Toh Hui Jin, L. Tan, Siew Chee Weng, Sim Lai Kiow, J. Low
{"title":"Advance care planning: comparing the views of residents and healthcare professionals in nursing homes in Singapore.","authors":"Toh Hui Jin, L. Tan, Siew Chee Weng, Sim Lai Kiow, J. Low","doi":"10.12968/ijpn.2022.28.4.178","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.4.178","url":null,"abstract":"BACKGROUND\u0000With more frail elderly living and likely to die in nursing homes, advance care planning (ACP) is critical in overall efforts to provide good palliative care. However, it is unclear how willing older, vulnerable residents in nursing homes are to take on an active role in care decisions.\u0000\u0000\u0000AIM\u0000The objective of this pilot study was to examine nursing homes' healthcare professionals' and residents' views on ACP and the extent of similarities and differences in their views.\u0000\u0000\u0000METHODS\u0000Our sample of 24 healthcare professionals and 24 residents were identified and recruited through contacts established from existing collaborations with the nursing homes. Surveys were administered to the participants by a trained research assistant between April 2015 and August 2015.\u0000\u0000\u0000RESULTS\u0000Almost all the healthcare professionals (95.8%) would like to make an ACP for themselves in the future, while residents were divided in their choices (P<<0.01). Most residents (79.1%) felt that the most important guide for their surrogate in making decisions for them when they lose decision-making capacity should be based on their best interests. However, most healthcare professionals (75.0%) felt that it should be based on the resident's wishes and values.\u0000\u0000\u0000CONCLUSIONS\u0000Healthcare professionals tended to overestimate the importance of patient autonomy compared to the residents. This study demonstrates that as much as advocacy and awareness are ongoing, nursing home residents' motivation to participate in ACP is lacking. The lack of motivation in ACP participation could be due to medical paternalism and familial determination, which have been a cultural norm for older Singaporeans. This study demonstrates there is a lack of cultural sensitivity in this group of healthcare professionals in approaching nursing home residents' end-of-life care decision-making.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 4 1","pages":"178-185"},"PeriodicalIF":1.0,"publicationDate":"2022-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47662780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
F. Sganga, A. Salerno, A. Borghetti, M. Fantoni, A. Turriziani, C. Barillaro, R. Bernabei
{"title":"Infections in hospitalised patients affected by end-stage diseases: a narrative overview.","authors":"F. Sganga, A. Salerno, A. Borghetti, M. Fantoni, A. Turriziani, C. Barillaro, R. Bernabei","doi":"10.12968/ijpn.2022.28.4.150","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.4.150","url":null,"abstract":"AIM\u0000To analyse the presence and treatment of infections in hospitalised terminal patients by identifying potential risk factors.\u0000\u0000\u0000METHODS\u0000We conducted a retrospective study using health data from 229 terminally ill patients (evaluated by our hospital palliative care team (HPCT) hospitalised from January to December 2018.\u0000\u0000\u0000RESULTS\u0000A total of two types of infections were identified: blood flow infection (through blood cultures) and pneumonia (through radiological examinations), while the other cases of infection remained unknown. The most frequently identified microorganism was Staphylococcus spp. The prevalence of infections was higher in patients with non-oncological diseases (n=47, 36.7%; p value 0.009). The potential risk factors identified for infections were the presence of: Parkinson's disease (n=15, 11.7%; p value 0.005), dysphagia (n=49, 38.3%; p value 0.007), bedding (n=15, 11.7%; p value 0.048), pressure ulcers (n=31, 24. 2%); p value 0.018), oxygen therapy (n=60, 46.9%; p value 0.050), urinary catheters (n=95, 74.2%; p value 0.038) and polypathology (2.3 vs 1.7; p value 0.022). Parkinson's disease (OR=5.973; 95% CI=1.292-27.608), dysphagia (OR=2.090; 95% CI=1.080-4.046) and polypathology (OR=1.220; 95% CI=1.015-1.466) were confirmed by a corrected logistic regression analysis.\u0000\u0000\u0000CONCLUSIONS\u0000Infections and, consequently, antibiotic therapies, have a high prevalence in hospitalised patients with terminal disease. Potential risk factors for infections in these patients could be polypathology, dysphagia and Parkinson's disease. Patients with these conditions could benefit from prevention programmes.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 4 1","pages":"150-156"},"PeriodicalIF":1.0,"publicationDate":"2022-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46560767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Susana M. Santos, Helga Martins, M. Capelas, T. Domingues, S. Caldeira, E. Taylor
