Scandinavian Journal of Caring Sciences最新文献

{"title":"Multidimensional Factors Are Related to Caregiver Burden: Findings From a National Experience Sampling Survey.","authors":"Samantha B Randolph, SangJin Lee, Stephen Lau, Jessica Kersey, Lisa Tabor Connor","doi":"10.1111/scs.70200","DOIUrl":"10.1111/scs.70200","url":null,"abstract":"<p><strong>Purpose: </strong>Paid and informal caregivers experience negative well-being outcomes. The present study aimed to: (1) examine the fluctuation of caregivers' emotions and daily physical health concerns, (2) identify factors associated with everyday fluctuations in positive emotions, negative emotions and daily health concerns to inform future supports.</p><p><strong>Materials and methods: </strong>Researchers conducted a secondary analysis of the Midlife in the United States (MIDUS) Daily Diary dataset. Baseline and intensive longitudinal factors of 392 adults performing caregiving activities were included in the analysis. Guided by the Multidimensional Model of Caregiving, researchers built multilevel models to examine factors that relate to the daily emotional and physical health of caregivers.</p><p><strong>Results: </strong>Emotions and health concerns fluctuated throughout the study period. Model fit varied, with the negative emotions and daily health models demonstrating stronger performance than the positive emotions model. Negative emotions were related to income, hours spent caregiving, self-esteem and emotional support. Positive emotions were related to income, caregiver stressors and self-esteem. Caregiver daily health concerns were related to marital status, self-esteem, leisure activities and emotional support.</p><p><strong>Conclusions: </strong>Caregiver well-being is associated with individual, socioemotional and environmental factors. Support groups and cognitive behavioural interventions may mitigate the impact of caregiver stressors on well-being.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70200"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12880964/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146133049","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Journey From Being in a Mental Prison to Disclosure and Freedom: Experiences of Male Child Sexual Abuse Survivors.","authors":"Sigrun Sigurdardottir, Karen Birna Thorvaldsdottir, Sigridur Halldorsdottir","doi":"10.1111/scs.70184","DOIUrl":"10.1111/scs.70184","url":null,"abstract":"<p><strong>Background: </strong>Childhood sexual abuse (CSA) has enduring effects on survivors' long-term physical, mental and social health, but is a neglected field within nursing. Research indicates that nurses are often underprepared for meeting survivors and may unwittingly contribute to their feelings of re-shaming.</p><p><strong>Methods: </strong>Through 14 in-depth interviews, this phenomenological study explored the experiences of seven Icelandic male CSA survivors, aged 30 to 55, all of whom had endured repeated childhood sexual violence.</p><p><strong>Findings: </strong>The survivors experienced complex trauma in their childhood because of the sexual violence. They suffered in silence and could not even express their horrible experience to themselves. The perpetrators identified their weak points as children and played on them, using their young age. They were left with lingering shame and guilt, self-identity confusion, low self-worth and disconnection with themselves and others. They tried various ways to escape their inner pain. They were never asked screening questions for CSA, experienced a complete lack of trauma-informed support and felt that nobody knew how to help male CSA survivors. They all reached a breaking point and disclosed the violence, which was a turning point in their recovery and healing; they felt that they had been in a mental prison, and the disclosure set them free. Even if disclosure sometimes had destructive consequences, they began reconnecting with themselves and others, particularly fellow survivors, who understood them best. They all emphasised that recovery and healing are a constant, long-term process and called for screening questions for CSA and trauma-focused care.</p><p><strong>Conclusions: </strong>Nurses have been calling for not just education and training specific to CSA, but also clinical supervision and guidelines to enhance their preparedness. Hopefully, the findings deepen nurses' understanding of CSA, its disclosure and the role they and other healthcare professionals can play in the recovery and healing of male survivors.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70184"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences and Expectations of Hospitalised Patients Undergoing Negative Pressure Wound Therapy With Instillation: A Qualitative Study.","authors":"Annabel Nanninga, Heleen Westland, Ricardo G Orsini, Marja A Boermeester, Anne M Eskes, Hannah Groenen","doi":"10.1111/scs.70203","DOIUrl":"10.1111/scs.70203","url":null,"abstract":"<p><strong>Aims and objectives: </strong>Negative pressure wound therapy with instillation is increasingly used to treat various wounds. However, there is limited information about its impact on patient experiences. This study aims to explore the experiences of hospitalised patients undergoing negative pressure wound therapy with instillation for different types of wounds and to explore their expectations regarding continuing treatment at home.