{"title":"Poster (Health Services, Economics and Policy Change) ID 1985397","authors":"Farnoosh Farahani, B. C. Craven","doi":"10.46292/sci23-1985397s","DOIUrl":"https://doi.org/10.46292/sci23-1985397s","url":null,"abstract":"The Spinal Cord Injury Implementation and Evaluation Quality Care Consortium (SCI-IEQCC) is a quality improvement initiative (began in 2019) with a mission to provide optimal and equitable rehabilitation services for all Canadians regardless of where they live, and to ensure the functional recovery, health and well-being for individuals living with spinal cord injury and disease (SCI/D). To highlight the growing needs of an expanding multisite network and the importance of governance and organizational structures to support the execution of current deliverables while addressing emerging challenges. The SCI-IEQCC has a central team for network management. Administrators/leaders, clinicians with implementation science training, local site implementation teams, and individuals with lived experience comprise the SCI-IEQCC. Implementation and evaluation of indicators and best practices across 10 participating organizations requires: operational oversite; monitoring of project milestones; adherence to regulatory requirements; sustained data quality with linkage for analyses; report card dissemination; information sharing and network updates; strategic planning to map future directions; identification of priorities; and, meeting academic/funding deliverables. SCI-IEQCC has driven improvements in rehabilitation service delivery, performance, utilization of best practices, and increments in staff engagement, training, and knowledge exchange. SCI-IEQCC challenges are derived from the diversity of participating organizations, turnover in leaders, staff shortages, reducing variation in documentation and data management, and ensuring resource continuity. The growing complexity of this multisite network necessitate innovative approaches to streamline processes across sites, ensure uniform adherence to regulatory requirements, disseminate innovations in informatics, and assure dedication to its mission and vision.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"35 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139343494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nader Fallah, H. Hong, S. Humphreys, Jessica Parsons, Kristen Walden, Vanessa K. Noonan
{"title":"Workshop (Knowledge Generation) ID 2001657","authors":"Nader Fallah, H. Hong, S. Humphreys, Jessica Parsons, Kristen Walden, Vanessa K. Noonan","doi":"10.46292/sci23-2001657s","DOIUrl":"https://doi.org/10.46292/sci23-2001657s","url":null,"abstract":"Multi-morbidity is common in persons with spinal cord injury (SCI). Network Analysis is a tool used to visualize and estimate complex relationships among variables. Three network models: Gaussian Graphical Model, Ising model, and Mixed Graphical Model were applied to the 2011-2012 Canadian SCI Community Survey dataset, which included individuals with traumatic and non-traumatic SCI. Data utilized included demographic and injury data as we well as 30 secondary health conditions (comorbidities and secondary complication) that are included in the Multi-Morbidity Index (MMI-30). Five health outcomes were included: healthcare utilization (HCU), health status (i.e. Short Form-12 physical and mental component summary (SF-12 PCS & MCS) score), life satisfaction, and quality of life. Using Network Analysis, we reduced the number of items in the Multi-Morbidity Index (MMI-30) by 5 items (MMI-25) and the psychometric properties were comparable. This interactive workshop will include presentations from a clinician, researcher and person with lived experience (PLEX). The goals of this workshop are to: This workshop will demonstrate the benefit of using Network Analysis, a type of Machine Learning, in SCI research. Specifically, the example of how Network Analysis identified key associations among 30 secondary health conditions and five health outcomes which resulted in the MMI-25 will be discussed as well as future opportunities for using Network Analysis and other Machine Learning methodologies in SCI research.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"50 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139344545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patrik Nepomuceno, Wagner H. Souza, Kristin E. Musselman, B. C. Craven
{"title":"Student Competition (Clinical/Best Practice Implementation) ID 1986706","authors":"Patrik Nepomuceno, Wagner H. Souza, Kristin E. Musselman, B. C. Craven","doi":"10.46292/sci23-1986706s","DOIUrl":"https://doi.org/10.46292/sci23-1986706s","url":null,"abstract":"Exoskeletons are promising tools for motor rehabilitation in spinal cord injury/disease (SCI/D); however, optimal therapeutic dose parameters are unknown. This study aimed to identify the dose and dosage of exoskeleton training for functional gait restoration in individuals with SCI/D. A systematic review (inception-03/31/2022) included CINAHL Complete Embase, Emcare Nursing, MedLine and Web of Science databases. Studies with ≥ 5 adults (≥16 years, any level/nature) who underwent exoskeleton-based overground gait rehabilitation and reporting 3 of 4 dose (e.g., session duration and number of sessions) and dosage (e.g., frequency of sessions, intervention duration) parameters, and at least one gait outcome measure were included. Of 977 