Camille S Wilson, Lauren E Bradstreet, Natasha N Ludwig, Alison Gehred, Catherine Stephan, T Andrew Zabel, Christine Koterba
{"title":"Empowering Independence in Spina Bifida: A Scoping Review of Interventions.","authors":"Camille S Wilson, Lauren E Bradstreet, Natasha N Ludwig, Alison Gehred, Catherine Stephan, T Andrew Zabel, Christine Koterba","doi":"10.46292/sci25-00046","DOIUrl":"10.46292/sci25-00046","url":null,"abstract":"<p><strong>Objectives: </strong>To examine intervention studies focused on developing independence readiness skills in individuals with spina bifida.</p><p><strong>Methods: </strong>The scoping review used Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines to identify intervention studies published from 2000 to 2024. Articles were included if they were an intervention study focused on preidentified domains of independence based on the Guidelines for the Care of People with Spina Bifida by the Spina Bifida Association. Title and abstract screening and full-text articles were completed by author dyads. Data extraction was completed in duplicate to ensure accuracy by separate raters. Inconsistencies were resolved through group consensus and item review.</p><p><strong>Results: </strong>From 2542 unique references, 2028 were removed for not meeting inclusion criteria. Following full-text review, 38 studies were included in the final analysis. Only 5 studies utilized a rigorous randomized control trial study design. Intervention gaps targeting supported decision-making models and sexual health were noted. Interventions generally targeted school-age youth to older adults, with no studies focused on interventions for early childhood populations. Outcomes measurement varied widely across studies; future research will benefit from standardization of tools used to measure outcomes of interest.</p><p><strong>Conclusion: </strong>Intervention studies focused on increasing independence skills for individuals with spina bifida are limited. For this growing area of research, comprehensive representation of understudied and underrepresented individuals within the spina bifida community, consideration of shared data elements across studies, and alignment of targeted domains of independence with stakeholder input must be central to future research efforts.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"110-135"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926803/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Potentially Preventable Hospitalizations Among Adults With Traumatic Spinal Cord Injury: Assessment of Prevention Quality Indicators.","authors":"Nicole D DiPiro, David Murday","doi":"10.46292/sci25-00041","DOIUrl":"10.46292/sci25-00041","url":null,"abstract":"<p><strong>Objectives: </strong>To assess rates of potentially preventable hospitalizations (PPHs) among adults with spinal cord injury (SCI) living in South Carolina using prevention quality indicators (PQIs).</p><p><strong>Methods: </strong>We assessed hospitalizations in nonfederal state hospitals between 2016 and 2018 for 2531 adults (>18 years old) with chronic (>1 year) traumatic SCI who were identified through a statewide population-based registry. PPHs were identified using the computer code, definitions, and framework for PQIs developed by the Agency for Healthcare Quality and Research (AHRQ). The rates of PPH, as measured by the 14 PQIs, were calculated for those living with SCI in South Carolina and were compared to state and national rates.</p><p><strong>Results: </strong>The rates of PPH for those with SCI were significantly higher than the state rates for 3 conditions (chronic obstructive pulmonary disease/asthma, pneumonia, urinary tract infection) and 3 composite indicators. The state population rates were significantly higher than the national rates for all but one indicator. Among those with SCI, the PQI overall composite rate was 3303 per 100,000, compared to a state rate of 1503 and a national rate of 1301.</p><p><strong>Conclusions: </strong>Compared to the general population, adults with chronic SCI experience more hospitalizations that could have been prevented with high-quality and routine ambulatory care. There is a need to better monitor and treat these ambulatory care sensitive conditions, to advance our understanding of the access to and receipt of quality healthcare, and to develop and implement targeted services to promote health and prevent hospitalizations.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"72-82"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926801/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Linda Nieminen, Jaana Leivo, Tiina Luukkaala, Markku Kankaanpää