</p><p><strong>Methodological design and justification: </strong>We conducted a qualitative study using semi-structured interviews. 12 patients treated with negative pressure wound therapy with instillation across various hospitals in the Netherlands were interviewed between January 2024 and June 2024. Data were analysed using Braun and Clarke's reflexive thematic analysis.</p><p><strong>Ethical issues and approval: </strong>This study was deemed not subject to the Medical Research Involving Human Subjects Act (WMO), as confirmed by a non-WMO declaration from the ethics committee. All participants provided informed consent prior to the interview.</p><p><strong>Results: </strong>Seven themes were generated from the data: feeling prepared for negative pressure wound therapy with instillation, gaining trust and hope because of wound healing, having trust in the expertise of nurses, facing fear and dread during negative pressure wound therapy with instillation, dealing with sleep disturbance, having difficulties with daily living activities, and worrying about undergoing negative pressure wound therapy with instillation at home. Although patients initially faced uncertainties, improved wound healing builds trust in the treatment.</p><p><strong>Conclusion: </strong>Negative pressure wound therapy with instillation significantly impacts patients' physical and emotional well-being. Patients felt more prepared and confident when provided with detailed explanations about the device and what to expect during treatment. Nurses' unfamiliarity with the treatment further diminished patient trust. For optimal patient care, patients require adequate preparation and support from well-trained nurses to manage the physical and emotional impact of negative pressure wound therapy with instillation, in both hospital and home settings.</p><p><strong>Reporting method: </strong>Adheres to the Reflexive Thematic Analysis Reporting Guidelines.</p><p><strong>Patient or public contribution: </strong>Patients were involved in the study through interviews.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70203"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12895139/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patients' Experiences and Unmet Needs in Atrial Fibrillation: Implications for Person-Centred Care.","authors":"Ana Mónica Machado, Ana Sofia Ferraz, Fernanda Leite, M Graça Pereira","doi":"10.1111/scs.70211","DOIUrl":"10.1111/scs.70211","url":null,"abstract":"<p><strong>Background: </strong>Atrial fibrillation is a common cardiac arrhythmia that significantly impacts patients' daily lives. While clinical management is well established, and despite growing interest in patient-centred care, the perception and emotional response of patients with AF remain less explored.</p><p><strong>Objective: </strong>This study aimed to explore the experiences and perceived needs of patients with atrial fibrillation.</p><p><strong>Methods: </strong>A qualitative descriptive design was employed. Twenty adult patients diagnosed with AF and no cognitive impairment were recruited from a public hospital in northern Portugal. Semi-structured interviews were conducted, audio-recorded, transcribed verbatim and analysed using thematic content analysis supported by NVivo software. Themes were developed inductively and refined through iterative coding and discussion.</p><p><strong>Results: </strong>Five main themes were identified: (1) Dealing with a New Normal; (2) Embracing the Illness Journey; (3) Walking the Illness Journey; (4) Unmet Healthcare Needs, and (5) Improving Supportive Services.</p><p><strong>Conclusion: </strong>Patients with atrial fibrillation face challenges that extend beyond symptom management. Findings underscore the importance of integrated, theory-informed, patient-centred approaches to support individuals living with atrial fibrillation across diverse contexts.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70211"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12948740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147318710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Correlation Between Stress of Conscience and Burnout Among Health Care Personnel at an Acute Care Hospital in Southern Sweden: A Cross-Sectional Study.","authors":"Mia Ekstrand, Anna Ekwall, Susann Porter","doi":"10.1111/scs.70175","DOIUrl":"10.1111/scs.70175","url":null,"abstract":"<p><strong>Introduction: </strong>Turnover rates among health-care personnel are rising, which could jeopardise patient safety and the quality of care. One contributing factor to the high turnover is the prevalence of mental distress. Stress of conscience among healthcare personnel has been shown to affect them negatively, and feeling that they cannot provide the care their patients need increases their stress levels. Therefore, an increased understanding of stress of conscience, its relation to burnout and its consequences for healthcare can improve hospital care for both patients and staff.