Rehabilitation Psychology最新文献

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Challenges and facilitators in the experience of caregiving for an older adult with traumatic brain injury: A longitudinal qualitative study in the first-year postinjury. 照顾脑外伤老年人的挑战和促进因素:受伤后第一年的纵向定性研究。
IF 1.9 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2024-01-25 DOI: 10.1037/rep0000531
Guillaume Souesme, Valérie Poulin, Agnès Ethier, Marianne Grenier, Marie-Josée Sirois, Simon Beaulieu-Bonneau, Élaine De Guise, Marie-Eve Lamontagne, Carol Hudon, Marcel Émond, Marie-Christine Ouellet
{"title":"Challenges and facilitators in the experience of caregiving for an older adult with traumatic brain injury: A longitudinal qualitative study in the first-year postinjury.","authors":"Guillaume Souesme, Valérie Poulin, Agnès Ethier, Marianne Grenier, Marie-Josée Sirois, Simon Beaulieu-Bonneau, Élaine De Guise, Marie-Eve Lamontagne, Carol Hudon, Marcel Émond, Marie-Christine Ouellet","doi":"10.1037/rep0000531","DOIUrl":"10.1037/rep0000531","url":null,"abstract":"<p><strong>Purpose: </strong>To obtain a better understanding of the factors which complicate or facilitate the adjustment of caregivers after traumatic brain injury (TBI) in older adults.</p><p><strong>Research method: </strong>At 4, 8, and 12 months post-TBI (mild to severe), 65 caregivers answered two open-ended questions regarding facilitators and challenges linked to the injury of their loved one. A thematic analysis was performed.</p><p><strong>Results: </strong>Participants mentioned almost as many facilitators as challenges at each time point. Among the facilitators, we found the following themes: receiving social support, having access to rehabilitation, improvement of the injured loved one's health condition, returning to live at home, having access to home services, feeling useful, effective communication, and having time for oneself. The challenges identified were: health issues in the injured loved one, psychological impact on the caregiver, assuming a new role, relationship strain, and decrease in activities and outings.</p><p><strong>Conclusions: </strong>During the first year following TBI in older adults, caregivers were able to identify several facilitators despite the presence of challenging factors, suggesting effective coping and resilience. This knowledge can guide potential caregivers in their adaptation after TBI in an older adult, and we propose a simple tool to support this process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"227-238"},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139564877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Doing difference differently: Identity (re)constructions of adults with acquired disabilities. 与众不同:后天残疾成人的身份(再)建构。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2024-01-22 DOI: 10.1037/rep0000541
Shawni C B Botha, Clare Harvey
{"title":"Doing difference differently: Identity (re)constructions of adults with acquired disabilities.","authors":"Shawni C B Botha, Clare Harvey","doi":"10.1037/rep0000541","DOIUrl":"10.1037/rep0000541","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The acquisition of a disability impacts one's corporeality and has been found to destabilize one's sense of personal and social identity. The article explores the psychological and behavioral adaptation strategies that are employed in response to resisting, incorporating, and/or integrating disability into one's identity. We refer to a study that considered factors that facilitate and/or impede disability identification, aiming to investigate the trajectory that the process of identity (re)construction takes.</p><p><strong>Research method/design: </strong>Seven individual, in person, semistructured interviews were conducted with adults with acquired physical and sensory disabilities. Data underwent thematic analysis. To encapsulate the intrapersonal as well as interpersonal dynamics inherent in identity (re)construction, the analysis was guided by an interpretative phenomenological lens and social identity theory (SIT).</p><p><strong>Results: </strong>Disability identification is a complex and contradictory phenomenon, with strategies of resistance, incorporation, and/or integration fluctuating by setting and circumstance. These findings represent a significant departure from SIT literature-participants rather made use of more collectivist as opposed to individualistic adaptation strategies. Arguably, progress is being made with regard to disability pride, opening up a space for more positive and affirming disabled identities. Furthermore, disability identification is largely facilitated by greater opportunities for political advocacy and social support-online and in the disabled community. However, stigma-internalized and external-is still a major inhibitory factor to disability identification.