{"title":"Of duty and diaspora: (Re)negotiating the intergenerational contract in South Asian Muslim families","authors":"Mushira Mohsin Khan","doi":"10.1016/j.jaging.2023.101152","DOIUrl":"10.1016/j.jaging.2023.101152","url":null,"abstract":"<div><p>In recent years, there has been exponential growth in the South Asian Muslim population in the United States. This demographic trend, along with a rapidly aging North American population, implies that very soon, a significant proportion of U.S. adults 65 years and older will identify as South Asian Muslim. Moreover, more than one-half of Muslims (57%) live in a multi-person/multi-generation household where all members identify as Muslim. Despite this evidence, limited research exists on the dynamics of multigenerational living in aging South Asian Muslim households, particularly around intergenerational support exchanges and the nature and strength of affectual bonds between generations. Additionally, research suggests that espoused within internalized cultural norms around filial obligation and duty, kinwork in South Asian families remains highly gendered. Less is known, however, about the gendered nature of kinwork in immigrant South Asian Muslim families. Based on 30 in-depth narrative interviews with three generations of South Asian Muslim women living in the U.S., this paper addresses these gaps, specifically focusing on intersections of faith, culture, gender, age, immigrant status, and age at migration. The findings from this study point to a renegotiation of the intergenerational contract, wherein care and support for a parent or grandparent were understood and enacted within the framework of an overarching Muslim identity, while simultaneously, for their older relatives, it was reinterpreted within shifting local and global realities such as the increasing participation of the middle generation, the daughters and daughters-in-law, in the paid workforce. In addition to providing insights into ethnic and religious-oriented experiences of aging and care, these findings may help inform policymakers and stakeholders (e.g., community service providers and faith leaders such as <em>imams</em> of mosques, researchers, and family members) in culturally congruent ways to support the health and well-being of aging South Asian Muslim families.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101152"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Niyati Dhokai , Holly Matto , Emily S. Ihara , Catherine J. Tompkins , Shane V. Caswell , Nelson Cortes , Rick Davis , Sarah M. Coogan , Victoria N. Fauntroy , Elizabeth Glass , Judy (Moon) Lee , Gwen Baraniecki-Zwil , Jatin P. Ambegaonkar
{"title":"Community arts engagement supports perceptions of personal growth in older adults","authors":"Niyati Dhokai , Holly Matto , Emily S. Ihara , Catherine J. Tompkins , Shane V. Caswell , Nelson Cortes , Rick Davis , Sarah M. Coogan , Victoria N. Fauntroy , Elizabeth Glass , Judy (Moon) Lee , Gwen Baraniecki-Zwil , Jatin P. Ambegaonkar","doi":"10.1016/j.jaging.2023.101142","DOIUrl":"10.1016/j.jaging.2023.101142","url":null,"abstract":"<div><h3>Purpose</h3><p>The effects of arts engagement on older adults have been well-documented. However, the ways older adults overcome common situational and dispositional barriers to enhance personal growth and well-being are less known.</p></div><div><h3>Methods</h3><p>Fifty-six community dwelling older adults (71.3 ± 4.6 years) took part in dance, music, or a control workshop two times/week for ten weeks. Participants' personal growth was examined through focus groups and surveys in this mixed-methods study.</p></div><div><h3>Results</h3><p>Focus group and survey results revealed participants experienced personal growth through engaging in the dance and music arms of the experiment. Participants, especially those in arts workshops, described personal growth experiences aligning with four themes: increased social connections, developed new skills, utilized a growth mindset, and used creativity to overcome situational and dispositional barriers to participation. The barriers included musculoskeletal challenges, hearing impairments, and difficulty retaining new information.</p></div><div><h3>Conclusions</h3><p>The study yielded high adherence and retention rates, and participants reported increased engagement within their communities. Our observations provide avenues for future practitioners and facilitators to create programming that empowers older adults and utilizes participants' ongoing feedback to support access, inclusion, and sense of community.