Medical Anthropology最新文献

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The Negotiation of Medical Treatments by Parents of Children with Congenital Adrenal Hyperplasia in Poland. 波兰先天性肾上腺增生症患儿家长医疗谈判。
IF 1.2 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-05-01 DOI: 10.1080/01459740.2025.2464620
Magdalena Radkowska-Walkowicz, Anna Kucharska
{"title":"The Negotiation of Medical Treatments by Parents of Children with Congenital Adrenal Hyperplasia in Poland.","authors":"Magdalena Radkowska-Walkowicz, Anna Kucharska","doi":"10.1080/01459740.2025.2464620","DOIUrl":"10.1080/01459740.2025.2464620","url":null,"abstract":"<p><p>Congenital adrenal hyperplasia (CAH) is a rare inherited disease that requires continuous home-based treatment. The increasing accessibility of medical information and the presence of an active online community-particularly a dedicated Facebook group-enable parents of children with CAH to become engaged participants in discussions about therapy and innovative solutions. Drawing on ethnographic research, this study explores the complex dynamics of medical decision-making and negotiation between parents and doctors. Key areas of contention include: 1. Medication dosage. 2. The use of cortisol pump technology. 3. The availability of emergency hydrocortisone injection kits. 4. Early genital surgery. While parents actively seek knowledge and challenge medical approaches, their influence on biomedical practices remains limited. The study argues that these negotiations, though often subtle and slow, contribute to changing treatment and become the part of the \"logic of care\".</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"488-502"},"PeriodicalIF":1.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143989624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Scarecrows: Supernatural Sentinels Against COVID-19 in Cambodia. 稻草人:在柬埔寨对抗COVID-19的超自然哨兵。
IF 1.2 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-07-01 DOI: 10.1080/01459740.2025.2505657
Maurice Eisenbruch
{"title":"Scarecrows: Supernatural Sentinels Against COVID-19 in Cambodia.","authors":"Maurice Eisenbruch","doi":"10.1080/01459740.2025.2505657","DOIUrl":"10.1080/01459740.2025.2505657","url":null,"abstract":"<p><p>Responses to the threat of COVID-19 have unveiled the underlying cultural theories of contagion across various countries. In Cambodia, erecting scarecrows has emerged as a popular response. This ethnographic study on contagious diseases and cultural deathscapes, which included participant observation with 185 informants, revealed that the human perception of scarecrows was less significant than the perception of ghosts that these scarecrows were intended to repel. To serve as effective sentinels, these scarecrows must appear menacing and be well armed. These observations offer insights into the cultural construction of contagion, threat, and defense in the context of an epidemic or a pandemic.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"345-363"},"PeriodicalIF":1.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12313097/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144545444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parental Care as Infrastructure for Adults with Intellectual Disabilities in Norway. 父母照顾作为挪威智力残疾成人的基础设施。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-04-30 DOI: 10.1080/01459740.2025.2495627
Jenny Frogner, Halvor Hanisch
{"title":"Parental Care as Infrastructure for Adults with Intellectual Disabilities in Norway.","authors":"Jenny Frogner, Halvor Hanisch","doi":"10.1080/01459740.2025.2495627","DOIUrl":"10.1080/01459740.2025.2495627","url":null,"abstract":"<p><p>We explore the care work of parents in the lives of adults with intellectual disabilities in Norway. We theorize these parental contributions as a form of care infrastructure. Through their presence in the daily lives of the persons with intellectual disabilities as well as through maintenance work and repair work on welfare services, parents respond to unpredictable care provision in the welfare state. These efforts sometimes entail invention and result in new types of care structures, which we call \"care pioneering.\"</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"364-377"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143988077","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Only the Immunocompromised and Elderly Will Die": Precarity and Care in the United States. “只有免疫功能低下和老年人才会死亡”:美国的不稳定性和护理。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-04-21 DOI: 10.1080/01459740.2025.2495640
Lisa J Hardy, Carly Thompson-Campitor
