{"title":"North Carolina Caregiver Listening Study: Caregiver Experiences and Perspectives on Services and Supports in an Aging U.S. State.","authors":"Erin E Kent, Sue Deaton, Emmaline Keesee","doi":"10.1080/01634372.2024.2351072","DOIUrl":"10.1080/01634372.2024.2351072","url":null,"abstract":"<p><p>Family caregivers experience health, financial, and social burdens related to caregiving responsibilities. North Carolina has an estimated 1.3 million caregivers, equating to a value of $13.1 billion per year. Caregiving demands warrant additional understanding of the caregiver lived experiences. Our objective was to document these North Carolina caregiver experiences during the era of COVID-19 through focus groups. Participants were recruited through diverse community organizations. All 44 caregivers who completed interest solicitation surveys were invited to participate; 29 caregivers participated across 11 groups. Thematic analysis was used to code and synthesize transcripts from each participant using Dedoose software and guided by the Consolidated Criteria for Reporting Qualitative Research (COREQ). Themes included: caregiver routines (caregiving as an all-encompassing role; dimensions of support); most challenging parts (exhaustion and defeat; lacking support; evolving relationships); most rewarding parts (care recipient resilience; quality time; sense of purpose); social service and healthcare system interactions (positive interactions; negative interactions; inaccessible services); COVID-19 impacts on caregiving (opportunities; challenges); and caregiver suggestions for system improvements (increasing financial support; improved coordination; ideological shifts). Caregivers shared unmet needs, challenges, and opportunities for improvement. Examining these needs and experience-informed recommendations can help advance additional caregiving research, policy-making, and program development.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"1103-1126"},"PeriodicalIF":1.5,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140923148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Thomas Noordink, Lisbeth Verharen, René Schalk, Tine Van Regenmortel
{"title":"A Conceptual Exploration of Psychological Empowerment with Older People. A Tailored Concept Mapping Approach.","authors":"Thomas Noordink, Lisbeth Verharen, René Schalk, Tine Van Regenmortel","doi":"10.1080/01634372.2024.2359927","DOIUrl":"10.1080/01634372.2024.2359927","url":null,"abstract":"<p><p>Empowerment is central in gerontological social work. Operationalizing empowerment from the perspective of the target population is important to align with context specific interpretations of what empowerment means. This study aims at operationalizing psychological empowerment from the perspective of older people. A design was chosen that is based on the concept mapping method, though tailored to accommodate the specific principles we assume in empowerment research and to align with target specific conditions that come to play with older persons. The results show an empowerment with 58 statements divided over four components of empowerment; emotional, cognitive, relational and behavioural component.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"1153-1173"},"PeriodicalIF":1.5,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141176623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Honglin Chen, Wenrui Liu, Xian Xu, Meng Xiao, You Yin
{"title":"The Effects of a Nonpharmacological Intervention Practice for Older Adults with Mild Cognitive Impairment and Their Family Caregivers in China.","authors":"Honglin Chen, Wenrui Liu, Xian Xu, Meng Xiao, You Yin","doi":"10.1080/01634372.2024.2355152","DOIUrl":"10.1080/01634372.2024.2355152","url":null,"abstract":"<p><p>Mild cognitive impairment (MCI) marks a critical phase in the progression to dementia. In our study, social workers utilized the Multicomponent Nonpharmacological Intervention Approach (MCNIA) to aid MCI participants (N = 52) and their caregivers, dividing into intervention and control groups. The intervention group underwent an additional regimen of non-pharmacological therapies besides pharmacological treatment. Our findings highlighted that: 1) MCNIA significantly enhanced cognitive and daily living abilities in the intervention group; 2) Caregivers experienced reduced burdens and improved social support; 3) Correlation analyses involving biomarkers indicated that MCNIA was particularly effective in alleviating depression in those with slightly more severe cognitive impairment.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"1069-1088"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141066384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wanqing Cheng, Donghang Zhang, Lai Long Lei, Keyang Li