</p><p><strong>Conclusions/implications: </strong>Recommendations for rehabilitation programs and psychological professionals working with acquired physical and sensory disability are proposed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"280-289"},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Facilitators to alleviate loneliness and social isolation as identified by individuals with spinal cord injuries and disorders: A qualitative study. 脊髓损伤和失调患者认为缓解孤独和社会隔离的促进因素:一项定性研究。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2024-01-25 DOI: 10.1037/rep0000540
Sherri L LaVela, Robert W Motl, Kelsey Berryman, Marissa Wirth, Brian Bartle, Keith Aguina, Pooja Solanki, Charles H Bombardier
{"title":"Facilitators to alleviate loneliness and social isolation as identified by individuals with spinal cord injuries and disorders: A qualitative study.","authors":"Sherri L LaVela, Robert W Motl, Kelsey Berryman, Marissa Wirth, Brian Bartle, Keith Aguina, Pooja Solanki, Charles H Bombardier","doi":"10.1037/rep0000540","DOIUrl":"10.1037/rep0000540","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Individuals with spinal cord injuries and disorders (SCI/D) are at increased risk for experiencing loneliness and social isolation. The aim is to describe facilitators identified by individuals living with SCI/D to alleviate loneliness and perceived social isolation.</p><p><strong>Research method/design: </strong>Descriptive qualitative design using in-depth interviews with veterans with SCI/D (<i>n</i> = 23). Descriptive statistics was used to calculate demographic and injury characteristics. Audio-recorded and transcribed verbatim transcripts were coded and analyzed using Braun and Clarke's (2006) six thematic analysis phases.</p><p><strong>Results: </strong>Participants were male (70%), white (78%), and not currently married (35%), with an average age of 66 years (42-88). Participants had paraplegia (61%), with traumatic etiology (65%) and were injured 14 years (1-45) on average. Eight themes were identified by participants living with SCI/D that described facilitators to alleviate loneliness and perceived social isolation. (a) Engage in/pursue interests; (b) Interact with/spend time with others; (c) Embrace acceptance; (d) Take part in reciprocity; (e) Find a purpose/accomplish goals; (f) Get out of residence, get outside; (g) Connect with SCI/D community/SCI/D peers; and (h) Seek help from (mental) healthcare professionals.</p><p><strong>Conclusions/implications: </strong>Individuals with SCI/D identified facilitators to alleviate loneliness that encompasses changes in ways of thinking, actions to expand participation in life, and efforts focused on involving others. Findings can be used to guide healthcare delivery and develop interventions to target feelings of loneliness and social isolation in persons with SCI/D, which may be particularly impactful if they involve reciprocal interactions with peers with SCI/D. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"264-274"},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11269529/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139564917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adding some "Cs": Expanding positive youth development to include disability and identity. 增加一些 "C":扩展积极的青年发展,将残疾和身份认同纳入其中。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2023-07-27 DOI: 10.1037/rep0000513
Emily H Kuhlmann, Megan Foley-Nicpon, Duhita Mahatmya
