{"title":"[Conscience des déficits dans le cadre de la maladie d'Alzheimer : représentations et vécu des professionnels soignants].","authors":"Julie Vignolo, Jean-Pierre Jacus, Thierry Darnaud, Christine Vanessa Cuervo-Lombard","doi":"10.1017/S0714980824000096","DOIUrl":"10.1017/S0714980824000096","url":null,"abstract":"<p><p>La qualité des soins apportés aux personnes vivant avec la maladie d'Alzheimer (MA) dépend en partie de la capacité des professionnels à déterminer le degré de conscience de la maladie chez les patients. La présente recherche s'est intéressée aux représentations des soignants concernant la conscience des troubles chez les résidents d'établissements de soins de longue durée présentant un diagnostic de MA. Le pouvoir prédicteur de l'anosognosie sur le fardeau soignant a également été examiné. L'anosognosie des troubles de la construction (r = 0,40, <i>p</i> = 0,0164) et de l'initiation (r = 0,32, <i>p</i> = 0,052) était corrélée au fardeau soignant. Les professionnels se représentaient les résidents comme ayant une conscience altérée de leurs capacités, même en l'absence d'anosognosie. Les scores réels d'anosognosie ne prédisaient pas les estimations soignantes, hormis le score global sous forme de tendance (χ<sup>2</sup> = 3,38, <i>p</i> = 0,066). Les soignants surestimaient pourtant les performances cognitives des résidents, telles que mesurées au moyen du protocole Misawareness (prédictions aidants/performances réelles : DC = 12,32, <i>p</i> < 0,0001).</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"499-506"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140050691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Chinese Immigrant Caregivers: Understanding Their Unmet Needs and the Co-Design of an mHealth App.","authors":"Kexin Yu, Haojun Jiang, Mandong Liu, Shinyi Wu, Maryalice Jordan-Marsh, Iris Chi","doi":"10.1017/S0714980824000187","DOIUrl":"10.1017/S0714980824000187","url":null,"abstract":"<p><strong>Background: </strong>Immigrant caregivers support the aging population, yet their own needs are often neglected. Mobile technology-facilitated interventions can promote caregiver health by providing easy access to self-care materials.</p><p><strong>Objective: </strong>This study employed a design thinking framework to examine Chinese immigrant caregivers' (CICs) unmet self-care needs and co-design an app for promoting self-care with CICs.</p><p><strong>Methods: </strong>Nineteen semi-structured interviews were conducted in conceptual design and prototype co-design phases.</p><p><strong>Findings: </strong>Participants reported unmet self-care needs influenced by psychological and social barriers, immigrant status, and caregiving tasks. They expressed the need to learn to keep healthy boundaries with the care recipient and respond to emergencies. Gaining knowledge was the main benefit that drew CICs' interest in using the self-care app. However, potential barriers to use included issues of curriculum design, technology anxiety, limited free time, and caregiving burdens.</p><p><strong>Discussion: </strong>The co-design process appears to be beneficial in having participants voice both barriers and preferences.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"580-587"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11569268/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140960270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mariana Alves de Almeida, Maira Tonidandel Barbosa, Elisa de Paula França Resende, Viviane Amaral Carvalho, Ana Paula Borges Santos, João Carlos Barbosa Machado, Vivian Proença Lara, Karina Braga Gomes, Thais Helena Machado, Paulo Caramelli
{"title":"Association of Alcohol Consumption with Cognition and Functionality in Older Adults Aged 75+ Years: The Pietà Study.","authors":"Mariana Alves de Almeida, Maira Tonidandel Barbosa, Elisa de Paula França Resende, Viviane Amaral Carvalho, Ana Paula Borges Santos, João Carlos Barbosa Machado, Vivian Proença Lara, Karina Braga Gomes, Thais Helena Machado, Paulo Caramelli","doi":"10.1017/S0714980824000126","DOIUrl":"10.1017/S0714980824000126","url":null,"abstract":"<p><p>The relationship between alcohol consumption and cognition is still controversial. This is a cross-sectional population-based study conducted in Caeté (MG), Brazil, where 602 individuals aged 75+ years, 63.6% female, and with a mean education of 2.68 years, were submitted to thorough clinical assessments and categorized according to the number of alcoholic beverages consumed weekly. The prevalence rates of previous and current alcohol consumption were 34.6% and 12.3%, respectively. No association emerged between cognitive diagnoses and current/previous alcohol consumption categories. Considering current alcohol intake as a dichotomous variable, the absence of alcohol consumption was associated with dementia (OR = 2.34; 95%CI: 1.39-3.90) and worse functionality (p = 0.001). Previous consumption of cachaça (sugar cane liquor) increased the risk of dementia by 2.52 (95%CI: 1.25-5.04). The association between the consumption of cachaça and dementia diagnosis has not been described before.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"518-528"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140102645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Erin L Scott, David Rudoler, Jana Ferma, Helen Stylianou, Allie Peckham