</p><p><strong>Aim: </strong>This study aimed to investigate the correlation between stress of conscience and burnout among health care personnel at an acute care hospital in southern Sweden.</p><p><strong>Ethical issues and approval: </strong>This study was approved by the Swedish Ethical Review Authority and followed the guidelines of the Declaration of Helsinki.</p><p><strong>Methods: </strong>The study used a descriptive cross-sectional design. A total of 167 healthcare personnel at an acute care hospital in southern Sweden completed a questionnaire based on the Stress of Conscience Instrument and Oldenburg Inventory Burnout Instrument.</p><p><strong>Results: </strong>There was a positive correlation between the stress of conscience and burnout (p = 0.01, Spearman's rank correlation coefficient = 0.559). The results showed a statistically significant correlation between 'living situation' and stress of conscience, showing higher stress of conscience in groups living alone than in those living with a partner. The analysis also revealed a statistical significance between 'working schedule' and burnout, particularly in the groups working daytime and working shifts.</p><p><strong>Conclusion: </strong>Stress of conscience is positively correlated with burnout among healthcare professionals. Shift workers were more likely to experience burnout, and HCP living alone reported higher levels of stress of conscience. These findings highlight the combined impact of personal and organisational factors, underscoring the need for interventions that address both domains to reduce burnout and support workforce wellbeing.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70175"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12789288/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145946375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Multi-Component Intervention to Support Newly Graduated Nurses in Their Transition Into a Professional Role: A Feasibility Study.","authors":"Manja Bjerring Rothenberg, Merete Gregersen, Connie Berthelsen, Louise Bang Grode","doi":"10.1111/scs.70193","DOIUrl":"10.1111/scs.70193","url":null,"abstract":"<p><strong>Background: </strong>Transitioning from student to newly graduated nurse is challenging, often leading to anxiety, high turnover, and even attrition from the profession. This exacerbates the nurse shortage and compromises health quality. Transition programmes tailored to support newly graduated nurses are essential. The aim was to assess the feasibility of a 2-year transition programme for newly graduated nurses employed at a medical ward, evaluating programme acceptability, demand, implementation, practicality, integration and limited efficacy.</p><p><strong>Method: </strong>A feasibility study using triangulation. Data were collected using qualitative semi-structured interviews and registration data collected via a survey. The interviews with newly graduated nurses and providers were conducted between May and August 2023. Interview data were analysed using directed content analysis. The transition programme, developed in 2018, includes elements such as supervision, rotation in outpatient clinics, visiting the nurses in the municipality, followership, skills training and simulation. Of the 23 nurses who provided registration data, 11 were interviewed, along with 12 providers.</p><p><strong>Results: </strong>The newly graduated nurses completed 84% of the programme elements planned, with cancellation primarily due to sick leave or time constraints. Participants generally perceived the transition programme as acceptable and suitable for newly graduated nurses and providers. The 4-week rotation in outpatient clinics for patients with gastroenterological and pulmonary diseases, supervision, and visits to the municipality were considered satisfactory. Dissatisfaction appeared when the newly graduated nurses' expectations about planned conversations and followership were unmet. Preceptor presence was crucial for integrating the programme into the daily routine and heightening the nurses' job satisfaction. The 2-year timeframe accommodates the multi-component nature of the programme across two specialties.</p><p><strong>Conclusion: </strong>A 2-year transition programme is feasible in a complex setting such as a medical hospital ward, supporting newly graduated nurses' transition into practice and enhancing their confidence.