Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen最新文献

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IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-18 DOI: 10.1016/S1865-9217(25)00073-X
{"title":"Inhaltsverzeichnis / Table of Contents","authors":"","doi":"10.1016/S1865-9217(25)00073-X","DOIUrl":"10.1016/S1865-9217(25)00073-X","url":null,"abstract":"","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"193 ","pages":"Pages iv-v"},"PeriodicalIF":1.4,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Herausgeberkollegium / Editorial Board Herausgeberkollegium编委会
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-18 DOI: 10.1016/S1865-9217(25)00072-8
{"title":"Herausgeberkollegium / Editorial Board","authors":"","doi":"10.1016/S1865-9217(25)00072-8","DOIUrl":"10.1016/S1865-9217(25)00072-8","url":null,"abstract":"","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"193 ","pages":"Page iii"},"PeriodicalIF":1.4,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143654537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Organisationale Maßnahmen zur Stärkung der Arbeitszufriedenheit in der stationären Langzeitpflege: eine Querschnittstudie aus Österreich [提高住院长期护理工作满意度的组织措施:来自奥地利的横断面调查]。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-11 DOI: 10.1016/j.zefq.2025.01.001
Alexander Braun , Markus Latzke , Manfred Pferzinger , Adelheid Schönthaler
{"title":"Organisationale Maßnahmen zur Stärkung der Arbeitszufriedenheit in der stationären Langzeitpflege: eine Querschnittstudie aus Österreich","authors":"Alexander Braun ,&nbsp;Markus Latzke ,&nbsp;Manfred Pferzinger ,&nbsp;Adelheid Schönthaler","doi":"10.1016/j.zefq.2025.01.001","DOIUrl":"10.1016/j.zefq.2025.01.001","url":null,"abstract":"<div><h3>Background</h3><div>With increasing care needs and a decline in nursing staff, measures must be found to make long-term care (LTC) attractive for nursing staff and at the same time encourage them to remain in the care sector. For this reason, the question is answered: “How do organizational measures, identified by nursing staff, contribute to improving job satisfaction?”.</div></div><div><h3>Method</h3><div>In a non-proportional quota sample along the federal state distribution, the implementation of measures was surveyed in a cross-sectional survey in LTC facilities. The effect of the measures on job satisfaction was analyzed using multiple linear regression.</div></div><div><h3>Results</h3><div>The bundles of measures show a high internal consistency of 0.771 to 0.863. Regression analyses revealed that the bundles of measures, like making LTC more attractive (B = 0.244; <em>p</em> &lt; 0.05), integrating interns (B = 0.222, <em>p</em> &lt; 0.05), duty scheduling and working hours (B = 0.324, <em>p</em> &lt; 0.05), and strengthening relationships (B = 0.078), explain more than 60% of the variance in job satisfaction. Overtime has a negative effect but can be mitigated by duty scheduling (B = –0.017, <em>p</em> &lt; 0.05). Women report higher levels of job satisfaction than men. The type of organization, age and vocational training have no influence on job satisfaction.</div></div><div><h3>Discussion</h3><div>Duty scheduling and working hours are important factors. Loss in job satisfaction can be cushioned by focusing on these measures.</div></div><div><h3>Conclusions</h3><div>The bundles of measures “Making LTC more attractive”, “Duty scheduling and working hours”, “Integrating interns”, and “Strengthening relationships” are positively associated with job satisfaction. Accordingly, care facilities that implement these bundles of measures have higher job satisfaction rates.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"194 ","pages":"Pages 31-39"},"PeriodicalIF":1.4,"publicationDate":"2025-03-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143606608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Abschlusseditorial Abschlusseditorial .
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-11 DOI: 10.1016/j.zefq.2025.02.005
Susanne Knappe , Ute Lewitzka , Anna Kuehne , Arne Bürger
{"title":"Abschlusseditorial","authors":"Susanne Knappe ,&nbsp;Ute Lewitzka ,&nbsp;Anna Kuehne ,&nbsp;Arne Bürger","doi":"10.1016/j.zefq.2025.02.005","DOIUrl":"10.1016/j.zefq.2025.02.005","url":null,"abstract":"","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"194 ","pages":"Pages 108-109"},"PeriodicalIF":1.4,"publicationDate":"2025-03-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143617299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fatigue bei Krebs: Wie (gut) sind Betroffene an onkologischen Einrichtungen in Deutschland versorgt? 癌症相关疲劳:德国癌症护理机构的护理质量如何(好)?]
