Medicine Health Care and Philosophy最新文献

It's you it's about! Exploring existential aspects on quality of life with myasthenia gravis. 这是关于你的！探讨重症肌无力患者生活质量的存在性方面。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2025-12-26 DOI: 10.1007/s11019-025-10320-4

Malene Missel, Nanna Witting

{"title":"It's you it's about! Exploring existential aspects on quality of life with myasthenia gravis.","authors":"Malene Missel, Nanna Witting","doi":"10.1007/s11019-025-10320-4","DOIUrl":"10.1007/s11019-025-10320-4","url":null,"abstract":"This article is grounded in a phenomenological and autoethnographic approach, with the neurologist's remark, It's you it's about!, serving as an existential starting point. The aim of this text is to explore quality of life as an existential challenge and opportunity when living with the chronic illness myasthenia gravis, drawing on lived experience and existential philosophy. Through three existential anecdotes based on the first author's experiences with myasthenia gravis, the tension between the body's limitations and the patient's desire to continue living meaningfully, as well as the role of the clinician in supporting the patient's process, is illuminated. Each anecdote is followed by a philosophical reflection - from glimpse to resonance - which deepens the exploration of the complex dimensions of quality of life. The article examines key themes such as; Running, existential positioning, and holding on to quality of life; The stoic trust that sustains a patient's quality of life; and The restoration of clarity and direction for quality of life - one that is not measured, but felt, held, and sustained in relation. By exploring these dimensions, the article proposes a shift from traditional, measurable outcomes to a broader understanding of quality of life that transcends physical symptoms.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"309-321"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13086737/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145835035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How choice became a goal in itself: analysing the emphasis on choice and control at the end of life through the work of Charles Taylor. 选择本身是如何成为一个目标的：通过查尔斯·泰勒的作品分析对生命末期选择和控制的强调。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-01-10 DOI: 10.1007/s11019-025-10321-3

Els van Wijngaarden

{"title":"How choice became a goal in itself: analysing the emphasis on choice and control at the end of life through the work of Charles Taylor.","authors":"Els van Wijngaarden","doi":"10.1007/s11019-025-10321-3","DOIUrl":"10.1007/s11019-025-10321-3","url":null,"abstract":"Choice has become a defining lens through which modern people imagine dying. A 'good death' is increasingly associated with the ability to articulate and realise personal preferences regarding the dying process: how, where, with whom, and even when one dies. In this paper, I examine the cultural shift that has elevated choice to a central moral ideal at the end of life. My research questions are: Why does choice matter so profoundly in contemporary societies? And how does this aspiration shape the way people live towards the end of life, and ultimately die? To answer these questions, I first offer a historical-cultural account of how choice has gradually come to function as a goal in itself. Drawing primarily on Charles Taylor's analyses, I bring his work into dialogue with that of other scholars including Giddens, Rosa, Dodds, and Mol. I then identify three existential implications of this shift that complicate contemporary engagement with death and dying: (1) an increasingly mastery-oriented stance towards life and death, (2) the arbitrariness of meaning, and (3) an understanding of respect as unquestioning compliance with individual preferences. Finally, I propose several ways to respond to these challenges by moving beyond a narrow focus on choice and control. I argue for a rethinking of the current dominant end-of-life discourse through a more dialogical and ambivalent understanding of our relation to life and death; one that is more attuned to the lived experience and unsettling realities of dying, and better suited to enriching contemporary debates and practices surrounding the end of life.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"439-450"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13086746/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145949410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Aesthetic injustice in healthcare: exploring testimonial and hermeneutical forms. 医疗保健中的美学不公正：探索证明和解释学形式。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-03-03 DOI: 10.1007/s11019-026-10334-6