{"title":"Adding some \"Cs\": Expanding positive youth development to include disability and identity.","authors":"Emily H Kuhlmann, Megan Foley-Nicpon, Duhita Mahatmya","doi":"10.1037/rep0000513","DOIUrl":"10.1037/rep0000513","url":null,"abstract":"<p><strong>Background: </strong>Although numbers of youth with disabilities (YWD) are increasing, this population continues to be poorly represented in psychological and developmental research. There is a demonstrated need to better understand identity development in YWD.</p><p><strong>Objective: </strong>The purpose of this review was to determine the applicability of a contemporary developmental model, positive youth development (PYD), for YWD. PYD describes six \"Cs\" that contribute to thriving in youth: competence, confidence, connection, character, caring/compassion, and contribution. We explored which \"Cs\" contribute to identity development in YWD, what appears to be unique, and how PYD could be adapted to better include this population.</p><p><strong>Method: </strong>Through a qualitative metasynthesis, we explored how PYD emerged across the qualitative literature from psychology and related fields for YWD. We coded 18 qualitative articles according to the original definitions of the \"Cs\" of PYD and tracked emerging constructs across included studies.</p><p><strong>Results: </strong>Findings reveal evidence for four out of six of the original \"Cs\" in YWD. Two emerging \"Cs,\" coping and constraints, may be unique to this population.</p><p><strong>Conclusions: </strong>PYD may be applicable for YWD, but an expanded version may be more relevant to this group. The addition of newly defined \"Cs\" could contribute to a better understanding of positive development in YWD and other marginalized populations. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"290-300"},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10241489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mental health support after stroke: A qualitative exploration of lived experience. 脑卒中后的心理健康支持:生活经验的定性探索。
IF 1.9 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2023-11-02 DOI: 10.1037/rep0000527
Priscilla Tjokrowijoto, Ian Kneebone, Caroline Baker, Nadine E Andrew, Renerus J Stolwyk
{"title":"Mental health support after stroke: A qualitative exploration of lived experience.","authors":"Priscilla Tjokrowijoto, Ian Kneebone, Caroline Baker, Nadine E Andrew, Renerus J Stolwyk","doi":"10.1037/rep0000527","DOIUrl":"10.1037/rep0000527","url":null,"abstract":"<p><strong>Purpose: </strong>Unmanaged mental health problems following a stroke can be detrimental to recovery. We aimed to explore the lived experience of (a) poststroke mental health difficulties, (b) help-seeking for mental health, including factors that influenced treatment access and utilization, and (c) receiving treatment and support.</p><p><strong>Research method: </strong>Individual semistructured interviews were conducted in 2022 with 13 participants (62% female, age at stroke 35-76 years) who had experienced mental health difficulties following their stroke. Data were analyzed using reflexive thematic analysis with a critical realist approach.</p><p><strong>Results: </strong>Six themes were identified. Mental health challenges poststroke were diverse in nature. Attitudes and previous experiences relating to mental health influenced the inclination to seek help. Participants valued an individualized approach to the provision and timing of psychoeducation. Accessibility of services was impacted by financial and transportation barriers, as well as availability of services and appropriately trained clinicians. Participation in support groups was a positive experience for most participants. Lived experience of mental health treatment ranged from positive to negative, and participants conveyed helpful and unhelpful aspects.</p><p><strong>Conclusions: </strong>Findings highlight the importance of early screening and psychoeducation provision for poststroke mental health difficulties, alongside accessible community-based mental health support services throughout the stroke recovery journey. Having varied options for mental health support and treatment may aid stroke survivors in finding an approach that personally works for them. Additionally, it may be helpful to train clinicians to tailor mental health treatment to accommodate stroke-related impairments (e.g., cognitive, sensorimotor). (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"195-205"},"PeriodicalIF":1.9,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71427896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Moving from research to clinical care: Building therapist capacity to deliver the teen online problem-solving program for acquired brain injuries in adolescence. 从研究转向临床护理:提高治疗师的能力,以实施青少年在线问题解决计划,治疗青少年后天性脑损伤。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-08-01 Epub Date: 2024-01-25 DOI: 10.1037/rep0000537
Jamie Patronick, Julia Rabin, Brianna Maggard, Aayush M Dubey, Shari L Wade
