Journal of Aging Studies最新文献

{"title":"Exploring experiential differences in everyday activities – A focused ethnographic study in the homes of people living with memory-led Alzheimer's disease and posterior cortical atrophy","authors":"Emma Harding , Mary Pat Sullivan , Paul M. Camic , Keir X.X. Yong , Joshua Stott , Sebastian J. Crutch","doi":"10.1016/j.jaging.2024.101226","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101226","url":null,"abstract":"<div><h3>Background</h3><p>Supporting ageing in place, quality of life and activity engagement are public health priorities for people living with dementia, but little is known about the needs and experiences of community-dwelling people with rarer forms of dementia with lesser known symptoms. Posterior cortical atrophy (PCA) is a rare form of dementia usually caused by Alzheimer's disease but which is characterised by diminished visual processing (rather than a dominant memory problem), which poses challenges for maintaining independence and accessing appropriate support.</p></div><div><h3>Methods</h3><p>This study used a comparative qualitative design and focussed ethnographic methods to explore experiential differences in activity engagement for 10 people with the most common, memory-led presentation of Alzheimer's disease and 10 people with posterior cortical atrophy within their everyday home environments.</p></div><div><h3>Results</h3><p>While the data collection revealed much rich variation in individual and contextual factors, some tentative high-level differences in the experiences of everyday activities could be drawn out, seemingly attributable to the different diagnoses' differing dominant symptoms. These included people with posterior cortical atrophy being less likely to use environmental cues to initiate activities, and more likely to withhold from asking for support because of preserved insight into the impact of this on carers. This lack of initiation of activities could be misinterpreted as apathy. People with posterior cortical atrophy also were discouraged from engaging in activities by disorientation within the home, and difficulties localising, identifying and manipulating objects. People with the more common, memory-led presentation of Alzheimer's disease exhibited more memory-based difficulties with engaging with activities such as forgetting planned activities, where to locate the items required for an activity and the steps involved. Despite these distinct symptom-led challenges, all participants and their family members demonstrated resourcefulness and resilience in making creative adaptations to support continued engagement in everyday activities, supporting the widely reported management strategies of people with dementia of the Alzheimer's type more generally.</p></div><div><h3>Conclusions</h3><p>These findings offer helpful insights into some the differing impacts dementia related visual and memory impairments can have on everyday activity engagement, which will be helpful for others navigating these challenges and the health and social care practitioners working with people affected by these conditions. The findings also highlight the vast individual variation in the multitude of individual and contextual factors involved in everyday activity engagement, and suggest important areas for future work utilising methods which are similarly high in ecological validity and accessibility as the home-based focussed ethnogra","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101226"},"PeriodicalIF":2.3,"publicationDate":"2024-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000215/pdfft?md5=05752c683cc5bfe8ea01ba6918f44534&pid=1-s2.0-S0890406524000215-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140533657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Carving and making space through dance – Older people using dance to experience their ageing body and challenge ageist discourse","authors":"Anna Goulding","doi":"10.1016/j.jaging.2024.101225","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101225","url":null,"abstract":"<div><p>Drawing on qualitative data from a study of older adults' participation in a contemporary dance group, this paper asks what can be gained from new materialist concepts of the older body, and how they can expand cultural gerontological thinking about embodiment. This paper examines the connections between the older body, movement, thoughts, words and spaces, arguing that dance demonstrates that there is a spatial dimension to embodiment. In drawing from models of materiality emerging in gerontology, this paper provides insights about the experience of age, questioning fundamental categorizations promoted in Western culture, and re-thinks agency in relation to the body and space. Emphasising the importance of the material world in the production of the social has important implications in terms of understanding the experience of ageing within an ageist society.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101225"},"PeriodicalIF":2.3,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140344453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ageism and the digital divide in Switzerland during COVID-19: Lessons for the post-pandemic world","authors":"Marion Repetti,&nbsp;Elisa Fellay-Favre","doi":"10.1016/j.jaging.2024.101227","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101227","url":null,"abstract":"<div><p>The COVID-19 pandemic erupted in early 2020. The Swiss Federal Council implemented a semi-lockdown in March 2020, asking people, particularly older adults, to stay at home to limit the transmission of the disease and to use digital tools to maintain their social relations and activities. This study inquired how older adults confronting precarity experienced these restrictions, how digital tools functioned in this context, and what learning could therefore be imbibed for the post-pandemic era. We conducted semi-structured telephone interviews with adults aged between 66 and 90 years living in a rural and mountainous Swiss region. The obtained data were subsequently thematically analyzed. The results revealed that the respondents experienced ageism during the semi-lockdown and reported limited or non-existent opportunities to use digital tools to maintain online social contact. This predicament increased their sense of loneliness and amplified their feelings of rejection by the outside world. These observations elucidate the need for the enhancement of non-ageist social support for older people, including individuals with limited social and material resources. We advocate the adoption of innovative initiatives in the post-pandemic era to better include precarious older people in our localities and neighborhoods.