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-08 DOI: 10.1016/j.zefq.2025.02.003
Anna S. Wagner , Marlena Milzer , Senta Kiermeier , Martina E. Schmidt , Truong D. Nguyen , Karen Steindorf , Imad Maatouk
{"title":"Fatigue bei Krebs: Wie (gut) sind Betroffene an onkologischen Einrichtungen in Deutschland versorgt?","authors":"Anna S. Wagner ,&nbsp;Marlena Milzer ,&nbsp;Senta Kiermeier ,&nbsp;Martina E. Schmidt ,&nbsp;Truong D. Nguyen ,&nbsp;Karen Steindorf ,&nbsp;Imad Maatouk","doi":"10.1016/j.zefq.2025.02.003","DOIUrl":"10.1016/j.zefq.2025.02.003","url":null,"abstract":"<div><h3>Background</h3><div>One of the most common sequelae of cancer and/or its treatment is cancer-related fatigue (CRF). For those affected, CRF is often accompanied by considerable, even long-term impairment. This makes it all the more important to examine how care is provided in Germany and to what extent guideline recommendations are implemented in clinical practice.</div></div><div><h3>Methods</h3><div>In a Germany-wide questionnaire survey, inpatient and outpatient oncological cancer care facilities were asked to describe their approach to CRF (information and education, screening, diagnostics), local treatment options, and clinical trials.</div></div><div><h3>Results</h3><div>A total of 145 facilities participated, including 11 comprehensive cancer centers, 35 organ-specific cancer centers, 22 hospitals with a (hemato-)oncology unit, 29 outpatient (hemato-)oncology practices, 48 outpatient cancer counseling units. Nearly all the facilities reported that patients are provided verbal health information (per groups: 90.9%, 88.6%, 90.9%, 96.9%, 72.9%); less frequently in written form (90.9%, 54.3%, 59.1%, 48.3%, 87.5%). A systematic screening for CRF is conducted in up to one-third of the facilities (per groups: 27.3%, 20.0%, 31.8%, 17.2%, 8.3%). A standardized procedure for further clarification of CRF is available at a small number of institutions (0%, 11.4%, 13.6%, 6.9%, 2.1%). Exercise (90.9%, 82.9%, 72.7%, 79.3%, 89.6%) and psychotherapeutic services (90.9%, 68.6%, 86.4%, 62.1%, 68.8%) are most frequently actively recommended to patients with CRF across the facility groups.</div></div><div><h3>Discussion</h3><div>With regard to the systematization of screening and diagnosis of CRF as well as the provision of information material, there is a clear discrepancy between guideline recommendations and everyday clinical practice.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"194 ","pages":"Pages 40-47"},"PeriodicalIF":1.4,"publicationDate":"2025-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Voraussetzungen und Lösungsansätze für eine praxisrelevante Pflegeforschung in der Akutversorgung in Deutschland: Ergebnisse eines Scoping-Workshops [德国急症护理实践相关护理研究的要求和可能的解决方案:范围界定研讨会的结果]。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-04 DOI: 10.1016/j.zefq.2025.02.004
Martin Müller , Sascha Köpke , Gabriele Meyer
{"title":"Voraussetzungen und Lösungsansätze für eine praxisrelevante Pflegeforschung in der Akutversorgung in Deutschland: Ergebnisse eines Scoping-Workshops","authors":"Martin Müller ,&nbsp;Sascha Köpke ,&nbsp;Gabriele Meyer","doi":"10.1016/j.zefq.2025.02.004","DOIUrl":"10.1016/j.zefq.2025.02.004","url":null,"abstract":"<div><div>Nursing science as an academic discipline in Germany is still developing and has not yet been sufficiently integrated into acute hospital care. The aim of this paper is to analyze the key challenges of nursing research in acute hospital care and to develop strategic solutions to strengthen the development of nursing science in Germany. The results of a two-day scoping workshop with national and international experts indicate that the lack of structural integration of nursing science into clinical care, the low number of academically qualified nursing professionals, and insufficient research funding are major obstacles to further development. Based on a SWOT analysis, six priority action areas were identified: (1) development and implementation of qualification and career programs, (2) promotion of clinician scientists, (3) strengthening visibility and communication, (4) effective political participation, (5) increase of research funding, and (6) improvement of networks and collaborations. The implementation of these strategies will contribute to establishing nursing science as an independent discipline, increasing its societal relevance, and promoting evidence-based nursing practice in inpatient acute care. Close collaboration among academia, policymakers, and practitioners is essential for achieving these goal.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"193 ","pages":"Pages 104-111"},"PeriodicalIF":1.4,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143558340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Versorgungsnahe Daten zur Bewertung der vergleichenden Effektivität von medizinischen Behandlungen: eine Bestandsaufnahme der verfügbaren Datenquellen in Deutschland unter besonderer Berücksichtigung von Registern [用于比较有效性研究的真实世界数据:评估德国的可用数据源,特别是关于登记的数据]。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-03 DOI: 10.1016/j.zefq.2025.01.008