{"title":"Content Analysis of ICF-Based Data in the Multidisciplinary Health Records of People With Spinal Cord Injury.","authors":"Linda Nieminen, Jaana Leivo, Tiina Luukkaala, Markku Kankaanpää","doi":"10.46292/sci25-00018","DOIUrl":"10.46292/sci25-00018","url":null,"abstract":"<p><strong>Background: </strong>The International Classification of Functioning, Disability and Health (ICF) was developed by the World Health Organization as a standard language to describe biopsychosocial aspects of functioning, health, and health-related states. Different health professionals document functioning data from their professional perspective.</p><p><strong>Objectives: </strong>The primary objective of this study was to utilize multidisciplinary electronic health records to identify the factors considered significant by different healthcare professional groups in documenting the functioning, disability, and health of individuals with spinal cord injury (SCI).</p><p><strong>Methods: </strong>A random sample of 10 patients was selected from a larger cohort (<i>n</i> = 49) for analysis. Free text from electronic health records regarding subacute inpatient rehabilitation and an outpatient visit at the chronic stage was collected. Two researchers annotated the data to ICF codes. The study was a descriptive, longitudinal study using quantitative content analysis. Contextual analysis was used to compare the data between different health professionals and at different time points.</p><p><strong>Results: </strong>In the 10-patient random sample, 447 health records were retrieved. The functioning data consisted of all ICF domains, with 9349 findings. Environmental factors were documented the most. Health professional groups had different patterns in the frequency of documented ICF categories in their documents, reflecting professionals' expertise in the multidisciplinary team. For example, occupational therapists highlighted activities and participation whereas psychologists emphasized body functions.</p><p><strong>Conclusion: </strong>The findings of this study may facilitate the development of rehabilitation for persons with SCI and highlight the importance of multidisciplinary rehabilitation in complex medical conditions.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"96-109"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926798/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of Computer-based Exergaming on Upper Limb Motor Function, Functional Independence, and Quality of Life in Individuals with Spinal Cord Injury: A Randomized Control Trial.","authors":"Ishmeet Singh, Twinkle Luthra, Garima Wadhwa, Stuti Khanna, Shefali Walia","doi":"10.46292/sci25-00098","DOIUrl":"10.46292/sci25-00098","url":null,"abstract":"<p><strong>Background: </strong>Upper limb motor function is one of the most desired abilities of individuals with tetraplegia. Virtual reality-based exergaming is one of the advanced methods of supplementing conventional rehabilitation that enables the user to perform multiple repetitions of meaningful movements due to increased engagement and motivation, but adoption is often limited by high cost of procurement.</p><p><strong>Objectives: </strong>Due to a large user base of personal computers and smartphones, we tried to check the effectiveness of a novel computer-based exergame that can be administered using a personal computer and a smartphone. The computer is used to display the game, and the smartphone acts as a motion sensor-based controller for providing input to the game.</p><p><strong>Methods: </strong>Twenty individuals with spinal cord injury (C6-13, C7-7, AIS A = 14, AIS B = 3, AIS C = 1, AIS D = 2) with a mean age of 30.7 ± 12 years participated in the study. They were randomly allocated to 2 groups. Group A (<i>n</i> = 10) received 30 minutes of computer-based exergaming training 3 times a week for 4 weeks, and Group B (<i>n</i> = 10) received conventional rehabilitation only. Baseline and postintervention assessments were done using the American Spinal Injury Association upper extremity motor score (ASIA-UEMS), Jebsen-Taylor Hand Function Test (JTHFT), Capabilities of Upper Extremity Questionnaire (CUE-Q), Spinal Cord Independence Measure III (SCIM-III), and Spinal Cord Injury Quality of Life (SCI-QOL) by a blinded assessor, and results were analyzed using the IBM SPSS Statistics v30.</p><p><strong>Results: </strong>CUE-Q (<i>P</i> < .001), SCIM III (<i>P</i> < .001), SCI-QOL, and JTHFT lifting light objects and lifting heavy objects tasks in the dominant and nondominant hands and simulated feeding tasks in the dominant hand showed significant difference between the 2 groups. Exploratory analysis confirmed functional gains were independent of baseline severity or injury chronicity. However, no significant differences were seen in the ASIA-UEMS score (<i>P</i> = .060) and the fine motor function tasks of the JTHFT in the dominant and nondominant hands.</p><p><strong>Conclusion: </strong>The results of our study showed that computer-based exergaming is a safe and effective modality beneficial for improving gross upper limb motor function, functional independence, and quality of life in individuals with spinal cord injury as compared to conventional rehabilitation alone. Although, it produces similar results as conventional rehabilitation on upper extremity motor score and fine motor function.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"94-108"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460074/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148713961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lindsey Wynne, Katelyn D Bosteder, Jaime Gillespie, Dannae Arnold, Hayden Fowler, Christa Ochoa, Monica Bennett, Seema Sikka, Simon Driver, Chad Swank
