Chiara Acquati, Qi Chen, Elizabeth K Arthur, Jennifer B Reese, Jessica R Gorman
{"title":"Development of the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) Scale in the Context of Cancer Survivorship.","authors":"Chiara Acquati, Qi Chen, Elizabeth K Arthur, Jennifer B Reese, Jessica R Gorman","doi":"10.1080/07347332.2024.2398095","DOIUrl":"https://doi.org/10.1080/07347332.2024.2398095","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to develop the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) scale.</p><p><strong>Methods: </strong>Candidate items derived from the patient version of the instrument were refined with input from an expert panel specializing in sexual health, psychosocial oncology, and instrument development (<i>n</i> = 6). Partners (<i>n</i> = 17) of female cancer survivors participated in cognitive interviews to assess the revised scale's content validity.</p><p><strong>Results: </strong>Transcripts were analyzed qualitatively. Participants endorsed the items as relevant, clear, and appropriate.</p><p><strong>Conclusions: </strong>The present work illustrates the iterative development of the SECSI-PV scale. The study highlights the importance of including partners in sexual health discussions and emphasizes the need for psychosocial interventions supporting partners' confidence communicating about sexuality and intimacy. Additional research is recommended to validate the instrument in larger samples encompassing cancer types that are not sex-based and partners from diverse backgrounds, including sexual and gender minority groups.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-19"},"PeriodicalIF":1.5,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hermioni L Amonoo, Elizabeth Daskalakis, Jeffrey A Lam, Emma D Wolfe, Michelle Guo, Henry K Onyeaka, Richard A Newcomb, Anna Barata, Pia Maria Ghanime, Emma P Keane, Annabella C Boardman, Corey Cutler, William F Pirl, John R Peteet, Lisa M Gudenkauf, Stephanie J Lee, Jeff C Huffman, Areej El-Jawahri
{"title":"Association between positive affect, flourishing, quality of life, and psychological distress in allogeneic hematopoietic stem cell transplantation.","authors":"Hermioni L Amonoo, Elizabeth Daskalakis, Jeffrey A Lam, Emma D Wolfe, Michelle Guo, Henry K Onyeaka, Richard A Newcomb, Anna Barata, Pia Maria Ghanime, Emma P Keane, Annabella C Boardman, Corey Cutler, William F Pirl, John R Peteet, Lisa M Gudenkauf, Stephanie J Lee, Jeff C Huffman, Areej El-Jawahri","doi":"10.1080/07347332.2024.2410929","DOIUrl":"https://doi.org/10.1080/07347332.2024.2410929","url":null,"abstract":"<p><strong>Purpose: </strong>To examine the associations between state positive psychological well-being (PPWB) constructs, mood, and quality of life (QOL) in hematopoietic stem cell transplantation (HSCT) survivors.</p><p><strong>Design: </strong>The study was a secondary analysis of cross-sectional data.</p><p><strong>Sample/methods: </strong>We analyzed self-report data assessing positive affect, flourishing, QOL, depression and anxiety, and PTSD symptoms from 158 allogeneic HSCT recipients at day-100 post-transplant enrolled in supportive care studies.</p><p><strong>Findings: </strong>Univariate analysis showed that factors associated with greater levels of various state PPWB constructs include older age, disability status, greater social support, and presence of graft-versus-host disease. Multivariate analysis showed that state PPWB constructs-greater levels of positive affect and flourishing-were significantly associated with better QOL and lower PTSD, anxiety, and depression symptomatology.</p><p><strong>Implications: </strong>Our findings suggest that longitudinal studies are needed to examine the links between state PPWB constructs and HSCT outcomes, which may inform population specific interventions and opportunities to improve outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-16"},"PeriodicalIF":1.5,"publicationDate":"2024-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Susan Ellis Winebrenner, Lynne Hall, Carla Hermann, Robert C G Martin
{"title":"Scanxiety in survivors of pancreatic cancer.","authors":"Susan Ellis Winebrenner, Lynne Hall, Carla Hermann, Robert C G Martin","doi":"10.1080/07347332.2024.2408552","DOIUrl":"https://doi.org/10.1080/07347332.2024.2408552","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the scanxiety experience in pancreatic cancer (PC) survivors following curative surgical resection.</p><p><strong>Design: </strong>A qualitative study with a hermeneutic phenomenological approach was used.</p><p><strong>Methods: </strong>Eighteen PC survivors participated. Data from in-depth, semi-structured interviews were analyzed and themes emerged from systematic line-by-line coding of the interview transcripts.</p><p><strong>Findings: </strong>Two key themes emerged: 'the recurring cycle of scanxiety' and 'hope for lifelong remission'. Participants experienced similar patterns of scanxiety that impacted everyday life. Hope was an essential stabilizing component of the cancer-scan experience, and enabled participants to conceptualize a cure, despite the high likelihood of recurrent, incurable disease. A conceptual framework was developed to provide further insight.