{"title":"Moving from research to clinical care: Building therapist capacity to deliver the teen online problem-solving program for acquired brain injuries in adolescence.","authors":"Jamie Patronick, Julia Rabin, Brianna Maggard, Aayush M Dubey, Shari L Wade","doi":"10.1037/rep0000537","DOIUrl":"10.1037/rep0000537","url":null,"abstract":"<p><strong>Objective: </strong>To describe the training process for teen online problem solving (TOPS) for acquired brain injury (ABI) in adolescence. We evaluated feedback from training participants and therapists delivering the intervention to assess facilitators and barriers to adoption into clinical practice.</p><p><strong>Method: </strong>Therapist trainings took place between February 2020 and December 2021 and were primarily virtual due to the COVID-19 pandemic. We surveyed 190 trainees and 27 active therapists regarding their experiences with the training process and with delivering the intervention to families, respectively. Descriptive statistics were reported for Likert scale items. Open-ended survey responses were summarized using inductive thematic analysis by two independent coders, and themes were compared by profession.</p><p><strong>Results: </strong>The majority of trainees reported that they felt comfortable or very confident using the TOPS intervention with patients following the training. Trainees reported that they benefited from clinician-centered and applied training components. Active therapists identified facilitators to TOPS implementation including the family-based therapeutic approach, virtual format, and the broad generalizability of the problem-solving framework. Barriers to implementation included low family engagement, comorbid mental health or language difficulties, and external family stressors.</p><p><strong>Conclusions: </strong>The implementation process for TOPS highlights the importance of and challenges to the dissemination of psychosocial interventions. As pediatric ABI remains an underserved population within behavioral health, future implementation work should address barriers in integrating evidence-based therapies within clinical practice. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"217-226"},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139564921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Longitudinal health outcomes in caregivers of military members with traumatic brain injury. 脑外伤军人护理人员的纵向健康结果。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-05-01 Epub Date: 2023-12-21 DOI: 10.1037/rep0000522
Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange
{"title":"Longitudinal health outcomes in caregivers of military members with traumatic brain injury.","authors":"Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange","doi":"10.1037/rep0000522","DOIUrl":"10.1037/rep0000522","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine longitudinal change in health-related quality of life (HRQOL) in caregivers of service members/veterans with traumatic brain injury and factors associated with clinically elevated symptoms.</p><p><strong>Research method/design: </strong>Caregivers (<i>N</i> = 220) completed nine HRQOL outcome measures and 10 risk factor measures at a baseline evaluation and follow-up evaluation 3 years later. Caregiver's responses on the nine HRQOL outcome measures were classified into four clinical change categories based on the presence/absence of clinically elevated <i>T</i>-scores (≥ 60 T) at baseline and follow-up: (a) Persistent (baseline ≥ 60T + follow-up ≥ 60 T), (b) Developed (baseline < 60 T + follow-up ≥ 60 T), (c) Improved (baseline ≥ 60 T + follow-up < 60 T), and (d) Asymptomatic (baseline < 60 T + follow-up < 60 T). A clinical change composite score was calculated by summing the number of Persistent or Developed HRQOL outcome measures and used to create three clinical change groups: (a) No Symptoms (<i>n</i> = 69, zero measures), (b) Some Symptoms (<i>n</i> = 88, one to three measures), and (c) Numerous Symptoms (<i>n</i> = 63, four to nine measures).</p><p><strong>Results: </strong>Of the nine HRQOL outcome measures, Bodily Pain, Perceived Stress, Sleep-Related Impairment, and Fatigue were most frequently classified as Persistent or Developed from baseline to follow-up in the entire sample. A linear relationship was found between the vast majority of risk factors across the three clinical change groups at baseline and follow-up (Numerous > Some > None). The risk factors were correlated with the number of elevated HRQOL symptoms at baseline and follow-up. Most Asymptomatic or Persistent caregivers did not have meaningful change (≥ 1 SD) in HRQOL scores. A sizable proportion of Developed or Improved caregivers had either meaningful or no change in HRQOL scores.</p><p><strong>Conclusions/implications: </strong>There is a need for ongoing clinical services for military caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"135-144"},"PeriodicalIF":1.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A 5-year longitudinal structural equation model of social isolation and probable major depression among participants with spinal cord injury. 脊髓损伤参与者的社会隔离和可能的重度抑郁症的 5 年纵向结构方程模型。
