Journal of Psychosocial Oncology最新文献

{"title":"Participants' perceptions support the coexistence of benefits and burdens of cancer clinical trial participation.","authors":"Kim Mooney-Doyle, Kathleen A Knafl, Liming Huang, Gwenyth R Wallen, Connie M Ulrich","doi":"10.1080/07347332.2024.2366996","DOIUrl":"10.1080/07347332.2024.2366996","url":null,"abstract":"<p><strong>Background: </strong>To advance oncology treatment for adults, comprehensive understanding of how and why people decide to enroll in, remain in, and withdraw from cancer clinical trials is needed. While quantitative findings provide insights into these benefits and burdens, they provide limited understanding of how adults with cancer appraise their situation and approach decisions to undertake a clinical trial. The goal of this mixed methods analysis was to conceptualize participants' assessment of benefits and burdens related to cancer clinical trial participation.</p><p><strong>Materials and methods: </strong>This sub-group analysis of 21 participants was part of a larger sequential, explanatory mixed methods study. We used Creamer's integrated approach to linking quantitative and qualitative data to assess convergence, with qualitative data explaining quantitative results. Participants were grouped into four categories based on quantitative benefit/burden scores and thematic analysis of their qualitative data was used to describe these categories.</p><p><strong>Results: </strong>Across groups participants varied in descriptions of benefits and burdens of cancer clinical trial participation and reasons for participating. Those reporting high benefit/low burden described \"seizing the opportunity to participate;\" those reporting low benefit/low burden described \"taking responsibility\" through trial participation; those reporting low benefit/high burden described how they were \"willing to endure,\" and those with high benefit/high burden emphasized \"deciding to act.\"</p><p><strong>Conclusions: </strong>Participants' qualitative descriptions of benefits and burdens were more nuanced and dynamic than reflected in their quantitative ratings. Thus, current measures may be missing important concepts, such as logistic challenges of trial participation. Our results have implications for consenting procedures and decisional support guidance offered to patients and their caregivers.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"88-104"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141440974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sedentary time transitions and associations with quality of life in cancer survivors during the COVID-19 pandemic.","authors":"Alyssa R Neville, Allyson Tabaczynski, Alexis Whitehorn, Denise Bastas, Linda Trinh","doi":"10.1080/07347332.2024.2346560","DOIUrl":"10.1080/07347332.2024.2346560","url":null,"abstract":"<p><strong>Background: </strong>Patterns in sedentary time (SED) and its impact on quality of life (QoL) in cancer survivors during the COVID-19 pandemic remains unknown. The purpose of this study was to 1) compare total and domain-specific SED before and during the pandemic; and 2) examine its association with QoL in a global sample of cancer survivors.</p><p><strong>Methods: </strong>In an online survey, cancer survivors retrospectively self-reported domain-specific SED (e.g. transportation, television) before and during the pandemic via the Domain-Specific Sitting Time Questionnaire. QoL was assessed via the Functional Assessment of Cancer Therapy (FACT)-General and FACT-Fatigue. Paired <i>t</i>-tests compared daily SED before and during the pandemic. Analysis of covariance compared QoL among: those who remained high (>8 h/day), remained low (<8 h/day), increased (<8 h/day to >8 h/day), or decreased (>8 h/day to <8 h/day) daily SED.</p><p><strong>Results: </strong>Among cancer survivors (<i>N</i> = 477, M_age=48.5 ± 15.4), 60.8% reported that their SED remained high, 19.7% remained low, 7.5% increased SED, and 11.9% decreased SED. Computer and television screen time significantly increased (<i>p's</i><.001), while SED during transportation significantly decreased (<i>p</i><.001). Sub-group analyses revealed that those who reduced SED who were normal or underweight (<i>p</i>=.042) or were meeting physical activity guidelines (<i>p</i>=.031) had significantly less fatigue than those who increased or remained high in SED, respectively. Those who remained high in SED with <3 comorbidities (<i>p's</i> =.005) had significantly better social well-being than those who increased SED.</p><p><strong>Conclusions: </strong>As we transition to a post-pandemic era, behavioral strategies for cancer survivors should focus on reducing screen time to improve QoL and fatigue.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"16-33"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140865453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A powerful safety net: Social support moderates the association of quality of life deficits with suicidal ideation in long-term childhood cancer survivors.","authors":"Tamara Schwinn, Judith Hirschmiller, Elmar Brähler, Hiltrud Merzenich, Jörg Faber, Philipp S Wild, Manfred E Beutel, Mareike Ernst","doi":"10.1080/07347332.2024.2379827","DOIUrl":"10.1080/07347332.2024.2379827","url":null,"abstract":"<p><strong>Objectives: </strong>Cancer survivors are at risk for suicidality. We aimed to expand the knowledge about protective factors and their interplay with risk factors by testing social support as a modifier of the association of Quality of Life (QoL) deficits with suicidal ideation.</p><p><strong>Research approach: </strong>We surveyed <i>N</i> = 633 childhood cancer survivors (CCS) using validated questionnaires (EORTC Core Quality of Life questionnaire QLQ-C30, Patient Health Questionnaire PHQ-9). The interaction of QoL and social support was investigated using multiple linear regression analysis.