Malik Cakir , Paula Starke , Alexandra Nolting , Wendi Qu , Dawid Pieper , Tim Mathes
{"title":"Versorgungsnahe Daten zur Bewertung der vergleichenden Effektivität von medizinischen Behandlungen: eine Bestandsaufnahme der verfügbaren Datenquellen in Deutschland unter besonderer Berücksichtigung von Registern","authors":"Malik Cakir ,&nbsp;Paula Starke ,&nbsp;Alexandra Nolting ,&nbsp;Wendi Qu ,&nbsp;Dawid Pieper ,&nbsp;Tim Mathes","doi":"10.1016/j.zefq.2025.01.008","DOIUrl":"10.1016/j.zefq.2025.01.008","url":null,"abstract":"<div><div>Using real-world data (RWD) for comparative effectiveness research has gained increasing attention. Real-world data is usually not collected with the primary aim of answering questions about the comparative effectiveness of medical interventions. Therefore, data collection is often not optimally designed for this purpose. For this reason, using it can be associated with several data-related or analysis-related problems.</div><div>This article has two aims: First of all, we will outline the basic requirements for comparative non-randomized studies based on RWD. In addition, the advantages and disadvantages of potentially eligible RWD in Germany will be considered. In particular, the use of registry data will be discussed, as these currently appear to be the most suitable for comparing the effectiveness of interventions.</div><div>There are now various databases in Germany that contain RWD and can potentially be used for comparative effectiveness research. If they contain all the necessary information and if the data are of sufficient quality, they could offer a timely and efficient way of determining the effectiveness of medical interventions. However, our analysis shows that the use of this data is sometimes associated with considerable limitations. RWD is often highly aggregated and thus may not be sufficiently detailed to select the subjects precisely or to emulate the intervention or control interventions satisfactorily. In addition, many data sources only encompass a limited set of variables and limited time horizons (e.g., only hospitalization) according to their intended purpose (e.g., billing). Therefore, it is often questionable whether this includes all endpoints on benefit and harm that are important for the assessment and whether sufficiently long observation horizons/follow-up periods are given. Similarly, it is often questionable whether all necessary data to avoid bias are included. Furthermore, it is often difficult to assess suitability in advance due to the lack of available information.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"194 ","pages":"Pages 1-7"},"PeriodicalIF":1.4,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143558339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Digital health literacy: A cross-sectional survey study among patients after hospitalization in Germany 数字健康知识:一项针对德国住院患者的横断面调查研究。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-03-01 DOI: 10.1016/j.zefq.2025.01.004
Matthias Marsall , Matthias Weigl , Dagmar Lüttel , Hardy Müller
{"title":"Digital health literacy: A cross-sectional survey study among patients after hospitalization in Germany","authors":"Matthias Marsall ,&nbsp;Matthias Weigl ,&nbsp;Dagmar Lüttel ,&nbsp;Hardy Müller","doi":"10.1016/j.zefq.2025.01.004","DOIUrl":"10.1016/j.zefq.2025.01.004","url":null,"abstract":"<div><h3>Introduction</h3><div>Digital transformation in healthcare is both a unique opportunity to improve care services and a significant challenge for legislation, stakeholders and all citizens. eHealth literacy (eHL) describes an important set of competencies when dealing with digital health information. Therefore, health insurance funds in Germany received the mandate to promote eHL among their policy holders. However, to date little is known about eHL in the German population and its potential determinants. Therefore, the aim of this study was to assess eHL in a sample of patients after their hospital stay and to explore potential sociodemographic determinants.