Jonathan Adams

{"title":"Aesthetic injustice in healthcare: exploring testimonial and hermeneutical forms.","authors":"Jonathan Adams","doi":"10.1007/s11019-026-10334-6","DOIUrl":"10.1007/s11019-026-10334-6","url":null,"abstract":"This paper introduces and develops the concepts of aesthetic testimonial injustice and aesthetic hermeneutical injustice, arguing that understanding the aesthetic dimensions of human experience, specifically those concerning physical appearance, is central to justice in healthcare practice. Drawing on Miranda Fricker's framework of epistemic injustice, the paper provides a bridge between emerging literature on aesthetic injustice, which is often focused on lookism and appearance-based discrimination, and accounts that emphasize the recognition of individuals as aesthetic subjects. The concept of aesthetic testimonial injustice relates to the unjust discrediting of a person's aesthetic testimony regarding their own body, often due to biases related to attractiveness, age or disability. Aesthetic hermeneutical injustice, by contrast, pertains to the structural disadvantage faced by individuals who lack the interpretive resources to make sense of or communicate their aesthetic experience as it pertains to bodily appearance, particularly in healthcare contexts. Using examples from prosthetics design, nursing care and disorders of visual perception, the paper shows how healthcare systems can marginalize patients' aesthetic values and perceptions, thereby undermining their dignity and agency. It concludes by calling for a deeper understanding of aesthetics in bioethics, suggesting that respecting patients as embodied aesthetic agents can enhance ethical healthcare delivery and counter systemic injustice. The concepts of aesthetic testimonial injustice and aesthetic hermeneutical injustice thus expand bioethical discourse by highlighting the moral significance of aesthetic experience in healthcare contexts.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"283-291"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13086673/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147345465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Physicians' ethical responsibilities in relation to the climate and further environmental crises: a review of academic publications. 与气候和进一步的环境危机有关的医生的道德责任：学术出版物的回顾。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-03-09 DOI: 10.1007/s11019-026-10339-1

Cristian Timmermann, Katharina J Pascale Wabnitz, Kerstin Schlögl-Flierl, Verina Wild

{"title":"Physicians' ethical responsibilities in relation to the climate and further environmental crises: a review of academic publications.","authors":"Cristian Timmermann, Katharina J Pascale Wabnitz, Kerstin Schlögl-Flierl, Verina Wild","doi":"10.1007/s11019-026-10339-1","DOIUrl":"10.1007/s11019-026-10339-1","url":null,"abstract":"The climate and further environmental crises have motivated calls for the medical profession to act by taking on additional responsibilities. These calls to assume responsibilities towards environmental protection and to systematically consider the health impacts of these crises greatly vary in their scope and demandingness. Through a review of journal publications, we have mapped the various calls for physicians to take on responsibilities in relation to these crises as individuals and as a professional group. These professional responsibilities, obligations or duties were grouped in four broad categories of physicians' roles as (i) medical practitioners, (ii) medical scientists, (iii) facility (co-)managers, and (iv) citizens. In sum, these responsibilities go beyond actions within the individual patient-physician relationship and setting, demanding from physicians to get involved within their institution, their community, engage with policy-makers, and also concern themselves with the health effects of environmental changes also on distant others, such as people in other parts of the world and future generations.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"559-576"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13086663/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147379035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Algorithmic gaze and subject occlusion: a medical ethical critique of artificial intelligence diagnosis and treatment from a foucaultian perspective. 算法凝视与主体遮挡：福柯视角下对人工智能诊断与治疗的医学伦理批判。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2025-12-15 DOI: 10.1007/s11019-025-10318-y

Yuxin Dai, Sizhe Guo

{"title":"Algorithmic gaze and subject occlusion: a medical ethical critique of artificial intelligence diagnosis and treatment from a foucaultian perspective.","authors":"Yuxin Dai, Sizhe Guo","doi":"10.1007/s11019-025-10318-y","DOIUrl":"10.1007/s11019-025-10318-y","url":null,"abstract":"This paper develops a Foucauldian analysis of artificial intelligence (AI) in medical diagnosis, arguing that AI introduces an \"algorithmic gaze\" that reshapes the epistemic and moral structure of clinical practice. By converting illness narratives into data while generating forms of simulated empathy, AI systems reorder how patients become visible, intelligible, and governable within medical discourse. These developments produce three structural tensions: first, algorithmic opacity alters the conditions under which informed consent, contestation, and responsibility can meaningfully operate; second, simulated empathy appears to acknowledge suffering while subtly directing patients' expressive possibilities; and third, the delegation of emotional engagement to AI fragments the unity of care traditionally embodied in the clinician-patient relationship.Rather than treating these shifts as technologically inevitable, the paper argues that their ethical significance depends on institutional design. Four directions for reconstruction are proposed: securing identifiable responsibility and human-overridable decision pathways; integrating algorithmic outputs into dialogical clinical communication; adopting participatory data governance and strengthening algorithmic literacy; and grounding AI development in a renewed conception of medical humanism that guides design from the outset. The analysis concludes that AI can support, rather than erode, the moral foundations of medicine only if embedded within institutional arrangements that sustain autonomy, dignity, and relational understanding.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"523-534"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145758068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Towards a medical ethics of suffering: ontological and practical foundations. 走向痛苦的医学伦理学：本体论和实践基础。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-03-18 DOI: 10.1007/s11019-026-10338-2

Eduardo García-Rico, Aurea Esparza de la Sota, Ana Olano Daza, Francisco Lopez Muñoz, Lorena Garcia

