Johannes Österholm , Anna Olaison , Annika Taghizadeh Larsson
{"title":"Age-appropriate elder care recipients? Care manager's categorisation practices in intraprofessional case conferences","authors":"Johannes Österholm , Anna Olaison , Annika Taghizadeh Larsson","doi":"10.1016/j.jaging.2024.101234","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101234","url":null,"abstract":"<div><p>Age categories are related to perceptions and norms concerning appropriate behaviour, appearances, expectations, and so forth. In Sweden, municipal home care and residential care are commonly referred to as “elder care”, primarily catering to individuals in their 80s or 90s. However, there is no set age limit reserving these services for an older age group.</p><p>In intra-professional case conferences, care managers convene with colleagues to discuss care needs and eligibility for elder care services. Despite their significance, these conferences have received limited scholarly attention. The aim of this study was to analyse how care managers categorise persons based on age in intra-professional case conferences when discussing care needs and appropriate support to meet these needs.</p><p>The study utilised data from 39 audio-recorded case conferences involving the discussion of 137 different cases, which were analysed using discourse analysis. Our findings showed that chronological age was frequently made relevant and applied in discussions about the appropriateness of usual elder care services.</p><p>Four themes emerged, representing how the care managers implicitly and explicitly categorised clients of different chronological ages as typical/normal or atypical/deviant in these discussions: the “too young”, the “not-so-old”, the “old”, and the “extraordinarily old”.</p><p>The findings contribute to research on ageing by demonstrating that, in an elder care context, being categorised as atypical/deviant (in terms of being younger) may be more beneficial than being seen as a normal or older elder care recipient. This underscores the importance of further research on the impact of informal age categorisations of clients on actual decisions about welfare services.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101234"},"PeriodicalIF":2.3,"publicationDate":"2024-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S089040652400029X/pdfft?md5=f9db462881f101fcb6fe6463f4742f49&pid=1-s2.0-S089040652400029X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140951363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Representation of older adults in Turkish newspaper reports during the COVID-19 pandemic","authors":"Simla Course, Fatma Şeyma Koç, Fatma Özlem Saka","doi":"10.1016/j.jaging.2024.101232","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101232","url":null,"abstract":"<div><p>This research investigates the representation of older adults in Turkish newspaper reports during the first national lockdown due to the COVID-19 pandemic in Turkey in order to understand the representation and reinforcement of ageism in this context. To this end, fifty newspaper reports from five top-selling Turkish newspapers at the time were selected randomly and analysed using critical discourse analysis for the text producers' linguistic choices in the representations of older adults. The findings show that the older adults were represented predominantly in relation to the lockdown measures and as members of a homogeneous group. They were mainly evaluated negatively as a vulnerable, passive, and at risk group who lacked truthfulness and exhibited unusual behaviour. They were also found to be not among the intended readers of the newspaper reports. This resulted in the infantilisation of older adults and the removal of their agency. Our findings point to the linguistic choices realising these discursive practices in the Turkish context. We argue that these findings follow a trend of representation of older adults in discursive practices and that these practices are instrumental in forming ageist stereotypes and reinforcing age-related bias.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101232"},"PeriodicalIF":2.3,"publicationDate":"2024-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140947380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘Possibilities and challenges for older couples to continue ageing in place’","authors":"Jenni Riekkola , Gunilla Isaksson , Margareta Lilja , Stina Rutberg","doi":"10.1016/j.jaging.2024.101229","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101229","url":null,"abstract":"<div><p>Ageing in place is an imminent concern for both older couples and communities. Identifying ways to support ageing in place is required to meet the needs and challenges of older couples and social services systems. Through focus groups with a total of 46 participants and a constant comparative methodology, this study aimed to explore and describe the experiences and reasoning of spousal carers, healthcare professionals, and stakeholders regarding possibilities for older couples to age in place. The findings consisted of one main category, ‘Facilitating ageing in place is a win-win situation with challenges’ and four interrelated categories, ‘Focus on older couples – building relationships and providing adequate services’, ‘Engaged civil society as a source of care and social inclusion,’ ‘Motivated professionals with competence and time,’ and ‘Services working together for a sustainable society,’ that present possibilities and challenges for ageing in place. This study suggests that facilitating ageing in place is possible but involves a complex series of challenges that can be linked to different contexts ranging from individuals and couples to civil society, services provided, organisational systems, and existing resources. All these aspects need to be considered and balanced to achieve a situation that contributes to older couples' possibilities to age in place as well as to a sustainable society.