</div></div><div><h3>Methods</h3><div>A cross-sectional, self-report, online survey study was conducted with a subgroup of a nationally representative sample in Germany using the revised eHealth Literacy Scale (GR-eHEALS). Market research providers were commissioned with the recruitment and data collection of 1,000 participants. Descriptive and bivariate analyses were computed.</div></div><div><h3>Results</h3><div>Overall, comparatively high scores were reported for eHealth literacy. Significant differences in eHL were found regarding age, sex, and educational background. Participants aged between 38 and 67 years had significantly higher scores than the under 27-year-olds. Female participants reported higher levels of eHL than male participants. Further, a higher level of educational attainment was related to a higher level of eHL. The native language (German) and the actual employment status were unrelated to eHL.</div></div><div><h3>Discussion</h3><div>Previous studies showed inconsistent results regarding the potential determinants of eHL. Our results provide further data on eHL in the German population and underscore the importance of age, sex, and education for eHL. Stakeholders such as health insurance funds should therefore pay particular attention to these determinants in order to fulfil their legal mandate to promote eHealth literacy.</div></div><div><h3>Conclusions</h3><div>Our results provide an assessment of the status quo of eHealth literacy among a subgroup of the general population in Germany, which can inform both legislators and health insurers about important determinants affecting the development and design of technical health products.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"193 ","pages":"Pages 18-25"},"PeriodicalIF":1.4,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143537898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Die Bedeutung des Wahlrechts gesonderter Berufsabschlüsse in der generalistischen Pflegeausbildung aus Sicht von ausbildenden Akteuren und Auszubildenden – Ergebnisse aus der Begleitforschung im Mixed-Methods-Design [从职业培训人员和受训人员的角度看普通护理培训中选择专业职业资格权利的重要性--附带混合方法研究的结果]。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-02-28 DOI: 10.1016/j.zefq.2025.01.007
Elena Tsarouha , Daniel Großmann , Kristina Greißl , Antje Krause-Zenß , Bernd Reuschenbach , Markus Wochnik , Karin Reiber
{"title":"Die Bedeutung des Wahlrechts gesonderter Berufsabschlüsse in der generalistischen Pflegeausbildung aus Sicht von ausbildenden Akteuren und Auszubildenden – Ergebnisse aus der Begleitforschung im Mixed-Methods-Design","authors":"Elena Tsarouha ,&nbsp;Daniel Großmann ,&nbsp;Kristina Greißl ,&nbsp;Antje Krause-Zenß ,&nbsp;Bernd Reuschenbach ,&nbsp;Markus Wochnik ,&nbsp;Karin Reiber","doi":"10.1016/j.zefq.2025.01.007","DOIUrl":"10.1016/j.zefq.2025.01.007","url":null,"abstract":"<div><h3>Introduction</h3><div>The new Nursing Professions Act has been in force in Germany since 2020. Since then, general nursing training has been implemented. The reform of nursing training was the subject of controversial debate beforehand. Concerns were raised about inadequate preparation for different care sectors and settings. As a result, it is possible to choose specialized vocational qualifications in addition to the general nurse training. The article addresses how trainees are currently trained to meet the requirements in nursing and whether specialized vocational qualifications are chosen.</div></div><div><h3>Methods</h3><div>The article presents the results of an accompanying scientific research project (2021–2024). In this mixed methods study, a convergent parallel design was applied. The article is based on 80 guideline-based interviews with vocational trainers. Additionally, trainees were surveyed online in a longitudinal cohort study with three survey waves.</div></div><div><h3>Results</h3><div>Few of the institutions represented in the sample offer the specialized vocational qualifications. Where an offer exists, trainees make little use of it. Trainees feel that the nursing training does not prepare them equally well for the different care areas.</div></div><div><h3>Discussion</h3><div>The qualitative and quantitative findings demonstrate that general nursing training and the general vocational qualification are the preferred choice. Many vocational trainers consider general nursing training to be appropriate in order to meet the complex care requirements.</div></div><div><h3>Conclusion</h3><div>In particular, the practical part of the general nursing training must provide a more appropriate representation of care-oriented pediatric care settings. In order to cope with the fundamental transformation associated with generalistics, further training programs need to be established that adequately qualify future nurses.</div></div>","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"194 ","pages":"Pages 86-93"},"PeriodicalIF":1.4,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143537895","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