</p><p><strong>Implications: </strong>Everyday life is significantly affected during times of PC surveillance scans. This study enhances our understanding of the cancer-scan experience and provides a framework to guide care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2024-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142366943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A descriptive study of the connections between social risk and healthcare utilization with supportive oncology care.","authors":"Rebecca Cammy, Joshua Banks, Celeste Vaughan-Briggs, Gregory Garber, Steven Pantilat, Brooke Worster","doi":"10.1080/07347332.2024.2404560","DOIUrl":"https://doi.org/10.1080/07347332.2024.2404560","url":null,"abstract":"<p><strong>Objective: </strong>This study utilized social risk data in the electronic heath record collected as part of routine clinical practice and examined relationships with supportive oncology care contacts and healthcare utilization.</p><p><strong>Methods: </strong>A total of 2,807 cancer patients were screened for four social determinants of health (SDOH) domains (financial resource strain, housing instability, food insecurity, and transportation need) and categorized to low or high risk SDOH groups. The number of patient contacts with supportive oncology was compared amongst the groups. The data were analyzed for demographic and outcome differences including emergency department visits, inpatient admissions, and appointment adherence.</p><p><strong>Results: </strong>Heightened social risk was associated with more total contacts with supportive oncology care. Patients with high SDOH risk had more contacts across all outcomes examined including emergency department visits (<i>M</i> = 13), inpatient admissions (<i>M</i> = 14), and missed appointments (<i>M</i> = 11).</p><p><strong>Conclusions: </strong>Patients with both greater social risks and acute care utilization are associated with more psychosocial interventions in supportive oncology follow-up. These findings highlight the need for comprehensive action to respond to social risk factors identified in SDOH screening.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142336899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Psychosocial interventions for post-treatment haematological cancer survivors: An integrative review.","authors":"Deborah Raphael, Rosemary Frey, Tess Moeke-Maxwell, Merryn Gott","doi":"10.1080/07347332.2024.2401394","DOIUrl":"https://doi.org/10.1080/07347332.2024.2401394","url":null,"abstract":"<p><strong>Purpose: </strong>To synthesize literature regarding the implementation and evaluation of psychosocial interventions designed to reduce distress in post-treatment haematological cancer survivors.</p><p><strong>Methods: </strong>An integrative review was conducted according to Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched were Medline, Cinahl, PsychInfo, WoS, and EMBASE, during November 2022.</p><p><strong>Results: </strong>The total number of eligible studies was 14. The interventions comprised four main intervention categories: care planning, psychological therapy-based, supported self-care/self-management, and survivorship clinic visits. Overall psychosocial interventions were shown to improve outcomes for haematological cancer survivors.</p><p><strong>Conclusions: </strong>Psychosocial interventions may play a role in reducing distress for post-treatment haematological cancer survivors and have shown improvements in both psychological and physical outcomes. However, the evidence base was limited and heterogeneous indicating the need for more research.</p><p><strong>Implications for cancer survivors: </strong>Psychosocial interventions for haematological cancer survivors have the potential to reduce psychosocial distress during the post-treatment period.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-27"},"PeriodicalIF":1.5,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Survey of families’ psychosocial needs in the context of pediatric cancer: a first step toward the participatory development of a group intervention","authors":"Mélina Rivard, Julie Tremblay, Zakaria Mestari, Léandra Desjardins, Élodie Bergeron, Christine Lefebvre","doi":"10.1080/07347332.2024.2404570","DOIUrl":"https://doi.org/10.1080/07347332.2024.2404570","url":null,"abstract":"Pediatric cancer is associated with stressors that increase the risk for distress across family members. Psychosocial support varies and may not meet family needs and preferences. This study invest...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"57 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142253056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Imani N Wilson-Shabazz,Christopher W Wheldon,Michael J Hall,Sarah Bauerle Bass
{"title":"Disparities in fertility preservation discussions among sexual and gender minority cancer patients and their cancer care providers.","authors":"Imani N Wilson-Shabazz,Christopher W Wheldon,Michael J Hall,Sarah Bauerle Bass","doi":"10.1080/07347332.2024.2396466","DOIUrl":"https://doi.org/10.1080/07347332.2024.2396466","url":null,"abstract":"BACKGROUNDCancer providers are advised to inform their reproductive aged patients about fertility preservation given the potential for treatment-related infertility. How consistently fertility preservation discussions (FPDs) occur is understudied in sexual and gender minority (SGM) cancer patients. The effects of bias and heteronormativity may reduce the rate of FPDs. We identified the frequency and correlates of FPD in a sample of SGM cancer patients.METHODSData were from the cross-sectional 2020 OUT National Cancer Survey. The sample was restricted to those diagnosed with cancer between the ages of fifteen and forty-five. FPD was measured