{"title":"Validation of the Nurse Spiritual Care Therapeutics Scale in Portuguese palliative care settings: a methodological study.","authors":"Susana M. Santos, Helga Martins, M. Capelas, T. Domingues, S. Caldeira, E. Taylor","doi":"10.12968/ijpn.2022.28.4.157","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.4.157","url":null,"abstract":"BACKGROUND\u0000Spirituality is a critical dimension in palliative care, but difficulties have been described in literature concerning the effective implementation and measuring of spiritual care.\u0000\u0000\u0000AIM\u0000To translate, adapt and validate the Nurse Spiritual Care Therapeutics Scale (NSCTS) in Portuguese palliative care settings.\u0000\u0000\u0000METHODS\u0000A methodological study was conducted. A final version of the questionnaire included the scale and was submitted to full psychometric testing using nurses working in Portuguese palliative care settings.\u0000\u0000\u0000FINDINGS\u0000A total of 88 nurses participated. The average age of the sample was 36.1 ± 8.93 years (range 23-60 years), and 92.0% were women. A Cronbach alpha value of 0.88; Kaiser-Meyer-Olkin measure of sampling adequacy 0.80; and Bartlett's Test of Sphericity were adequate. An exploratory factor analysis was conducted using principal axis factoring with an oblimin rotation that resulted in a three-factors solution.\u0000\u0000\u0000CONCLUSION\u0000The European Portuguese NSCTS questionnaire is a valid and reliable tool to assess the frequency of nurses' activities concerning spirituality in palliative care.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 4 1","pages":"157-163"},"PeriodicalIF":1.0,"publicationDate":"2022-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47837192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A fresh perspective on the art of palliative nursing.","authors":"D. Kelly, H. Richardson","doi":"10.12968/ijpn.2022.28.4.147","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.4.147","url":null,"abstract":"","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 4 1","pages":"147-148"},"PeriodicalIF":1.0,"publicationDate":"2022-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47642879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"War in Europe: palliative care in a humanitarian crisis.","authors":"J. Downing, J. Ling","doi":"10.12968/ijpn.2022.28.3.106","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.3.106","url":null,"abstract":"","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 3 1","pages":"106-107"},"PeriodicalIF":1.0,"publicationDate":"2022-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42301919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using virtual reality in palliative care: a systematic integrative review.","authors":"Hannah Carmont, S. Mcilfatrick","doi":"10.12968/ijpn.2022.28.3.132","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.3.132","url":null,"abstract":"BACKGROUND\u0000Recently, healthcare services have witnessed an exponential increase in the use of immersive and non-immersive virtual reality (VR) technology to improve health-related outcomes. However, the use of VR in palliative care remains relatively unexplored.\u0000\u0000\u0000AIMS\u0000To review and synthesise evidence regarding the experiences of patients, families and healthcare professionals in palliative care who have engaged with immersive/non-immersive VR technology.\u0000\u0000\u0000METHODS\u0000A systematic integrative review using pre-defined MeSH search terms to identify eligible studies from five electronic databases (Cochrane Library, CINAHL, OVID Medline, Pubmed and Scopus) between April 2020 and February 2021.\u0000\u0000\u0000FINDINGS\u0000In total, 1066 articles were reviewed, 55 articles were considered eligible and subject to further analysis and a total of 16 articles met the inclusion criteria and were subject to critical appraisal. Rigorous analysis of eligible articles resulted in the identification of five overarching and interconnected themes: connection, VR as an emergent technology, perceptual change, safety, and future research.\u0000\u0000\u0000CONCLUSION\u0000This review identified that VR could support patients, families and healthcare professionals in palliative care. As a result of the COVID-19 pandemic, the findings could prove particularly significant for facilitating connection. However, further research is necessary to explore the full scope of VR use in this speciality.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 3 1","pages":"132-144"},"PeriodicalIF":1.0,"publicationDate":"2022-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43140961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Spiritual distress of patients living with cancer in Northern Vietnam.","authors":"Y. Ku, L. Ha, S. Kuo, S. Chen","doi":"10.12968/ijpn.2022.28.3.114","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.3.114","url":null,"abstract":"BACKGROUND\u0000Literature on the spirituality of cancer patients has been mainly focused on the experiences of western patients. Few studies explore the experience of Asian cancer patients, while no spiritual study on cancer patients has been conducted in Vietnam.\u0000\u0000\u0000PURPOSE\u0000The purpose of this study was to survey the spiritual distress of cancer patients at two general hospitals in northern Vietnam.\u0000\u0000\u0000METHODS\u0000This was a quantitative survey with a cross-sectional design. This study used purposive sampling with a fitting the inclusion criteria, alongside the Spiritual Distress Scale-Vietnam version (SDS-V). The data was collected by an investigator in two general hospitals in northern Vietnam. The study received approval from two research councils.\u0000\u0000\u0000RESULTS\u0000The results demonstrated that the demographics of cancer patients in the study reflected the national data of Vietnam. Regarding the four exploratory dimensions, more than 50% of cancer patients expressed feeling hardship and sorrow, most did not feel loneliness, most patients reported a good relationship with others and God, while the majority of were afraid to discuss death.