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101229"},"PeriodicalIF":2.3,"publicationDate":"2024-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000240/pdfft?md5=d9b97d0edc07842db8e123cac82a7041&pid=1-s2.0-S0890406524000240-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140824339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Queer temporalities and the life course: Trans aging in Torrey Peters' Detransition, Baby (2021)","authors":"Nicole Haring","doi":"10.1016/j.jaging.2024.101228","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101228","url":null,"abstract":"<div><p>Torrey Peters' debut novel <em>Detransition, Baby</em> from 2021, a Women's Prize for Fiction nominee, problematizes gender norms by telling the story of three main characters: Reese, a trans woman, Ames, who de-transitioned to live as a man again, and Katrina, a Chinese and Jewish cis woman who is also Ames' lover and boss. Ames and Katrina are expecting a child and are testing the possibilities of having a non-conventional family together with Reese. Parenthood is, thus, the central theme of the novel which structures also the sections of book into the time before the conception and the weeks after it. By doing so, the temporal framework of the novel queers the linearity of heteronormative life courses on the form as well as the content level. Therefore, the interplay of form and content invites to critically investigate how the concept of <em>trans time</em> that challenges linearity and normative conformity (Halberstam, 2005) may provide useful insights into trans aging and the life course through this literary representation. Following, contemporary feminist theorists' commitments to negotiate what makes “life more livable for those whose gender presentation, identity, or bodily experience have been judged abnormal, nonexistent, or impossible” (Karhu, 2022, 304–305), this paper aims at carrying out a critical feminist literary analysis of trans aging, queer life courses and the thereof related gendered norms in Peters' novel. By relying predominantly on feminist poststructuralist theories (Butler 2004) and cultural aging studies (Maierhofer, 2019), it is the aim to challenge normativity and limited social norms through this critical literary reading.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101228"},"PeriodicalIF":2.3,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000239/pdfft?md5=4f111c6849db0d435b509f8b26c1f2a5&pid=1-s2.0-S0890406524000239-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140824340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emma Harding , Mary Pat Sullivan , Paul M. Camic , Keir X.X. Yong , Joshua Stott , Sebastian J. Crutch
{"title":"Exploring experiential differences in everyday activities – A focused ethnographic study in the homes of people living with memory-led Alzheimer's disease and posterior cortical atrophy","authors":"Emma Harding , Mary Pat Sullivan , Paul M. Camic , Keir X.X. Yong , Joshua Stott , Sebastian J. Crutch","doi":"10.1016/j.jaging.2024.101226","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101226","url":null,"abstract":"<div><h3>Background</h3><p>Supporting ageing in place, quality of life and activity engagement are public health priorities for people living with dementia, but little is known about the needs and experiences of community-dwelling people with rarer forms of dementia with lesser known symptoms. Posterior cortical atrophy (PCA) is a rare form of dementia usually caused by Alzheimer's disease but which is characterised by diminished visual processing (rather than a dominant memory problem), which poses challenges for maintaining independence and accessing appropriate support.</p></div><div><h3>Methods</h3><p>This study used a comparative qualitative design and focussed ethnographic methods to explore experiential differences in activity engagement for 10 people with the most common, memory-led presentation of Alzheimer's disease and 10 people with posterior cortical atrophy within their everyday home environments.