</p><p><strong>Findings: </strong>CCS reporting suicide attempts and current suicidal ideation (SI) had lower QoL. CCS with SI reported less social support. QoL and social support were independently associated with SI and interacted: among CCS with less social support, low QoL was more strongly associated with SI.</p><p><strong>Conclusion: </strong>The results highlight the need for interdisciplinary survivorship care, and to focus on risk and protective factors to strengthen suicide prevention.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"230-247"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Scanxiety in survivors of pancreatic cancer.","authors":"Susan Ellis Winebrenner, Lynne Hall, Carla Hermann, Robert C G Martin","doi":"10.1080/07347332.2024.2408552","DOIUrl":"10.1080/07347332.2024.2408552","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the scanxiety experience in pancreatic cancer (PC) survivors following curative surgical resection.</p><p><strong>Design: </strong>A qualitative study with a hermeneutic phenomenological approach was used.</p><p><strong>Methods: </strong>Eighteen PC survivors participated. Data from in-depth, semi-structured interviews were analyzed and themes emerged from systematic line-by-line coding of the interview transcripts.</p><p><strong>Findings: </strong>Two key themes emerged: 'the recurring cycle of scanxiety' and 'hope for lifelong remission'. Participants experienced similar patterns of scanxiety that impacted everyday life. Hope was an essential stabilizing component of the cancer-scan experience, and enabled participants to conceptualize a cure, despite the high likelihood of recurrent, incurable disease. A conceptual framework was developed to provide further insight.</p><p><strong>Implications: </strong>Everyday life is significantly affected during times of PC surveillance scans. This study enhances our understanding of the cancer-scan experience and provides a framework to guide care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"389-406"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142366943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Getting support when cancer invades your family: changes in wellbeing in young people accessing a community cancer support organization.","authors":"Pandora Patterson, Fiona E J McDonald, Richard Tindle, Kit Bibby","doi":"10.1080/07347332.2025.2452863","DOIUrl":"10.1080/07347332.2025.2452863","url":null,"abstract":"<p><strong>Objective: </strong>A preliminary examination of the psychosocial wellbeing of young people impacted by a family member's cancer, and changes after engaging with a community cancer support organization.</p><p><strong>Methods: </strong>Five-hundred-and-sixty young people attending a community cancer support organization self-reported distress and unmet needs at baseline and 6-month follow-up. This included young people who: had a brother or sister living with cancer (\"siblings\"); had a parent living with cancer (\"offspring\"); had lost a brother or sister to cancer (\"bereaved siblings\"); or had lost a parent to cancer (\"bereaved offspring\").</p><p><strong>Results: </strong>Between 36.1% (siblings) and 57.6% (bereaved offspring) reported high distress; 61.6% (siblings) to 88.1% (bereaved offspring) endorsed 10+ needs. Distress decreased significantly for offspring and bereaved offspring, and unmet needs decreased significantly for siblings, offspring and bereaved offspring. Between 50.0% (siblings) and 63.6% (bereaved siblings) showed significant improvement in distress, unmet needs, or both.</p><p><strong>Conclusions: </strong>Many young people impacted by family cancer have elevated distress and unmet needs. Engagement with a community cancer support organization may improve their psychosocial wellbeing.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"777-791"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143400408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of life and unmet needs of late-stage and metastatic colorectal cancer survivors: An integrative review.","authors":"Krista A Brown, Katrina Poppert Cordts, Robin M Lally","doi":"10.1080/07347332.2024.2425679","DOIUrl":"10.1080/07347332.2024.2425679","url":null,"abstract":"<p><strong>Problem identification: </strong>The purpose of this review was to identify and synthesize the published literature on Quality of Life (QoL) and unmet needs of late-stage (American Joint Committee on Cancer [AJCC] III) and metastatic (AJCC IV) CRC survivors.</p><p><strong>Literature search: </strong>Databases searched included PubMed, CINAHL, and Embase from 2010 to 2023. Articles were included if they focused on self-reported CRC experiences of late-stage and metastatic survivors, identifying 512 articles, of which five met the inclusion criteria.</p><p><strong>Data evaluation/synthesis: </strong>Five studies were identified that examined QoL and unmet needs of CRC survivors. Three studies assessed only stage III and IV cases. Core factors that may impact QoL included younger age, emotional support from social circles, and psychological support during post-therapy periods. Unmet needs reported by CRC survivors included help managing distress and psychological support for fear of cancer progression.</p><p><strong>Conclusions: </strong>Limited research has explored unmet needs of late-stage and metastatic CRC survivors. Further research is needed to understand patient factors that impact QoL and unmet needs to support best care practices.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"616-631"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unveiling the beauty of narrative therapy in palliative care.","authors":"Vinutha Suresh, Meenakshi V Venketeswaran, Jefrilla Nancy Joseph","doi":"10.1080/07347332.2025.2476146","DOIUrl":"10.1080/07347332.2025.2476146","url":null,"abstract":"","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"477-479"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143630919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effectiveness of live music intervention on psychological distress among adolescent and young adult patients undergoing hematopoietic stem cell transplantation.","authors":"Qian Sun, Ying-Long Duan, Cheng-Yuan Li, Jian-Fei Xie, Andy Sk Cheng","doi":"10.1080/07347332.2024.2373232","DOIUrl":"10.1080/07347332.2024.2373232","url":null,"abstract":"<p><strong>Objective: </strong>To explore the effects of live music to decrease psychological distress in adolescent and young adult (AYA) patients undergoing hematopoietic stem cell transplantation (HSCT).