{"title":"‘Do you think this is normal?’: risk, temporality, and the management of children’s food allergies through online support groups","authors":"Ebru Kayaalp Jurich","doi":"10.1080/13698575.2021.1914824","DOIUrl":"https://doi.org/10.1080/13698575.2021.1914824","url":null,"abstract":"Through an online ethnographic analysis of a Facebook allergy group in Turkey, this article investigates how mothers carry out the daily process of managing risks and making decisions relating to the diets of babies with food allergies. Where allergy-management advice provided clinically by doctors tends to take the form of a relatively uniform and future-oriented risk-management process, parents making dietary decisions for babies with food allergies often need immediate advice that doctors cannot provide. To meet this need, many mothers complement the advice they receive from doctors with the knowledge and expertise of strangers online in making decisions about their children’s diet. Through a focus on how mothers engage with issues of allergy-related risk in an online community, this study demonstrates the different layers of temporality mothers navigate and the different strategies they employ in responding to allergy-related risk and how these co-exist, often complementarily, with the clinical management of allergies.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"33 1","pages":"128 - 142"},"PeriodicalIF":2.1,"publicationDate":"2021-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79709708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Risk & SocietyPub Date : 2021-04-05eCollection Date: 2021-01-01DOI: 10.1080/13698575.2021.1910210
Bert de Graaff, Jenske Bal, Roland Bal
{"title":"Layering risk work amidst an emerging crisis: an ethnographic study on the governance of the COVID-19 pandemic in a university hospital in the Netherlands.","authors":"Bert de Graaff, Jenske Bal, Roland Bal","doi":"10.1080/13698575.2021.1910210","DOIUrl":"https://doi.org/10.1080/13698575.2021.1910210","url":null,"abstract":"<p><p>The start of the COVID-19 pandemic early 2020 has confronted healthcare sectors with risks and uncertainties on an unprecedented scale in recent history. Healthcare organisations faced acute problems, the answers to which had to be provided, and recalibrated, at short notice and informally. University hospitals played a pivotal role in providing these answers and in (re)calibrating institutional arrangements. Based on ethnographic research in an elite university hospital in the Netherlands, in this article we explore the concrete practices of governing risks and uncertainties that COVID-19 posed for the organisation of healthcare. Our fieldwork consisted of the observation of meetings at the level of the hospital boards, the staff, and the regional level. We collected relevant documents and interviewed key-actors. This approach offers us a large dataset on acute risk governance 'from within' and allows us to offer a layered ethnographic account of managerial practices. In our analysis we focus on conceptualising the work-as-done in the university hospital as risk work. We show how the risk work of our participants is generally characterised by high speed and delineated by scarcities. We differentiate between three modes of risk work: working on numbers, working on expertise and working on logistics. This risk work appears innovative, but our analysis stresses how participants' work happened in interaction with traditional institutional logics and routines.</p>","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"23 3-4","pages":"111-127"},"PeriodicalIF":2.1,"publicationDate":"2021-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13698575.2021.1910210","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39312231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From risks to catastrophes: How Chinese Newspapers framed the Coronavirus Disease 2019 (COVID-19) in its early stage","authors":"Di Wang, Zhifei Mao","doi":"10.1080/13698575.2021.1901859","DOIUrl":"https://doi.org/10.1080/13698575.2021.1901859","url":null,"abstract":"Beck identified delocalisation, uncalculability and non-compensability as three characteristics of modern risk, the recognition of which lies at the core of transforming insubstantial risks into urgent catastrophes. This study aimed to empirically test and enrich Beck’s theory by examining how the Chinese media framed COVID-19 during the first month of the pandemic’s outbreak, a critical period for the media’s staging of risk. We observed that the usage of the consequences and treatment responsibility frames lies at the core of transforming COVID-19 from a risk to a catastrophe. Initially, journalists framed the virus as conquerable at a local level, with calculable consequences and compensable solutions. In the second phase, after the central government and national health experts stepped in, journalists admitted that COVID-19 was uncontrollable at a local level, starting to transform the risk into a national catastrophe, and called for enhanced solutions to controlling the spread of the virus. In the third phase, journalists started to transform the local catastrophe into a global crisis, referring to the global community as an information source. By building a bridge between risk theory and framing theory, we found that, in the case of COVID-19, delocalisation, incalculability, and non-compensability were crucial factors in risk virtualisation. We argue that the different usage of the consequences and treatment responsibility frames can either prevent the transformation of a risk into a catastrophe or facilitate this transformation process.