</p></div><div><h3>Results</h3><p>While the data collection revealed much rich variation in individual and contextual factors, some tentative high-level differences in the experiences of everyday activities could be drawn out, seemingly attributable to the different diagnoses' differing dominant symptoms. These included people with posterior cortical atrophy being less likely to use environmental cues to initiate activities, and more likely to withhold from asking for support because of preserved insight into the impact of this on carers. This lack of initiation of activities could be misinterpreted as apathy. People with posterior cortical atrophy also were discouraged from engaging in activities by disorientation within the home, and difficulties localising, identifying and manipulating objects. People with the more common, memory-led presentation of Alzheimer's disease exhibited more memory-based difficulties with engaging with activities such as forgetting planned activities, where to locate the items required for an activity and the steps involved. Despite these distinct symptom-led challenges, all participants and their family members demonstrated resourcefulness and resilience in making creative adaptations to support continued engagement in everyday activities, supporting the widely reported management strategies of people with dementia of the Alzheimer's type more generally.</p></div><div><h3>Conclusions</h3><p>These findings offer helpful insights into some the differing impacts dementia related visual and memory impairments can have on everyday activity engagement, which will be helpful for others navigating these challenges and the health and social care practitioners working with people affected by these conditions. The findings also highlight the vast individual variation in the multitude of individual and contextual factors involved in everyday activity engagement, and suggest important areas for future work utilising methods which are similarly high in ecological validity and accessibility as the home-based focussed ethnogra","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101226"},"PeriodicalIF":2.3,"publicationDate":"2024-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000215/pdfft?md5=05752c683cc5bfe8ea01ba6918f44534&pid=1-s2.0-S0890406524000215-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140533657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Carving and making space through dance – Older people using dance to experience their ageing body and challenge ageist discourse","authors":"Anna Goulding","doi":"10.1016/j.jaging.2024.101225","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101225","url":null,"abstract":"<div><p>Drawing on qualitative data from a study of older adults' participation in a contemporary dance group, this paper asks what can be gained from new materialist concepts of the older body, and how they can expand cultural gerontological thinking about embodiment. This paper examines the connections between the older body, movement, thoughts, words and spaces, arguing that dance demonstrates that there is a spatial dimension to embodiment. In drawing from models of materiality emerging in gerontology, this paper provides insights about the experience of age, questioning fundamental categorizations promoted in Western culture, and re-thinks agency in relation to the body and space. Emphasising the importance of the material world in the production of the social has important implications in terms of understanding the experience of ageing within an ageist society.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101225"},"PeriodicalIF":2.3,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140344453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ageism and the digital divide in Switzerland during COVID-19: Lessons for the post-pandemic world","authors":"Marion Repetti, Elisa Fellay-Favre","doi":"10.1016/j.jaging.2024.101227","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101227","url":null,"abstract":"<div><p>The COVID-19 pandemic erupted in early 2020. The Swiss Federal Council implemented a semi-lockdown in March 2020, asking people, particularly older adults, to stay at home to limit the transmission of the disease and to use digital tools to maintain their social relations and activities. This study inquired how older adults confronting precarity experienced these restrictions, how digital tools functioned in this context, and what learning could therefore be imbibed for the post-pandemic era. We conducted semi-structured telephone interviews with adults aged between 66 and 90 years living in a rural and mountainous Swiss region. The obtained data were subsequently thematically analyzed. The results revealed that the respondents experienced ageism during the semi-lockdown and reported limited or non-existent opportunities to use digital tools to maintain online social contact. This predicament increased their sense of loneliness and amplified their feelings of rejection by the outside world. These observations elucidate the need for the enhancement of non-ageist social support for older people, including individuals with limited social and material resources. We advocate the adoption of innovative initiatives in the post-pandemic era to better include precarious older people in our localities and neighborhoods.