Health Sociology ReviewPub Date : 2024-11-01Epub Date: 2024-05-23DOI: 10.1080/14461242.2024.2350501
Morgan Dudley, Rebecca E Olson, Karime Mescouto, Jenny Setchell
{"title":"The good pain patient: a critical evaluation of patients' self-presentations in specialist pain clinics.","authors":"Morgan Dudley, Rebecca E Olson, Karime Mescouto, Jenny Setchell","doi":"10.1080/14461242.2024.2350501","DOIUrl":"10.1080/14461242.2024.2350501","url":null,"abstract":"<p><p>Established research supports collaborative patient-clinician communication as a means of improving pain management and decreasing opioid use by patients with chronic pain. However, much of this scholarship emphasises clinicians' capacities to shape and improve communication; limited research investigates patients' roles in this process. Drawing on 40 ethnographic observations of patient-clinician interactions, clinical spaces and case conferences within one specialist pain clinic in Brisbane, Australia, this paper investigates how and why patients present themselves in particular ways within consultations. Our theoretical lens combines concepts from Goffman on patienthood and stigma with Foucauldian theories of pastoral and disciplinary power. Findings suggest that elements of the clinical environment - namely posters - usher patients towards presenting in what we conceptualise as the 'good pain patient' role. In this role, patients demonstrate that they are moral, responsible, and contributing members of society. Yet, such a role is problematic to opening communication, with the role constraining what is socially acceptable for patients with chronic pain to say, do, or feel. In recognising how clinical contexts facilitate problematic good pain patient presentations, this paper directs attention to the spatial and relational nature of implicit clinical expectations and constrained good pain patient presentations.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"306-324"},"PeriodicalIF":2.5,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141088687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Sociology ReviewPub Date : 2024-11-01Epub Date: 2024-06-05DOI: 10.1080/14461242.2024.2356868
Kerryn Drysdale, Nicola S Creagh, Claire Nightingale, Lisa J Whop, Angela Kelly-Hanku
{"title":"Inclusive language in health policy - a timely case (study) of cervical screening in Australia.","authors":"Kerryn Drysdale, Nicola S Creagh, Claire Nightingale, Lisa J Whop, Angela Kelly-Hanku","doi":"10.1080/14461242.2024.2356868","DOIUrl":"10.1080/14461242.2024.2356868","url":null,"abstract":"<p><p>Language is important in health policy development. Policy changes in Australia to increase cervical screening offers a timely case example to explore the function of inclusive language in health policy. Gender and sexuality diverse people with a cervix have been largely invisible within health promotion programs, which has led to reduced awareness of, and access to, cervical screening. Twenty-eight semi-structured interviews were conducted with 29 key informants between April and October 2022 about the role of inclusive language in cervical screening policy, promotion, and delivery in the context of a national program to promote cervical screening. Three themes were identified from what key informants believed to be the role of inclusive language: (1) the common goal of inclusive language as policy advocacy for broader inclusivity; (2) the inevitable partiality of inclusive language in policy as an opportunity to start conversation; and (3) policy as a bridge between essential but diffuse components of the health sector with multidirectional influences. Inclusive language was seen to operationalise equity in health policy within the broader aim of eliminating cervical cancer among under-screened populations.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"325-341"},"PeriodicalIF":2.5,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"'Just because I'm smiling doesn't mean I'm not in pain': navigating the layered stigma of chronic pain and suicidality in social worlds.","authors":"Kate LaForge","doi":"10.1080/14461242.2024.2398250","DOIUrl":"10.1080/14461242.2024.2398250","url":null,"abstract":"<p><p>This article aims to provide an illustrated account of layered stigmatisation processes and consequences for those who experience chronic pain and accompanying suicidality. Using constructivist grounded theory, I draw from 20 in-depth interviews conducted from 2022 to 2023 to explore how chronic pain and suicidality operate within people's social worlds. Findings demonstrate how layered stigmatising processes, occurring based on chronic pain and suicidality, operate consistently across multiple social arenas to create interactional troubles, which result in enduring negative social, emotional, and financial impacts. Three themes were constructed, including (1) self-stigma and the multiple roles of the family, (2) missed connections, and (3) anticipated stigma and workplace discrimination. Taken together, themes support the overarching category, 'interactional troubles'. Findings suggest a need for attunement to stigmatising processes' omnipresence and the depth of their consequences. Clinical interventions may benefit from emphasizing participants' social worlds and incorporating the complexity of navigating social arenas given layered stigmatisation. Moreover, policies that support those with chronic pain and mental illness could offset the long-term negative economic consequences of discrimination.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-16"},"PeriodicalIF":2.5,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emma-Louise Seal, Jacinthe Flore, Renata Kokanović, Tamara Borovica, Cameron Duff, Stuart D M Thomas, Sathya Rao, Andrew Chanen