IF 1.7 4区 医学
Rehabilitation Psychology Pub Date : 2024-05-01 Epub Date: 2024-03-21 DOI: 10.1037/rep0000533
Chao Li, Susan Newman, Jillian M R Clark, James S Krause
{"title":"A 5-year longitudinal structural equation model of social isolation and probable major depression among participants with spinal cord injury.","authors":"Chao Li, Susan Newman, Jillian M R Clark, James S Krause","doi":"10.1037/rep0000533","DOIUrl":"10.1037/rep0000533","url":null,"abstract":"<p><strong>Objective: </strong>To develop longitudinal structural models of social isolation and probable major depression (PMD) over a 5-year interval among participants with spinal cord injury (SCI).</p><p><strong>Design: </strong>Longitudinal structural equation modeling of self-report assessments collected during two follow-ups (2013 as Time 1, 2018 as Time 2) of a 45-year multicohort longitudinal study. Participants (<i>n</i> = 557) were identified from a specialty hospital in the Southeastern United States and two Midwestern hospitals and were initially enrolled in 1973-1974, 1984-1985, 1993-1994, or 2003-2004. PMD symptomology was measured by the Patient Health Questionnaire-9 (PHQ-9) and was defined by PHQ-9 scores ≥ 10. Social isolation was represented by two latent dimensions: social disconnectedness, objective component measured by activities, and perceived isolation, based on subjective appraisals. Structural equation modeling assessed the relationship among social disconnectedness and perceived isolation measured at Time 1 and PMD measured at Times 1 and 2.</p><p><strong>Results: </strong>Both social disconnectedness and perceived isolation, measured at Time 1, were significantly related with PMD measured at Time 1 (<i>r</i><sub>SD_Time 1 and PMD_Time 1</sub> = .49, <i>p</i> < .001; <i>r</i><sub>PI_Time 1 and PMD_Time 1</sub> = .66, <i>p</i> < .001) and Time 2 (<i>r</i><sub>SD_Time 1 and PMD_Time 2</sub> = .37, <i>p</i> < .001; <i>r</i><sub>PI_Time 1 and PMD_Time 2</sub> = .54, <i>p</i> < .001), indicating participants with greater perceived isolation and social disconnectedness were more likely to have greater likelihood of PMD, both cross-sectionally and longitudinally. Perceived isolation was more strongly related to PMD compared with social disconnectedness.</p><p><strong>Conclusion: </strong>Social isolation was associated with both current and future depression symptoms. People with more years post-SCI were less likely to have PMD. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"145-152"},"PeriodicalIF":1.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Anxiety in people with multiple sclerosis during the COVID-19 pandemic: A mixed-methods survey. COVID-19大流行期间多发性硬化症患者的焦虑:一项混合方法调查
IF 1.9 4区 医学
Rehabilitation Psychology Pub Date : 2024-05-01 Epub Date: 2023-11-13 DOI: 10.1037/rep0000528
Austin Fahy, Rebecca Maguire
{"title":"Anxiety in people with multiple sclerosis during the COVID-19 pandemic: A mixed-methods survey.","authors":"Austin Fahy, Rebecca Maguire","doi":"10.1037/rep0000528","DOIUrl":"10.1037/rep0000528","url":null,"abstract":"<p><strong>Objective: </strong>During the COVID-19 pandemic, anxiety in people with multiple sclerosis (PwMS) may have increased; however, little is known about the various factors which influenced this. We aimed to (a) identify the psychosocial modifiable associates of anxiety in PwMS in Ireland and the United Kingdom and (b) explore experiences of anxiety during the pandemic.