{"title":"A Journey of Discovery: Modelling Participation to Enhance Multifunctional Collaboration among Children with Disabilities","authors":"Anu Maarit Kinnunen, Leena Holopainen","doi":"10.16993/sjdr.976","DOIUrl":"https://doi.org/10.16993/sjdr.976","url":null,"abstract":"Children’s participation refers to involvement in interaction with others together with attendance in family and community activities. There is an urgent need to develop actions that promote participation of children with disabilities, but there is still limited understanding of processes that may enable it. This study focuses on how the participants (five parents, two teachers, three therapists) enhance participation of Finnish children with neurological disabilities at school, home, and in the therapy and how participants develop multifunctional collaboration to promote participation. Participants were interviewed five times in group interviews for one year. The data were analysed with a qualitative grounded theory approach. Three central factors enhancing participation were found: factors preparing and building participation and factors promoting participation in action. A participatory multifunctional collaboration model enhancing participation showed that collaboration is built up through a child-centred approach by sharing information and know-how and by transcending adults’ prejudices and fears.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"71 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135361395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘Even the Way I Make My Coffee is Autistic’: Meaning of Autism in the Lives of Middle-Aged Women prior to and After their Diagnoses","authors":"Kremena Nikolova-Fontaine, Snæfríður Þóra Egilson","doi":"10.16993/sjdr.1003","DOIUrl":"https://doi.org/10.16993/sjdr.1003","url":null,"abstract":"The aim of this qualitative interview study was to shed light on the meaning and experiences of autism in the lives of middle-aged women, prior to and after their diagnosis. The study was informed by critical disability studies and critical autism studies. Six women who all had shared their experiences in an Icelandic documentary about autistic women participated. The Interpretative Phenomenological Analysis (IPA) was used in data analysis. In retrospect the women described painful experiences from their youth and their struggles with meeting the demands of typical social and work environments due to their autistic characteristics and inaccessible environments. Personal and environmental dimensions uniquely interacted to mediate the women’s exclusion in various situations. The women’s late diagnosis made them revise and rewrite their past, emphasizing environmental aspects instead of assuming personal blame for the hardship they had endured.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"57 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135441500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘You Never Know where their Hands Have Been’ – the Notion of Intellectual Disability as Contaminated","authors":"Stine Marlen Henriksen, Johans Tveit Sandvin","doi":"10.16993/sjdr.1010","DOIUrl":"https://doi.org/10.16993/sjdr.1010","url":null,"abstract":"","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"26 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135561963","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation","authors":"Oskar Krantz, Stina Melander, J. Bahner","doi":"10.16993/sjdr.1001","DOIUrl":"https://doi.org/10.16993/sjdr.1001","url":null,"abstract":"Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite. Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights). Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis. Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or organisational necessities. Further analysis revealed a paradox: When a representative is required to have a body with certain characteristics, other knowledge-related aspects risk devaluation. Conclusion(s): Paradoxically, the organisation has a goal of rendering impairment irrelevant in society, while rendering impairment a main issue when electing representatives.