International Journal of Palliative Nursing最新文献_第6页

The scream: the emotional dimensions of nursing in children's palliative care. 尖叫:儿童姑息治疗护理的情感维度。

IF 1

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.3

Daniel Kelly, Mandy Brimble

引用次数: 0

Fear of COVID-19 and its influence on palliative care patients. 对COVID-19的恐惧及其对姑息治疗患者的影响

IF 1

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.28

Vildan Kocatepe, Dilek Yildirim, Sümeyya Yağmur

{"title":"Fear of COVID-19 and its influence on palliative care patients.","authors":"Vildan Kocatepe, Dilek Yildirim, Sümeyya Yağmur","doi":"10.12968/ijpn.2023.29.1.28","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.1.28","url":null,"abstract":"Background: Fear of COVID-19 may have adverse psychological effects on palliative patients; it may also reduce their quality of life, increase physical symptoms and lead to the postponement of treatment.Aim: This study aimed to determine how the fear of COVID-19 influences factors (personal and disease-related characteristics) in palliative care patients.Methods: A descriptive, cross-sectional design study was conducted on 110 patients. A patient information form, the 'Fear of COVID-19 scale' and the Eastern Cooperative Oncology Group performance status were used for data collection.Findings: The mean score obtained from the COVID-19 scale was 20.44±5.78. There was a statistical significance between the stage of disease and the fear of COVID-19 score. The fear of COVID-19 was higher for participants who had received polymerase chain reaction testing.Conclusion: There was a positive and statistically significant relationship between the oxygen flow rate and fear of COVID-19 score, as well as a statistically significant relationship between the stage of disease and fear of COVID-19 score. It was determined that the COVID-19 pandemic process affected the mental health of palliative care patients.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"29 1","pages":"28-33"},"PeriodicalIF":1.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10619432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative care nursing during the COVID-19 pandemic: reflections from Melbourne, Australia. 2019冠状病毒病大流行期间的姑息治疗护理:来自澳大利亚墨尔本的思考

IF 1

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.43

Meredith A King, Jaclyn Yoong

引用次数: 1

Challenges for palliative care professionals in providing spiritual care to patients from religious or cultural minority groups: a scoping review of the literature. 姑息治疗专业人员在为来自宗教或文化少数群体的患者提供精神护理方面面临的挑战：对文献的范围审查。

IF 0.7

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.6

Eva De Clercq, Claudia Gamondi

引用次数: 0

Caregiving burdens of family members of patients living with hepatocellular carcinoma. 肝细胞癌患者家属的护理负担。

IF 1

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.17

Lu-Shu Hua, Ya-Yun Chen, Jia-Jean Yiin, Kwo-Chen Lee

{"title":"Caregiving burdens of family members of patients living with hepatocellular carcinoma.","authors":"Lu-Shu Hua, Ya-Yun Chen, Jia-Jean Yiin, Kwo-Chen Lee","doi":"10.12968/ijpn.2023.29.1.17","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.1.17","url":null,"abstract":"Background: Caregiving burden is common among family caregivers (FCs). In Taiwan, no reports have compared caregiving burden according to disease stage, or explored the comprehensive factors of caregiving burden in the FCs of patients with hepatocellular carcinoma (HCC).Aim: The aim of the study was to investigate caregiving burden at different diagnosis stages and its potential predictors in the FCs of patients with hepatocellular carcinoma.Methods: This descriptive, cross-sectional study included 192 FCs. Caregiving burden was measured using the Caregiver Reaction Assessment tool. The predictive factors of caregiving burden in the FCs of patients with HCC were identified using a linear regression model.Results: The global caregiving burden had no significant differences between the four disease stages. The lack of family support and impact on schedule were significantly higher at the terminal stage than at the earlier stage. The risk factors of caregiving burden were high depression, high financial demand, heavy caregiving tasks, advanced age and frequent patient contact, which obtained a variance of 47.8% in the regression model.Conclusion: Healthcare providers need to proactively identify and assess FCs with risk factors of caregiving burden and provide appropriate interventions specific to individual needs at different disease stages.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"29 1","pages":"17-27"},"PeriodicalIF":1.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10619433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents' experience of extended viewing in a paediatric hospice: a qualitative study. 儿童安宁疗护之家长延长观影经验:一项质性研究。

IF 1

International Journal of Palliative Nursing Pub Date : 2023-01-02 DOI: 10.12968/ijpn.2023.29.1.34