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101142"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10241613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From ethical approval to an ethics of care: Considerations for the inclusion of older adults in ethnographic research from the perspective of a ‘humanisation of care framework’","authors":"Jayme Tauzer , Fiona Cowdell , Kristina Nässén","doi":"10.1016/j.jaging.2023.101162","DOIUrl":"10.1016/j.jaging.2023.101162","url":null,"abstract":"<div><p>A deeper understanding of care demands the methodological finesse of qualitative research: we must observe, listen, and witness to expose what matters to care recipients. In this paper, we – a team of three: one early-career researcher and two supervisors – reflect on our experiences of designing and then seeking ethics approval for ethnographic research on care for older adults, many of whom demonstrate a lack of capacity to consent to research. Viewing experiences of well-being and dignity as embedded within interpersonal negotiations, this study privileges care home residents' daily life, looking to stories and observations of daily life to reveal the complexities of well-being in the care home setting. This paper emphasizes the importance of using qualitative research methods to gain a deeper understanding of care practices, particularly in the context of care for older adults with varying cognitive capacities. By privileging the daily life experiences of care home residents and employing the logic of process consent, we aim to include the voices of all participants, not just those who can provide written informed consent. However, obtaining ethics approval for this type of research presents several challenges, requiring careful negotiation and the inclusion of consultee advice. This paper highlights the tensions between procedural ethics and the need for better inclusion of vulnerable populations in ethnographic research on care. By addressing these challenges, we can move towards a more context-sensitive and humanised approach to research ethics that values the lived experiences of care recipients.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101162"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10233089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The second empty nest: The lived experience of older women whose intensive ‘grandmotherhood’ has ended","authors":"Yarin Cohen , Gabriela Spector-Mersel , Sharon Shiovitz-Ezra","doi":"10.1016/j.jaging.2023.101163","DOIUrl":"10.1016/j.jaging.2023.101163","url":null,"abstract":"<div><p>Grandmothers are the major nonparental unpaid source of childcare in Western societies. Intensive caring for grandchildren may pose challenges to some grandmothers, but also offers an opportunity to refill the ‘empty nest’ often experienced in mid-life. When grandmothers' intensive involvement in their grandchildren's care decreases significantly or ceases altogether, they may experience a recurrence of the empty nest syndrome. This may be particularly powerful in the familial and pro-natalist Israeli society, where caring for children is a central tenet of femininity. Despite the growing numbers of grandmothers whose intensive involvement in caring for their grandchildren has ended, this transition has been overlooked socially and rarely examined empirically. To fill this void, the present study examined the lived experience of these grandmothers and the relevance of the concept of the ‘second empty nest’ in this context. Within a phenomenological study, in-depth interviews were conducted with 11 Israeli women whose intensive ‘grandmotherhood’ (childcare occurring at least three times per week, for at least two hours each day, for a minimum of two years) has ended. These interviews were analyzed according to Moustakas' phenomenological analysis. The analysis revealed four themes: the circumstances of the cessation of intensive childcare involvement; difficulties and challenges experienced; positive aspects associated with it; and behavioral and cognitive strategies utilized to cope with the void in grandmothers' lives. The grandmothers' experiences reveal a significant similarity to that reported by mothers undergoing the empty nest syndrome. Hence, we offer the term ‘the second empty nest’ to represent the phenomenon of grandmothers' cessation of intensive childcare. Alongside the similarities between the two empty nests, the challenges of the second transition seem more intense than those posed by the first. This is due to the different locations of mothers and grandmothers across the lifespan and the intersection between sexism and ageism that underlies Western societies. Possible practices to assist grandmothers undergoing the second empty nest are suggested.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101163"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10233091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kelly E. Tenzek, Emily Lapan, Yotam Ophir, Tahleen A. Lattimer
{"title":"Staying connected: Alzheimer's hashtags and opportunities for engagement and overcoming stigma","authors":"Kelly E. Tenzek, Emily Lapan, Yotam Ophir, Tahleen A. Lattimer","doi":"10.1016/j.jaging.2023.101165","DOIUrl":"10.1016/j.jaging.2023.101165","url":null,"abstract":"<div><p>Alzheimer's disease (AD) is a terminal, neurodegenerative disease, and consequently is difficult to communicate about as it is stigmatized, and discussions are rife with misconceptions. By situating AD conversations in the sociocultural space of the opportunity model of presence during the end-of-life process, a framework developed illustrating the potential trajectory from living with illness through death and into bereavement, we examined networked discussions surrounding Alzheimer's related hashtags on Twitter (<em>N</em> = 132,803) between January 1st, 2010, and September 29th, 2021. Using the mixed-method approach of the Analysis of Topic Model Network (ANTMN) framework, results revealed 30 topics clustered into five distinct themes: promotion, education, action, “You aren't alone”, and dementia. Results indicated that discussions surrounding World Alzheimer's Day focused on changing stigma and promoting engagement in difficult conversations. The frequency of themes over time remained relatively stable. By understanding how Twitter's online discourse may be used to overcome stigmatized topics, we can continue to tailor messages to reduce stigma and provide support for those who experience similar health issues.