{"title":"Rumor as ethical vernacular: Ebola and the womb in eastern Congo.","authors":"Myfanwy James","doi":"10.1111/maq.70015","DOIUrl":"https://doi.org/10.1111/maq.70015","url":null,"abstract":"<p><p>The position of pregnant women in clinical research remains a topic of international ethical debate. Yet, the reflections of actual and potential trial participants, including pregnant women themselves, often remain absent. Following a policy reversal in 2019, pregnant women were eligible to participate in a second Ebola vaccine trial during an epidemic in the eastern Democratic Republic of the Congo (DRC). This article follows how this decision was perceived in Goma, a city in the DRC, the meanings and functions of the rumors that emerged about reproductive health, and how these rumors influenced pregnant women's experience of the trial. I argue that the womb became a site to discuss broader biopolitical anxieties about collective survival, but that rumors also became a vehicle for ethical debate amid uncertainty. Ethical debates about medical research continue locally through other ethical vernaculars- like rumors- and center on contested ideas of acceptable risk, shaped by collective historical experiences.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70015"},"PeriodicalIF":2.0,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144683401","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Contextualizing adherence: Iron supplementation treatment among Peruvian caretakers and their anemic children.","authors":"Achsah F Dorsey","doi":"10.1111/maq.70014","DOIUrl":"https://doi.org/10.1111/maq.70014","url":null,"abstract":"<p><p>This article describes an ethnographic study of adherence to iron supplementation protocols in 50 anemic preschoolers and their caregivers living in a peri-urban district in Lima, Peru. I use aspects of the syndemic approach to highlight the challenges caregivers face in following the recommended treatment and burden of treatment theory to develop a deeper understanding of adherence in a community with persistent childhood anemia. Interpreting adherence as an ideology also helps illuminate how health professionals' claims about patient behavior reflect social inequalities. Thematic analysis of qualitative data identified three major challenges to iron supplementation adherence-time constraints, acute health concerns, and child agency. These themes show how socioeconomic conditions and emotional burdens impact caregivers' ability to follow the prescribed treatment. Despite these challenges, the relatively high rate of adherence contests assumptions that lack of adherence is the primary explanation for persistent anemia rates among preschoolers living in this community.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70014"},"PeriodicalIF":2.0,"publicationDate":"2025-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144585281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"No rush: The relational time ethic and faith-based medical clinics in the United States.","authors":"Carolyn Schwarz","doi":"10.1111/maq.70013","DOIUrl":"https://doi.org/10.1111/maq.70013","url":null,"abstract":"<p><p>Based on ethnographic interviews with healthcare professionals from faith-based, Christian clinics in the United States, I develop the concept of the \"relational time ethic.\" This ethic refers to the ways that healthcare professionals seek to build relations with patients as persons and to demonstrate their valuing of lives through time expansion. In advancing this ethic, healthcare professionals are in part reflecting on their own well-being but are primarily making moral claims about the high quality of their care and critiquing a bureaucratic time model for healthcare delivery. The on-the-ground intricacies of the relational time ethic further anthropological understandings of the religious justifications for care and critique in biomedicine and bring attention to the ways that time comes to be constructed as an ethical practice in and of itself.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70013"},"PeriodicalIF":2.0,"publicationDate":"2025-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144477320","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Lead as pharmakon: IQ, violence, and the racialization of a toxic element.","authors":"Stefanie Toney Graeter","doi":"10.1111/maq.70009","DOIUrl":"https://doi.org/10.1111/maq.70009","url":null,"abstract":"<p><p>By tracking lead toxicology and politics from the United States to Peru, this article shows how contemporary discourses of human lead exposure have become complexly racialized. Despite its nearly global ban from gasoline and paint, lead poisoning remains a systemic health problem in marginalized communities throughout the world. Viewed as a \"social pharmakon,\" lead's ongoing \"cures\" outweigh current social valuations of its systemic physiological harm in racially devalued communities. While scientific research linking lead to decreased IQ and increased violent behavior has attempted to animate broader public interest in the inequitable spread of lead exposure, it does so by reanimating racist tropes of biogeographic inferiority. Rather than dehumanizing lead-exposed individuals and communities, narratives of lead intoxication must integrate its immediate social and material harms in specific locales and as a symptom of systemic racial injustice at a global scale.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70009"},"PeriodicalIF":2.0,"publicationDate":"2025-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144327268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Euthanasia as a safeguard for living: Anticipation and incurable cancer in a Colombian context.","authors":"Camilo Sanz","doi":"10.1111/maq.70012","DOIUrl":"https://doi.org/10.1111/maq.70012","url":null,"abstract":"<p><p>This article builds on years of ethnographic conversations I sustained with my father, 89, who lives in Colombia. Soon after getting diagnosed with an incurable Multiple Myeloma-a cancer known for unleashing prolonged and painful agonies-he withdrew from oncology treatments and secured access to euthanasia (assisted-dying) on his own, bypassing medico-insurance guidelines created to regulate this medical practice and prevent abuses. Eight years after withdrawing treatments, my dad is still alive. His case shines a light on how securing access to euthanasia may have had unintended therapeutic effects on existential fears, pain perception, and quality of life on his way to dying. My storytelling also seeks to discuss the ethical and legal dimensions of assisted-dying in Colombia, especially for patients who do not consider life as biological deterioration, and who are caught between aggressive treatments and painful agonies, on the one side, and burdensome medico-insurance bureaucracy, on the other.