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"46 1","pages":"93 - 110"},"PeriodicalIF":2.1,"publicationDate":"2021-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80913255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Experiences of social support among Kashmiri women with breast cancer","authors":"Wasia Hamid, T. Khan","doi":"10.1080/13698575.2021.1901858","DOIUrl":"https://doi.org/10.1080/13698575.2021.1901858","url":null,"abstract":"One of the major global health crises in the contemporary scenario is the rapid increase in the incidence of the disease of cancer in general with breast cancer in particular affecting millions of women worldwide. The diagnosis of breast cancer provokes a series of changes in patient’s lives with social support seen as critical in facilitating women cope with the illness as well as the stress associated with it. Although breast cancer has emerged as the focus of clinical research and intervention in Kashmir, the experiences of support dynamics characterising post-diagnosis situation among such patients have been neglected. This qualitative study, thus, investigated the experiences of Kashmiri women with breast cancer regarding social support. Participants were invited for in-depth face-to-face interviews between November 2018 and March 2019 using snowball sampling technique, and the participants were recruited until data saturation was reached (n= 12). The study revealed that participants received overwhelming support (emotional, financial, practical, moral, and informational) from significant others (parents, siblings, husbands, children, extended family), important others (relatives, friends, neighbours, colleagues, peers), healthcare providers (doctors, nurses, paramedics, physician’s assistants), and religion and spirituality (religious beliefs and practices, spiritual healers, shrines) throughout their journey with breast cancer and reported varying positive outcomes as a result of the support received. Moreover, social support received provided them strength, and encouragement and instilled feeling of optimism that helped them to deal with their illness. The study further highlights a need for interventions that could address the unmet support needs thereby reducing the disturbance and sufferings experienced by women post-diagnosis.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"56 1","pages":"52 - 72"},"PeriodicalIF":2.1,"publicationDate":"2021-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84876441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jie Wang, Z. Hou, Shiwen Wu, Sha Tao, I. D. de Kok, H. Fu, Runyu Zou
{"title":"Culture and perceptions on cancer risk and prevention, information access, and source credibility: a qualitative interview study in Chinese adults","authors":"Jie Wang, Z. Hou, Shiwen Wu, Sha Tao, I. D. de Kok, H. Fu, Runyu Zou","doi":"10.1080/13698575.2021.1887459","DOIUrl":"https://doi.org/10.1080/13698575.2021.1887459","url":null,"abstract":"We aimed to explore cancer risk and prevention perceptions, information access, and source credibility evaluation about cancer risk and prevention in adults in an Eastern cultural context (China). We conducted 32 in-depth interviews in two Chinese cities: Shanghai and Wuhan, from September 2016 to January 2017. Though not fully supported by scientific evidence, our findings showed that stress was among the top five concerns in the participants’ perceptions of cancer risk and prevention. Obesity and infectious agents, significant cancer risks for Chinese populations, did not receive so much attention among the participants. Principles of Eastern culture, such as change, contradiction, and holism, were reflected in the participants’ interpretations and understandings of cancer risk and prevention. Beliefs in fate or destiny, as associated with Eastern culture, were also apparent in the strongly fatalistic views towards cancer prevention of some participants. Individual responsibility for cancer risk, rather than collective responsibility (such as government or society), was emphasised by participants. Except for personal social networks, the information channels where the participants frequently accessed cancer risk and prevention information (the media) were completely different from the information channels they trusted (healthcare system). Our findings provide useful references for cancer risk and prevention communication and education in China.