Philippa Smith, Elizabeth Teasdale, Suzanne Sheppard-Law
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引用次数: 1
Abstract
Background: The rising prevalence of life-limiting conditions in children and young people warrants an evaluation of paediatric palliative care, hospice services and delivered care.
Aim: First, this study aimed to develop a deeper understanding of how extended viewing is experienced by the parents of a deceased child (or young person) with a life-limiting condition, based in Australia. Second, this study aimed to evaluate the quality of bereavement care delivered during the first few days after death.
Findings: A total of 17 bereaved parents of 13 children completed an interview. In-depth interviews were audio-recorded, transcribed verbatim and thematically analysed. While the authors acknowledge the complexity and individual nature of grief, four broad themes were identified, namely the importance of the 'physical environment' being conducive to spending time with their child; 'seeing their child'; 'time to say goodbye'; and 'supportive care'.
Conclusion: The findings of this study reinforce that extended viewing can provide therapeutic benefits for parents, as well as the importance of a skilled palliative care nursing workforce in assisting with grief management.
期刊介绍：
Since its launch in 1995, International Journal of Palliative Nursing (IJPN) has been committed to promoting excellence in palliative and hospice care. It is now established as the leading journal for nurses working in this most demanding profession, covering all aspects of palliative care nursing in a way which is intelligent, helpful and accessible, and so useful in daily practice. The aim of IJPN is to provide nurses with essential information to help them deliver the best possible care and support for their patients. Each issue contains an unparalleled range of peer-reviewed clinical, professional and educational articles, as well as helpful and informative information on practical, legal and policy issues of importance to all palliative nurses.
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