Caroline L Roberts, Ashleigh H Avina, Frank J Symons
{"title":"A Qualitative Analysis of Family Caregiver Experiences Accessing Treatment for Self-Injurious Behavior in Individuals with Intellectual and Developmental Disabilities.","authors":"Caroline L Roberts, Ashleigh H Avina, Frank J Symons","doi":"10.1080/19315864.2023.2223546","DOIUrl":"10.1080/19315864.2023.2223546","url":null,"abstract":"<p><strong>Introduction: </strong>There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (<i>n</i>=15) was to begin to understand the treatment gap from the perspective of family caregivers.</p><p><strong>Methods: </strong>In semi-structured virtual interviews, family caregivers discussed their experiences of working with providers to treat their child's or sibling's self-injury. Through a systematic process of quasi-inductive thematic analysis, researchers transcribed and analyzed the interviews and developed a working model of treatment pathways.</p><p><strong>Results: </strong>Caregivers described many barriers to treatment access. Themes include Caregiver Driven, Importance of the Provider-Caregiver Relationship, Beliefs and Perceptions about SIB, Practical Constraints, Knowledge Gaps, and Wait Until Crisis.</p><p><strong>Conclusion: </strong>The findings highlight the power of providers to support families coping with SIB in IDD. Specific ways providers can better facilitate treatment access are suggested. Future research directions should include provider interviews and focus groups and, ultimately, the development of interventions that consider access pathways as a key feature of any effective treatment plan.</p>","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"32 1","pages":"346-368"},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11695053/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78956597","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring the impact of mental health symptoms in the workplace and supportive accommodations for young adults with intellectual/developmental disabilities and co-occurring mental health conditions.","authors":"Ariel Schwartz, E Sally Rogers","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Young adults (YA) with intellectual/developmental disabilities and co-occurring mental health conditions (MH) are underemployed. One reason may be a lack of accommodations that mitigate the impact of MH challenges at work. We explored common workplace MH impacts and supportive accommodations.</p><p><strong>Methods: </strong>Interviews with YA with intellectual/developmental disabilities and co-occurring MH conditions (<i>n</i> = 12) and focus groups with professionals who support them to attain and maintain jobs (<i>n</i> = 17). YA also completed a survey describing MH impacts and accommodations.</p><p><strong>Findings: </strong>Although individualized, common MH impacts included challenges with attendance, performing and switching between work tasks, feeling overwhelmed, and sensory overload. Participants valued breaks, individualized scheduling, and social supports. Participants endorsed the potential usefulness of several accommodations they had not previously requested.</p><p><strong>Conclusions: </strong>Accommodations should be tailored to each YA. Further, YA may benefit from education about the range of accommodations that may support them to manage their MH symptoms at work.</p>","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"17 2","pages":"83-105"},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11872229/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Review of Mental Health and Quality of Life of Adolescents with Physical, Intellectual and Developmental Disabilities: Perspectives of Parents and Children","authors":"Ali Fahad Aldakhil","doi":"10.1080/19315864.2023.2288834","DOIUrl":"https://doi.org/10.1080/19315864.2023.2288834","url":null,"abstract":"Published in Journal of Mental Health Research in Intellectual Disabilities (Ahead of Print, 2023)","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"18 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chris N.W. Geraets, Roelof Dolfijn, Lisanne M. Robbemond, Albert Scholte, Stéphanie Klein Tuente, Wim Veling
{"title":"Virtual Reality Aggression Prevention Training for People with Mild Intellectual Disabilities: A Feasibility Study","authors":"Chris N.W. Geraets, Roelof Dolfijn, Lisanne M. Robbemond, Albert Scholte, Stéphanie Klein Tuente, Wim Veling","doi":"10.1080/19315864.2023.2285043","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285043","url":null,"abstract":"Problems with adequately regulating aggression are comon in people with mild to borderline intellectual disabilities (MBID). Learning through experience has been shown to be effective in MBID. Ther...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"10873 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marisela Aguilar, Layana Sariah, Jemma Williams, Maria G. Valdovinos
{"title":"An Exploration of Challenging Behavior Associated with Down Syndrome","authors":"Marisela Aguilar, Layana Sariah, Jemma Williams, Maria G. Valdovinos","doi":"10.1080/19315864.2023.2285035","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285035","url":null,"abstract":"Introduction: Down syndrome (DS) is a developmental disability characterized by the presence of an extra chromosome, specifically Chromosome 21. Much is known about the physical and health conditio...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"66 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sanne A. H. Giesbers, Richard P. Hastings, Alexander H. C. Hendriks, Andrew Jahoda, Petri J. C. M. Embregts
{"title":"Prospective Associations Between Family-Based Social Capital, Wellbeing, and Emotional and Behavioral Problems Amongst People with Mild Intellectual Disabilities: A Two-Wave Study","authors":"Sanne A. H. Giesbers, Richard P. Hastings, Alexander H. C. Hendriks, Andrew Jahoda, Petri J. C. M. Embregts","doi":"10.1080/19315864.2023.2285036","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285036","url":null,"abstract":"Family members are often the main provider of informal support to people with mild intellectual disabilities. In the current study, we explored whether their family-based social capital is prospect...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"206 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Caregiver Concerns About, and Clinical Characteristics of, Persons Referred to a Specialized Mental Health Service for Those with Intellectual Disabilities","authors":"Donovan Seidel, John D. McLennan","doi":"10.1080/19315864.2023.2285039","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285039","url":null,"abstract":"As little is known about who uses specialty mental health clinics for persons with intellectual disabilities, this study aimed to identified caregiver concerns, clinical characteristics, and the re...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"14 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Shannon L. Stewart, Abigail Withers, Valbona Semovski, Natalia Lapshina
{"title":"Polyvictimization and Impairments in Functioning for Children and Youth with Fetal Alcohol Spectrum Disorder","authors":"Shannon L. Stewart, Abigail Withers, Valbona Semovski, Natalia Lapshina","doi":"10.1080/19315864.2023.2285040","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285040","url":null,"abstract":"Children with fetal alcohol spectrum disorder (FASD), a neurodevelopmental disorder associated with cognitive, emotional, and learning impairments have an increased likelihood of experiencing behav...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"18 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bojana Mastilo, Mirjana Đorđević, Nenad Glumbić, Haris Memisevic, Milica Pejović-Milovančević
{"title":"Differences in Social Knowledge Between Persons with Intellectual Disability and Persons with Dual Diagnoses","authors":"Bojana Mastilo, Mirjana Đorđević, Nenad Glumbić, Haris Memisevic, Milica Pejović-Milovančević","doi":"10.1080/19315864.2023.2285038","DOIUrl":"https://doi.org/10.1080/19315864.2023.2285038","url":null,"abstract":"Social knowledge is an important aspect of social cognition that pertains to broader knowledge of social concepts and norms. People with intellectual disabilities are more likely to experience ment...","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"89 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna J. Westera, M. J. van der Molen, C. Schuengel
{"title":"Basic Psychological Needs and Mental Health in Adolescents with a Mild to Borderline Intellectual Disability","authors":"Johanna J. Westera, M. J. van der Molen, C. Schuengel","doi":"10.1080/19315864.2023.2240732","DOIUrl":"https://doi.org/10.1080/19315864.2023.2240732","url":null,"abstract":"","PeriodicalId":45864,"journal":{"name":"Journal of Mental Health Research in Intellectual Disabilities","volume":"26 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2023-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78921992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}