studies, 964 were excluded. With 19 studies remaining, 13 included functional restoration as their therapeutic intent. Of those, 11 reported statistically significant changes and were considered for recommendation. The functional restoration ranged from 10 to 51.5 sessions, 2 to 5 sessions a week, for 3 to 12 weeks, with a duration of 45-90-minutes per session. Altogether, the data suggest that exoskeleton-based functional gait restoration would be best achieved using protocols that encompass 60-minute sessions, 3 times a week, for over 8 weeks (total of 24 sessions). Despite the high variability of dose and dosage parameters reported, significant improvements in functional performance were associated with overground exoskeleton use in most studies. The lack of therapeutic standards, however, compromises translation to clinical settings. This review provides evidence-based clinical practice recommendations for functional restoration in individuals with SCI/D to inform future functional restoration training paradigms.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"42 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139344860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica M. D’Amico, Camilo Castillo, David Rouffet, Monica Gorassini, Lalith E. Satkunam
{"title":"Poster (Knowledge Generation) ID 1985240","authors":"Jessica M. D’Amico, Camilo Castillo, David Rouffet, Monica Gorassini, Lalith E. Satkunam","doi":"10.46292/sci23-1985240s","DOIUrl":"https://doi.org/10.46292/sci23-1985240s","url":null,"abstract":"Following a spinal cord injury, there is a significant loss of monoamines below the lesion. In the rat model, exogenous administration of the serotonin precursor, 5-hydroxytryptophan (5HTP), increases neural excitability through augmentation of spinal serotonin levels. To determine whether this compensatory mechanism can be harnessed to restore serotonergic modulation in humans after SCI, participants visited the lab on four occasions where they received i) placebo, ii) carbidopa, iii) 50mg 5HTP+carbidopa, or iv) 100mg 5HTP+carbidopa in a randomized, crossover design. Cutaneomuscular reflexes (CMR) were obtained pre-drug and 30, 60, 90 and 120-min post-drug intake. Surface electromyography was also recorded during a pedalling movement pre- and post-drug. Nine participants with chronic, complete SCI (35.3±5.5 years) and four participants with chronic, incomplete SCI (47.0±19.7years) were enrolled. Following ingestion of 100mg 5HTP only, the short polysynaptic and long-lasting reflex components of the CMR were significantly increased by ∼ 86±61% and 58±17% respectively in individuals with complete SCI. No significant changes were noted in the cohort of individuals with incomplete SCI. Integrated EMG during pedalling was increased in multiple lower extremity muscles during the extension and flexion phases of the cycle following both 50-mg (82±15% and 51±7%) and 100-mg 5HTP (140±27% and 130±16%) in individuals with more severe injuries, but not in those with incomplete injuries. Ingestion of 5HTP facilitates neural excitability and induces rhythmic muscle activity in previously inactive muscles during an assisted pedalling movement in individuals with chronic, complete SCI. This has significant clinical implications for rehabilitation after SCI.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"68 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139345341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Géraldine Jacquemin, Catherine Dansereau, Philippe Ménard, Josée Dubois, Véronique Maes, Charlotte Jaloux, Noah Oiknine, Elie Boghossian, Dominique Tremblay
{"title":"Poster (Knowledge Generation) ID 2002621","authors":"Géraldine Jacquemin, Catherine Dansereau, Philippe Ménard, Josée Dubois, Véronique Maes, Charlotte Jaloux, Noah Oiknine, Elie Boghossian, Dominique Tremblay","doi":"10.46292/sci23-2002621s","DOIUrl":"https://doi.org/10.46292/sci23-2002621s","url":null,"abstract":"Nerve transfer surgery for patients with spinal cord injury (SCI) is an emergent practice for upper extremity reconstruction currently being implemented in a few clinical settings around the world. In 2019, we implemented an interdisciplinary clinic for upper extremity care in tetraplegic patients. Since the beginning of this collaboration, thirteen patients underwent nerve transfer surgery and followed a specific two-year rehabilitation protocol. Presentation objectives: Thirteen patients underwent a surgical reconstruction of their upper extremity. They followed a rehabilitation process with occupational therapists and physiotherapists. So far, eight patients have completed their two-year rehabilitation process. Routine outcome assessments were collected at 0, 6, 12, 24 months following the surgery. Twenty-four arms were operated, for a total of 51 nerve transfers. We will present our epidemiological data, details of the surgeries and results on hand opening, grip and pinch strength, functional testing, as well as satisfaction questionnaires. Nerve transfer surgery is an exciting and innovative technique for our SCI patients. An interdisciplinary setting is the key to success. Our data shows that this surgery, well planned and accompanied by proper rehabilitation, is a promising avenue to improve upper extremity function in people with cervical spinal cord injury.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"169 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139345344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Vidya Sreenivasan, Dorothyann Curran, Andrea Chase