{"title":"Differences in Cardiovascular Intensity Between Gait Training Approaches After Incomplete Spinal Cord Injury-A Randomized Controlled Trial.","authors":"Lindsey Wynne, Katelyn D Bosteder, Jaime Gillespie, Dannae Arnold, Hayden Fowler, Christa Ochoa, Monica Bennett, Seema Sikka, Simon Driver, Chad Swank","doi":"10.46292/sci25-00057","DOIUrl":"10.46292/sci25-00057","url":null,"abstract":"<p><strong>Background: </strong>Spinal cord injury (SCI) often leads to severe mobility impairments, necessitating intense rehabilitation to promote recovery and optimize outcomes. Overground robotic exoskeletons (ORE) are emerging gait training tools, but their capacity to elicit moderate-to-vigorous intensity (MVI) in subacute SCI is unclear.</p><p><strong>Objectives: </strong>To compare the intensity of usual care (UC) and ORE gait training in patients with subacute, motor incomplete SCI and examine the relationship between training intensity and walking function.</p><p><strong>Methods: </strong>A single-blind randomized controlled trial was conducted at an inpatient rehabilitation hospital. Patients (<i>n</i> = 106) were age 51.5±18.5 years; 78.3% were male with severity of 17.9% AIS B, 28.3% AIS C, and 53.8% AIS D. Patients were randomized to UC or ORE gait training. Main outcomes were percentage of session time at MVI (>40% heart rate reserve [HRR]), rating of perceived exertion (RPE), step count, and change in Walking Index for Spinal Cord Injury (WISCI-II).</p><p><strong>Results: </strong>UC and ORE groups spent a similar percentage of session time in MVI (17.6% vs. 19.5%, <i>P</i> = .398) and had comparable step count (387.1 vs. 461.8 steps, <i>P</i> = .625). However, RPE was higher in UC (5.6 ± 1.9) versus ORE (4.5 ± 1.8, <i>P</i> = .003). Both groups increased step count over time with ORE achieving more steps early and UC later. Step count was moderately correlated with WISCI-II improvement (<i>r</i> = 0.38-0.51, <i>P</i> < .001), while percentage of MVI demonstrated weak correlation (<i>r</i> = 0.23, <i>P</i> = .032).</p><p><strong>Conclusions: </strong>UC and ORE provide similar physiologic dose, though ORE may offer intense training with less perceived effort. Step count appears to be an indicator of training intensity that correlates to functional recovery.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"134-148"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460075/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148713876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Xenia Beaumont, Matthew Wu, Susan Liew, Sandra Reeder, Lorena Romero, Belinda Gabbe
{"title":"A Scoping Review of Traumatic Cauda Equina Injury Outcomes.","authors":"Xenia Beaumont, Matthew Wu, Susan Liew, Sandra Reeder, Lorena Romero, Belinda Gabbe","doi":"10.46292/sci25-00092","DOIUrl":"10.46292/sci25-00092","url":null,"abstract":"<p><strong>Objectives: </strong>To identify which outcomes have been described following traumatic cauda equina injury (CEI).</p><p><strong>Methods: </strong>A search strategy was developed and the following electronic databases were searched for this scoping review: MEDLINE, Embase, CINAHL, Scopus, Web of Science, Emcare, PsycInfo, and Google Scholar. Eligible articles were first title and abstract screened, and then full text was screened by 2 independent reviewers. The data were extracted and presented in a narrative format.</p><p><strong>Results: </strong>Of the 3853 articles returned in the initial search, 44 studies were included in the final review. Whilst 44 studies examined outcomes following traumatic CEI, only 19 (43%) examined CEI as a stand-alone injury. Most studies (<i>n</i> = 25, 57%) did not provide a definition for a diagnosis of CEI. Of the 19 studies that did provide a definition, 8 (18%) used a vertebral level of injury to diagnose CEI. No studies used the same vertebral level. Across the 44 included studies, there was a wide variability in outcome reporting. The most commonly reported outcomes were motor outcomes (<i>n</i> = 25, 57%) and bladder outcomes (<i>n</i> = 25, 57%).</p><p><strong>Conclusion: </strong>There is a notable gap in research examining traumatic CEI independent of other etiologies of CEI or other spinal cord injuries. The findings of this review also highlight the need for greater consistency in the definition of CEI. The development of a traumatic CEI-specific outcomes tool would aid in reporting consistency between studies.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 4","pages":"63-80"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13621291/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Heather B Taylor, Susan Robinson-Whelen, Kimberly D Anderson, Kimberly R Monden, Jennifer Coker, Chloe Slocum, Linda Norah-Davis, Lisa Wenzel