{"title":"System-Level Factors Affecting Long-Term Care Wait Times: A Scoping Review.","authors":"Erin L Scott, David Rudoler, Jana Ferma, Helen Stylianou, Allie Peckham","doi":"10.1017/S0714980824000072","DOIUrl":"10.1017/S0714980824000072","url":null,"abstract":"<p><p>Waitlists for long-term care (LTC) continue to grow, and it is anticipated aging populations will generate additional demand. While literature focuses on individual-level factors, little is known about system-level factors contributing to LTC waitlists. We considered these factors through a scoping review. Inclusion/exclusion included publication year (2000-2022), language, paper focus, and document type. A total of 815 abstracts were identified, only 17 studies were included. Through qualitative content analysis, 10 key factors were identified: (1) waitlist management styles, (2) inconsistent standards of admission, (3) personnel shortage, (4) insufficient community-based care, (5) inequitable distribution of services, (6) lack of system integration, (7) unintended consequences of insurance plans, (8) ranking preferences, (9) the debate of supply and demand, and (10) financial incentives. Targeting interventions to address waitlist management, community-based care capacity, and demographic trends could improve access. More research is needed to address system-level barriers to timely LTC access.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"507-517"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139913756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
James Conklin, Maryam Mohammadi Dehcheshmeh, Douglas Archibald, Jacobi Elliott, Amy Hsu, Anita Kothari, Paul Stolee, Heidi Sveistrup
{"title":"From Compliance to Care: Qualitative Findings from a Survey of Essential Caregivers in Ontario Long-Term Care Homes.","authors":"James Conklin, Maryam Mohammadi Dehcheshmeh, Douglas Archibald, Jacobi Elliott, Amy Hsu, Anita Kothari, Paul Stolee, Heidi Sveistrup","doi":"10.1017/S071498082400014X","DOIUrl":"10.1017/S071498082400014X","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic highlighted the importance of the care provided by family members and close friends to older people living in long-term care (LTC) homes. Our implementation science team helped three Ontario LTC homes to implement an intervention to allow family members to enter the homes during pandemic lockdowns.</p><p><strong>Objective: </strong>We used a variety of methods to support the implementation, and this paper reports results from an Ontario-wide survey intended to help us understand the nature of the care provided by family caregivers.</p><p><strong>Methods: </strong>We administered a survey of essential caregivers in Ontario, and a single open-ended question yielded a substantial qualitative data set that we analysed with a coding and theming procedure that yielded 13 themes.</p><p><strong>Findings: </strong>The 13 themes reveal deficiencies in Ontario's LTC sector, attempts to cope with the deficiencies, and efforts to influence change and improvement.</p><p><strong>Discussion: </strong>Our findings indicate that essential caregivers find it necessary to take on vital roles in order to shore up two significant gaps in the current system: they provide psychosocial and emotional (and sometimes even basic) care to residents, and they play a monitoring and advocacy role to compensate for the failings of the current regulatory compliance regime.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"538-547"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Margaret J Penning, Sean D Browning, Kazi Sabrina Haq, Bodhin Kidd
{"title":"Framing Later Life Vulnerability during the COVID-19 Pandemic: A Content Analysis of Newspaper Coverage in Canada and the United States.","authors":"Margaret J Penning, Sean D Browning, Kazi Sabrina Haq, Bodhin Kidd","doi":"10.1017/S0714980824000175","DOIUrl":"10.1017/S0714980824000175","url":null,"abstract":"<p><p>This study explores vulnerability narratives used in relation to older adults and others during the COVID-19 pandemic. A mixed-method content analysis was conducted of 391 articles published in two major newspapers in Canada and the USA during the first wave of the pandemic. The findings indicated that during the early months of the pandemic, limited attention was directed towards its impact on older adults or other 'vulnerable' subpopulations in both countries. Where evident, intrinsic (individual-level) risk factors were most consistently used to frame the vulnerability of older adults. In contrast, vulnerability was more likely to be framed as structural with regard to other subpopulations (e.g., ethno-racial minorities). These narratives also differed somewhat in Canadian and US newspapers. The framing of older adults as intrinsically vulnerable reflects ageist stereotypes and promotes downstream policy interventions. Greater attention is needed to the role of structural factors in influencing pandemic-related outcomes among older adults.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"548-558"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140859588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Vanessa Paglione, Lindsay Morrison, Meghan H McDonough, Andrea Downie, Sarah J Kenny
{"title":"Bringing Dance to Older Adults: Program Experts' Perspectives on the Role of Community Dance Classes to Support Older Adults.","authors":"Vanessa Paglione, Lindsay Morrison, Meghan H McDonough, Andrea Downie, Sarah J Kenny","doi":"10.1017/S0714980824000084","DOIUrl":"10.1017/S0714980824000084","url":null,"abstract":"<p><strong>Background: </strong>Dancing offers several health and wellness benefits for older adults: it may promote physical literacy (PL) and positively influence the aging process. Yet, limited research considers the perspectives of those with experience working with older adults and in community dance programming.</p><p><strong>Objective: </strong>The purpose of this study was to understand program experts' perspectives on how older adult community dance can promote PL and contribute to age-friendly cities and community initiatives.