{"title":"\"Only the Immunocompromised and Elderly Will Die\": Precarity and Care in the United States.","authors":"Lisa J Hardy, Carly Thompson-Campitor","doi":"10.1080/01459740.2025.2495640","DOIUrl":"10.1080/01459740.2025.2495640","url":null,"abstract":"<p><p>During the first days of COVID-19, stories about health and life circulated quickly and with resolve. The phrase \"only the immunocompromised and elderly will die\" became a touchpoint of disagreement, meaning fascist sacrifice to some and comfort to others. Examples provide insights into how, in times of disruption, meanings embedded in diffusive phrases expose and reinforce existing systems of power. We use the concept of <i>shoring</i>, borrowed from engineering, to discuss how health narratives reinforce and challenge existing structures of power and injustice in moments of social and political strife.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"305-313"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144024682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient Involvement and Rare Diseases in Italy: Narratives, Spirituality, and Legitimation in Healthcare. 病人参与和罕见疾病在意大利:叙事,精神,和合法化的医疗保健。
IF 1.2 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-06-23 DOI: 10.1080/01459740.2025.2521749
Ilaria E Lesmo
{"title":"Patient Involvement and Rare Diseases in Italy: Narratives, Spirituality, and Legitimation in Healthcare.","authors":"Ilaria E Lesmo","doi":"10.1080/01459740.2025.2521749","DOIUrl":"10.1080/01459740.2025.2521749","url":null,"abstract":"<p><p>Public representations of rare diseases often depict patients as neglected and isolated. In response, initiatives promoting patient involvement have emerged, with illness narratives considered as key tools. However, the relationship between narratives and involvement remains underexplored. Based on ethnographic research conducted in Piedmont (Italy), I explore the narratives of two patients, which are deeply entangled with spiritual and religious perspectives, and explore the forms of involvement that emerged within the clinical space. I suggest that, depending on how moral and structural conditions intertwine, patients may be differently legitimized: roles of \"experts of experience\" or \"implicated actors\" arose within the field.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"473-487"},"PeriodicalIF":1.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144477298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Therapeutic Trajectories of Kenyan Queer Men with Anal Warts: Iatrogenesis in a Time of Homophobia. 肯尼亚酷儿男肛疣的治疗轨迹:在同性恋恐惧症时期的医源性。
IF 1.2 3区 社会学
Medical Anthropology Pub Date : 2025-01-01 Epub Date: 2025-07-30 DOI: 10.1080/01459740.2025.2539751
Matthew Thomann, John Maina Wambui, Pascal Macharia, Samuel Anyula Gorigo, Janvier Umira, Zipporah Mwangangi, Jedidah Ngene, John Mathenge, Sushena Reza-Paul, Lisa Lazarus, Robert Lorway
{"title":"Therapeutic Trajectories of Kenyan Queer Men with Anal Warts: Iatrogenesis in a Time of Homophobia.","authors":"Matthew Thomann, John Maina Wambui, Pascal Macharia, Samuel Anyula Gorigo, Janvier Umira, Zipporah Mwangangi, Jedidah Ngene, John Mathenge, Sushena Reza-Paul, Lisa Lazarus, Robert Lorway","doi":"10.1080/01459740.2025.2539751","DOIUrl":"10.1080/01459740.2025.2539751","url":null,"abstract":"<p><p>Human papillomavirus (HPV)-related anal infection is high among African gay, bisexual, and other men who have sex with men (MSM). In Kenya, queer men living with HPV-related anal warts often avoid health facilities, fearing homophobic retaliation from providers. In this paper, we present data collected over 24 months of ethnographic research, foregrounding the therapeutic trajectories of 35 men with advanced cases of anal warts requiring surgical intervention. The therapeutic trajectories we present here help to make visible how iatrogenesis exceeds the clinic's socio-spatial, temporal, and institutional confines and spills out into the intimate, social, and political spheres of human existence.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"519-532"},"PeriodicalIF":1.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144745482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Worker-Mothers Between Legitimation and Discipline: Ambiguities in Egg Donation and Surrogacy in Ukraine. 合法和纪律之间的工人母亲:在乌克兰卵子捐赠和代孕的模糊性。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-11-16 Epub Date: 2024-12-21 DOI: 10.1080/01459740.2024.2439965
Polina Vlasenko