</p><p><strong>Method: </strong>A cross-sectional survey was developed using public and patient involvement in 2021. This included measures of anxiety (Hospital Anxiety and Depression Scale [HADS-A]), social support (Multidimensional Scale of Perceived Social Support [MSPSS]), multiple sclerosis control self-efficacy (Multiple Sclerosis Self-Efficacy scale [MSSE]), exercise habits (Godin Leisure-Time Exercise Questionnaire [GLTEQ]), MS acceptance (Acceptance of Chronic Health Conditions scale [ACHC]), and intolerance of uncertainty (Intolerance of Uncertainty Scale-12 [IUS-12]), with open-ended questions asking about experiences of anxiety during COVID-19. A hierarchical regression analysis investigated the extent to which anxiety could be predicted by psychosocial modifiable factors after controlling for sociodemographic factors and multiple sclerosis (MS) type, while reflective thematic analysis was used to analyze open-ended responses.</p><p><strong>Results: </strong>287 PwMS completed the survey, with 58% reporting that their anxiety had increased during the pandemic. In order of magnitude, self-efficacy (β = -.41), intolerance of uncertainty (β = .35), social support (β = -.21), and exercise habits (β = .19) significantly predicted variance in HADS-A scores (<i>p</i> < .01). Themes describing sources of anxiety included personal health concerns, social concerns, and responsibilities/additional external burdens. In contrast, some PwMS reported that anxiety had decreased during COVID-19.</p><p><strong>Conclusions: </strong>While the generality of findings may be limited due to a predominately female sample of PwMS living in the United Kingdom and Ireland, results have the potential to inform the development of targeted interventions in rehabilitation psychology to reduce anxiety in this population. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"118-128"},"PeriodicalIF":1.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92156972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Harmonizing federal interagency traumatic brain injury research data to examine depression and suicide-related outcomes. 统一联邦机构间脑外伤研究数据,检查抑郁和自杀相关结果。
IF 1.9 4区 医学
Rehabilitation Psychology Pub Date : 2024-05-01 Epub Date: 2024-03-21 DOI: 10.1037/rep0000547
Maya E O'Neil, Danielle Krushnic, Kate Clauss, William Baker-Robinson, Sara Hannon, David C Cameron, Lawrence Cook, Meike Niederhausen, Josh Kaplan, Lisa A Brenner
{"title":"Harmonizing federal interagency traumatic brain injury research data to examine depression and suicide-related outcomes.","authors":"Maya E O'Neil, Danielle Krushnic, Kate Clauss, William Baker-Robinson, Sara Hannon, David C Cameron, Lawrence Cook, Meike Niederhausen, Josh Kaplan, Lisa A Brenner","doi":"10.1037/rep0000547","DOIUrl":"10.1037/rep0000547","url":null,"abstract":"<p><strong>Objective: </strong>This proof-of-concept study was conducted to establish the feasibility of compiling Federal Interagency Traumatic Brain Injury Research (FITBIR) data pertaining to depression and suicide risk, with the secondary goal of improving understanding regarding these outcomes. FITBIR is a national repository of participant-level traumatic brain injury (TBI) data designed to address methodological limitations (e.g., small sample size, heterogeneity of injuries).</p><p><strong>Method: </strong>FITBIR studies with TBI severity and measures related to depression and suicidal ideation were identified. Data were harmonized across relevant studies and grouped to identify \"probable depression\" and suicidal ideation, resulting in a large, combined sample. Rates of probable depression and suicidal ideation were described across the available studies, considering the influence of demographic and/or injury-related factors on outcomes.</p><p><strong>Results: </strong>Cross-sectional studies meeting criteria included four studies with depression outcomes and two with suicidal ideation outcomes. Two studies reported data appropriate for comparative analyses on depression. Combined results suggested that approximately 71% of participants were categorized as having probable depression. Participants with a history of mild TBI had 2.54 greater odds of probable depression (95% confidence interval [1.93, 3.34]) than those without a history of TBI.</p><p><strong>Conclusions: </strong>Methods, harmonization code, and meta-databases related to TBI, probable depression, and suicidal ideation are now publicly available on the FITBIR website. Even with limited data, harmonization of FITBIR studies can serve as the basis for ongoing TBI and mental health research. Analyses will be more robust in the future as more studies with relevant outcome data are added to the FITBIR database. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"159-170"},"PeriodicalIF":1.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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