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"67468596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Physical Management of Pain and Disability among Healthcare Workers Due to Mechanical Neck Pain: A Randomized Controlled Trial","authors":"M. Salman, M. Shrahili, I. Elbatal","doi":"10.57197/jdr-2023-0022","DOIUrl":"https://doi.org/10.57197/jdr-2023-0022","url":null,"abstract":"Mechanical neck pain (MNP) in the second most common disability among healthcare workers. The main objective of this study was to compare the effects of dry needling (DN) and transcutaneous electrical nerve stimulation (TENS) for the management of MNP among healthcare workers. A single blind RCT (n = 30) was conducted at the Neuro Counsel Clinic, Islamabad. Simple convenient sampling techniques were used to recruit participants of age 20-50 years who had no comorbidity of any kind. Two equal groups were made. Group A received DN for ×1/day for 2 weeks and Group B received TENS at the rate of ×2/day for 2 weeks. Data were evaluated on the basis of Numeric Pain Rating Scale (NPRS) and Neck Disability Index (NDI) score. Prepost data were analyzed for within group (Wilcoxon rank test) and between groups (Mann–Whitney U test). The level of significance was kept at P < 0.05. The mean ± standard deviation (SD) of age in Group A was 33.87 ± 8.18 while in Group B it was 33.67 ± 7.60. Wilcoxon rank test revealed that both techniques are effective for within-group analysis (P < 0.001). Mann–Whitney U test revealed that both techniques showed no significant results on NPRS score as P > 0.05 but the NDI score revealed that there is a significant difference between groups (P < 0.05). On the basis of results, it is concluded that DN is more effective when compared to TENS for disability management in MNP sufferers.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"51 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83564362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mohamed Maddeh, S. Ayouni, Shaha T. Al-Otaibi, M. Alazzam, Nazik Alturki, Fahima Hajjej
{"title":"Assisting Healthcare Using a Time-Series-Based Nonstationary Model for Smart Beds","authors":"Mohamed Maddeh, S. Ayouni, Shaha T. Al-Otaibi, M. Alazzam, Nazik Alturki, Fahima Hajjej","doi":"10.57197/jdr-2023-0009","DOIUrl":"https://doi.org/10.57197/jdr-2023-0009","url":null,"abstract":"Under any medical circumstance, the first and foremost requirement is to monitor physiological factors such as heart rate, blood pressure and oxygen level. Any breakdown in their coupling has been linked to ageing or illness. These physiological signals are nonstationary, and this paper analyses the transfer functions of nonstationary multidimensional time series of physiological signals. In this work, a method that integrates physiological modelling and functional elements into the smart bed for patients is proposed. This work includes experimentation on 10 smart bed patients. The proposed idea is validated and analysed to automatically capture any changes in the physiological signals due to postural changes, any impact of ageing or any requirement of a medical emergency. Next, it is demonstrated that the proposed method can be used to identify transient changes linked to medical emergencies for the given time-series data. These findings show the value of the proposed method in predicting the complicated vital-sign processes where conventional manual autoregulatory systems may fail in both healthy and pathological situations. The relation between the time series of physiological signals is an essential study field. A reliable time-varying model is presented to account for the possible nonstationarity of physiological data to determine the possibility of emergency care for patients. The suggested approach can identify variations and relations between signals because it is built as a dynamic model based on time-varying parameters. The technique used in this research includes readings of heart rate, blood pressure and oxygen level connected to the patient’s smart bed. The paper includes transient analysis and parametric evaluation as part of this work.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"23 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81141506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
G. Aldehim, Radwa Marzouk, M. Al-Hagery, A. Hilal, Amani A. Alneil
{"title":"Automated Gesture-Recognition Solutions using Optimal Deep Belief Network for Visually Challenged People","authors":"G. Aldehim, Radwa Marzouk, M. Al-Hagery, A. Hilal, Amani A. Alneil","doi":"10.57197/jdr-2023-0028","DOIUrl":"https://doi.org/10.57197/jdr-2023-0028","url":null,"abstract":"Gestures are a vital part of our communication. It is a procedure of nonverbal conversation of data which stimulates great concerns regarding the offer of human–computer interaction methods, while permitting users to express themselves intuitively and naturally in various contexts. In most contexts, hand gestures play a vital role in the domain of assistive technologies for visually impaired people (VIP), but an optimum user interaction design is of great significance. The existing studies on the assisting of VIP mostly concentrate on resolving a single task (like reading text or identifying obstacles), thus making the user switch applications for performing other actions. Therefore, this research presents an interactive gesture technique using sand piper optimization with the deep belief network (IGSPO-DBN) technique. The purpose of the IGSPO-DBN technique enables people to handle the devices and exploit different assistance models by the use of different gestures. The IGSPO-DBN technique detects the gestures and classifies them into several kinds using the DBN model. To boost the overall gesture-recognition rate, the IGSPO-DBN technique exploits the SPO algorithm as a hyperparameter optimizer. The simulation outcome of the IGSPO-DBN approach was tested on gesture-recognition dataset and the outcomes showed the improvement of the IGSPO-DBN algorithm over other systems.