{"title":"Effects of Bright Light Therapy on Agitation Among Older Adults Living with Dementia in Macao: A Pilot Study.","authors":"Wanqing Cheng, Donghang Zhang, Lai Long Lei, Keyang Li","doi":"10.1080/01634372.2024.2349603","DOIUrl":"10.1080/01634372.2024.2349603","url":null,"abstract":"<p><p>A randomized controlled trial was conducted to examine the effects of bright light therapy on agitation in older adults with dementia in Macao. This study involved 31 participants: 10 in the outdoor light treatment group, 11 in the indoor light-box treatment group, and 10 in the control group. Significant reductions in agitation were observed in the two treatment groups over four weeks compared to the control group. However, no statistical difference in cognitive function between experimental and control groups was found. This study supports the use of bright light therapy to reduce agitation in older people with dementia.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"1050-1068"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140873028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jie Lei, Yucheng Liang, Zhenhao Su, Peixing Dong, Jianling Liang, Lin Lin
{"title":"Can Socially Assistive Robots Be Accepted by Older People Living Alone in the Community?: Empirical Findings from a Social Work Project in China.","authors":"Jie Lei, Yucheng Liang, Zhenhao Su, Peixing Dong, Jianling Liang, Lin Lin","doi":"10.1080/01634372.2024.2339992","DOIUrl":"10.1080/01634372.2024.2339992","url":null,"abstract":"<p><p>A pilot study was undertaken between March 2019 and September 2021, loaning socially assistive robots (SARs) for a 7-day trial to older people living alone in China. Quantitative assessments of participants' acceptance of technology and loneliness were conducted before and after the intervention, supplemented with qualitative interviews. Unexpectedly, participants' intention to use SARs decreased significantly, largely due to emotional anxiety. Meanwhile, participants' level of loneliness remained unchanged. Follow-up interviews revealed anxious emotion, hesitant attitudes, unreal social presence, usability difficulties as contributing factors. The study provides social workers with valuable insights into introducing SARs into community care of older people.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"995-1012"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Special Issue on Gero Social Work for Chinese Background Older Adults -Editorial.","authors":"Fei Sun, Qiuling An, Xiang Gao","doi":"10.1080/01634372.2024.2411150","DOIUrl":"10.1080/01634372.2024.2411150","url":null,"abstract":"","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":"67 7","pages":"861-864"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Xuejing Yang, Peiyuan Zhang, Shijie Jing, Yan Cheng, April Cavaletto
{"title":"Logotherapy-Based Interventions for Chinese Family Caregivers of Older Adults with Dementia Through Online Groups: A Mixed-Methods Study.","authors":"Xuejing Yang, Peiyuan Zhang, Shijie Jing, Yan Cheng, April Cavaletto","doi":"10.1080/01634372.2024.2326689","DOIUrl":"10.1080/01634372.2024.2326689","url":null,"abstract":"<p><p>Chinese family caregivers of people with dementia (PWD) can suffer from physical and psychological burden. This study aimed to examine the effects of logotherapy-based interventions on Chinese family caregivers of older adults with dementia to decrease caregiver burden. This mixed-methods study used a pre-experimental design with pre-posttests and semi-structured interviews. A purposive sample of 13 family caregivers from a suburban district in Shanghai was enrolled with (1) caregiver burden and (2) access and capability to use smart devices. Participants received eight online group logotherapy sessions with a focus on hope and meaning construction. Participants completed the Zarit Burden Interview, a 22-item measure of caregiver burden, before and after the intervention, and a 30-min semi-structured interview post-intervention. From the quantitative data, dementia caregivers reported severe caregiving burdens at the baseline (<i>M</i> = 54.77, <i>SD</i> = 9.33). Caregiver burden significantly decreased after the logotherapy-based intervention (<i>M</i> = 52.15, <i>SD</i> = 8.80, <i>p</i> < .001). Two themes pertaining to participants' experiences in intervention emerged from the qualitative data: (1) improved attitudes toward suffering, and (2) enhanced sense of meaning in life and hope. The cultural relevance of logotherapy to Chinese familism and Confucianism may further enhance its feasibility in the Chinese context.