克什米尔患乳腺癌妇女的社会支持经验

IF 1.8 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Wasia Hamid, T. Khan
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引用次数: 4

摘要

在当前情况下,全球主要的健康危机之一是癌症发病率的迅速增加,特别是影响全世界数百万妇女的乳腺癌。乳腺癌的诊断引发了患者生活的一系列变化,社会支持被视为促进妇女应对疾病以及与之相关的压力的关键。虽然乳腺癌已成为克什米尔临床研究和干预的重点,但这些患者诊断后情况的支持动态经验却被忽视了。因此,这项定性研究调查了患有乳腺癌的克什米尔妇女在社会支持方面的经历。参与者被邀请在2018年11月至2019年3月期间使用雪球抽样技术进行深入的面对面访谈,直到达到数据饱和(n= 12)。研究表明,参与者从重要的其他人(父母、兄弟姐妹、丈夫、孩子、大家庭)、重要的其他人(亲戚、朋友、邻居、同事、同龄人)、医疗服务提供者(医生、护士、护理人员、医生助理)、宗教和灵性(宗教信仰和实践、精神治疗师、精神治疗师、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生、医生和医生)那里获得了压倒性的支持。在她们与乳腺癌的旅程中,并报告了由于得到的支持而产生的各种积极结果。此外,获得的社会支持为他们提供了力量和鼓励,并逐渐灌输了乐观情绪,帮助他们应对疾病。该研究进一步强调需要采取干预措施,以解决未得到满足的支持需求,从而减少妇女在诊断后所经历的困扰和痛苦。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of social support among Kashmiri women with breast cancer
One of the major global health crises in the contemporary scenario is the rapid increase in the incidence of the disease of cancer in general with breast cancer in particular affecting millions of women worldwide. The diagnosis of breast cancer provokes a series of changes in patient’s lives with social support seen as critical in facilitating women cope with the illness as well as the stress associated with it. Although breast cancer has emerged as the focus of clinical research and intervention in Kashmir, the experiences of support dynamics characterising post-diagnosis situation among such patients have been neglected. This qualitative study, thus, investigated the experiences of Kashmiri women with breast cancer regarding social support. Participants were invited for in-depth face-to-face interviews between November 2018 and March 2019 using snowball sampling technique, and the participants were recruited until data saturation was reached (n= 12). The study revealed that participants received overwhelming support (emotional, financial, practical, moral, and informational) from significant others (parents, siblings, husbands, children, extended family), important others (relatives, friends, neighbours, colleagues, peers), healthcare providers (doctors, nurses, paramedics, physician’s assistants), and religion and spirituality (religious beliefs and practices, spiritual healers, shrines) throughout their journey with breast cancer and reported varying positive outcomes as a result of the support received. Moreover, social support received provided them strength, and encouragement and instilled feeling of optimism that helped them to deal with their illness. The study further highlights a need for interventions that could address the unmet support needs thereby reducing the disturbance and sufferings experienced by women post-diagnosis.
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来源期刊
CiteScore
3.30
自引率
14.30%
发文量
23
期刊介绍: Health Risk & Society is an international scholarly journal devoted to a theoretical and empirical understanding of the social processes which influence the ways in which health risks are taken, communicated, assessed and managed. Public awareness of risk is associated with the development of high profile media debates about specific risks. Although risk issues arise in a variety of areas, such as technological usage and the environment, they are particularly evident in health. Not only is health a major issue of personal and collective concern, but failure to effectively assess and manage risk is likely to result in health problems.
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