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"43 1","pages":"1 - 16"},"PeriodicalIF":2.1,"publicationDate":"2021-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76014120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Translating risk: how social workers’ epistemological assumptions shape the way they share knowledge","authors":"Gemma Mitchell, I. Demir","doi":"10.1080/13698575.2021.1888892","DOIUrl":"https://doi.org/10.1080/13698575.2021.1888892","url":null,"abstract":"Social workers are at the heart of drives to improve child health and wellbeing, with knowledge sharing between them and other professionals viewed as a way to reduce the uncertainty associated with this area of risk work. We aim to fill a significant gap in the literature by examining how social workers assess, interpret, filter and share knowledge relating to risk and uncertainty – what we call the translation of risk – within their profession. Based on data from a qualitative study with social workers in England between 2012 and 2013, we identify two main approaches social workers employ. We conceptualise them as 1) reluctant translating, and 2) dynamic translating. Our analysis shows that epistemic assumptions such as how social workers conceptualise the fact/value separation; how they view what we call ‘grey evidence’; and how they understand the relationship between objectivity and subjectivity, underpin how social workers translate risk. We add a new dimension to the literature on risk by arguing that we need to pay attention to the epistemological values that underpin ‘client-facing’ risk work. Thus, we aid understanding of not only how knowledge is shared in particular ways, but also why this is the case. We identify reasons why some social workers include valuable ‘grey evidence’ and prioritise adequacy over accuracy in their translations of risk. We highlight, however, that through an over-emphasis on accuracy and boundaries, evidence-based practice might end up driving out ‘grey evidence’ and inadvertently hampering effective decision-making, judgement and knowledge sharing on risk.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"20 1","pages":"17 - 33"},"PeriodicalIF":2.1,"publicationDate":"2021-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81153032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa Roy, Nicolas Moreau, C. Rousseau, A. Mercier, Andrew Wilson, J. Dozon, L. Atlani-Duault
{"title":"Constructing Ebola martyrs, warriors, and saviours: online heroisation in a context of risk and unease","authors":"Melissa Roy, Nicolas Moreau, C. Rousseau, A. Mercier, Andrew Wilson, J. Dozon, L. Atlani-Duault","doi":"10.1080/13698575.2021.1902954","DOIUrl":"https://doi.org/10.1080/13698575.2021.1902954","url":null,"abstract":"The perception of epidemic risk has been associated with the production of narratives in which figures such as villains and heroes emerge. This article critically analyzes social media users’ construction of heroic figures during the 2013–2016 Ebola epidemic. We used international Twitter and Facebook comments as our raw material, collected by key word extraction. A thematic analysis resulted in a descriptive typology of three heroic figures: the martyr, the warrior, and the saviour. Our analysis showed that heroic status (highly associated with willingness to take high risks on behalf of others) was mostly conferred on common individuals and ‘insiders’ living in the Ebola-afflicted communities – often deemed ‘unsung’ – rather than the foreigners frequently heroised in previous crises. We deconstruct this heroisation dynamic, showing that it is a socially strategic move because it is embedded in a potential instrumentalization of heroes. First, this production of ‘everyday heroes’ may encourage the involvement of lay people in the epidemic response, by conveying that anyone can become a health hero. Second, we show that this heroisation process maintains the status quo by encouraging adherence to biomedical discourses, and by individualising the narrative and neglecting the structural changes needed to address the epidemic. Finally, we caution against discourses that seem socially ‘progressive’ but may be used as a smokescreen to hide discriminatory dynamics, and we recommend changes in communication strategies.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"7 1","pages":"73 - 91"},"PeriodicalIF":2.1,"publicationDate":"2021-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74957953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
K. Howells, P. Bower, Patrick Burch, S. Cotterill, C. Sanders
{"title":"On the borderline of diabetes: understanding how individuals resist and reframe diabetes risk","authors":"K. Howells, P. Bower, Patrick Burch, S. Cotterill, C. Sanders","doi":"10.1080/13698575.2021.1897532","DOIUrl":"https://doi.org/10.1080/13698575.2021.1897532","url":null,"abstract":"Medical sociologists highlight diagnosis as a critical moment in understanding the illness experience and have extended analysis to the growing focus on ‘predisease states’ in relation to policy and medical practice. The biomedicalisation of diabetes risk, labelled as ‘prediabetes’, is one predisease area Public Health England have prioritised via the roll-out of a national diabetes prevention programme (NDPP). The label and language of prediabetes frames this risk as a medical condition and this could have both social and practical consequences for how individuals manage this risk. Through data drawn from individual interviews and observations, we explore