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101165"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10241609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Cognitivism ageing: The Alzheimer conundrum as switched ontology & the potential for a new materialist dementia","authors":"James Rupert Fletcher","doi":"10.1016/j.jaging.2023.101155","DOIUrl":"10.1016/j.jaging.2023.101155","url":null,"abstract":"<div><p>Following recent regulatory approvals for anti-Alzheimer's monoclonal antibodies, this paper considers the contemporary role of cognitivism in defining the ontological commitments of dementia research, as well as movements away from cognitivism under the umbrella of 4E cognitive science. 4E cognitive theories, extending cognition into bodies, their environs, and active relations between the two, share potentially fruitful affinities with new materialisms which focus on the co-constitution of matter in intra-action. These semi-overlapping conceptual positions furnish some opportunity for an ontological alternative to longstanding cognitivist commitments, particularly to the isolated brain as a material catalyst for commercial interventions. After outlining mainstream cognitivism and its shortcomings, I explore 4E and new materialism as possibly transformative conceptual schemas for dementia research, a field for which cognitivist imaginings of cognitive decline in later life have profound and often regrettable ramifications. To realise this new materialist dementia, I sketch out a cognitive ontology based on Barad's agential realism. This facilitates a reassessment of the biggest conundrum in dementia research – the lack of neat correlation between (apparently material) neuropathology and (apparently immaterial) cognitive impairment – alongside the continued failure of efforts to develop effective interventions. It also gives social researchers working on cognitive decline in later life an opportunity to reappraise the nature of social science as a response to such phenomena. If cognition and cognitive ageing are reimagined as an emergent characteristic of intra-acting matter, then new materialist social science might be at least as conducive to salutogenic interventions as the neuropsychiatric technoscience that dominates the contemporary dementia research economy despite continual failures. I argue that a new materialist cognitive ontology could help us think beyond an ageing cognitivism and, by extension, beyond the Alzheimer conundrum.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101155"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The shadow of dementia: Listening to undecidability in ethnographic interviews with persons suspecting possible dementia","authors":"Shvat Eilat","doi":"10.1016/j.jaging.2023.101156","DOIUrl":"10.1016/j.jaging.2023.101156","url":null,"abstract":"<div><p>Even before a diagnosis of dementia, people may negotiate in their everyday lives the fears and suspicions about the possibility of a future with dementia. My field of research involves JewishIsraeli older adult individuals who suspect that they are beginning to lose their memory, but before seeking out a formal diagnosis—and when not seeking a diagnosis at all is an equal possibility. By distinguishing their experience of suspecting possible dementia from this of living with dementia, I attempt to illuminate the social, bio-diagnostic and cultural shadows of dementia hovering in the background of their everyday experience. I begin by shedding light on the ethical and methodological context of my specific field in Israel. I next reflect upon the concept of “shadow,” that is constituted within and reflecting the assemblages of lurking presences accompanying my interlocutors' daily negotiations of the possibility of dementia. I then situate their lived experiences, as well as my ethnographic engagement with them, in the context of the prevailing cultural and social moralities surrounding this possibility. Finally, I show how a negotiation of the place that this shadow occupies in their lives arises in the encounter with the ethnographer. This first account of people before diagnosis and not through the diagnostic event, while keeping the space for deciding about a possible future of diagnosis open, can contribute to the understanding of undecidability as an ethical stance in ethnography, incorporating the suspension of the need to order realities through the imperatives of a diagnosis of dementia. Further, understanding these mundane negotiations with these shadows can help us allow more space for uncertainty and unpredictability as legitimate forms of living with dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101156"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10233090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Perspectives on creative well-being of older adults","authors":"Dohee Lee, Inkeri Aula, Masood Masoodian","doi":"10.1016/j.jaging.2023.101159","DOIUrl":"10.1016/j.jaging.2023.101159","url":null,"abstract":"<div><p>The