Catherine McCombie, Georgina Miguel Esponda, Hannah Ouazzane, Gemma Knowles, Charlotte Gayer-Anderson, Ulrike Schmidt, Vanessa Lawrence
{"title":"Qualitative digital diary methods: participant-led values for ethical and insightful mental health research.","authors":"Catherine McCombie, Georgina Miguel Esponda, Hannah Ouazzane, Gemma Knowles, Charlotte Gayer-Anderson, Ulrike Schmidt, Vanessa Lawrence","doi":"10.1177/16094069241296189","DOIUrl":"https://doi.org/10.1177/16094069241296189","url":null,"abstract":"<p><p>Qualitative digital diary methods are a promising tool for capturing participants' experiences in their own words and over time. The use of smartphone apps to collect this kind of data provides an accessible and flexible way to participate in research, but to truly benefit from this method, participants needs and preferences must be taken into account. This paper explores participants' experiences of taking part in qualitative digital diary research, and highlights participants' values and priorities for qualitative digital diary mental health research. Participants from two qualitative digital diary studies provided feedback on their experiences, in the form of interviews and focus groups, and data were analysed using reflexive thematic analysis. The two participant groups, people with lived experience of eating disorders, and young people from diverse backgrounds across London schools, allowed exploration of experiences across different contexts and populations. The six resulting themes each reflect a core value that participants identified as an essential component for them in qualitative digital diary research: Self-expression, flexibility, non-judgement, open communication, helpful reflection, and meaningful impact. Themes each highlight aspects of participants' experiences that must be taken into account for future research to ensure that participants can take part in this type of research in ways that are meaningful to them, as well as most beneficial to the research. This paper provides an overview of participant experiences of qualitative digital diary research, and provides a framework for centring participant values and preferences in future qualitative diary research.</p>","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"23 ","pages":"16094069241296189"},"PeriodicalIF":3.9,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7617831/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144676190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Applying the Visual-Verbal Video Analysis Framework to Understand How Mental Illness is Represented in the TV Show Euphoria","authors":"Shelly Ben-David, Melissa Campos, Pavanpreet Nahal, Sonali Kuber, Gerald Jordan, Joseph DeLuca","doi":"10.1177/16094069231223653","DOIUrl":"https://doi.org/10.1177/16094069231223653","url":null,"abstract":"Mental illness in media can shape viewer’s beliefs about mental health, help-seeking, and empathic behaviors. The current study sought to investigate how mental health and substance use is depicted in popular media targeted for youth. The visual-verbal video analysis (VVVA) framework was applied to the HBO American drama television series Euphoria to understand how mental illness, substance use, and mental health service use is portrayed, and how characters respond to mental health scenes. Euphoria follows a group of high school students as they navigate adolescence, mental illness and substance use. The VVVA provides a framework for social science and medical researchers to qualitatively analyze multimodal information (e.g., text, cinematography, music and sounds, body language and facial expressions) of visual content. This commentary will briefly describe the VVVA framework, provide an overview of how the framework was applied and adapted to analyze a scene in the television series Euphoria, note similarities and differences to the original VVVA framework, and benefits and drawbacks. The VVVA framework was flexible and effective in coding various elements (e.g., body language, camera angles) in a scene in Euphoria.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" 10","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139392695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Yeo, John Ehiri, Priscilla Magrath, Angela Dawson, Kacey Ernst, Halimatou Alaofè
{"title":"Walking into their lives: Applying the go-along method to explore refugee health.","authors":"Sarah Yeo, John Ehiri, Priscilla Magrath, Angela Dawson, Kacey Ernst, Halimatou Alaofè","doi":"10.1177/16094069241308543","DOIUrl":"10.1177/16094069241308543","url":null,"abstract":"<p><p>The go-along method is a way of interviewing people in situ. Combining participant observation and interviewing, the method capitalizes on the advantages of both approaches. This places study participants in context and allows researchers to elicit the interpretations, practices, and experiences of those participants within the contexts. Based on a refugee maternal health study that involved the go-along method in the United States, we reflect on the specific research questions that this approach can help answer, the advantages and limitations of employing this methodological approach and delineate the process of conducting the go-along. The go-along method has numerous benefits in studying refugee health. It can assist in identifying the needs and challenges of people with limited language skills or low educational levels, as well as providing a more nuanced understanding of life skills and language proficiency. It can aid in the observation of interactions between study participants and people around them and provide more detailed information based on spatial cues. It can assist researchers in observing how services are delivered on the ground. More importantly, it can facilitate researchers' vicarious experiences for those who may struggle in their lives. In doing so, it can facilitate contextualized understanding of refugee and their experiences. Although this method has several limitations, such as being more time-consuming and labor-intensive compared to traditional sit-down interviews and being susceptible to external conditions, the go-along method has significant potential for exploring the health of refugees.