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101227"},"PeriodicalIF":2.3,"publicationDate":"2024-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000227/pdfft?md5=8b743262a7eecff0d29580b5bced080e&pid=1-s2.0-S0890406524000227-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140327600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dilemmas of intervention: From person-centred to alienation-centred dementia care","authors":"Annette Leibing ,&nbsp;Stephen Katz","doi":"10.1016/j.jaging.2024.101224","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101224","url":null,"abstract":"<div><p>Discussions regarding personhood and dementia care are often based on practices of recognition; on notions of being—or not being— ‘one of us’. This article provides a short overview of personhood as articulated in dementia care, especially in the assemblage of practices known as ‘person-centred care’ (PCC), and in post-human approaches that developed following the critique of PCC. This article posits an alternative framework, based on a rereading of the concept of alienation, that we want to call ‘alienation-centred care’. It considers the extent to which dynamic prosthetic networks can be adapted to the lives of people with dementia, rather than only examining the individual's reactivity to dementia interventions that define traditional approaches. It further urges us to understand the multiple origins of alienating states. Conclusions explore how this framework might address some of the limitations identified in both humanist and post-human approaches to personhood and dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101224"},"PeriodicalIF":2.3,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000197/pdfft?md5=cf08390c8079f6fe2cd53fe95b4779b1&pid=1-s2.0-S0890406524000197-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140181213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Hattie and Sammler: Saul Bellow's older woman and older man","authors":"Xiaoming Cong","doi":"10.1016/j.jaging.2024.101217","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101217","url":null,"abstract":"<div><p>Hattie in Saul Bellow's “Leaving the Yellow House” and Sammler in Bellow's <em>Mr. Sammler's Planet</em> are both elderly characters. This article intends to compare the two characters from a gender perspective, to illustrate how these characters appear to experience and respond to old age and how other characters in these two fictions respond to the old age of their respective elderly characters. The comparison of these two characters in the fiction of Saul Bellow gives rise to the observation that old age is not merely a phase of negative changes but also of positive ones; ageism claims victims among both men and women whose suffering is aggravated by other kinds of injustice, such as racism and sexism.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"69 ","pages":"Article 101217"},"PeriodicalIF":2.3,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140134697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“They didn't think we'd do it!”: Community gardening as an act of resistance for people with dementia","authors":"Sarah Swift ,&nbsp;Nicholas Jenkins ,&nbsp;Margaret Brown ,&nbsp;Marjorie McCrory","doi":"10.1016/j.jaging.2024.101216","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101216","url":null,"abstract":"<div><p>People living with dementia commonly report negative experiences such as disempowerment, stigma, and oppression. Community gardening has demonstrated its potential as a forum for the practice of resistance against the oppressions experienced by other marginalised groups; however, this element of the experience of community gardening has yet to be explored in the context of dementia. A collaboratively-designed community gardening project took place over six weeks, involving six people with dementia. The participants selected all activities undertaken in the garden. Data were collected through semi-structured group interviews with the gardeners and researcher observations. Context-setting semi-structured individual interviews were conducted with four day centre staff members, and three key informants who had experienced working with people with dementia in the garden. The garden acted as a platform for the articulation of both verbal and embodied expressions of resistance against the disempowerment and loss of agency experienced by many people with dementia. The participatory design of the gardening sessions enabled the gardeners to assert their autonomy and independence, and defy the negative stereotypes associated with dementia, which some of the group members appeared to have internalised. Community gardening activities may offer a forum for expressions of resistance against the structures oppressing individuals with dementia. However, in order for this potential to be unlocked, such initiatives must be collaboratively designed, following an approach which recognises the strengths and enduring abilities of people living with dementia. Additionally, the empowering impact of community gardening should not be diluted by positioning the activity as a substitute for adequate statutory health and social care provision, thereby individualising responsibility for the wellbeing of people with dementia.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101216"},"PeriodicalIF":2.