We wanted to research these questions comparatively, to see if there were common features of response in different contexts, with the presence of various kinds of non-state actors, diverse histories of colonialism and authoritarianism, and widely different social norms. In this article we describe the governance diaries approach, an iterative alternative to large-n surveys and multi-sited ethnographies we developed in the process of answering these questions. Governance diaries, working as a qualitative panel data, are a suitable approach for researching complex behavior that changes over time as large-n surveys are insufficiently dynamic to trace the processes behind change (lacking sensitivity) and ethnographic studies often have limited generalizability (lacking comparability). We describe here how this approach works and the challenges and opportunities it offers for research.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44125871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gracen Mueller, A. Barford, Helen Osborne, Kaajal Pradhan, Rachel Proefke, Soniya Shrestha, A. Pratiwi
{"title":"Disaster Diaries: Qualitative Research at a Distance","authors":"Gracen Mueller, A. Barford, Helen Osborne, Kaajal Pradhan, Rachel Proefke, Soniya Shrestha, A. Pratiwi","doi":"10.1177/16094069221147163","DOIUrl":"https://doi.org/10.1177/16094069221147163","url":null,"abstract":"The common-place quantification of humanitarian disasters enables rapid and informed crisis responses. In disaster settings, understanding feelings and perceptions regarding individuals’ experiences, livelihood disruptions and coping mechanisms can also be valuable for extending and deepening quantitative insight. This paper explores the potential for diary methods to capture extensive, nuanced data from marginalised groups during a disaster, by drawing upon a study with 100 young diarists (aged 15–29) who produced 1418 diary entries over 4 months. In particular, we share how diary-methods can be designed inclusively, through addressing themes of equitable research partnerships, supporting more vulnerable participants, ensuring data quality, data management, participatory analysis, and budgeting for collaborative research.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43293715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Mixed-Methods Approach to Climate Action Planning","authors":"Lauren Quinlivan, N. Dunphy","doi":"10.1177/16094069221150107","DOIUrl":"https://doi.org/10.1177/16094069221150107","url":null,"abstract":"With global greenhouse gas emissions on the rise, the higher education sector has recognised the part it must play in reducing its carbon footprint, setting an example for others to follow in the global fight against climate change. In 2019 University College Cork undertook the complex task of designing and developing a Climate Action Plan, beginning with the compilation of a detailed inventory of the university’s greenhouse gas emissions and followed by a period of engaged research during which potential climate action measures were identified by key stakeholders. In response to the start of the Covid-19 pandemic and introduction of public health restrictions, a structured dialogue – modified Delphi – approach was employed as part of the engaged research. This mixed-methods approach proved successful at identifying a number of potential opportunities for reducing the university’s carbon footprint, with the structured dialogue method in particular offering the researchers numerous advantages for conducting engaged research during the unique circumstances arising as a result of the Covid-19 pandemic.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43007667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reading Focus Group Data Against the Grain","authors":"Rosie Walters","doi":"10.1177/16094069221146991","DOIUrl":"https://doi.org/10.1177/16094069221146991","url":null,"abstract":"This article explores how reading focus group data ‘against the grain’ offers new insights into publics’, and especially marginalised groups’, negotiation of dominant discourses. Using data from a study with members of the UN Foundation’s Girl Up campaign in the UK, US and Malawi, I demonstrate that reading against the grain both across and within groups enabled me to explore the girls’ complex negotiations of girl power discourses in international development. I argue that reading focus group data against the grain involves paying attention both to wider social power relations, as is crucial to a poststructuralist discourse analysis, and to interactions between group members, a form of analysis more commonly associated with Conversation Analysis. This methodological strategy enabled me to explore the topic of girl power discourses in international development from a new perspective, moving beyond the abundance of critiques in the literature of dominant discourses emerging from powerful institutions. By focusing on the girls’ instances of resistance to, and critical engagement with, dominant discourses, I suggest that reading focus group data against the grain opens up the possibility of a rich new area of research for scholars and practitioners alike: one which goes beyond simplistic victim/agency binaries and explores the complexities of audiences’ readings of texts.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44212390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}