</p>","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"23 ","pages":""},"PeriodicalIF":3.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12244025/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144609987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Participatory Health Research With Women From Refugee, Asylum-Seeker, and Migrant Backgrounds Living in High-Income Countries: A Scoping Review","authors":"Martha Vazquez Corona, Alya Hazfiarini, Cathy Vaughan, Karen Block, Meghan A. Bohren","doi":"10.1177/16094069231225371","DOIUrl":"https://doi.org/10.1177/16094069231225371","url":null,"abstract":"Participatory Health Research (PHR) has the potential to result in more equitable health interventions and impactful research outcomes, and is an increasingly used paradigm in migrant health research. In the context of intersecting systems of social disadvantage imposed on migrant and refugee women, PHR could offer an opportunity for researchers to challenge unequal power dynamics in academic research by co-creating knowledge to improve these women’s healthcare access and use. However, there is limited information about how PHR has been conducted with migrant women, including the extent of their involvement throughout the research process. This scoping review aimed to describe and summarize current evidence on the research approaches and methods that have been used in PHR with women of migrant and refugee backgrounds living in high-income countries, and the extent of community engagement in PHR with this population. We searched MEDLINE Ovid, CINHAL, Scopus, and Web of Science databases from 1 January 2012 to 31 December 2021 to identify qualitative, quantitative, and mixed method studies adopting a PHR approach with migrant women as participants. We included 91 studies from 12 countries. Health topics of included studies included: knowledge, screening and prevention of HPV, cervical and breast cancer, mental health, nutrition and physical activity, gender-based violence, and health promotion and education. The most common PHR approaches were Community-Based Participatory Research and participatory action research. Overall, community engagement was commonly reported in most stages of research; however, participatory engagement with migrant women was more often done by proxy through community organisations or agents, rather than women themselves. We argue that more rigorous reporting of community engagement is necessary to demonstrate PHR conducted with migrant women is following the principles of equity and inclusion in community-academic partnerships.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"7 5","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139455517","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kinan Aldamman, Dr. Frédérique Vallières, B. Gilmore
{"title":"Vignettes to Support Theory Refinement: Methodological Insights From a Realist Evaluation","authors":"Kinan Aldamman, Dr. Frédérique Vallières, B. Gilmore","doi":"10.1177/16094069231216607","DOIUrl":"https://doi.org/10.1177/16094069231216607","url":null,"abstract":"Realist evaluation methodology aims to understand social programmes by revealing what works, for whom, in what circumstances, and how and why. Realist evaluation starts with generating initial programme theories (IPTs), which are subsequently tested and refined systematically using a multi-methods approach. This article describes a case study of the utilisation of vignettes, or short hypothetical stories, as part of the teacher-learner cycles recommended within realist evaluation. First, we explore the methodological alignment between vignettes and realist evaluation. We then present a specific case example of the application of vignettes as a data collection tool and discuss the potential advantages and the challenges of using vignettes within realist evaluation. Finally, we offer recommendations for researchers who wish to employ vignettes as a powerful instrument that can be used to better explain IPTs to participants and, in turn, enrich their participation in theory refinement within the realist evaluation framework.