growing aging population has become a significant global issue in recent years, increasing the need for research that examines aging-related phenomena such as personal growth and development in later life. A major challenge in achieving this aim is the prevailing deficit perspective on aging, which is so pervasive that it often overshadows older adults' contributions to society and diminishes the opportunities encountered in older adulthood. Although perspectives on the nature of aging are gradually changing in a positive way, and the developments in medicine are improving health-related aspects of aging, it is still a worldwide challenge to eradicate negative stereotypes around aging. This article explores empirical perspectives on aging by analyzing diverse narratives gathered from open-ended interviews we conducted in Finland from 2019 to 2021. Focusing on their aging experiences and the value of a broad range of creative engagements and interventions that older adults have joined voluntarily, the study aims to provide a better understanding of personal perspectives of aging, the creative well-being of older adults, and the growing diversity of experiences within the older age group. Based on the findings of this study, we highlight the importance of promoting older adults' engagement in art-based interventions to enhance their creativity and well-being in later life, as well as fostering aging-friendly co-creative approaches in such interventions by involving the older adults themselves in the process.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101159"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Who believes in cross-age friendship? Predictors of the belief in intergenerational friendship scale in young adults","authors":"Varshaa Kashyap, Zoë Francis","doi":"10.1016/j.jaging.2023.101157","DOIUrl":"10.1016/j.jaging.2023.101157","url":null,"abstract":"<div><p>Intergenerational contact is beneficial for both younger and older adults, but friendships that span across generations are uncommon. While this is partially due to situational factors, people's beliefs about the possibility of intergenerational friendship may also affect how they approach potential intergenerational interactions. In a sample of 209 students from a Canadian university, we validate the Beliefs in Intergenerational Friendship (BIGF) scale. Young adults were more likely to believe in intergenerational friendship if they had less ageist attitudes and if they were more conscientious, open, agreeable, and emotionally stable. Number of non-kin intergenerational social contacts (but not number of kin contacts) and closeness of an existing relationship with an older adult also predicted greater belief in intergenerational friendship. BIGF scores predicted willingness to regularly spend time with older adults and were a better predictor than either hostile or benevolent ageism. While not everyone believes that intergenerational friendships are possible, this novel scale may uniquely capture people's willingness to form relationships across generations.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101157"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10239753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The philosophy of collective memory in the novel “The Buried Giant” by Kazuo Ishiguro","authors":"Liyun Bai","doi":"10.1016/j.jaging.2023.101164","DOIUrl":"10.1016/j.jaging.2023.101164","url":null,"abstract":"<div><p>Memory is a major theme running through Kazuo Ishiguro's works, one of which is <em>The Buried Giant</em>. This study aims to analyze the concept of collective memory in Kazuo Ishiguro's novel <em>The Buried Giant</em> through hermeneutic interpretation and sociological analysis. The results show that this novel links collective memory with individual experience and generational identity whilst making aging a central element in the exploration of time and history. In the novel, collective memory is seen through the prism of aging. The aging characters serve as a metonymy to convey the image of memory. They find themselves in circumstances broadcasting a horrific story of decline and marginalization of the nation because they cannot access the past and move into the future. They revisit the story of their lives, but even though they can recount their losses, they do not seem to be critical of their past choices or their responsibilities in the global conflicts they lived through. In <em>The Buried Giant</em>, the aging characters are the ones who come to terms with their individual and collective histories to face their remaining years. This is not an idealized vision of wisdom; rather, it is an acceptance of complicity and guilt. The results can be applied in literary, sociological, and historical studies concerning the collective memory of different historical periods. They are of practical value as they contribute to the study of collective memory in literary theory. Research on collective memory in literature sheds light on the ways historical events and shared experiences impact human behavior, beliefs, and decision-making processes.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"66 ","pages":"Article 101164"},"PeriodicalIF":2.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10232654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}