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70193"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12887357/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146100877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Determinants of Caregiver Burden: A Comparative Study on Caregiver Burden Among Individuals Providing Care to Physically and Mentally Disabled Individuals.","authors":"Sare Aydın, Sedat Batmaz","doi":"10.1111/scs.70197","DOIUrl":"10.1111/scs.70197","url":null,"abstract":"<p><strong>Objective: </strong>Caregiving for individuals with disabilities significantly affects caregivers' physical, emotional and social well-being. This study investigates whether caregiver burden differs between caregivers of individuals with physical versus mental/psychological disabilities, considering disability severity and further evaluates the impact of general psychological symptom levels and separation anxiety on caregiver burden.</p><p><strong>Methods: </strong>The study included 121 volunteer participants aged 18 and above, who provided care to individuals with a disability level of 40% or higher, either physical or mental/psychological. Data collection involved a sociodemographic and clinical data form, the Depression, Anxiety and Stress Scale-Short Form (DASS-21), the Zarit Burden Care Scale (ZBCS) and the Adult Separation Anxiety Questionnaire (ASA). Statistical analyses were conducted using independent sample t-test and hierarchical linear regression analysis.</p><p><strong>Results: </strong>Caregivers of physically disabled individuals reported significantly higher depression, stress and separation anxiety scores than those caring for mentally/psychologically disabled individuals (p < 0.05). Higher disability severity (≥ 80%) was associated with greater psychological symptoms and caregiver burden (p < 0.05). Regression analysis showed that general psychological symptoms predicted higher burden, while separation anxiety predicted lower burden (p < 0.05).</p><p><strong>Conclusions: </strong>Caregiver burden is influenced not only by disability type and severity but also by psychological factors of the caregiver, such as general symptom levels and separation anxiety. The findings emphasise the importance of addressing caregivers' emotional needs through targeted psychosocial interventions. Incorporating caregiver-focused support into health and social care policies may help reduce burden, improve psychological well-being and ultimately strengthen the quality of care provided.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70197"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146126716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cross-Cultural Adaptation of the EPICC Spiritual Care Education Standard Into European Portuguese.","authors":"Sara Sitefane, Ana Afonso, Willyane De Andrade Alvarenga, Wilfred Mcsherry, Linda Ross, Josephine Attard, Isabel Rabiais, Sílvia Caldeira","doi":"10.1111/scs.70181","DOIUrl":"10.1111/scs.70181","url":null,"abstract":"<p><strong>Background: </strong>Spiritual care is a dynamic and multifaceted concept. The EPICC project, launched to improve nurses' competence in spiritual care through innovative education, supports this approach. The EPICC framework includes several tools and resources with the Spiritual Care Education Standard as the core tool.</p><p><strong>Aim: </strong>Translation, validation and cross-cultural adaptation of the EPICC Spiritual Care Education Standard into European Portuguese language and culture.</p><p><strong>Methods: </strong>Validation study using the Cross-Cultural Adaptation method. This method involves a six-step framework: translation, synthesis, back-translation, review by the expert panel (n = 6), pre-testing, and concluding with the submission and approval of all documents by the original instrument authors and the expert panel. EQUATOR checklist: GRRAS.</p><p><strong>Ethical issues and approval: </strong>Doctoral research project (approved by the Ethics Committee on 19 July 2023).</p><p><strong>Results: </strong>The data were collected between November 2023 and April 2024 and showed 100% agreement and a Content Validity Index (CVI) of 1 for all items among experts. The pre-test, collected in May 2024, with 39 nursing students showed 90% agreement and minimal response variability among the items.</p><p><strong>Conclusions: </strong>The study successfully adapted the EPICC Spiritual Care Education Standard to European Portuguese, highlighting the need for ongoing investment in spiritual care education in nursing curricula.</p><p><strong>Implications: </strong>This study highlights the importance of students' spiritual care competencies in nursing education and practice, emphasising their integration into curricula and the ongoing relevance of healthcare policy in supporting this dimension of holistic care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70181"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12895138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advance Care Planning Among People With Dementia in the Netherlands: Insights From an Exploratory Survey of Health Care Professional Perspectives.","authors":"Lise Lutgarde Vandaele, Denise Abbel, D G Burghoorn, M M H Strating, M E A van Eersel, P G de Graeff, K M Vermeulen, B C van Munster","doi":"10.1111/scs.70224","DOIUrl":"10.1111/scs.70224","url":null,"abstract":"<p><strong>Background: </strong>Advance care planning (ACP) for patients with dementia has gained increasing attention in recent years, recognizing the importance of aligning future care with the values and preferences of patients with progressive cognitive decline. Health care professionals (HCPs) play an important role in facilitating ACP. However, little is known about the day-to-day implementation of ACP in this group.