„Im Endeffekt ist man auf sich allein gestellt.“ Eine qualitative Analyse von Versorgungsbarrieren aus der Sicht Long-COVID-Betroffener “最终,你得靠自己。”基于长冠状病毒患者视角的卫生保健障碍定性分析[j]。
IF 1.4
Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen Pub Date : 2025-02-28 DOI: 10.1016/j.zefq.2025.01.006
Sabine Hammer , Clara Monaca , Annika Hoelz , Markus Tannheimer , Saskia Huckels- Baumgart , Kathrin Dornieden , Dagmar Lüttel , Marcus Rall , Hardy Müller
{"title":"„Im Endeffekt ist man auf sich allein gestellt.“ Eine qualitative Analyse von Versorgungsbarrieren aus der Sicht Long-COVID-Betroffener","authors":"Sabine Hammer ,&nbsp;Clara Monaca ,&nbsp;Annika Hoelz ,&nbsp;Markus Tannheimer ,&nbsp;Saskia Huckels- Baumgart ,&nbsp;Kathrin Dornieden ,&nbsp;Dagmar Lüttel ,&nbsp;Marcus Rall ,&nbsp;Hardy Müller","doi":"10.1016/j.zefq.2025.01.006","DOIUrl":"10.1016/j.zefq.2025.01.006","url":null,"abstract":"&lt;div&gt;&lt;h3&gt;Background&lt;/h3&gt;&lt;div&gt;About 5% of the population are affected by post-infectious symptoms after a Sars-CoV-2-infection. Long COVID or a post-COVID-19 condition can affect all organ systems and lead to a complete need for care. 10–50% of patients meet the diagnostic criteria for myalgic encephalomyelitis/chronic fatigue syndrome. Treatment recommendations have so far been limited to stress management and symptomatic, psychological or activity-enhancing measures (physical or exercise therapy). Initial studies of patients’ perspectives indicate that both the recognition of the disease and the medical care for affected patients are insufficient.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Method&lt;/h3&gt;&lt;div&gt;Since June 2023, patients with long COVID or their relatives have been able to report medical and social care experiences by telephone or using an online reporting form from the Techniker (TK) Health Insurance fund and the German Society for Patient Safety as part of a project funded by the German Federal Ministry of Health. From 1,216 reports received by December 2023, 264 representative cases were selected and evaluated using structuring and summarizing content analysis. The aim was to understand the experiences of those affected with barriers to health and social care and their consequences.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Results&lt;/h3&gt;&lt;div&gt;In the fourth year after the start of the pandemic, there is a lack of care structures and competence on the part of all care service providers, according to those affected. Special outpatient clinics for post-viral syndromes are either not accessible for the majority of participants or do not accept new patients or have waiting times of up to two years. Aside from the fact that there are currently no causally effective treatments for post-viral syndromes, 85% of those surveyed report that medical or social contacts are not sufficiently informed about the clinical picture. 80% of participants report that their symptoms are not acknowledged by employees in the health and social care sector, or they are considered a psychological issue. As a result, patients receive no or incorrect treatment and/or do not receive appropriate social care. 56% report a deterioration in their health status caused by prescribed or recommended examinations or treatments. The psychologization of post-viral symptoms is described as stigmatizing and considered the main cause of the precarious care situation of those affected by long COVID.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Discussion&lt;/h3&gt;&lt;div&gt;The study shows that there are currently no adequate care concepts and structures for post-infectious illnesses and that activating therapies, mostly in connection with the assumption of a psychosomatic origin, lead to significant malpractice. The finding that the majority of respondents feel weakened, ashamed or harmed by their physicians is particularly dramatic. The data also provide evidence of systematic stigmatization and discrimination against those affected. The generalizability of th","PeriodicalId":46628,"journal":{"name":"Zeitschrift fur Evidenz Fortbildung und Qualitaet im Gesundheitswesen","volume":"193 ","pages":"Pages 8-17"},"PeriodicalIF":1.4,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143531899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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