{"title":"“不仅仅是百分之二”:在特纳综合症中设想堕胎和流产的生殖政治。","authors":"A J Jones","doi":"10.1111/maq.70022","DOIUrl":null,"url":null,"abstract":"<p><p>Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.</p>","PeriodicalId":47649,"journal":{"name":"Medical Anthropology Quarterly","volume":" ","pages":"e70022"},"PeriodicalIF":1.9000,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"\\\"More Than Just the Two Percent\\\": The reproductive politics of envisioning abortion and miscarriage in Turner syndrome.\",\"authors\":\"A J Jones\",\"doi\":\"10.1111/maq.70022\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.</p>\",\"PeriodicalId\":47649,\"journal\":{\"name\":\"Medical Anthropology Quarterly\",\"volume\":\" \",\"pages\":\"e70022\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2025-08-18\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medical Anthropology Quarterly\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1111/maq.70022\",\"RegionNum\":2,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"ANTHROPOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medical Anthropology Quarterly","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1111/maq.70022","RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
"More Than Just the Two Percent": The reproductive politics of envisioning abortion and miscarriage in Turner syndrome.
Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.
期刊介绍:
Medical Anthropology Quarterly: International Journal for the Analysis of Health publishes research and theory in the field of medical anthropology. This broad field views all inquiries into health and disease in human individuals and populations from the holistic and cross-cultural perspective distinctive of anthropology as a discipline -- that is, with an awareness of species" biological, cultural, linguistic, and historical uniformity and variation. It encompasses studies of ethnomedicine, epidemiology, maternal and child health, population, nutrition, human development in relation to health and disease, health-care providers and services, public health, health policy, and the language and speech of health and health care.