{"title":"The emotional labour of peer work: encountering stigma in mental healthcare spaces.","authors":"Emma-Louise Seal, Jacinthe Flore, Renata Kokanović, Tamara Borovica, Cameron Duff, Stuart D M Thomas, Sathya Rao, Andrew Chanen","doi":"10.1080/14461242.2024.2391437","DOIUrl":"https://doi.org/10.1080/14461242.2024.2391437","url":null,"abstract":"<p><p>This article focuses on the workplace experiences of peer workers with a diagnosis of borderline personality disorder (BPD) in mental healthcare settings in Australia. Our article is located at the intersection of political, social, cultural, and legislative forces that have fostered the development of peer work as a paid profession. We draw on the concept of stigma to analyse findings from qualitative interviews with peer workers conducted in [state], Australia. By examining peer work in the broader context of lifeworlds of BPD, we address the interplay of work and professional identity, and the experience of a profoundly stigmatised diagnosis at this intersection.Our findings demonstrate the physical and emotional effects of stigma and how it produces boundaries and inequalities between peer workers and other health practitioners. These boundaries are reinforced by invisible markers that delineate what is expected, 'normal' and deemed professional in the workplace. Moreover, these same medico-socio-political relations help shape peer workers' identities and experiences. The development of peer workforces in mental healthcare service delivery is a prominent area of reform in Australia and internationally. Our research highlights the urgency of efforts to transform current socio-cultural-political relations that inhibit peer workers in their roles and impact workplace experiences.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-17"},"PeriodicalIF":2.5,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"COVID-19 and the biopolitics of stigma in public housing: dividing practices and community boundaries in pandemic times.","authors":"Kiran Pienaar, Paul Kelaita, Dean Murphy","doi":"10.1080/14461242.2024.2390019","DOIUrl":"https://doi.org/10.1080/14461242.2024.2390019","url":null,"abstract":"<p><p>The COVID-19 'hard lockdowns' in Melbourne, Australia in 2020 targeted public housing estates thus trading on perceptions of risk associated with public housing as some of the most stigmatised sites in post-industrial cities. This article draws on interviews with Melbourne public housing tenants on their experience of COVID-19 lockdowns to analyse the place of stigma in residents' accounts. Pairing Wacquant et al's (2014) concept of 'territorial stigma' with sociological work on the biopolitics of stigma we consider the dynamics of stigma, tracing how it functions to delimit community boundaries and justify pandemic containment measures. Residents navigate multiple layers of stigma, including stereotypes of public housing, normative judgements of neighbouring residents, and a broader public housing system riven with structural issues. Members of these communities are both the targets of stigma and seek to distance themselves from those seen as vectors of stigma. Our participants report mobilising social distancing strategies couched in normative assessments of perceived risk based on physical appearance, presumed drug use and past conduct. We explore the implications of these enactments of territorial stigma and trace the logics of abjection that construct public housing as deprived urban zones, home to abject 'Others' perceived as threatening the health of the community.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-16"},"PeriodicalIF":2.5,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141992521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The ethics of enhancement among image and performance enhancing drug coaches.","authors":"Timothy Piatkowski, Luke Cox, Rick Collins","doi":"10.1080/14461242.2024.2388528","DOIUrl":"10.1080/14461242.2024.2388528","url":null,"abstract":"<p><p>This research examines image and performance-enhancing drug (IPED) use, specifically focusing on the emerging role of IPED coaches. Situating drug use within broader assemblage theory, we investigated how these coaches, often operating in an online context, function as enabling environments, influencing practices, and contributing to harm reduction in a broader social context within and for IPED communities. Ten IPED coaches were interviewed, with this work focusing on their legal, ethical, and moral considerations, risk assessment, and harm reduction strategies of their practices. We employed a critical realist approach, following flexible coding to identify and develop themes which were further framed an enabling environments framework. Coaches operated along an ethical tightrope, emphasising the conscious regulation of conduct within established norms and the nuanced assessment of risks aligned with individual goals and motivations. Power dynamics and responsibility concerns unfolded through the lens of collaborative decision-making, where trust emerged as an essential element of these relations within contextual risk assessments. IPED coaches play a role in harm reduction by fostering trust and informed decision-making, balancing clients' goals with health considerations. These findings emphasise the potential for collaboration between IPED coaches and the health workforce to enhance health promotion and support within IPED communities.