"More Than Just the Two Percent": The reproductive politics of envisioning abortion and miscarriage in Turner syndrome.

IF 1.9 2区社会学 Q1 ANTHROPOLOGY

Medical Anthropology Quarterly Pub Date : 2025-08-18 DOI:10.1111/maq.70022

A J Jones

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Abstract

Following the overturning of Roe v. Wade, the political, legal, and medical boundaries of spontaneous, elective, and selective abortion are blurring. Based on ethnographic research on Turner Syndrome, a genetic condition with a 98% miscarriage rate and uncertain abortion rates, this article examines the visual politics of reproduction and disability in the United States through the ambiguous treatment of miscarriage. Although infertile, my interlocutors with Turner syndrome emphasized how disability stereotypes, abortion unknowns, and miscarriage statistics impacted their lives. Centering our play More Than Just the Two Percent, I demonstrate how my interlocutors embodied various actors in reproductive experiences, including miscarried fetuses, to navigate the visibilities of their diagnosis and specify the value of their lives as social funds of knowledge-a process I term envisioning. Envisioning complicates notions of viability, personhood, privacy, spirituality, risk, luck, and survivorship that pro-life/pro-choice rhetorics flatten and may contribute to a more disability-oriented reproductive justice.

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“不仅仅是百分之二”：在特纳综合症中设想堕胎和流产的生殖政治。

在罗伊诉韦德案被推翻之后，自发堕胎、选择性堕胎和选择性堕胎的政治、法律和医学界限正在变得模糊。特纳综合征是一种具有98%流产率和不确定流产率的遗传性疾病，本文基于对该疾病的人种学研究，通过对流产的模糊处理来考察美国生殖和残疾的视觉政治。虽然患有特纳综合症，但我的对话者强调残疾的刻板印象、流产的未知和流产的统计数据如何影响了他们的生活。以我们的戏剧《不仅仅是百分之二》为中心，我展示了我的对话者如何在生殖经历中体现各种角色，包括流产的胎儿，以引导他们的诊断的可见性，并指定他们的生命作为知识的社会基金的价值——我称之为设想的过程。设想复杂的生存能力、人格、隐私、灵性、风险、运气和幸存者的概念，这些都是反堕胎/反堕胎的修辞所扁平的，可能有助于更以残疾为导向的生殖正义。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Medical Anthropology Quarterly Multiple-

CiteScore

4.20

自引率

4.50%

发文量

期刊介绍： Medical Anthropology Quarterly: International Journal for the Analysis of Health publishes research and theory in the field of medical anthropology. This broad field views all inquiries into health and disease in human individuals and populations from the holistic and cross-cultural perspective distinctive of anthropology as a discipline -- that is, with an awareness of species" biological, cultural, linguistic, and historical uniformity and variation. It encompasses studies of ethnomedicine, epidemiology, maternal and child health, population, nutrition, human development in relation to health and disease, health-care providers and services, public health, health policy, and the language and speech of health and health care.