{"title":"Worker-Mothers Between Legitimation and Discipline: Ambiguities in Egg Donation and Surrogacy in Ukraine.","authors":"Polina Vlasenko","doi":"10.1080/01459740.2024.2439965","DOIUrl":"10.1080/01459740.2024.2439965","url":null,"abstract":"<p><p>In this article I explore the dual impact of framing egg donation and surrogacy as work in Ukraine's fertility market. Egg donors, surrogates, and ART professionals use the labor narrative to legitimize these practices, albeit with differing aims. Women emphasize their economic role as worker-mothers, demanding fair treatment and recognition, while clinics employ the framework to market surrogates and donors and hold them accountable for outcomes. Without legal labor protections, this discourse empowers women to claim dignity and rights yet imposes disciplinary demands and shifts risks onto them, reflecting the precarities of their work.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"714-733"},"PeriodicalIF":1.5,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142872053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
In/Visible - A Photographic Journey Into the Lives of Egg Donors in Spain. In/Visible - 西班牙捐卵者生活摄影之旅。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-11-16 Epub Date: 2024-09-03 DOI: 10.1080/01459740.2024.2384734
Laura Perler, Tamara Sánchez Pérez
{"title":"In/Visible - A Photographic Journey Into the Lives of Egg Donors in Spain.","authors":"Laura Perler, Tamara Sánchez Pérez","doi":"10.1080/01459740.2024.2384734","DOIUrl":"10.1080/01459740.2024.2384734","url":null,"abstract":"<p><p>The result of a collaboration between an anthropologist and a photographer, in this photo essay we aim to visualize the medical process of egg donation and the quotidian lives of egg donors in Spain. By extending their biographies beyond the moment of extraction, we shed light on the intertwined messiness of medical procedures and everyday life and the precarious circumstances in which egg donation takes place in Spain today. Our aim is to highlight the participants who, although they matter most in the egg donation economy, are concealed: the egg donors.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"784-801"},"PeriodicalIF":1.5,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142126961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Recentering Labor in the Egg Donation Bioeconomy: Egg Donors' (Re)productive Work and Subjectification in Spain. 卵子捐赠生物经济中的再输入劳动:西班牙卵子捐赠者的(再)生产工作和主体化。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-11-16 Epub Date: 2023-10-05 DOI: 10.1080/01459740.2023.2263806
Anna Molas
{"title":"Recentering Labor in the Egg Donation Bioeconomy: Egg Donors' (Re)productive Work and Subjectification in Spain.","authors":"Anna Molas","doi":"10.1080/01459740.2023.2263806","DOIUrl":"10.1080/01459740.2023.2263806","url":null,"abstract":"<p><p>In 2019, Spanish fertility clinics reached a historical record of ova extractions. A total of 14,521 surgeries were performed to serve the growing egg demand internationally. Here I show how bringing a cycle to completion is not an easy task for egg donors. Selecting a clinic, understanding their own biocapital in the industry and how to invest it, fitting the cycle into their lives, and managing pain and emotions become crucial parts of their work. I argue that these activities constitute a vast amount of labor that, although essential for the generation of value in reproductive bioeconomies, remains invisible and undertheorized.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"770-783"},"PeriodicalIF":1.5,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41160493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Travelling Thai Surrogate Mothers: Required and Restricted Mobility in Transnational Surrogacy. 旅行的泰国代孕母亲:跨国代孕中的必要和受限流动。
IF 1.5 3区 社会学
Medical Anthropology Pub Date : 2024-11-16 Epub Date: 2024-11-11 DOI: 10.1080/01459740.2024.2424364
Elina Nilsson
{"title":"Travelling Thai Surrogate Mothers: Required and Restricted Mobility in Transnational Surrogacy.","authors":"Elina Nilsson","doi":"10.1080/01459740.2024.2424364","DOIUrl":"10.1080/01459740.2024.2424364","url":null,"abstract":"<p><p>In response to the changing landscape of transnational surrogacy, the industry has introduced flexible business models requiring women to move within and across borders to act as surrogate mothers. However, knowledge about their experiences remain vague, particularly concerning women traveling abroad under illegal conditions. Building upon interviews with Thai surrogate mothers, I demonstrate how their im/mobility reveals critical insights into labor conditions and power relations and is formed within the global reproductive industry as well as the specific national context. I also argue that the women's im/mobility and flexibility are central when making themselves bioavailable for the global surrogacy market.</p>","PeriodicalId":47460,"journal":{"name":"Medical Anthropology","volume":" ","pages":"734-747"},"PeriodicalIF":1.5,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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