</p><p><strong>Aim: </strong>This study therefore aims to gain insights into how HCPs experience discussing frequency, importance, and difficulty of ACP topics with patients with dementia. Additionally, we investigated the determinants of frequency, importance, and difficulty of discussing ACP topics.</p><p><strong>Methods: </strong>A cross-sectional survey study, where HCPs involved in dementia care in the Netherlands were invited for an online survey. A survey covering 11 topics related to ACP, in which HCPs indicate the importance, frequency, and difficulty of each topic. The survey invitation was sent to hospitals, nursing homes, and dementia care networks by email, flyers at care facilities with QR code, and social media. Data were collected between May 2022 and July 2022.</p><p><strong>Results: </strong>In total, 189 HCPs competed the surveys (median 48 years, range: 19-70). The majority of respondents were female (91.0%), had a high educational level (63.5%), and worked parttime (68.3%). Older HCPs experienced more difficulty discussing ACP topics. HCPs scored almost all ACP topics as high importance. Preferred place of death and organ donation were the least discussed topics and were also considered less important than other topics (e.g., quality of life factors). The mean scores of perceived importance of all topics were higher than perceived frequency.</p><p><strong>Conclusions: </strong>HCPs assigned a high level of importance to almost all ACP topics and a low level of difficulty. Training for older HCPs and the utilization of tools/intervention in standard care could improve care or experiences of ACP.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70224"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13009312/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147505196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"We Learned by Hitting the Wall\" Experiences of Parents With A Child With Hydrocephalus: A Qualitative Research.","authors":"Mustafa Volkan Düzgün, Büşra Nur Temür, Ayşegül Işler","doi":"10.1111/scs.70213","DOIUrl":"10.1111/scs.70213","url":null,"abstract":"<p><strong>Aim: </strong>The study aimed to explore and understand the feelings, thoughts, and experiences of parents of children with hydrocephalus.</p><p><strong>Design: </strong>This study used a descriptive phenomenological qualitative approach.</p><p><strong>Method: </strong>Data were collected through semi-structured individual interviews with 10 parents of children with hydrocephalus between July 2022 and January 2023. Thematic analysis was performed using Colaizzi's seven-step method.</p><p><strong>Results: </strong>In the analysis of the data, two main themes emerged as a result of the interviews obtained from the parents. The first main theme was Emotional and Psychological Struggles. Three sub-themes formed this theme. These were Emotional Reactions and Future Concerns, Torn Between Children and Access Barriers, and Psychological Impact. The other theme was Coping and Meaning-Making Process. This theme was divided into four sub-themes. These sub-themes were: Support Systems, Learning and Understanding the Diagnosis, Acceptance and Spiritual Meaning-Making, and Personal Growth and Maturity.</p><p><strong>Conclusions: </strong>The study focused on the emotional and psychological struggles, as well as the coping and meaning-making processes of parents of children with hydrocephalus. Exploring caregivers' experiences and the emotional, social, and cognitive dimensions of their journey can help inform more comprehensive and compassionate support mechanisms for families.</p><p><strong>Implications for the profession and/or patient care: </strong>The findings show the difficulties parents face and reveal their feelings in depth. The training and counselling that can be prepared according to these results will enable parents and children to receive care under better conditions. In addition, these results may also provide data for interventional studies to be planned in the future.</p><p><strong>Impact: </strong>Empowering parents to care for a child with hydrocephalus is a neglected issue. Understanding parents' feelings and thoughts in depth can help us better assist them in coping with their challenges. Getting support and information makes it easier for parents to cope.</p><p><strong>Reporting method: </strong>The Consolidated Criteria for Reporting Qualitative Research checklist was used.</p><p><strong>Patient or public contribution: </strong>No patient or public contribution.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 1","pages":"e70213"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147379182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}