</p><p><strong>Methods and findings: </strong>Four themes were identified from semi-structured interviews with five program experts: (1) expert instructors tailor classes to participants' needs and interests; (2) the heart of what draws us to dancing: authentic experience and social connection; (3) elitist, ableist, and gendered assumptions of dance prevent social inclusion of older adults in dancing spaces; and (4) collaboration across sectors is needed to offer accessible, sustainable, and valued dance programming.</p><p><strong>Discussion: </strong>Recommendations for developing and implementing older adult community dance programming are described.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"482-490"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139913755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Key Learnings from 'Seniors of Canada': A Community Project Aimed to Disrupt Ageism.","authors":"Stephanie Hatzifilalithis, Rachel Weldrick, Kelsey Harvey","doi":"10.1017/S0714980824000151","DOIUrl":"10.1017/S0714980824000151","url":null,"abstract":"<p><p>Visual representations of aging have historically relied upon binarized clichés: idealized youthfulness versus frailty and illness. To challenge these oversimplified depictions, graduate students developed a community outreach project titled 'Seniors of Canada'. The aim of this project was twofold: (1) share images and stories of people in later life; and (2) challenge dominant narratives and stereotypes of aging. In this note, we outline the prevailing discourse of what aging 'looks like', how we collected stories and images, and implications for knowledge mobilization and research in Canada. This article highlights insights gained since the inception of the project, including three key learnings: (1) <i>Building bridges across academia and community</i>, (2) <i>Intergenerational connection and digital tools</i>, and (3) <i>The power of visual storytelling.</i> We provide a practical overview of a successful knowledge mobilization/community outreach project and showcase the power of bridging academia and community for social change.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"629-635"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amanda Grenier, Deborah O'Connor, Krista James, Daphne Imahori, Daniella Minchopoulos, Nicole Velev, Laura Tamblyn-Watts, Jim Mann
{"title":"Consent and Inclusion of People Living with Dementia (PLWD) in Research: Establishing a Canadian Agenda for Inclusive Rights-Based Practices.","authors":"Amanda Grenier, Deborah O'Connor, Krista James, Daphne Imahori, Daniella Minchopoulos, Nicole Velev, Laura Tamblyn-Watts, Jim Mann","doi":"10.1017/S0714980824000217","DOIUrl":"10.1017/S0714980824000217","url":null,"abstract":"<p><strong>Background: </strong>People living with dementia (PLWD) may want to participate in research, but the guidelines and processes enacted across various contexts may prohibit this from happening.</p><p><strong>Objective: </strong>Understanding the experiences of people with lived experiences of dementia requires meaningful inclusion in research, as is consistent with rights-based perspectives. Currently, the inclusion of PLWD in Canadian research is complex, and guidelines and conceptual frameworks have not been fully developed.</p><p><strong>Methods: </strong>This research note outlines a three-year proof-of-concept grant on the inclusion and consent of PLWD in research.</p><p><strong>Findings: </strong>It presents a brief report on some of the contradictions and challenges that exist in legislation, research guidelines, and research practices and raises a series of questions as part of an agenda on rights and inclusion of PLWD in research.</p><p><strong>Discussion: </strong>It suggests conceptual, legal, and policy issues that need to be addressed and invites Canadian researchers to re-envision research practices and to advocate for law and policy reform that enables dementia research to align and respect the rights and personhood of PLWD.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"621-628"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141066393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cecilia Flores-Sandoval, Shannon L Sibbald, Bridget L Ryan, Tracey L Adams, Neville Suskin, Robert McKelvie, Jacobi Elliott, Joseph B Orange
{"title":"Virtual care during COVID-19: The perspectives of older adults and their healthcare providers in a cardiac rehabilitation setting.","authors":"Cecilia Flores-Sandoval, Shannon L Sibbald, Bridget L Ryan, Tracey L Adams, Neville Suskin, Robert McKelvie, Jacobi Elliott, Joseph B Orange","doi":"10.1017/S0714980824000102","DOIUrl":"10.1017/S0714980824000102","url":null,"abstract":"<p><p>The present study aimed to explore the perspectives of older adults and health providers on cardiac rehabilitation care provided virtually during COVID-19. A qualitative exploratory methodology was used. Semi-structured interviews were conducted with 15 older adults and 6 healthcare providers. Five themes emerged from the data: (1) Lack of emotional intimacy when receiving virtual care, (2) Inadequacy of virtual platforms, (3) Saving time with virtual care, (4) Virtual care facilitated accessibility, and (5) Loss of connections with patients and colleagues. Given that virtual care continues to be implemented, and in some instances touted as an optimal option for the delivery of cardiac rehabilitation, it is critical to address the needs of older adults living with cardiovascular disease and their healthcare providers. This is particularly crucial related to issues accessing and using technology, as well as older adults' need to build trust and emotional connection with their providers.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"491-498"},"PeriodicalIF":1.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}