with a single item. Multivariable logistic regression was conducted to determine factors significantly associated with FPDs.RESULTSAverage age at cancer diagnosis was 34.97 (SD = 8.34). Respondents were mostly non-Hispanic white (77.6%) and college-educated (63.4%), and 32.6% reported FPDs. In the multivariable model, identifying as lesbian (Adjusted odds ratio [aOR] = 0.49; 95% CI: 0.24-0.99), pansexual (aOR = 0.34; 95% CI:0.12-0.94), or queer (aOR = 0.24; 95% CI: 0.08-0.70) was negatively associated with FPDs compared to bisexuals. Being treated more than ten years ago (aOR = 0.47; 95% CI:0.26-0.85) was also negatively associated with FPDs.CONCLUSIONFindings suggest potential bias against some SGM patients based on sexual orientation identity in FPDs, though changes over the past decade may have increased the frequency of FPD with patients more broadly. More research is needed to investigate why some SGM patients of reproductive age are not being counseled about fertility preservation.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"5 1","pages":"1-18"},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wen Li,Hongli Li,Jingcheng Wen,Dong Pang,Yuhan Lu,Hong Yang
{"title":"A bibliometric analysis of studies on death anxiety in patients with cancer.","authors":"Wen Li,Hongli Li,Jingcheng Wen,Dong Pang,Yuhan Lu,Hong Yang","doi":"10.1080/07347332.2024.2398098","DOIUrl":"https://doi.org/10.1080/07347332.2024.2398098","url":null,"abstract":"Purpose: This study evaluates the evolution and focal points of research on death anxiety among cancer patients over the last three decades, utilizing bibliometric analyses.Methods: We analyzed publications related to death anxiety among cancer patients from January 1994 to January 2024 using data from the Web of Science Core Collection. Bibliometric indicators such as the number of publications, leading countries, institutions, and research themes were examined.Results: A total of 2,602 papers from 286 institutions across 97 countries were identified. There has been a significant increase in research interest, particularly between 2014 and 2023, with a peak in 2022. The United States and Harvard University were found to be the most prolific contributors. Major research themes include quality of life, palliative care, mental health, and cancer-specific concerns.Conclusion: The results highlight the rapid development in the field of death anxiety research among cancer patients, with an increase in publications and emerging research themes. However, there is limited international and institutional collaboration. The study underscores the need for enhanced cooperative efforts to advance understanding and research in this area, suggesting directions for future research.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"18 1","pages":"1-28"},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"D-CRSE: Diminishing chemotherapy-related side effects through patient education, a mixed-methods pilot study","authors":"Shelby Labe, Gavin Jones, Hannah Dailey, Joanna Bhasker, Rhea Kanwar, Madison Crago, Britney Fitzgerald, Daniella Mikhail, Sonia Hafiz, Courtney Kramer, Junjia Zhu, Monali Vasekar","doi":"10.1080/07347332.2024.2345124","DOIUrl":"https://doi.org/10.1080/07347332.2024.2345124","url":null,"abstract":"Patient education materials regarding self-management of chemotherapy-related side effects are limited, which may result in patients using disreputable sources. We created a brochure that educates ...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"32 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140838936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"I don't have a choice but to keep getting up and doing the things that protect her\": The informal caregiver's adaptation to the cancer diagnosis.","authors":"Marcia A Winter, Rebecca Hoppe, Tara A Albrecht","doi":"10.1080/07347332.2024.2310813","DOIUrl":"10.1080/07347332.2024.2310813","url":null,"abstract":"<p><strong>Purpose: </strong>Patients with hematologic malignancies (HM) typically rely on informal caregivers for support. Caregivers experience distress, poorer health, and lower quality of life. This study aimed to understand caregivers' experiences adapting to, and making meaning of, their family members' cancer diagnosis and treatment.</p><p><strong>Approach: </strong>Qualitative, constructivist approach.</p><p><strong>Participants: </strong>Caregivers (<i>N</i> = 28) of patients with HM within three months of diagnosis.</p><p><strong>Methods: </strong>A descriptive content analysis was used to analyze semi-structured interview responses and generate themes.</p><p><strong>Findings: </strong>Six themes emerged: power and control (powerlessness, empowerment, relinquishing control/accepting help), protection (gatekeeping, protective buffering), integrating the diagnosis, tolerating uncertainty, preparedness for the caregiver role, and maintaining positivity.</p><p><strong>Conclusions: </strong>Findings highlight challenges and resilience-promoting processes for caregivers adapting to HM diagnosis and treatment.</p><p><strong>Implications for psychosocial providers: </strong>Psychological and supportive care interventions can promote acceptance of the diagnosis, preparation for caregiving, navigation of power and control, and targeted coping strategies.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"622-635"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139724459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}