{"title":"From Invisibility to Equity: Redefining Spinal Cord Injury Rehabilitation Through the Lens of Women's Unique Needs.","authors":"Heather B Taylor, Susan Robinson-Whelen, Kimberly D Anderson, Kimberly R Monden, Jennifer Coker, Chloe Slocum, Linda Norah-Davis, Lisa Wenzel","doi":"10.46292/sci25-00133","DOIUrl":"10.46292/sci25-00133","url":null,"abstract":"<p><p>Women with spinal cord injury (SCI) experience persistent disparities in rehabilitation and healthcare access, particularly in reproductive health, sexual wellness, safety, and autonomy. Existing care models remain predominantly gender neutral and fail to address the full continuum of women's health needs. In response to these challenges, we propose a multifaceted rehabilitation framework that integrates an interdisciplinary approach to address the comprehensive needs of women living with SCI. Through the collaborative efforts of the SCI Model Systems (SCIMS) Women's Health Special Interest Group (a multidisciplinary working group composed of clinicians and researchers) and in consultation with women with SCI, key recommendations were synthesized into the W-CARE Framework (Women-Centered Accessible Rehabilitation & Equity) comprising 7 pillars: (1) system redesign, (2) equity and safety benchmarking, (3) lifespan-based centers of excellence, (4) peer co-leadership, (5) inclusive data and intersectionality, (6) telehealth and digital access, and (7) provider training. The Women's SCI Equity & Safety Index is provided as a proposed quality improvement guideline. To achieve equitable SCI care, rehabilitation systems must integrate gender- and disability-informed approaches that support women's health and autonomy across the lifespan. This article serves as both a call to action and a proposed framework for system-level transformation of SCI rehabilitation services.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"95-102"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cameron M Gee, Ava Neely, Aleksandra Jevdjevic, Kenedy Olsen, Kathleen A Martin Ginis
{"title":"Development, Construct Validity, and Reliability Testing of a Revised Version of the Leisure Time Physical Activity Questionnaire for People With Spinal Cord Injury.","authors":"Cameron M Gee, Ava Neely, Aleksandra Jevdjevic, Kenedy Olsen, Kathleen A Martin Ginis","doi":"10.46292/sci24-00031","DOIUrl":"10.46292/sci24-00031","url":null,"abstract":"<p><strong>Objectives: </strong>To evaluate the content validity, construct validity, and test-retest reliability of a revised version of the Leisure Time Physical Activity Questionnaire for People with Spinal Cord Injury [LTPAQ-SCI(R)] that measures all four components of the spinal cord injury (SCI) exercise guidelines (i.e., exercise frequency, intensity, duration, and type).</p><p><strong>Methods: </strong>Ten adults with SCI (6M/4F) were interviewed to develop the LTPAQ-SCI(R) and assess its content validity. Twenty-three adults with SCI (50 ± 14 years; 18M/5F) completed the LTPAQ-SCI(R), other self-report measures of aerobic leisure time physical activity (LTPA), moderate-to-vigorous LTPA (MVPA), and strength-training activities as well as cardiorespiratory fitness (i.e., peak oxygen consumption [V̇O<sub>2peak</sub>]) and muscular strength tests.</p><p><strong>Results: </strong>User interviews provided information to refine the questionnaire and support content validity. LTPAQ-SCI(R) measures of minutes per week of aerobic and strength-training LTPA shared large correlations with other self-report measures of aerobic LTPA, aerobic MVPA, and strength-training LTPA (<i>r</i> = 0.542 to 0.687, <i>P</i>s < .01). LTPAQ-SCI(R) measures of minutes per week of aerobic LTPA and all LTPA (i.e., combined aerobic and strength-training LTPA) shared significant medium-sized positive correlations with relative V̇O<sub>2peak</sub> (<i>r</i> = 0.393 and 0.406, respectively, <i>P</i>s < .05). All variables measured by the LTPAQ-SCI(R) demonstrated good-to-excellent test-retest reliability (intraclass correlations = 0.854 to 1.000, <i>P</i>s < .001).</p><p><strong>Conclusion: </strong>This study provides preliminary evidence of the validity and reliability of the LTPAQ-SCI(R) as a measure of minutes per week of aerobic and strength-training LTPA in individuals with SCI. The LTPAQ-SCI(R) is recommended for use in community- and rehabilitation-based settings to collect epidemiological data on LTPA participation among individuals living with SCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"83-95"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926802/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aaron A Phillips, Sungchul Huh, Stephan McKenna, Michelle Trbovich, Ellen Merete Hagen, Chloe Slocum, Jill Wecht