Philippa Smith, Elizabeth Teasdale, Suzanne Sheppard-Law

{"title":"Parents' experience of extended viewing in a paediatric hospice: a qualitative study.","authors":"Philippa Smith, Elizabeth Teasdale, Suzanne Sheppard-Law","doi":"10.12968/ijpn.2023.29.1.34","DOIUrl":"https://doi.org/10.12968/ijpn.2023.29.1.34","url":null,"abstract":"Background: The rising prevalence of life-limiting conditions in children and young people warrants an evaluation of paediatric palliative care, hospice services and delivered care.Aim: First, this study aimed to develop a deeper understanding of how extended viewing is experienced by the parents of a deceased child (or young person) with a life-limiting condition, based in Australia. Second, this study aimed to evaluate the quality of bereavement care delivered during the first few days after death.Findings: A total of 17 bereaved parents of 13 children completed an interview. In-depth interviews were audio-recorded, transcribed verbatim and thematically analysed. While the authors acknowledge the complexity and individual nature of grief, four broad themes were identified, namely the importance of the 'physical environment' being conducive to spending time with their child; 'seeing their child'; 'time to say goodbye'; and 'supportive care'.Conclusion: The findings of this study reinforce that extended viewing can provide therapeutic benefits for parents, as well as the importance of a skilled palliative care nursing workforce in assisting with grief management.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"29 1","pages":"34-42"},"PeriodicalIF":1.0,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9193837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

The role of telehealth on quality of life of palliative care patients during the COVID-19 pandemic: an integrative review. COVID-19大流行期间远程医疗对姑息治疗患者生活质量的作用:一项综合综述

IF 1

International Journal of Palliative Nursing Pub Date : 2022-12-02 DOI: 10.12968/ijpn.2022.28.12.583

Roison Andro Narvaez, André Canaria, Stephen Ray Nifras, Niño Listones, Ronalyn Topacio, Ma Elizabeth Baua

{"title":"The role of telehealth on quality of life of palliative care patients during the COVID-19 pandemic: an integrative review.","authors":"Roison Andro Narvaez, André Canaria, Stephen Ray Nifras, Niño Listones, Ronalyn Topacio, Ma Elizabeth Baua","doi":"10.12968/ijpn.2022.28.12.583","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.12.583","url":null,"abstract":"Telehealth looks to be a viable tool to meet patients' expectations and requirements during home treatment; however, there are obstacles to overcome. Palliative care has been described as 'high touch' rather than 'high tech', which may restrict healthcare workers' enthusiasm in integrating technological advances into the development and refinement of interventions. As a result, the goal of this integrative review was to map and evaluate existing research on the use of telemedicine and telehealth in palliative care patients during the COVID-19 outbreak. This review was guided using the PRISMA Model and CASP guidelines. A total of 17 articles on the use of telehealth in palliative care satisfied the inclusion and exclusion criteria of the review. This integrative review provided more evidence for the function and application of telehealth in palliative care. It demonstrated the resiliency of individuals in swiftly adjusting to a new system or application and the adaptability of healthcare systems and providers in establishing an alternate means of providing treatment to patients during a crisis.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 12","pages":"583-589"},"PeriodicalIF":1.0,"publicationDate":"2022-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10380201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospice care delivery system requirements. 临终关怀提供系统的要求。

IF 1

International Journal of Palliative Nursing Pub Date : 2022-12-02 DOI: 10.12968/ijpn.2022.28.12.562

Samira Beiranvand, Maryam Rassouli, Maryam Hazrati, Shahram Molavynejad, Suzanne Hojjat, Hanna Tuvesson, Kourosh Zarea

{"title":"Hospice care delivery system requirements.","authors":"Samira Beiranvand, Maryam Rassouli, Maryam Hazrati, Shahram Molavynejad, Suzanne Hojjat, Hanna Tuvesson, Kourosh Zarea","doi":"10.12968/ijpn.2022.28.12.562","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.12.562","url":null,"abstract":"Background: Hospice care is a perceived need in the Iranian health system.Aim: This qualitative study is explaining the stakeholders' perception of what is required to develop a hospice care system for patients living with cancer in Iran.Methods: A total of 21 participants (specialists, policymakers, healthcare providers, cancer patients and family caregivers) were selected through purposeful sampling and interviewed in-depth in 2020. Interviews were analysed through directed content analysis.Findings: A total of 1054 codes, 7 categories and 21 subcategories were extracted. The requirements include the need to provide: multiple settings and diverse services; participatory decision making; integration into the health system; specialised human resources; an organised system of accountability; the preparation of the existing health system; and wider capacity-building in existing Iranian society.Conclusion: It is essential that Iranian services create a participatory comprehensive care plan, utilise expert manpower, integrate hospice care into the existing health system and organise a system of accountability. Policymakers should focus on the preparation of the health system and capacity building in society.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 12","pages":"562-574"},"PeriodicalIF":1.0,"publicationDate":"2022-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10528409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A winter of discontent. 不满的冬天。

IF 1

International Journal of Palliative Nursing Pub Date : 2022-12-02 DOI: 10.12968/ijpn.2022.28.12.555

Dion Smyth

引用次数: 0

Smart health rehabilitation in palliative care during the COVID-19 era. COVID-19时代姑息治疗中的智能健康康复

IF 1

International Journal of Palliative Nursing Pub Date : 2022-12-02 DOI: 10.12968/ijpn.2022.28.12.558

Aksh Chahal, Pooja Chaudhuri

引用次数: 0