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"865-880"},"PeriodicalIF":1.5,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140094878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"I'm Part of Something That Matters\": Exploring What Older Adults Value Through Their Engagement in Age-Friendly Community Initiatives.","authors":"Qiuchang Cao, Natalie Pope, Emily Greenfield","doi":"10.1080/01634372.2024.2339971","DOIUrl":"10.1080/01634372.2024.2339971","url":null,"abstract":"<p><p>Older adults' engagement in age-friendly community (AFC) initiatives is considered an essential element of community transformation. However, research on older adults' experiences of engaging in AFC initiatives remains nascent. Based on qualitative interviews with 23 older adult participants from 15 AFC initiatives across four states in the United States (U.S.), our reflexive thematic analysisidentified three themes regarding what participants value from their engagement: (a) social contribution; (b) social connectedness and integration; and (c) staying active and personal growth. Exploring older adults' interest in contributing to, connecting with, and growing in their community can inform recruitment and retention in AFC initiatives.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"715-737"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jorrit Campens, Anina Vercruyssen, Willem De Keyzer, Nico De Witte
{"title":"Using Two-Step Cluster Analysis and Latent Class Analysis to Construct a Typology of Internet Users Among Community-Dwelling Older People.","authors":"Jorrit Campens, Anina Vercruyssen, Willem De Keyzer, Nico De Witte","doi":"10.1080/01634372.2024.2346661","DOIUrl":"10.1080/01634372.2024.2346661","url":null,"abstract":"<p><p>This study utilizes data, spanning 2016-2021, from the Belgian Ageing Studies and presents a typology of older internet users based on nine internet activities. Two-step Cluster Analysis and Latent Class Analysis revealed three groups: (1) \"Basic users\" primarily engage in information search and mailing, (2) \"Allrounders\" participate in nearly all internet activities and (3) \"Selective users\" are intermediary, predominantly using the internet for information search, mailing, e-banking and communication with (grand)children. These clusters varied in sociodemographic characteristics, with \"Allrounders\" being younger, more educated, wealthier and predominantly male, compared to \"Selective users\" and \"Basic users,\" respectively.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"803-824"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140859121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Service Provider Perspectives on Advance Care Planning Use in Rural Dementia Patients and Caregivers: A Qualitative Study.","authors":"Peiyuan Zhang, Ebow Nketsiah, Hyunjin Noh","doi":"10.1080/01634372.2024.2351071","DOIUrl":"10.1080/01634372.2024.2351071","url":null,"abstract":"<p><p>Advanced care planning (ACP) utilization remains very limited in rural communities compared to urban areas. ACP earlier in the disease trajectory is particularly important for people with dementia (PWD) due to its progressive nature affecting their decision-making ability. Considering the well-documented benefits of ACP in improving the quality of end-of-life (EOL) care, the rural vs. urban disparity may indicate poorer EOL quality for rural PWD. This study aimed to explore barriers and current resources for ACP of PWD from the perspectives of health or social service providers serving rural communities. Using a qualitative approach, semi-structured face-to-face interviews were conducted with 11 health or social service professionals serving older adults and their caregivers in rural Alabama. Thematic analysis revealed three major barriers: (1) lack of knowledge, (2) psychosocial barriers, and (3) limited access to healthcare. Participants also showed misconception that a lawyer or a notary is required for ACP. Two themes arose in the participants' recommendations to address the barriers: (1) providing ACP-relevant information and (2) addressing psychosocial stressors about ACP. This study highlighted an urgent need for social policy in ACP education for caregivers and service providers in rural settings.</p>","PeriodicalId":47579,"journal":{"name":"Journal of Gerontological Social Work","volume":" ","pages":"825-840"},"PeriodicalIF":1.5,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}