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"46 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87370469","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jaber S. Alzahrani, Mohammed Rizwanullah, A. Osman
{"title":"Piece-Wise Linear Chaotic Mapping-based Beluga Whale Optimization Algorithm-based Indoor Activity Monitoring for Elderly and Visually Impaired Persons","authors":"Jaber S. Alzahrani, Mohammed Rizwanullah, A. Osman","doi":"10.57197/jdr-2023-0030","DOIUrl":"https://doi.org/10.57197/jdr-2023-0030","url":null,"abstract":"Currently, the methods of mobile communications and Internet of Things (IoT) are designed to collect human and environmental data for various intelligent applications and services. Remote monitoring of disabled and elderly people living in smart homes is challenging. Localization and positioning in indoor surroundings need unique solutions. Moreover, positioning remains a crucial feature of any navigation system that assists visually impaired persons (VIPs) in mobility. Other indispensable features of a common indoor navigation system are obstacle avoidance, pathfinding, and abilities for user communication. In recent times, the arrival of smartphones, artificial intelligence, IoT, wearables, etc. makes it possible to devise indoor monitoring systems for smart homecare. Therefore, this study presents an Improved Beluga Whale Optimization Algorithm with fuzzy-based Indoor Activity Monitoring (IBWOA-FIMS) for elderly and VIPs. The presented IBWOA-FIMS technique mainly focused on the identification and classification of indoor activities of elderly and disabled people. To accomplish this, the IBWOA-FIMS technique employs an adaptive neuro fuzzy inference system (ANFIS) model for the indoor monitoring process. In order to improve the monitoring results of the IBWOA-FIMS technique, the IBWOA is used to adjust the parameters related to the ANFIS model. For illustrating the enhanced indoor monitoring results of the IBWOA-FIMS technique, a series of simulations were performed. The simulation values portrayed the betterment of the IBWOA-FIMS technique in terms of different metrics.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"26 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90766746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. Alkahtani, H. Alqahtani, Sahar Ziedan Zaien, Tameem Melhem, Abdullah Naif Alanazi
{"title":"Premenstrual Syndrome and Mindfulness: The Mediating Effect of Perceived Social Support and Health-Related Quality of Life Among Deaf/Hard-of-Hearing Women","authors":"M. Alkahtani, H. Alqahtani, Sahar Ziedan Zaien, Tameem Melhem, Abdullah Naif Alanazi","doi":"10.57197/jdr-2023-0015","DOIUrl":"https://doi.org/10.57197/jdr-2023-0015","url":null,"abstract":"The purpose of this study is to explore the relationship between premenstrual syndrome (PMS) and mindfulness as well as the mediating role of perceived social support (PSS) and health-related quality of life (HRQoL) among deaf/hard-of-hearing women. This is a cross-sectional study. An overall sample of 202 participants was selected. Path analysis was used. As indicated by the results obtained, PMS correlated significantly with mindfulness, PSS, and HRQoL. Moreover, mindfulness correlated significantly and positively with PSS and HRQoL. Besides, there is a significant negative relationship between PSS and HRQoL. PMS has direct effects on PSS and HRQoL. In addition, both PSS and HRQoL have immediate impacts on mindfulness. To conclude, this study examined and confirmed the relationship between PMS and mindfulness as mediated by PSS and HRQoL among deaf/hard-of-hearing women.","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88586636","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What’s the ‘Problem’ with Workplace Accommodation? A Disability Policy Journey Over Time","authors":"J. S. Vedeler, C. Anvik","doi":"10.16993/sjdr.918","DOIUrl":"https://doi.org/10.16993/sjdr.918","url":null,"abstract":"","PeriodicalId":46073,"journal":{"name":"Scandinavian Journal of Disability Research","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"67470377","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}