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-15"},"PeriodicalIF":2.5,"publicationDate":"2024-08-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Securitisation of COVID-19 pandemic: policy measures in India and implications for health governance.","authors":"N D Vivek","doi":"10.1080/14461242.2024.2372026","DOIUrl":"https://doi.org/10.1080/14461242.2024.2372026","url":null,"abstract":"<p><p>Since the beginning of the COVID-19 pandemic, states throughout India, headed by the Centre, backed punitive policy actions that took precedence over democratic norms. Securitisation measures implemented by the government resulted in harsh restrictions on citizens' daily lives, the imprisonment of journalists reporting the pandemic and its management by authorities, and substantial invasions of people's privacy through the deployment of intrusive digital technology. These problems are investigated by looking at how the COVID-19 pandemic functioned as justification for authorities to violate democratic procedures as a consequence of the pandemic itself being characterised as a state of exception necessitating such ostensible measures. It is also demonstrated how securitisation as a means to monitor health, and health as a reason for greater securitisation, came to the fore in state responses to the COVID-19 pandemic.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-14"},"PeriodicalIF":2.5,"publicationDate":"2024-07-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141601890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Brilliant care: a conceptual argument for scholarship of the extraordinary.","authors":"Ann Dadich, Benjamin Hanckel","doi":"10.1080/14461242.2024.2371132","DOIUrl":"https://doi.org/10.1080/14461242.2024.2371132","url":null,"abstract":"<p><p>Critiques of healthcare often focus on negative experiences to address gaps, issues, and problems. While important, this often obscures care that exceeds expectation - that is, brilliant care. This article centres brilliant care by considering the questions that might be asked to surface it, and what might happen when brilliant care is centred. Specifically, a conceptual understanding of brilliant care is extended within health sociology. In doing so, the article draws on Mol's research on the logic of care, Fredrickson's broaden-and-build theory, and Hochschild's notion of emotion work. Through an application of this conceptual framework to secondary data - namely, reported stories of healthcare experiences from the series 'What's right in health care' - the article demonstrates how the framework surfaces and illuminates aspects of brilliance and its emergence. The article concludes by considering the implications this has on how we make sense of healthcare and the positive, social, and relational aspects that might be surfaced in current and future practices.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"1-15"},"PeriodicalIF":2.5,"publicationDate":"2024-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Global healthcare systems and violence against women and girls.","authors":"Michelle Fitts, Karen Soldatic","doi":"10.1080/14461242.2024.2366037","DOIUrl":"10.1080/14461242.2024.2366037","url":null,"abstract":"","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"119-124"},"PeriodicalIF":2.5,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141477697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Health Sociology ReviewPub Date : 2024-07-01Epub Date: 2024-06-04DOI: 10.1080/14461242.2024.2350502
Tara Casebolt, Molly Hardiman
{"title":"Experiences of gender based violence and help seeking trends among women with disabilities: an analysis of the demographic and health surveys.","authors":"Tara Casebolt, Molly Hardiman","doi":"10.1080/14461242.2024.2350502","DOIUrl":"10.1080/14461242.2024.2350502","url":null,"abstract":"<p><p>Women with disabilities are more likely to experience violence than women without disabilities and there is a critical gap in research regarding this topic. This study uses Demographic and Health Survey (DHS) data to analyse the association between disability and experiences of gender-based violence (GBV) and help-seeking behaviour among women in Haiti, Pakistan, Timor Leste, and Uganda. These countries were chosen because they are representative of the regions where the DHS is conducted and include questions about GBV and disability. The data was analysed based on recommendations from the Washington Group using a disability severity indicator. Logistic regression was the primary method of analysis. Generally, we found women with disabilities had the same or greater odds of experiencing GBV and had the same or lower odds of help-seeking. Given women with disabilities are at least at equal risk of experiencing GBV, it is imperative that programs be developed that are accessible to all women regardless of functional limitations. Also, additional research is needed to determine if there are differences by disability type, if intersectionality is relevant, and to include more unmarried women.</p>","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":" ","pages":"125-143"},"PeriodicalIF":2.5,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}