{"title":"Towards a medical ethics of suffering: ontological and practical foundations.","authors":"Eduardo García-Rico, Aurea Esparza de la Sota, Ana Olano Daza, Francisco Lopez Muñoz, Lorena Garcia","doi":"10.1007/s11019-026-10338-2","DOIUrl":"10.1007/s11019-026-10338-2","url":null,"abstract":"This paper proposes a radical reconfiguration of medical ethics by placing suffering-not as a clinical symptom or ancillary datum, but as an ontological category-at the center of ethical deliberation. In the face of a fragmented and technified clinical practice, we argue that suffering is the only truly universal human experience, irreducible to cultural, linguistic, or ideological variations. As such, it offers a potent, immanent foundation for a non-relative ethics in medicine. Drawing on the philosophical contributions of Heidegger, Levinas, Jonas, Jaspers, Butler, and Schopenhauer, we develop a model of medical ethics rooted in the shared and asymmetrical vulnerability that suffering reveals. Rather than abstract principles or procedural deontology, this model emphasizes narrative, responsibility, and hospitality as structural dimensions of the clinical act. We contend that medicine must move from being a problem-solving technique to becoming a space of presence, attention, and recognition-where suffering is not erased but welcomed. The clinical encounter is thus reimagined as a site of ontological unveiling, where the physician's role is not merely to diagnose or intervene, but to bear witness, to accompany, and to share in the exposure of the other. This ethics of suffering entails epistemological shifts (through narrative and phenomenology), spatial transformations (via architecture of care), and institutional reforms (integrating patients' voices and lived experience). Ultimately, we propose suffering not as a failure of health, but as the ethical ground from which a truly human medicine must begin.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"383-399"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147482054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The ethical permissibility of financial incentives. 经济激励的道德容许性。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-01-02 DOI: 10.1007/s11019-025-10315-1

Pepijn Al, Jamie Brehaut, Katie Gillies, Justin Presseau, Mei-Lin Yee, Charles Weijer

引用次数: 0

Bringing theoretical conceptions in psychiatry to epistemic justice. 将精神病学的理论概念引入认识正义。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-03-06 DOI: 10.1007/s11019-026-10335-5

Mia Biturajac

{"title":"Bringing theoretical conceptions in psychiatry to epistemic justice.","authors":"Mia Biturajac","doi":"10.1007/s11019-026-10335-5","DOIUrl":"10.1007/s11019-026-10335-5","url":null,"abstract":"Pathocentric epistemic injustice is a form of epistemic injustice that affects ill persons. In this paper I deal with pathocentric epistemic injustice in psychiatry that impacts persons with psychiatric conditions. There are several sources of such epistemic injustice, ranging from the agential level to the structural, institutional and even to the theoretical level of healthcare and medicine. In this paper I explore theoretical conceptions as sources of pathocentric epistemic injustice in psychiatry. Specifically, I focus on the notion that the naturalistic conception of health is an epistemically unjust theoretical conception when it exclusively privileges the epistemic resources of biomedical sciences. Supposing this claim is correct, this paper tries to offer a way of ameliorating the pathocentric epistemic injustice caused by the naturalistic conception of health. I argue that the first step of the ameliorative project lies in emphasis and acknowledgement of the concepts that embody the patient perspective, such as harm, well-being and suffering. While these concepts are found in the theoretical sphere of psychiatry, they are underdeveloped and lack proper attention. Furthermore, while elaborating on these concepts is necessary, it is not sufficient for epistemic justice in psychiatry. Thus, I introduce the idea of epistemic pillars of psychiatry - scientific research, clinical work and patient's perspective. Epistemic justice in psychiatry does not rely on any one these elements, rather it rests on the collaboration, compromise and mutual recognition of these spheres. It lies in harmony of the three pillars of psychiatry, rather than in either element being the dominant one.","PeriodicalId":47449,"journal":{"name":"Medicine Health Care and Philosophy","volume":" ","pages":"491-503"},"PeriodicalIF":3.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147366641","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative sedation as a cultural solution in Israel: a philosophical-ethical inquiry into end-of-life practice in a multicultural society. 作为以色列文化解决方案的姑息性镇静：多元文化社会中临终实践的哲学伦理探究。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-01-19 DOI: 10.1007/s11019-026-10323-9

Rotem Waitzman

引用次数: 0

White by default: conceptual and methodological limits of binary white logic in global health equity research. 默认为白色：全球卫生公平研究中二元白色逻辑的概念和方法限制。

IF 3.1 2区哲学

Medicine Health Care and Philosophy Pub Date : 2026-06-01 Epub Date: 2026-02-20 DOI: 10.1007/s11019-026-10330-w

Joanna Karolina Malinowska

引用次数: 0