\u0000\u0000\u0000CONCLUSIONS\u0000Due to impact of aging and poverty on the sample patients, further studies into the interconnectivity between economics and the spiritual health status of patients is recommended. Additionally, since the 132 Vietnamese cancer patients reported a positive relationship with others and God, healthcare professionals should study effective strategies to apply the above strengths in easing hardships for future cancer patients.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 3 1","pages":"114-122"},"PeriodicalIF":1.0,"publicationDate":"2022-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45828302","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Conversations about femininity and gender identity during palliative therapy.","authors":"J. Erenc, Weronika Kamińska","doi":"10.12968/ijpn.2022.28.3.108","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.3.108","url":null,"abstract":"Hospices are the last place of medical care for most patients before their death. Female patients who have taken part in palliative therapy have reported feeling that their femininity was 'taken away' from them by their illness, which in turn negatively impacted their mood. This study determines how conversations about the appearance of patients can impact behaviour and wellbeing. The individual in-depth interview (IDI) method was used, which involved individual researcher meetings with respondent patients. The interviews dealt primarily with issues concerning the construction and maintenance of femininity. A total of 26 women in stationary long-term care were interviewed. The research showed that patients were aware of what they perceived as negative changes in their appearance and had a strong desire to negate such effects. Despite poor health conditions and contrary to the routines used in hospices, the maintaining of a feeling of femininity remains a basic need of patients, as it strengthens control over their situation, helps with preserve their gender identity and positively impacts their physical and mental state, and improves their overall wellbeing.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 3 1","pages":"108-113"},"PeriodicalIF":1.0,"publicationDate":"2022-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49442990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Laura Glenny, B. Nyatanga, ClaudF. B. Regnard, M. Bisset, Sergio Damaso, C. Davis, F. Edwards, Marie Fallon, R. George, J. Pollock, Amy Proffitt, V. Robinson, J. Spiller, Angela Thavaraj, A. Twycross, R. Twycross, G. Wright
{"title":"Assisted dying.","authors":"Laura Glenny, B. Nyatanga, ClaudF. B. Regnard, M. Bisset, Sergio Damaso, C. Davis, F. Edwards, Marie Fallon, R. George, J. Pollock, Amy Proffitt, V. Robinson, J. Spiller, Angela Thavaraj, A. Twycross, R. Twycross, G. Wright","doi":"10.1007/978-3-319-69892-2_1019-1","DOIUrl":"https://doi.org/10.1007/978-3-319-69892-2_1019-1","url":null,"abstract":"","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 2 1","pages":"55-58"},"PeriodicalIF":1.0,"publicationDate":"2022-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1007/978-3-319-69892-2_1019-1","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47200833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Hendry, J. Hiscock, Elizabeth Evans, Bethany Turner, Jacqueline Pottle, Clare Wilkinson, M. Poolman
{"title":"The juxtaposition of the natural and the medical perspectives in noisy breathing at the end of life.","authors":"A. Hendry, J. Hiscock, Elizabeth Evans, Bethany Turner, Jacqueline Pottle, Clare Wilkinson, M. Poolman","doi":"10.12968/ijpn.2022.28.2.72","DOIUrl":"https://doi.org/10.12968/ijpn.2022.28.2.72","url":null,"abstract":"BACKGROUND\u0000Noisy breathing is common at the end of life. Management of noisy breathing aims to reduce the noise via repositioning the person, suctioning the person's airways and using antimuscarinic drugs. Dying people are generally thought not to be distressed by noisy breathing at the end of life, but the noise may distress others. There is doubt on whether antimuscarinic drugs are any more effective than a placebo for noisy breathing. However, antimuscarinics are still commonly administered to people at the end of life.\u0000\u0000\u0000AIM\u0000To illuminate reasons behind decision making and noisy breathing at the end of life.\u0000\u0000\u0000METHODS\u0000Semi-structured interviews and 'self-recorded brief accounts' with healthcare professionals.\u0000\u0000\u0000FINDINGS\u0000Noisy breathing at the end of life is viewed as both a natural and a medical phenomenon. However, while most participants in the interviews thought that antimuscarinics were uneffective, the prescription and administration of antimuscarinics were embedded within professional culture.\u0000\u0000\u0000CONCLUSION\u0000Managing noisy breathing is a complex issue that incorporates natural and medical viewpoints and has a long-standing culture of practice. Research should aim to determine best practice and reduce a person's distress at the end of life.","PeriodicalId":47415,"journal":{"name":"International Journal of Palliative Nursing","volume":"28 2 1","pages":"72-79"},"PeriodicalIF":1.0,"publicationDate":"2022-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45328901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}