{"title":"Best Practice Expert Opinion and Guidelines for Assessing Blood Pressure Stability in Clinical Trials and Foundational Research After Spinal Cord Injury.","authors":"Aaron A Phillips, Sungchul Huh, Stephan McKenna, Michelle Trbovich, Ellen Merete Hagen, Chloe Slocum, Jill Wecht","doi":"10.46292/sci25-00021","DOIUrl":"10.46292/sci25-00021","url":null,"abstract":"<p><p>Spinal cord injury (SCI) and the associated autonomic dysfunction often lead to unique and severe blood pressure instability, including low resting blood pressure, orthostatic <i>hypo</i>tension, postprandial hypotension, and transient episodic <i>hyper</i>tension. Despite the high prevalence of these complications and the associated negative clinical outcomes, standardized protocols for measuring blood pressure stability in SCI clinical trials and research remain lacking. This guidelines article outlines best practices for measuring blood pressure stability in the SCI population. The guidelines were developed through a comprehensive literature review in combination with expert consensus to describe the techniques and necessary considerations when assessing blood pressure stability in individuals with SCI. We include detailed and rationalized protocols for assessing resting blood pressure, orthostatic hypotension, postprandial hypotension, and autonomic dysreflexia in individuals with SCI. An emphasis is placed on using validated and standardized tools, meticulous preparation, and practical and safe measurement techniques as well as careful consideration and mitigation of the myriad of confounding factors unique to the SCI population. We also advocate for integrating at-home monitoring and mobile health technologies to provide continuous, real-world data on blood pressure stability. Implementing best practice guidelines will enhance the accuracy and reliability of blood pressure assessments in SCI clinical settings and research, thereby facilitating the detection of cardiovascular dysfunction and ultimately improving patient outcomes. This comprehensive framework aims to advance our scientific understanding and clinical management of cardiovascular autonomic dysfunction after SCI, ultimately contributing to better health and quality of life for this population.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"51-71"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926793/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Candace Tefertiller, Mitch Sevigny, Bria Mellick, Kaitlyn Hays, Brandon Busch, R J Tuchscherer, Andrew Smith
{"title":"Upper Extremity Measures in Spinal Cord Injury: Convergent Validity and Prediction of Functional Independence.","authors":"Candace Tefertiller, Mitch Sevigny, Bria Mellick, Kaitlyn Hays, Brandon Busch, R J Tuchscherer, Andrew Smith","doi":"10.46292/sci25-00127","DOIUrl":"10.46292/sci25-00127","url":null,"abstract":"<p><strong>Objectives: </strong>To examine associations between 3 standardized upper extremity (UE) measures-the Capabilities of Upper Extremity Test (CUE-T), Graded Redefined Assessment of Strength, Sensibility and Prehension (GRASSP), and the International Standards for Neurological Classification of Spinal Cord Injury Upper Extremity Motor Score (ISNCSCI-UEMS)-and functional independence at discharge, measured by the Continuity Assessment Record and Evaluation (CARE) Tool, and their predictive value for discharge outcomes.</p><p><strong>Methods: </strong>This was a secondary analysis of a randomized controlled trial in cervical spinal cord injury (SCI) conducted at an inpatient rehabilitation facility specializing in SCI. Participants were 75 adults with traumatic cervical SCI (C1-C8, AIS B-D) within 5 months post injury undergoing inpatient rehabilitation. Baseline UE measures (CUE-T, GRASSP total and subscales, UEMS) were administered early during rehabilitation. CARE tool total and self-care scores were extracted from records at baseline and discharge. Pearson correlations and linear regression models assessed relationships between UE measures and CARE outcomes.</p><p><strong>Results: </strong>Baseline CARE total and self-care scores showed moderate to strong correlations with CUE-T (<i>r</i> = 0.72, 0.57), GRASSP total (<i>r</i> = 0.75, 0.60), and GRASSP prehension performance (<i>r</i> = 0.76, -0.59), respectively. CUE-T demonstrated the strongest predictive value for self-care outcomes at discharge (<i>r</i> = 0.62). Each 1-unit increase in CUE-T predicted a 0.75-unit increase in CARE total and 0.33-unit increase in CARE self-care.</p><p><strong>Conclusion: </strong>This study supports the convergent validity of the CARE tool with established UE outcome measures in SCI rehabilitation. Baseline CUE-T scores show the strongest predictive value for self-care independence at inpatient rehabilitation discharge.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"14-23"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102077/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}