how individuals respond to the label of prediabetes and how they interpret and respond to their ‘at-risk’ status. The findings demonstrate that for some participants, the framing of risk seemed consistent with a biomedical paradigm as reflected within clinical discussions and the language used. For others, previous knowledge or experiences were drawn upon to resist, downplay and reframe their at-risk status. Our analysis reflects varying degrees of resistance where for some this seemed to mitigate against the threat of ‘biographical disruption’ associated with the risks of developing future diabetes. In such cases, respondents also resisted the notion that they were ‘candidates’. However, in some cases, there was little resistance to the label of prediabetes, yet the perceived risk was ‘low’ in the context of competing health priorities or in relation to their expectations of health status in older age. Across participants, these varied responses were reflected in corresponding resistance to key messages promoting health behaviour change.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"23 1","pages":"34 - 51"},"PeriodicalIF":2.1,"publicationDate":"2021-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88223850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Volition to risk taking in the ordinary activities of daily life of older people living at home alone. A study using explicitation interviews","authors":"M. Bedin, N. Kuhne, M. Droz Mendelzweig","doi":"10.1080/13698575.2020.1861223","DOIUrl":"https://doi.org/10.1080/13698575.2020.1861223","url":null,"abstract":"Older people (OP) living at home alone face several health risks. Health professionals are increasingly called upon to contribute to the prevention of these risks. In this article we to develop an analytical framework to look at volition to risk taking in the ordinary everyday activities of OP living at home alone. We conducted a qualitative study to explore how OP think about risk throughout their actions, how risk influences them in their activities and the place they give to risk in the ordinary activities of their daily lives. Twenty participants (twelve women, eight men) living alone at home in French-speaking Switzerland were interviewed using the specific explicitation interview method. Focusing on micro-action sequences, the participants were asked to convey their subjective experiences while performing these actions. Occupational and activity choices seem to always have underlying motivations rooted in a set of values, such as maintaining a sense of control over one’s own existence, competence (perceived self-efficacy), and identity congruence. Risk taking was closely associated with OP’s intimate volition to maintain their own personal trajectory. The way in which OP understand the risks they face in their daily lives and what they do to cope with these risks serves as an analytical tool for studying ageing. We consider that a more detailed understanding of which risks affect or benefit OP, and how, makes a valuable contribution to studies of ageing and to studies into the nature and role of risk in everyday life.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"2 1","pages":"421 - 436"},"PeriodicalIF":2.1,"publicationDate":"2020-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88901876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Linking environmental risks and cancer risks within the framework of genetic-behavioural causal beliefs, cancer fatalism, and macrosocial worry","authors":"Soo Jung Hong","doi":"10.1080/13698575.2020.1852535","DOIUrl":"https://doi.org/10.1080/13698575.2020.1852535","url":null,"abstract":"In this study, we investigate the relationships among worries about environmental health risks, genetic and behavioural causal beliefs about cancer prevention, perceived cancer risk, and cancer fatalism based on the concepts of macrosocial worry and affect heuristic. Nationally representative data from the National Cancer Institute’s Health Information National Trends Survey (HINTS) 4 Cycle 2 dataset was employed. We conducted hierarchical multiple regression analyses by employing SPSS Macro for Probing Interactions in OLS and Logistic Regression. According to the results of this study, worry about environmental risks was positively and significantly associated with both genetic and behavioural causal beliefs. The more individuals worry about environmental risks, the less fatalistic beliefs they have. Behavioural causal beliefs negatively and significantly influenced cancer risk perceptions as well as cancer fatalism, moderating the associations between genetic causal beliefs, cancer risk perceptions, and cancer fatalism. Moreover, worry about environmental risks was found to be a mediator linking cancer causal beliefs and cancer fatalism. The results of moderation tests suggest socio-economic disparities exist in cancer and environmental risk perceptions as well as causal beliefs related to cancer.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"183 1","pages":"379 - 402"},"PeriodicalIF":2.1,"publicationDate":"2020-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83029923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}