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70012"},"PeriodicalIF":2.0,"publicationDate":"2025-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144327267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Anxious Projections: Mass Hysteria and the Problem of Interpretation.","authors":"Aidan Seale-Feldman","doi":"10.1111/maq.70007","DOIUrl":"https://doi.org/10.1111/maq.70007","url":null,"abstract":"<p><p>Stories of \"mass hysteria\" among teenage girls have often graced the headlines of Nepal's local and national newspapers, creating a public spectacle of a strange and mysterious form of affliction. Treatments include both shamanic rituals and psychosocial interventions, a new therapeutic modality that has gained prominence over the past two decades following the rise of global mental health. This article shows how the discourse around the collective affliction of teenage girls reveals a number of anxieties at the heart of Nepali society regarding the moral rupture of community, the status of shamanic knowledge, and gender and the management of emotion. I argue that due to the ambiguity of cause, the dramatic public display of symptoms, and the absence of the experiencing subject of affliction, cases of \"mass hysteria\" offer a blank screen onto which the broader collective anxieties of a society in flux are projected and debated.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70007"},"PeriodicalIF":2.0,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144259122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Marshallese mothers navigating discrimination in Hawai'i: Bwebwenato as method.","authors":"Katriel Wong, Jan Brunson","doi":"10.1111/maq.70008","DOIUrl":"https://doi.org/10.1111/maq.70008","url":null,"abstract":"<p><p>Marshallese mothers face the highest rates of adverse maternal and child health outcomes compared to other ethnic groups in Hawai'i. Previous studies used interviews with healthcare providers to understand these disparate outcomes; however, the voices of Marshallese women are relatively absent. This project explores the bwebwenato (Marshallese mode of storytelling) of first-generation Marshallese mothers who navigated discrimination before, during, and after pregnancy in Hawai'i. Using collaborative methodology, we co-produced research that centers the bwebwenato of Marshallese women. In addition to the intersections of power and race in healthcare settings, Marshallese mothers chose to highlight the discrimination they faced growing up in Hawai'i. Through these stories, they profess their ability to navigate their cultural traditions and beliefs within and against a local racial hierarchy that places Micronesians at the bottom. Bwebwenato as a method has the potential to transform research into a more acceptable form for groups experiencing discrimination and patient-provider interactions into more equitable exchanges.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70008"},"PeriodicalIF":2.0,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144227248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Claiming normal: Disability, stigma, and relationality in Amman.","authors":"Christine Sargent","doi":"10.1111/maq.70003","DOIUrl":"https://doi.org/10.1111/maq.70003","url":null,"abstract":"<p><p>Drawing on the experiences of mothers raising children with Down syndrome in Amman, Jordan, this article approaches disability stigma as a phenomenon that attached to meaningful relations of kinship and community. These same relations, however, enabled mothers, children, spouses, relatives, and other disability advocates to (re)claim Down syndrome as normal. In doing so, they challenged extant narratives that treated embodied difference as a relational risk in need of containment. \"Normal\" possesses disciplinary and oppressive capacities, but it can also become an effective tool. Claiming \"normal\" helped some families situate Down syndrome as an unexceptional way of being in the world and a valuable mode of being in relations with others.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70003"},"PeriodicalIF":2.0,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144152397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Slippery Knowledge: Ignorance, Ecologies, and Environment in Endometriosis Framing.","authors":"Andrea Ford","doi":"10.1111/maq.70002","DOIUrl":"https://doi.org/10.1111/maq.70002","url":null,"abstract":"<p><p>Despite a growing body of literature linking environmental toxins and endometriosis, environmental issues make only occasional appearances in public, patient, and specialist conversations about endometriosis. These conversations may hover at the edges of public discourse, but do not gain traction. Based on ethnographic work in the United Kingdom, this article develops the concept of \"slippery\" knowledge as that which evades action. Ignorance of environmental or ecological etiologies is less a dearth of information than a dearth of possibilities for action. This article elaborates two ways of conceiving of environmental or ecological disease: the exposure model predicated on harmful external factors \"getting in\" to damage individuals or communities and the embodied ecologies model, which posits inevitable and ongoing mutual imbrication among living and non-living entities. Knowledge regarding endometriosis is \"slippery\" in both models. Whether knowledge seems actionable or not is inextricable from deep-seated power dynamics related to colonialism, gender, and race, which perpetuate ways of knowing (and acting) on endometriosis that are troubling and troublingly durable.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70002"},"PeriodicalIF":2.0,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enacting embryos: Practices, ontologies, and politics of the IVF lab post-Dobbs.","authors":"Manon Lefevre","doi":"10.1111/maq.12916","DOIUrl":"https://doi.org/10.1111/maq.12916","url":null,"abstract":"<p><p>In the aftermath of the Supreme Court's 2022 decision to overturn the federal right to abortion, much public and political debate has surrounded gestating and in vitro embryos' \"personhood.\" In this paper, I draw on 15 months of participant observation in biomedical spaces of infertility to reveal how embryos can be enacted as not only unborn children but as many different kinds of entities. I examine how embryos become \"multiple\" as in vitro fertilization (IVF) professionals inseminate, monitor, and transfer them into patients' bodies: enacting them as makeable, contingent, recordable, animatable, predictable, introducible, praisable, and appraisable entities. Providing a new perspective into the varied ontologies of in vitro embryos, this paper has far-reaching implications for the anthropological study and politics of reproductive medicine and politics today.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e12916"},"PeriodicalIF":2.0,"publicationDate":"2025-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}