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101227"},"PeriodicalIF":2.3,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000227/pdfft?md5=8b743262a7eecff0d29580b5bced080e&pid=1-s2.0-S0890406524000227-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140327600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dilemmas of intervention: From person-centred to alienation-centred dementia care","authors":"Annette Leibing , Stephen Katz","doi":"10.1016/j.jaging.2024.101224","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101224","url":null,"abstract":"<div><p>Discussions regarding personhood and dementia care are often based on practices of recognition; on notions of being—or not being— ‘one of us’. This article provides a short overview of personhood as articulated in dementia care, especially in the assemblage of practices known as ‘person-centred care’ (PCC), and in post-human approaches that developed following the critique of PCC. This article posits an alternative framework, based on a rereading of the concept of alienation, that we want to call ‘alienation-centred care’. It considers the extent to which dynamic prosthetic networks can be adapted to the lives of people with dementia, rather than only examining the individual's reactivity to dementia interventions that define traditional approaches. It further urges us to understand the multiple origins of alienating states. Conclusions explore how this framework might address some of the limitations identified in both humanist and post-human approaches to personhood and dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101224"},"PeriodicalIF":2.3,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000197/pdfft?md5=cf08390c8079f6fe2cd53fe95b4779b1&pid=1-s2.0-S0890406524000197-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140181213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Hattie and Sammler: Saul Bellow's older woman and older man","authors":"Xiaoming Cong","doi":"10.1016/j.jaging.2024.101217","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101217","url":null,"abstract":"<div><p>Hattie in Saul Bellow's “Leaving the Yellow House” and Sammler in Bellow's <em>Mr. Sammler's Planet</em> are both elderly characters. This article intends to compare the two characters from a gender perspective, to illustrate how these characters appear to experience and respond to old age and how other characters in these two fictions respond to the old age of their respective elderly characters. The comparison of these two characters in the fiction of Saul Bellow gives rise to the observation that old age is not merely a phase of negative changes but also of positive ones; ageism claims victims among both men and women whose suffering is aggravated by other kinds of injustice, such as racism and sexism.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101217"},"PeriodicalIF":2.3,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140134697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Swift , Nicholas Jenkins , Margaret Brown , Marjorie McCrory
{"title":"“They didn't think we'd do it!”: Community gardening as an act of resistance for people with dementia","authors":"Sarah Swift , Nicholas Jenkins , Margaret Brown , Marjorie McCrory","doi":"10.1016/j.jaging.2024.101216","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101216","url":null,"abstract":"<div><p>People living with dementia commonly report negative experiences such as disempowerment, stigma, and oppression. Community gardening has demonstrated its potential as a forum for the practice of resistance against the oppressions experienced by other marginalised groups; however, this element of the experience of community gardening has yet to be explored in the context of dementia. A collaboratively-designed community gardening project took place over six weeks, involving six people with dementia. The participants selected all activities undertaken in the garden. Data were collected through semi-structured group interviews with the gardeners and researcher observations. Context-setting semi-structured individual interviews were conducted with four day centre staff members, and three key informants who had experienced working with people with dementia in the garden. The garden acted as a platform for the articulation of both verbal and embodied expressions of resistance against the disempowerment and loss of agency experienced by many people with dementia. The participatory design of the gardening sessions enabled the gardeners to assert their autonomy and independence, and defy the negative stereotypes associated with dementia, which some of the group members appeared to have internalised. Community gardening activities may offer a forum for expressions of resistance against the structures oppressing individuals with dementia. However, in order for this potential to be unlocked, such initiatives must be collaboratively designed, following an approach which recognises the strengths and enduring abilities of people living with dementia. Additionally, the empowering impact of community gardening should not be diluted by positioning the activity as a substitute for adequate statutory health and social care provision, thereby individualising responsibility for the wellbeing of people with dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101216"},"PeriodicalIF":2.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000112/pdfft?md5=12490c454eb81b67682e676808ec7051&pid=1-s2.0-S0890406524000112-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139992897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}