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"44 17","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139456166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Arts-Based Approaches to Priority Setting: Current Applications and Future Possibilities","authors":"M. Archibald, Sharifat Makinde, Nicole Tongo","doi":"10.1177/16094069231223926","DOIUrl":"https://doi.org/10.1177/16094069231223926","url":null,"abstract":"Background: Arts-based research methods and priority setting research both reflect growing commitments towards public and participant involvement in research activities. This has contributed to a growth of these respective methods across research disciplines and sectors, but their intersection has not been explored. Methods: We conducted a scoping review to map the state-of-the-science of arts-based approaches within priority setting research. We conducted an open search of three databases, conducted reference list mining, and hand-searched two journals to identify relevant articles. Of 5457 records retrieved, 11 met our pre-established inclusion criteria and were included in the review. Data were extracted using Microsoft Excel to produce narrative and descriptive summaries. Findings: All articles had some degree of health focus. Areas of priority setting centered on chronic illness, hard to reach populations, cancer survivorship, dental reform, and youth. In terms of artistic approaches, the majority of the articles included visual methods, with some articles utilizing multiple art approaches such as music, drawing, and filmmaking. Qualitative methods were used in all articles alongside the arts-based approaches, encompassing techniques such as interviews, discussions, and storytelling. Priority setting activites were mainly facilitated in group settings. The suggested benefits of arts-based approaches included enhancing participant communication, improving accessible research dissemination, and encouraging dialogues on identified health concerns. Challenges with using arts-based approaches included limitations on time and resources. Conclusion: Arts-based approaches to priority setting is an expanding field, with clear applications across various research contexts and priority focal areas. Further attention to the integration of arts-based approaches within priority setting, their theoretical underpinnings, and concurrent development and evaluation of arts-based priority setting methods are warranted.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"79 11","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139458276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melina Michelen, Madeleine Phan, Arianna Zimmer, Natalie Coury, Brittany Morey, Gloria Montiel Hernandez, Patricia Cantero, Salvador Zarate, Mary Anne Foo, Sora Tanjasiri, John Billimek, Alana M W LeBrón
{"title":"Practical qualitative data analysis for public health research: a guide to a team-based approach with flexible coding.","authors":"Melina Michelen, Madeleine Phan, Arianna Zimmer, Natalie Coury, Brittany Morey, Gloria Montiel Hernandez, Patricia Cantero, Salvador Zarate, Mary Anne Foo, Sora Tanjasiri, John Billimek, Alana M W LeBrón","doi":"10.1177/16094069241289279","DOIUrl":"https://doi.org/10.1177/16094069241289279","url":null,"abstract":"<p><p>Qualitative research is important to advance health equity as it offers nuanced insights into structural determinants of health inequities, amplifies the voices of communities directly affected by health inequities, and informs community-based interventions. The scale and frequency of public health crises have accelerated in recent years (e.g., pandemic, environmental disasters, climate change). The field of public health research and practice would benefit from timely and time-sensitive qualitative inquiries for which a practical approach to qualitative data analysis (QDA) is needed. One useful QDA approach stemming from sociology is flexible coding. We discuss our practical experience with a team-based approach using flexible coding for qualitative data analysis in public health, illustrating how this process can be applied to multiple research questions simultaneously or asynchronously. We share lessons from this case study, while acknowledging that flexible coding has broader applicability across disciplines. Flexible coding provides an approachable step-by-step process that enables collaboration among coders of varying levels of experience to analyze large datasets. It also serves as a valuable training tool for novice coders, something urgently needed in public health. The structuring enabled through flexible coding allows for prioritizing urgent research questions, while preparing large datasets to be revisited many times, facilitating secondary analysis. We further discuss the benefit of flexible coding for increasing the reliability of results through active engagement with the data and the production of multiple analytical outputs.</p>","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"23 ","pages":""},"PeriodicalIF":3.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12021444/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144042351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Investigating Interdisciplinarity and Transdisciplinarity: How Meta-Ethnography Contributes to the Study of Collaborative Research Practices","authors":"Bianca Vienni-Baptista","doi":"10.1177/16094069241226528","DOIUrl":"https://doi.org/10.1177/16094069241226528","url":null,"abstract":"Interdisciplinarity and transdisciplinarity are collaborative research modes that help advance science dealing with grand societal challenges. However, many factors still act as obstacles to high-impact research, showing disconnections between practices and policies. We can reasonably question whether we are still incapable of applying the correct methods to grasp interdisciplinary and transdisciplinary heterogeneity. This article aims to deepen the discussion of the methodological options for critically studying interdisciplinarity and transdisciplinarity. By applying meta-ethnography to the inter- and transdisciplinary academic literature, the paper inquires about the suitability of the method to study bodies of knowledge on interdisciplinarity and transdisciplinarity. Meta-ethnography