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000112/pdfft?md5=12490c454eb81b67682e676808ec7051&pid=1-s2.0-S0890406524000112-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139992897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adapting to home care in Norway: A longitudinal case study of older Adults' experiences","authors":"Ove Hellzén ,&nbsp;Tove Mentsen Ness ,&nbsp;Kari Ingstad ,&nbsp;Mette Spliid Ludvigsen ,&nbsp;Ann Marie Nissen ,&nbsp;Siri Andreassen Devik","doi":"10.1016/j.jaging.2024.101215","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101215","url":null,"abstract":"<div><p>This study aimed to describe how older adults with complex health problems manage their everyday lives in their own homes and how they interact with given home care. In this multiple-case study, a total of 14 individual interviews were conducted with five older adults over the course of one year. Deductive and inductive content analyses were performed. Three descriptive categories were each identified in the deductive (‘home care as interpersonal continuity’, ‘home care as information continuity’ and ‘home care as management continuity’) and inductive analyses (‘Lack of social contact with carers’, ‘Desire to be heard throughout the care process’ and ‘Carers are short on time’). Quality home care services are difficult to realize if interpersonal interaction is subordinated to effective task-solving.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101215"},"PeriodicalIF":2.3,"publicationDate":"2024-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000100/pdfft?md5=6c317121b139a89bacda31ea68a0f77d&pid=1-s2.0-S0890406524000100-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139898473","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ambiguous personhood: Paradoxes of social belonging in Danish nursing home care","authors":"Emma Jelstrup Balkin ,&nbsp;Ingjerd Gåre Kymre ,&nbsp;Mette Geil Kollerup ,&nbsp;Bente Martinsen ,&nbsp;Mette Grønkjær","doi":"10.1016/j.jaging.2024.101214","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101214","url":null,"abstract":"<div><p>In oldest old age (generally considered to be from 85 years onwards), personhood is often called into question, impacting well-being as a result. Based on ethnographic fieldwork, this article examines the well-being of oldest old nursing home residents at the intersections of ageism, fraying personhood and fragile social belonging in Danish nursing home care. In Denmark personhood hinges on both independence and social belonging; or “fællesskab.” We examine how these concepts are practiced in nursing home care. Taking its starting point in the distinction between the “inside world” of the nursing home and the “real world” outside, the article examines how processes of othering occur in nursing home care, imperilling resident personhood and opportunities for social belonging. We consider how oldest old residents navigate social belonging, finding it in turn life-sustaining and vexatious. We argue that tacit ageism permeates the nursing home, to the detriment of resident well-being, despite the best intentions of an aged care system that is structured to specifically maintain personhood.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101214"},"PeriodicalIF":2.3,"publicationDate":"2024-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000094/pdfft?md5=4688957d464e1944bf803054d75e5ab5&pid=1-s2.0-S0890406524000094-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139714198","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Care-ethical considerations of technology-care-assemblages","authors":"Cordula Endter ,&nbsp;Silke Migala ,&nbsp;Anne Münch ,&nbsp;Anna Richter","doi":"10.1016/j.jaging.2024.101209","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101209","url":null,"abstract":"<div><p>Technology plays a major role in care. Against the background of demographic ageing, the use of assistive technologies to support and relieve carers in their work is becoming more and more important. One sector that is increasingly coming into focus is home care by family caregivers. Here, the use of assistive technologies takes place under specific conditions. The article proposes a care-ethical perspective to understand these conditions. It critically discusses issues of power and participation in the negotiation of care that can be associated with the use of technology and outlines a care-ethical perspective on technocare.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101209"},"PeriodicalIF":2.3,"publicationDate":"2024-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000045/pdfft?md5=596b4c7aa6b98058c8a17731a673d20a&pid=1-s2.0-S0890406524000045-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139699583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Images of care: A pedagogy of rosiness about aging transitions","authors":"Cati Coe ,&nbsp;Sheridan Conty","doi":"10.1016/j.jaging.2024.101213","DOIUrl":"https://doi.org/10.1016/j.jaging.2024.101213","url":null,"abstract":"<div><p>How do people learn about what it is like to become frail and require assistance with activities of daily living? This significant transition in the life course is often avoided and denied by those in North America. This paper examines images from the websites of agencies providing care to older adults in their homes as one aspect of a wider social pedagogy about aging. In particular, we find that agencies in Canada and the United States aim to attract potential clients with rosy and positive images of aging, using stock images that showcase active and healthy seniors. They do not present their core services of toileting, bathing, and lifting directly, but rather represent care indirectly through the touch and attention of caregivers towards an older adult. As a result, home care agencies reproduce dominant images of successful aging, in which frailty and the need for care are taboo.</p></div>","PeriodicalId":47935,"journal":{"name":"Journal of Aging Studies","volume":"68 ","pages":"Article 101213"},"PeriodicalIF":2.3,"publicationDate":"2024-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0890406524000082/pdfft?md5=1febc171ec7455454fe5a62fa0b47ae1&pid=1-s2.0-S0890406524000082-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139699582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}