{"title":"Poster (Clinical/Best Practice Implementation) ID 1984772","authors":"Vidya Sreenivasan, Dorothyann Curran, Andrea Chase","doi":"10.46292/sci23-1984772s","DOIUrl":"https://doi.org/10.46292/sci23-1984772s","url":null,"abstract":"Literature shows that patients with spinal cord injury place high importance on addressing sexual health issues such as fertility, physical functioning, understanding sensory changes and relationship counselling. In order to promote sexual health inclusivity for inpatients at our rehabilitation centre and to assist staff with initiating sexual health discussions, a series of steps was taken to promote sexual health as part of the rehabilitation program. All staff on the ward received a standardized training session and posters were put up around the Centre to promote sexual health for patients with spinal cord injury. A pamphlet for patients was developed and an introduction to sexual health was initiated by staff at two time points during the rehabilitation stay. All new inpatients, regardless of gender, age or disability severity, were offered the pamphlet and the introduction. We conducted a chart review looking at patients before the pamphlet/standardized introduction versus after the implementation to support our hypothesis that patients who received the pamphlet and introduction would be more likely to engage in discussions about sexual health. More patients did pursue sexual health discussions with the rehab team after the pamphlet was introduced. However, many patients refused the pamphlet or further sexual health discussion. Demographically, patients who were younger were more likely to express interest in further sexual health discussions. Use of an easy-to-implement tool (pamphlet) combined with a standardized introduction is useful for increasing interest in initiating sexual health discussion by inpatients with SCI.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"81 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139346100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
B. C. Craven, Farnoosh Farahani, Matheus J. Wiest, Judith Gargaro, Mark T. Bayley
{"title":"Workshop (Health Services, Economics and Policy Change) ID 1985330","authors":"B. C. Craven, Farnoosh Farahani, Matheus J. Wiest, Judith Gargaro, Mark T. Bayley","doi":"10.46292/sci23-1985330s","DOIUrl":"https://doi.org/10.46292/sci23-1985330s","url":null,"abstract":"Spinal cord injury or disease (SCI/D) are complex chronic conditions associated with multiple morbidities and many social and emotional challenges. Understanding the current gaps in care, the health services and policy priorities of Ontarians with SCI/D is integral to transforming services and meeting their needs over time. Workshop participants will gain: 1) Insight into the current inequities in SCI care; 2) A shared understanding of the current gaps, regional service priorities, and policy needs of people with lived experience in the community. The intended audience includes people with lived experience, family/friends, clinicians, community service providers, funders, advocacy groups, health system planners, administrators, and policymakers. Synthesized results from the Neurotrauma Care Pathways Project (neurotraumapathways.ca) and the SCI Implementation and Evaluation Quality Care Consortium (sciconsortium.ca) will be shared using infographics and lay language. These Ontario Ministry of Health funded projects are intended to inform practice and drive innovations in care. Participants will have an opportunity to discuss priorities regarding inclusion and service equity. The dilemmas of marginalized groups and special populations will be highlighted and the planned next steps shared with workshop attendees. Our hope is that participants will take away a shared understanding that might influence their near term health policy, advocacy, and health behaviours.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"3 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139346280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anita Kaiser, Sarah Donkers, Hope Jervis Rademeyer, K. Walden, D. Wolfe
{"title":"Workshop (Clinical/Best Practice Implementation) ID 1984795","authors":"Anita Kaiser, Sarah Donkers, Hope Jervis Rademeyer, K. Walden, D. Wolfe","doi":"10.46292/sci23-1984795s","DOIUrl":"https://doi.org/10.46292/sci23-1984795s","url":null,"abstract":"Following an initial summit in March 2019, various Canadian stakeholders have collaborated within a Community of Practice (CoP) with a vision to increase the access to, and quality of activity-based therapies (ABT) for persons with spinal cord injury/disease (SCI/D). This workshop will describe key knowledge products and study findings emanating from working groups of the ABT CoP as well as a study initiated through the Canadian SCI Standing and Walking Module Group. Priority areas were identified by consensus across the ABT CoP, leading to several studies and development of specific knowledge products. Key challenges included defining and standardizing ABT, gaps in knowledge/training and practice variation with a focus on achieving optimal timing, dosage and intensity of ABT. Various knowledge products and study findings related to these challenges will be presented, with audience interaction encouraged through polls and open discussion. Presentation highlights include a framework for structured reporting of ABT and a series of videos, pod-casts and information cards promoting ABT. In addition, a mixed methods study of Canadian physiotherapists demonstrated that ABTs were a much desired, yet not fully available treatment option. Therapists identified needs for more fulsome research partnerships, improved and more creative staffing models, enhanced training methods and the importance of a strong therapeutic alliance. The work of the ABT CoP will continue to focus on these and other priorities, with the ultimate goal of universal access and identification of approaches that will enhance outcomes for persons with SCI/D.