</p><p><strong>Method: </strong>A quasi-experimental study was conducted. Sixty patients undergoing HSCT were divided into two groups, receiving either 4 week of live music (<i>n</i> = 31) or standard care (<i>n</i> = 29). Psychological distress, anxiety, the severity of symptom clusters and symptom interference were measured.</p><p><strong>Results: </strong>When compared with the immediately and 1 month after intervention, patients in LM intervention group had significantly lower psychological distress and anxiety level than wait-list group. AYA undergoing HSCT reported significantly milder general symptom cluster and neurological symptom cluster at T3 than at baseline.</p><p><strong>Conclusions: </strong>Live music intervention showed a positive effect on relieving psychological distress and anxiety in AYA patients undergoing HSCT. However, further researches are warranted to explore the effects of live music intervention on symptom cluster.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"189-205"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Investigating and quantifying obsessive-compulsive and related disorders among childhood cancer survivors: a brief report.","authors":"Katie DeWitt, Paige Reimche, Mike Finch, Lucie Turcotte","doi":"10.1080/07347332.2024.2365372","DOIUrl":"10.1080/07347332.2024.2365372","url":null,"abstract":"<p><strong>Objective: </strong>Long-term psychological impacts are well--documented among childhood cancer survivors. To our knowledge, however, no research has been conducted to investigate obsessive--compulsive and related disorders (OCRD) among childhood -cancer survivors (CCS).</p><p><strong>Methods: </strong>Using a large electronic medical record database, relative risk were calculated to examine associations between demographic characteristics and childhood cancer type and OCRDs among childhood cancer survivors.</p><p><strong>Results: </strong>Among 121 survivors of childhood cancer diagnosed with OCRD, 57% were female. The most common childhood cancer diagnoses were leukemia/lymphoma (41%) and central nervous system (CNS) malignancies (38%), and OCRD diagnoses most frequently observed were obsessive-compulsive disorder (OCD; 76%) and excoriation disorder (13%). Female sex (RR= 1.39, 95% confidence interval (CI) 1.17-1.61), White race (RR= 1.28, 95% CI 1.15-1.36) and history of CNS malignancies (RR= 1.36, 95% CI 1.18, 1.92) were associated with OCD.</p><p><strong>Conclusions: </strong>Numerous factors, including sex, race, and cancer type, were seen as contributors to risk variance for OCRDs, particularly OCD, among CCS, compared to CCS with no OCRD diagnosis. This provides an enhanced understanding of risk factors for OCRD development and may help improve early identification and care for at-risk survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"133-142"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychosocial distress and psychosocial resources in couples facing non-melanoma skin cancers and malignant melanoma.","authors":"Christina Sauer, Cathrin Ullerich, Elisabeth Livingstone, Sefik Tagay, Till J Bugaj, Eva-Maria Skoda, Martin Teufel, Dirk Schadendorf, Hans-Christoph Friederich","doi":"10.1080/07347332.2024.2371344","DOIUrl":"10.1080/07347332.2024.2371344","url":null,"abstract":"<p><strong>Background: </strong>Skin cancer is the most common cancer worldwide and comprises various non-melanoma skin cancer (NMCS) diagnoses and malignant melanoma (MM). It places a psychological burden on patients and their spouses. The present study aims to investigate psychological distress, temporal changes of psychosocial resources (PR), as well as dyadic dynamics of psychological distress and PR in patients with NMSC or MM and their spouses.</p><p><strong>Methods: </strong>Fifty-four heterosexual couples with different skin cancers, diagnosed within the previous 12 months, participated in this quantitative cross-sectional study. Patients and spouses provided information about depression and anxiety (<i>Hospital Anxiety and Depression Scale</i>), PR within the last four weeks and last three years (<i>Essen Resource Inventory</i>), and partnership quality (<i>Partnership Questionnaire, short version)</i>. Dyadic dynamics were analyzed with multiple regression analyses.</p><p><strong>Results: </strong>We found similar distress levels in patients and spouses, as well as in patients with different skin cancers. Spouses from patients with MM reported significant higher distress levels than spouses from patient with NMSC. Patients' depression predicted spouses' depression, and spouses' anxiety predicted patients' anxiety. In patients, we found associations between personal resources (within the last four weeks and three years) and depression, and an association between patients' social resources (within the last three years) and spouses' depression.</p><p><strong>Conclusions: </strong>The psychological interdependencies between patients' and spouses' depression and anxiety highlight the importance of considering psychological distress in patients with different skin cancers from a dyadic perspective in clinical contexts. Further, personal resources were indicated as a \"distress buffer\" for patients' mental health. Our results underline the importance of couple interventions that activate PR in patients with cancer and their spouses.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"173-188"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141499283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}