is a seven-phase literature review type of meta-synthesis aimed at creating new understandings and theories from a body of work. Applying an autoethnographic approach, I show how meta-ethnography allows for the reconceptualisation of a disparate and dispersed body of literature, advancing current discussions on inter- and transdisciplinarity and their roles in science and policy. The approach outlined in the article is innovative because it contributes to two related realms: (i) it helps advance the field of inter- and transdisciplinary research and policy because it refines the methods available to study these multidimensional practices, and (ii) it offers an example of the further adaptability of meta-ethnography to new topics, such as the investigation of collaborative settings. I analyse six challenges in light of the scientific literature and conclude by focusing on the value meta-ethnography has for studying interdisciplinary and transdisciplinary research and propose two methodological innovations.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" 1161","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139391705","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“Navigating the In-Between: A Cross-Cultural Researcher’s Fluid Positionality in West Africa”","authors":"N. Niati","doi":"10.1177/16094069231200335","DOIUrl":"https://doi.org/10.1177/16094069231200335","url":null,"abstract":"This article explores the challenges and complexities of a cross cultural PhD student conducting research in West Africa. I discuss how I navigated, negotiated and blurred my insider/outsider experiences as a Congolese-American woman as I engaged with themes oscillating between power, legitimacy, language, gender, and my decolonial and social justice commitments. Reflexive research on Africans studying a secondary non-native African country is seldom discussed or researched. As such, I utilised an intersectional transnegritude theoretical framework to centre and complicate the shared transcolonial struggles and neocolonial realities of myself and my participants. I conclude by positing that, despite the challenges of doing transnational work, reflexively recognising our positionality lends to a liberatory and critical transnational exchange that encourages new approaches to knowledge production for social justice. This article contributes to ongoing discussions of insider/outsider research, positionality, decolonising research, and comparative case study to articulate and dearticulate power dynamics in neocolonial contexts.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" 20","pages":""},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139392865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alana M W LeBrón, Melina Michelen, Brittany Morey, Gloria I Montiel Hernandez, Patricia Cantero, Salvador Zarate, Mary Anne Foo, Samantha Peralta, Jacqueline J Chow, Julia Mangione, Sora Tanjasiri, John Billimek
{"title":"Community Activation to TrAnsform Local sYSTems (CATALYST): A qualitative study protocol.","authors":"Alana M W LeBrón, Melina Michelen, Brittany Morey, Gloria I Montiel Hernandez, Patricia Cantero, Salvador Zarate, Mary Anne Foo, Samantha Peralta, Jacqueline J Chow, Julia Mangione, Sora Tanjasiri, John Billimek","doi":"10.1177/16094069241284217","DOIUrl":"https://doi.org/10.1177/16094069241284217","url":null,"abstract":"<p><p>Community Health Workers, promotores, and navigators (henceforth, CHWs) emerged as critical members of the public health workforce addressing social, economic, and health inequities worsened by the COVID-19 pandemic. While there is increasing appreciation for and utilization of CHW models, and recognition of the importance of tailoring and innovating these models during the pandemic, few studies have examined the processes of change by which CHW models operated during the COVID-19 pandemic, and factors that facilitated or constrained CHW health equity efforts. This protocol paper describes and reflects on the research methodology used in our qualitative study focused on CHWs. The CATALYST study aims to examine the roles that CHWs served during the COVID-19 pandemic and facilitators and barriers related to CHW health equity strategies. This qualitative study incorporates the lived experiences of CHWs, low-income communities of color whom CHWs engaged, and institutional representatives and policymakers familiar with locally implemented CHW models during the pandemic. Through a community-based participatory research process, this study involves an abductive qualitative approach to data collection and analysis. We integrate community member expertise alongside CHW and health equity frameworks in designing the research questions and data collection process. Additionally, we use an analytic approach that combines inductive (drawn from qualitative data) and deductive codes (drawn from theoretical frameworks and practice-based evidence integrated through a participatory research process) and nimbly leverages flexible coding to address inductive themes and practice-based questions. Our collaborative process offers concrete strategies to develop qualitative research protocols with community partners, with evidence used to inform policy, programmatic, and relational changes to support and amplify CHW models to promote community health and health equity.</p>","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"23 ","pages":""},"PeriodicalIF":3.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12021445/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}