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"25 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139344140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Richard-Denis, H. Hong, A. Dionne, M. Guidea, JM Mac-Thiong
{"title":"Poster (Knowledge Generation) ID 2001062","authors":"A. Richard-Denis, H. Hong, A. Dionne, M. Guidea, JM Mac-Thiong","doi":"10.46292/sci23-2001062s","DOIUrl":"https://doi.org/10.46292/sci23-2001062s","url":null,"abstract":"Research participation for individuals with spinal cord injury (SCI) is important to develop and receive promising interventions. It has been suggested that consenting to participate may also be associated with improved long-term outcomes. The objectives of this study are twofold and consisted of 1) verifying whether consenting to participate in a national SCI registry is associated with improved outcomes, and 2) determining predictors of enrolling in the registry. This population-based retrospective cohort study was performed on 3854 individuals with acute traumatic SCI approached to participate in the Canadian patient registry (Rick Hansen SCI Registry) between 2014 and 2019. The status of consent (consent vs. declined/withdrew) consisted in the main independent variable. Outcomes included length of stay, in-hospital mortality, discharge destination, occurrence of complications. Multivariable analyses were performed to identify predictors of consenting and its association with each outcome, while accounting for important covariables (demographic-, trauma- and institution-related). 2998 individuals provided consent and 856 individuals declined/withdrew. Older age at injury and living farther away was associated with decreased likelihood for enrollment. While adjusting for covariables, declining participation was associated with increased acute length of stay, higher incidence of acute complications during acute care and decrease likelihood of being discharged home. Approximately 20% of individuals declined participation in a national registry following an acute SCI, particularly elderly individuals and those living away from the hospital. It is possible that engagement in care and/or care delivery was altered for these individuals, leading to poorer patient outcomes. Enhanced opportunities should be given to subgroups not inclined to participate in research to optimize inclusivity in care delivery, therefore improving outcomes.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"44 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139344783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Guijin Li, G. Balbinot, Julio C Furlan, Sukhvinder Kalsi-Ryan, J. Zariffa
{"title":"Poster (Technology Innovation) ID 1984794","authors":"Guijin Li, G. Balbinot, Julio C Furlan, Sukhvinder Kalsi-Ryan, J. Zariffa","doi":"10.46292/sci23-1984794s","DOIUrl":"https://doi.org/10.46292/sci23-1984794s","url":null,"abstract":"Cervical spinal cord injury (SCI) can cause significant impairment and disability with an impact on individuals’ quality of life and independence. Surface electromyography (SEMG) is a sensitive and non-invasive technique to measure muscle activity and has demonstrated great potential in capturing the impact from SCI. The mechanisms of SCI damage on SEMG signal characteristics are multi-faceted and difficult to study in vivo. Use validated computational models to characterize changes in SEMG signal after SCI and identify SEMG features that are sensitive and specific to the impact from different aspects of SCI. Starting from existing computational models for motor neuron pool organization and for motor unit action potential generation for healthy neuromuscular systems, we set up scenarios to model alterations in upper motor neurons, lower motor neurons, and the number of muscle fibers within each motor unit after SCI. After simulating SEMG signals from each scenario, we extracted time and frequency domain features and investigated the impact of SCI disruptions on SEMG features using the Pearson correlation between a feature and the extent of a given disruption. Commonly used amplitude-based SEMG features cannot differentiate between injury scenarios. A broader set of features provides greater specificity to the type of damage present. We demonstrated a novel approach to mechanistically relate SEMG features to different types of neuromuscular alterations after SCI. This work contributes to a deeper understanding and exploitation of SEMG in clinical applications, which will ultimately improve patient outcomes after SCI.","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"51 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139344981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}