Informal caregivers' experiences of support from a tailored primary healthcare unit for older adults – A focus group study

IF 1.9 4区 医学 Q2 NURSING
Ulrika Westerling, Mikko Hellgren, Liselotte Hermansson, Emma Nilsing Strid
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引用次数: 0

Abstract

BackgroundInformal caregivers are an essential part of health and social care systems worldwide. As such, they may need professional support.AimThe aim of this study was to describe informal caregivers’ experiences and need for support from a tailored primary health care (PHC) unit.MethodsThis is a qualitative descriptive study using data collected from five semi‐structured focus group discussions with a purposeful sample of 16 informal caregivers of older relatives. Respondents were recruited from a tailored PHC unit for people aged 75 years or older in a region in central Sweden. The data were analysed by qualitative content analysis with an abductive approach, based on the principles of the patient‐ and family‐centred care framework.ResultsThe overarching theme was ‘Striving for partnership’. The findings indicate that informal caregivers to some extent felt supported by the healthcare professionals. However, the caregivers expressed a need to be further acknowledged by the professionals in order to participate in the care of their older relatives in the way they wanted. Moreover, insufficient information regarding the older adult's health condition and care provided by the professionals had a negative impact on the caregiver's participation in care.ConclusionsInformal caregivers have unmet needs for support and strive for a partnership with the PHC professionals. PHC professionals should be more attentive and invite informal caregivers to participate in the care of the older adult in order to meet their support needs and build an equal partnership. The patient‐ and family‐centred care framework may be of guidance when providing care for older adults in a PHC context.
非正规护理人员从为老年人量身定制的初级保健单位获得支持的经验--焦点小组研究
背景非正式护理人员是全球医疗和社会护理系统的重要组成部分。本研究的目的是描述非正规护理人员的经历以及他们对定制初级卫生保健(PHC)机构提供的支持的需求。方法这是一项定性描述研究,通过五次半结构化焦点小组讨论收集数据,并有针对性地抽样调查了 16 名老年亲属的非正规护理人员。受访者来自瑞典中部一个地区为 75 岁或以上老年人量身定制的初级保健单位。根据以患者和家庭为中心的护理框架原则,采用归纳法对数据进行了定性内容分析。研究结果表明,非正式护理人员在一定程度上感受到了医护人员的支持。然而,护理人员表示需要得到专业人员的进一步认可,以便以他们希望的方式参与对老年亲属的护理。此外,有关老年人健康状况和专业人员提供的护理服务的信息不足也对护理者参与护理工作产生了负面影响。初级保健专业人员应更加关注并邀请非正规护理人员参与老年人的护理工作,以满足他们的支持需求并建立平等的伙伴关系。以病人和家庭为中心的护理框架可为在初级保健中为老年人提供护理提供指导。
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来源期刊
CiteScore
4.60
自引率
5.30%
发文量
71
期刊介绍: Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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